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Horsa
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30 Apr 2009, 9:00 am

Aside from my own thoughts on the matter, I have a professional friend who is quite convinced that I have AS. I raised the matter with her and she told me that she'd held that view since shortly after we met. I should say that she has dealings with adults on the spectrum daily.

Her opinion is that there's little point in actually pursuing a diagnosis though, as all it will achieve is giving myself an 'official' label as opposed to a self imposed one.

Your thoughts?



Learning2Survive
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30 Apr 2009, 9:05 am

you have AS if you say you do. now you can become part of AS community and take advantage of behavior and cognitive therapy/support groups


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30 Apr 2009, 9:05 am

It all depends on whether you need help to function or not.



Danielismyname
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30 Apr 2009, 9:07 am

Learning2Survive wrote:
you have AS if you say you do.


I am god. Does that make me god?



Horsa
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30 Apr 2009, 9:17 am

Danielismyname wrote:
It all depends on whether you need help to function or not.


This was more or less her point, I've made it to (almost) 40, so....

The fact that I'm an anti-social freak with obsessions more suited to a 14 year old seems not to enter into the minds of those in healthcare.



Danielismyname
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30 Apr 2009, 9:23 am

Horsa wrote:
The fact that I'm an anti-social freak with obsessions more suited to a 14 year old seems not to enter into the minds of those in healthcare.


The word is probably asocial (anti-social tends to mean psychopathy in the context of psychology).

If you want to socialize, but can't, and you don't know the reason for such, an evaluation to determine why you can't will help (for example, is it AS, is it Social Phobia, is it such and such, and etcetera), and as for the interest, if it interferes with things you should be doing compared to your peers, i.e., you spend all of your time obsessing over your interest rather than spending time with your family.

It's ok and perfectly normal to be asocial (introversion isn't a disorder); the only thing you need to watch out for is if something happens and you have no one around to help you--so sayeth psychologists.



Horsa
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30 Apr 2009, 9:35 am

I do have one or two friends, although they tend to be far flung, I don't see them often. I do have severe difficulty bonding with people and frequently have the impression that I'm being avoided.

Maybe I'm just not a likable chap. :wink:



itsallrosie
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30 Apr 2009, 9:55 am

The most frustrating thing for me is not knowing for sure. When I tell people they always tell me I'm wrong. I find people are keen to criticise me in relation to my lack of organisation, my inability to cook or do anything practical, my monologuing and always turning the conversation to my current obsession, and they will call me a know-it-all behind my back. But it can't be anything to do with being autistic, I'm just not trying hard enough. Besides, they say, everyone stims. Everyone has problem areas. Most people forget names and faces. According to them (mostly family) I'm just too shy and anxious and need to get over it.

I'd just like to shut them up, to put it bluntly. They probably wouldn't believe it then.

I do read on forums where people celebrate their diagnosis anniversary and many feel so relieved to at last KNOW.


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30 Apr 2009, 11:14 am

itsallrosie wrote:
The most frustrating thing for me is not knowing for sure. When I tell people they always tell me I'm wrong. I find people are keen to criticise me in relation to my lack of organisation, my inability to cook or do anything practical, my monologuing and always turning the conversation to my current obsession, and they will call me a know-it-all behind my back. But it can't be anything to do with being autistic, I'm just not trying hard enough. Besides, they say, everyone stims. Everyone has problem areas. Most people forget names and faces. According to them (mostly family) I'm just too shy and anxious and need to get over it.

I'd just like to shut them up, to put it bluntly. They probably wouldn't believe it then.

I do read on forums where people celebrate their diagnosis anniversary and many feel so relieved to at last KNOW.


This is one of the reasons I have been very reluctant to tell my family and/or friends about my self-diagnosis of Asperger's. Also for health insurance reasons, I have decided not to make my diagnosis "official" - ASDs are not covered where I'm at. But I do feel a sense of relief in knowing for myself what's been going on.

