How do I explain Asperger's Syndrome to my parents?

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the_enigma
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30 Mar 2009, 5:21 pm

I have a lot of problems with social skills and my psychiatrist diagnosed me with Asperger's Syndrome. However, I never got around to explaining this to my parents. They just know I have OCD and social anxiety. I was diagnosed with autism at around two years old and they know this, but they act as if I grew out of it and I am exaggerating my social problems.
I want to go to this program for teens and young adults with AS, LDs and social issues in general. It is a summer program where I dorm for seven weeks and learn to become independent and interact with the real world. My parents feel that it is too expensive and not worth it. They're right about the former as it is $9,300 but they're wrong about it's worth. I think they will think it's worth every cent after I improve from the program.
I've tried to get funding from my local school district, but they just gave me the run around. I was eventually led to a vocational program that takes weeks to fully register into. I'm 20-years-old and have had special ed. services before so I don't see the problem.
I tried to convince my parents that I will pay for half of it when I find a real career and I will pay a set amount every week or month with the job I currently have.
I told the program coordinator about this and she said that she is willing to talk to my parents and give them a tour of the program.
Another issue is that I have high functioning AS. What if my parents think I'm too high functioning for the program and that I'm wasting my time?
My therapist and psychiatrist think it's a GREAT idea though. My parents don't get AS and it's hard to explain it to them. I think they're in denial to some extent. What should I do?



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30 Mar 2009, 5:23 pm

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30 Mar 2009, 5:27 pm

Sometimes it is better not to discuss this with your parents as it might impose a guilt trip on them. You have to make a deep personal consideration into this matter as is it not something to be taken lightly. I waited a little to late and my father died so I finally told my mother about two years afterwards. She was in denial for a few years as many parents are but now supports me and has 'filled' in a lot of the blanks about my childhood. Think very seriously about this.


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Katie_WPG
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30 Mar 2009, 6:01 pm

the_enigma wrote:
I have a lot of problems with social skills and my psychiatrist diagnosed me with Asperger's Syndrome. However, I never got around to explaining this to my parents. They just know I have OCD and social anxiety. I was diagnosed with autism at around two years old and they know this, but they act as if I grew out of it and I am exaggerating my social problems.
I want to go to this program for teens and young adults with AS, LDs and social issues in general. It is a summer program where I dorm for seven weeks and learn to become independent and interact with the real world. My parents feel that it is too expensive and not worth it. They're right about the former as it is $9,300 but they're wrong about it's worth. I think they will think it's worth every cent after I improve from the program.
I've tried to get funding from my local school district, but they just gave me the run around. I was eventually led to a vocational program that takes weeks to fully register into. I'm 20-years-old and have had special ed. services before so I don't see the problem.
I tried to convince my parents that I will pay for half of it when I find a real career and I will pay a set amount every week or month with the job I currently have.
I told the program coordinator about this and she said that she is willing to talk to my parents and give them a tour of the program.
Another issue is that I have high functioning AS. What if my parents think I'm too high functioning for the program and that I'm wasting my time?
My therapist and psychiatrist think it's a GREAT idea though. My parents don't get AS and it's hard to explain it to them. I think they're in denial to some extent. What should I do?


Well...about the program. You have to wonder about it, really. It kind of seems like a cross between summer camp and a group home, to me.

Sometimes, the easiest way to learn about independance skills is to just do more things for yourself around the house. The skills are more relevant to your present life, and it's free. If your parents want to help you, I'm sure that they wouldn't object to letting you cook dinner twice a week or doing the weekly laundry.

What can this program teach you that your parents can't? What can it teach you that you can't learn by yourself, with practice?



the_enigma
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30 Mar 2009, 6:09 pm

I already do my own laundry and I cooked dinner yesterday. I mean stuff such as getting a real job (I work online for very little) and managing my money. I also need to learn social skills. If I could have fixed my own social skills, I wouldn't have been diagnosed with this to begin with. There must be something they could teach me that I couldn't have picked up on my own.



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30 Mar 2009, 6:25 pm

the_enigma wrote:
I want to go to this program for teens and young adults with AS, LDs and social issues in general. It is a summer program where I dorm for seven weeks and learn to become independent and interact with the real world. My parents feel that it is too expensive and not worth it. They're right about the former as it is $9,300 but they're wrong about it's worth. I think they will think it's worth every cent after I improve from the program.



whats the name of this program it sounds alot like the program i may be going to this summer and the same price even. we may be going to the same program! whats your program called mine is called Introduction to independence program at the Central Islip campus of NYIT.



the_enigma
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30 Mar 2009, 6:55 pm

That's the exact program, Ravenclawgurl. Have you ever been to it before? If so, how is it like? It seems like fun yet at the same time I will learn a lot. We're so lucky if we get to go.



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31 Mar 2009, 12:07 am

Actually, I find that the fastest and easiest way to explain it is to give them 30 minutes with "All Cats have Aspergers".

