TV programme

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Today,
was told by keyworker/one of the support staff team am have from the NAS that a certain big tv station [not sure if am able to say the name or not] is making a new programme on autism,and they've asked the NAS to ask service users who fit the profiles they want,am was told they're going to be showing people from different ends of the spectrum-they want am to show what its like living in care with autism and high complex needs,the experiences have had and just what day to day living is like.

This isn't just a stereotypical program from the sounds of it,D said it's a spectrum programme and will feature those on the opposite end as well-hf aspies who are working,uni etc,at least that is what she was told,the NAS aren't making this.

D said she and the rest of the NAS really want am to do this,as it will not only help others understand autism more,how complex it can be and how it will help other autists from anywhere on the spectrum.
She said it might even help with own situation with where am live [dont know how many times have said on here am moving to a new home and the council end up changing it] and get them to stop messing about.
So am definitely thinking about doing this,she said the people who are doing the programme understand that am would need to be introduced to them slowly over time to build up routine with them [which is good,shows some understanding] and NAS bosses and staff [am know all of them] would be coming to,dont know why.

One thing am found bad though,D said they're only looking for auties/aspies aged twenty five and under.
am fit that age [twenty five this month] but would like to know why programmes on auties/aspies are always on this age group.
it may be because the channel the programme is going to be on is for adults 'thirty or younger' but think a lot more could be gained if it did cover all age groups,plus itd help parents see autism/as outside of childhood as well.


though have got a problem with it-
when am fully non verbal and need to say more than the basics,am use the laptop TTS or just notebook if the noise from its voice is too much,speech is limited as well so how do they work with all this?
especially if it comes to using notebook and needing someone to read it.


have got to think.
what was it like for any WPers who have been on docs for autism/as before,and would those who haven't been on one-go on one?

Can't realy help you with this, but I can say if you enjoy life, or want others to know what you feel, go for it!

That is great. I don't understand the age thing either, but I'm sure they have a reason for it. It could be that they are trying to get a certain demographic to watch the show.
If asked I would go on a show like that, just as long as it helps to change people from stereotyping autism.

If I understood correctly, it seems like this is one of the better ASD media movements about to happen. The age makes sense too.

there seems to be a marked decrease in interest in AS people once they achieve pubic hair...

I've noticed that. I thinkthe main problem is that it's seen as a developmental disease right now, and the idea there's 'old' people out there with the indications hasn't really caught on yet.

Of course, there's probably a paper or two some researcher could write that might stir some interest.

I think you are right in that the age of people on the spectrum is so that it can relate to the age of demographics for their viewing target audience. If you feel comfortable doing this, then I say definitely go through with it! I would make a list of the questions that you have that you can bring to the NAS and ask them how they intend to handle the concerns that you have. That might give you some answers. Good luck.

Cool.

I'd say go for it, but as long as they show that you can and do communicate [and that you are an intelligent individual with your words no matter what your IQ is], and that they focus on what you have to say, not just how severe you are if they're looking at you as the LFA end.

As for the problem, having someone that you're comfortable with reading out your words verbally would be adequate for a filmed piece in my opinion.

When they do the show, ask for a copy of it!

Why not make a 'real' documentary of our own. I have contacts in all types of media outlets and production companies left over from the Biker Buildoff series.

thanks for replying Padium,Pensieve,ForsakenEagle,pakled,CelticGoddess,Danielismyname and garyww.

sorry not yet replied-the usual reason [s*** with answering back/direct communication and wasted the weekend away with stomach illness].


it is going to be on BBC3,but it is not the BBC making it or the NAS,am definitely going to be asking for a copy if this is still going ahead.


Danielismyname,
would using a real human saying out what am writing be better than using TTS? don't think would feel able to do it with anyone but D,and would have to hope she can be there as have got different NAS staff all week.
Am agree that they should be showing the strengths as well,and hope this doesnt turn out to be the usual bunch of stereotypes in aut/asp shows,don't think this will happen just for the reason that the NAS are going to be there,they wouldn't let it happen given that they see the strengths of even the most profoundly and MR autistic.
Also,would have to hope if GFB gets caught on it [his official home is nearby] they would blur his face and arse out,they dont know he's here as much as he is.


garyww,
though am not sure what exactly mean-something by autists/for autists? or do mean the documentary am talking about isn't real enough? if so,it will probably be one of the more real spectrum programmes out there as they're using a lot wider examples of the spectrum,and not just using one aut or asp profile to base them all on.

it sounds interesting. it's good they are looking at a wide range of people.

Having considerd this a more length I for one could not imagine anyone better suited than you are to present the case for autistic people. I greatly admire your strength and dedication to life, your wit and your intelligence and your sensitivity. I think the documentary producers can adapt to the TTL or TTS as you call it there. Thats the beauty of tape (or digital) they can make the unbelievable look believable. In some ways it is magic.
If you get the opportunity to do this then please do it.