Another thing to consider - a lot of people are still wrapping their heads around the idea of Autism being a spectrum disorder. Heck, I didn't even know what AS was until a couple of years ago. Come to find out it wasn't even a diagnosible condition until I was in college (the first time.)


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cyberscan
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30 Apr 2009, 11:54 am

Unless you are after specific services that require an official diagnosis, then I recommend that you keep your diagnosis unofficial if at all possible. I am diagnosed with classical autism, and I get very few services from the state.


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Horsa
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30 Apr 2009, 12:06 pm

Unfortunately I think that at times I want to be able to wave a "badge" under people's noses when they ask "What the hell's wrong with you?" (family particularly). Maybe I'm just looking for something to blame for my bouts of depression... Although I'm sweet at the moment.

On the other hand as I dabble in things like stage pyro.... People's perceptions may be badly skewed.

Maybe it's best just to stick the head down and drive on.



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30 Apr 2009, 1:42 pm

Official diagnosis serves two purposes:

1) You can know once and for all, the reasons for many of the obstacles you've had to contend with all your life, and come to a more centered understanding of who you are in relation to the world, the universe and the mass of humanity around you.

A self-diagnosis is, at the end of the day, just a guess. I think most who've sought and received the diagnosis of an experienced professional do feel there is a tremendous difference both psychological and emotional, between thinking so and knowing so.

2) Depending on the country you live in, there may be forms of disability assistance available to you, should you ever need them (just because you don't now, doesn't mean you never will). Having your disability pre-established will facilitate any dealings with bureaucracy.



KingdomOfRats
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30 Apr 2009, 2:37 pm

Horsa,
the NAS are in NI as well,so would be able to get help through them if go ahead with wanting an assessment.
it is not worth getting assessed for anything though if are not affected by it in negative ways [like Danielismyname has said],need should be higher than risk/bad side.

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Unless you are after specific services that require an official diagnosis, then I recommend that you keep your diagnosis unofficial if at all possible. I am diagnosed with classical autism, and I get very few services from the state.

it depends where live,as am a service user of a lot of specialist autism and LD based services,and know of a lot more services that anyone on the spectrum here could access if they wanted.
it's very strange that within the same country one area can have far more services than a neighbouring area,it must be the F word again [funding,not the other one].


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happypuff
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30 Apr 2009, 5:19 pm

If you can do things such as:
-have a job
-live independently
-manage money

then an official diagnosis would only ever be able to provide you with a confirmation. It is only beneficial in any other way if your daily life is a struggle and you're still dependent on others (or if you were 30 years younger). I'd say your professional friend's opinion is as good a diagnosis in that regard.



cyberscan
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30 Apr 2009, 5:27 pm

Here in Florida, it means that I do not qualify for insurance. I do get to borrow books from C.A.R.D. but that is the only advantage of having an official diagnosis.


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thejackal221
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30 Apr 2009, 5:30 pm

itsallrosie wrote:
The most frustrating thing for me is not knowing for sure. When I tell people they always tell me I'm wrong. I find people are keen to criticise me in relation to my lack of organisation, my inability to cook or do anything practical, my monologuing and always turning the conversation to my current obsession, and they will call me a know-it-all behind my back. But it can't be anything to do with being autistic, I'm just not trying hard enough. Besides, they say, everyone stims. Everyone has problem areas. Most people forget names and faces. According to them (mostly family) I'm just too shy and anxious and need to get over it.

I'd just like to shut them up, to put it bluntly. They probably wouldn't believe it then.

I do read on forums where people celebrate their diagnosis anniversary and many feel so relieved to at last KNOW.


This was exactly why I got diagnosed. Knowing has helped open a lot of doors for me. I am now able to get help with finding a job that I don't get achous at (sorry about spelling I dont have access to a spell check at my work.) also I can get help with college. Something I was scared to even think about. But again if you don't accully need help you problaly shouldn't get the diagnosis. It can look kind of bad on a resume or background check.