Image

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Katie_WPG
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31 Mar 2009, 8:53 am

the_enigma wrote:
I already do my own laundry and I cooked dinner yesterday. I mean stuff such as getting a real job (I work online for very little) and managing my money. I also need to learn social skills. If I could have fixed my own social skills, I wouldn't have been diagnosed with this to begin with. There must be something they could teach me that I couldn't have picked up on my own.


I only say that because I've heard of programs similar to this, but they aren't geared towards "people like you". They're geared towards young offenders and young adults with serious conduct disorders. They NEED to learn independance skills to keep them off the streets/out of jail, but they are too belligerent using the conventional methods. The parents are often at their wits end, and they can't trust them in their house anymore.

What job skills would you learn at this camp? There are many places that you could go to get tips on landing a first job and getting your resume written up, for free. Your local bank, and your parents should also be able to give you tips on money management.

Which just leaves the social skills. Problem is, learning social skills in an artificial environment isn't the best method. You do great on paper, but up against a real life person who doesn't follow "the script", it's very easy to freeze up. The unfortunate truth is that social skills is a game of trial-and-error. You need to be flexible, and expect the unexpected. Memorizing scripts won't do anything except for the most basic of small talk, and it certainly doesn't make friends. It teaches you to not outright repulse people, but it won't make you very interesting.

I just want to make sure that you consider this thoroughly before dropping nearly 10k on a program that might not work at all for you.



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31 Mar 2009, 10:10 am

the_enigma wrote:
That's the exact program, Ravenclawgurl. Have you ever been to it before? If so, how is it like? It seems like fun yet at the same time I will learn a lot. We're so lucky if we get to go.



a few years ago i applied but they decided i wanst quite ready for the the program i had problems getting up in the morning on my own and everything.

now im more mature (than i was ) and my waking up problem isnt as bad as it was before. I havent gone to the program but ive heard a lot of good things about it i found a video on youtube of someones summer there

[youtube]http://www.youtube.com/watch?v=XxjNyU-SA0c[/youtube]



but all and all it sounds like a great program the only thing i dont like is that we arent really aloud to bring money because they are going to give us a certain amount of money each week because they want to teach us how to keep a budget. i may try to sneek in a few 5 dollar bills lol



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31 Mar 2009, 10:33 am

Parents who choose denial over helping and supporting their kids with an inherited condition are not worth any of your resources - time, energy, creative problem-solving, etc. Those are better put to use in giving yourself what your denying parents deprive you of. Be careful about wasting your precious resources; you'll need every drop of them. And this is from experience, every bit of it.


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31 Mar 2009, 11:20 am

It might be easier than you think. At least your parents do acknowlege you have some problems. Mine thought it was I refused to learn to act right, was lazy, a troublemaker, etc., never that I had a problem. They thought it was something they could punish, threaten, humiliate, degrade, or scream out of me. It never worked.

At least they understand you have social anxiety. Maybe they will understand.

As for the money, for that kind of money, I can understand why they'd not want to spend it. Perhaps you can get a loan for some of it. You will have to pay interest, but it could be helpful in the long run.

I hope things work out for you.

Good luck.


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the_enigma
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31 Mar 2009, 1:56 pm

Quote:
They're geared towards young offenders and young adults with serious conduct disorders. They NEED to learn independance skills to keep them off the streets/out of jail, but they are too belligerent using the conventional methods.


It is not a juvenile detention hall or a boot camp. It has nothing to do with disciplining bad kids. As a matter of fact such kids are not allowed in the program.

I just fear that I'm too high functioning for the program and therefore will feel awkward around everyone.

Here is the program: http://www.nyit.edu/vip/



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31 Mar 2009, 6:21 pm

Quote:

I just fear that I'm too high functioning for the program and therefore will feel awkward around everyone.



if we both end up going maybe we can hang out



ThisisjusthowItalk
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31 Mar 2009, 7:34 pm

the_enigma wrote:
I have a lot of problems with social skills and my psychiatrist diagnosed me with Asperger's Syndrome. However, I never got around to explaining this to my parents. They just know I have OCD and social anxiety. I was diagnosed with autism at around two years old and they know this, but they act as if I grew out of it and I am exaggerating my social problems.
Maybe you are, but it's not a crime to try to embetter yourself. In fact, I commend it.

Quote:
I want to go to this program for teens and young adults with AS, LDs and social issues in general. It is a summer program where I dorm for seven weeks and learn to become independent and interact with the real world. My parents feel that it is too expensive and not worth it. They're right about the former as it is $9,300 but they're wrong about it's worth. I think they will think it's worth every cent after I improve from the program.
It's their money. I've found mine to be much looser with their moneybelts, however, after I have been very nice to them for several months and helped them a lot around the house. I think it also convinces them that I'm a genius. The man who doth the dishes speaketh words of eternal wisdom. Give it a try, and good luck.