What did diagnosis bring you?
04 Nov 2019, 6:30 pm
Diagnosis has brought me understanding, naturally. Now I know I'm different and why, and I don't feel I have to try as hard to fit in with the NT world. I recently realized, however, that diagnosis has thrown into relief my AS-influenced words and behavior, not only currently but retrospectively.
If, prior to diagnosis, I viewed various awkward and confusing events of my life like features on a flat, contoured topographical map, post-diagnosis I have a heightened awareness of those events, as if the formerly flat map is now in three dimensions.
Understanding has brought some self-acceptance, but awareness has brought some discontent.
Regardless, I'm very glad to have been diagnosed.
04 Nov 2019, 6:50 pm
Arx wrote:
Hello Mountain Goat. It does sound as though you’ve been through the wars. It’s a story that must have resonance for a lot of people here; not least the OP.
And it does tire me when every website provides some glib disclaimer that if in doubt you should ‘see your doctor’ etc.. As if that would necessarily solve everything.
Unfortunately, medical services tend to be about money or triage. If you don’t have the first then it tends to be a matter of “Good news, Sir, it’s serious!”, because if it’s not something recognisable, urgent, life-threatening or straightforward then, like a lot of people, on the spectrum or otherwise, you may just be left in some sort of protracted limbo, or given some pills to go away with.
Bless them, if they’re not actually dismissive, then doctors often don’t like you to leave entirely empty-handed. I’m shocked at the proportion of the UK population that is on pills for depression and a lot of them are probably understandably depressed only because they can’t get answers. Public services can be pretty bad at hand-holding and psychological support - unless some tragedy has wised them up, and then it can be excruciating.
And, if you can’t quite put your finger on what the problem is - an awful lot of significant things can be surprisingly hard to communicate persuasively in a busy doctor’s surgery – then you may not get past first base. So much of it is a lottery. Is the person you consult the right person? Are they paying attention?, qualified?, interested? Is today just a bad day? We may only get one shot, and not everyone can see Prof. Simon Baron-Cohen. Do we feel lucky?
Public provision for burgeoning special needs and other chronic problems is systemically flawed and inadequate. And it doesn’t help that the job market for most people can be a picky, prejudiced and pitiless place.
These are some of the things that certainly bring out what I think may be the Aspie in me, to want to sort it out, tidy it up and make it work. This ought to be a win-win proposition for society: help people to lead richer, fulfilling and more productive lives.
You have to have some sympathy with the medical services though, because Prosopagnosia (face-blindness) and Alexithymia (emotion-blindness) can be hard to spot, even in ourselves. If you’ve always seen something one way it’s hard to know that other people see it completely differently, and this applies to doctors and their patients, too.
For instance, I was 21 and had driven in the UK and US before I realised I really needed glasses! If a simple safety-critical vision defect can slip through, then how much more tricky are many borderline autistic spectrum disorders? Oh, I could read a number plate at the requisite distance, but it was a revelation when I got my first glasses. Suddenly I understood why my old art teacher had criticised my observation of cloud effects and why it was that photos always looked so much crisper to me than the real thing!
It really isn’t that hard to get an eye-test, but first you have to know that you need one. On the other hand, it is not that easy to accept that you need a psych-test, let alone get one or even know which one you need. And ASD issues are not always as straightforward as noticing that your friends can tell you which number bus is coming before you’re quite sure it’s even a bus! Then there are all the stages of ‘grieving’ to go through when you finally get close to having a diagnosis.
I thought I had read quite a bit about autism over decades but until you mentioned it I don’t remember hearing about ‘shutdowns’, and now I come to look it up it strikes a childhood chord with me, too.
It really shouldn’t be this hard. I am delighted that your almost chance encounter with some people at an open day who knew what you were on about provided not just an epiphany but some tangible, if transient, help. But what a palaver! And what about all those years spent wondering?
Thank you for sharing your experience. It ought to encourage the OP, and anyone else, who has misgivings about pursuing their enquiries and diagnosis to redouble their efforts, for their own peace of mind and to bring practical changes to make their own lives and those of their loved ones clearer and a little easier to cope with.
