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seasong
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27 Jan 2016, 10:37 am

Hello, all. My neuropsychologist is evaluating me for ASD and he gave me the C.A.R.S. and ASDS questionnaires to complete. I am a bit confused because I am 37 and these screening tools are for children. He said to complete them based on how I remember myself as a child. Was anyone else diagnosed as an adult this way? Are there other screening tools out there for adults? Thanks!



ASPartOfMe
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27 Jan 2016, 3:51 pm

ADOS-2 Module 4 is for verbally fluent teenagers and adults


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Cyllya1
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27 Jan 2016, 11:37 pm

The kid questionaires make sense in addition to other things like ADOS. (I'm not a huge fan of ADOS for adults, but it's pretty standard.)


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Chickadeesingingonthewrongplanet
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09 Feb 2016, 1:54 pm

I just had ADOS-2 and the long interview (can't remember what it's called). The ADOS was weird, but I can see how it is very clever, to get you to demonstrate behaviours or reactions rather than just answering.

I did not want to involve parents (a number of issues which the screening people seemed to respect when I explained them).

I hear of others in the UK who got a diagnosis without having the whole parental questionnaire/interview, though I have the impression that the place I went may not be able to give a diagnosis without that. I'm a bit bothered about this.

What experiences have you had with either:
having your parents interrogated for the diagnosis?
Or with an assessment where you did not have that? I see that the UK NICE guidelines do not actually require the parent/carer information input.



seasong
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Joined: 27 Jan 2016
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10 Feb 2016, 9:48 am

Thank you all! I did finally get my diagnosis yesterday. My neuropsychologist based it on the ASDS and CARS, and interviewing me about stims, echolalia, and such. I would have been curious to see how I did on the ADOS others mentioned. My neuropsych has known me for about a year and already suspected that I may have Aspergers and he was also able to point out other traits I have that made the diagnosis likely. In the past I've been diagnosed with depression, generalized anxiety, social anxiety, and ADHD, which all made sense at the time. But I've always known there was something else underlying all of that and I feel like now things finally fit together better.

Chickadee, I did not have my parents involved in the interview. (I am in the US so not sure if the guidelines are different here.) My dad and nephew both have ASD traits in my opinion, but my parents have always been hesitant to let others "label" me even when teachers pointed out my hand flapping and muteness to them. I have not told them about the diagnosis yet. I think there may initially be some denial when I do tell them. I don't think that in my case it would have been a good idea to have them involved in the diagnostic process but I can see how parental opinions would be useful. Good luck to you! Keep us posted on how it all works out for you.



ASPartOfMe
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11 Feb 2016, 7:38 am

I hope this diagnosis is helful for you and I am glad you finally have your suspicions confirmed.


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“My autism is not a superpower. It also isn’t some kind of god-forsaken, endless fountain of suffering inflicted on my family. It’s just part of who I am as a person”. - Sara Luterman