And it does tire me when every website provides some glib disclaimer that if in doubt you should ‘see your doctor’ etc.. As if that would necessarily solve everything.
Unfortunately, medical services tend to be about money or triage. If you don’t have the first then it tends to be a matter of “Good news, Sir, it’s serious!”, because if it’s not something recognisable, urgent, life-threatening or straightforward then, like a lot of people, on the spectrum or otherwise, you may just be left in some sort of protracted limbo, or given some pills to go away with.
Bless them, if they’re not actually dismissive, then doctors often don’t like you to leave entirely empty-handed. I’m shocked at the proportion of the UK population that is on pills for depression and a lot of them are probably understandably depressed only because they can’t get answers. Public services can be pretty bad at hand-holding and psychological support - unless some tragedy has wised them up, and then it can be excruciating.
And, if you can’t quite put your finger on what the problem is - an awful lot of significant things can be surprisingly hard to communicate persuasively in a busy doctor’s surgery – then you may not get past first base. So much of it is a lottery. Is the person you consult the right person? Are they paying attention?, qualified?, interested? Is today just a bad day? We may only get one shot, and not everyone can see Prof. Simon Baron-Cohen. Do we feel lucky?
Public provision for burgeoning special needs and other chronic problems is systemically flawed and inadequate. And it doesn’t help that the job market for most people can be a picky, prejudiced and pitiless place.
These are some of the things that certainly bring out what I think may be the Aspie in me, to want to sort it out, tidy it up and make it work. This ought to be a win-win proposition for society: help people to lead richer, fulfilling and more productive lives.
You have to have some sympathy with the medical services though, because Prosopagnosia (face-blindness) and Alexithymia (emotion-blindness) can be hard to spot, even in ourselves. If you’ve always seen something one way it’s hard to know that other people see it completely differently, and this applies to doctors and their patients, too.
For instance, I was 21 and had driven in the UK and US before I realised I really needed glasses! If a simple safety-critical vision defect can slip through, then how much more tricky are many borderline autistic spectrum disorders? Oh, I could read a number plate at the requisite distance, but it was a revelation when I got my first glasses. Suddenly I understood why my old art teacher had criticised my observation of cloud effects and why it was that photos always looked so much crisper to me than the real thing!
It really isn’t that hard to get an eye-test, but first you have to know that you need one. On the other hand, it is not that easy to accept that you need a psych-test, let alone get one or even know which one you need. And ASD issues are not always as straightforward as noticing that your friends can tell you which number bus is coming before you’re quite sure it’s even a bus! Then there are all the stages of ‘grieving’ to go through when you finally get close to having a diagnosis.
I thought I had read quite a bit about autism over decades but until you mentioned it I don’t remember hearing about ‘shutdowns’, and now I come to look it up it strikes a childhood chord with me, too.
It really shouldn’t be this hard. I am delighted that your almost chance encounter with some people at an open day who knew what you were on about provided not just an epiphany but some tangible, if transient, help. But what a palaver! And what about all those years spent wondering?
Thank you for sharing your experience. It ought to encourage the OP, and anyone else, who has misgivings about pursuing their enquiries and diagnosis to redouble their efforts, for their own peace of mind and to bring practical changes to make their own lives and those of their loved ones clearer and a little easier to cope with.
You mention eye test. I have never had one with an optician in my life. They always are a bit too expensive. When I worked on the railways we had to do a colour blind test before I started the job, and we had to read that chart thing on the wall with letters on it about once every 5 years when we had a medical. But never have had a proper eye test. My eyesight has deteriated a bit the last couple of years.
Now I am claiming a type of benefit I am hoping that I can get an eye test. My Mum is going to find out. I am fine for distant things. It is close up things that are harder to focus on. Never used to get any problems.
Teach51
Veteran
Joined: 28 Jan 2019
Gender: Female
Posts: 2,808
Location: Where angels do not fear to tread.
05 Nov 2019, 6:24 am
Mountain Goat wrote:
Arx wrote:
Hello Mountain Goat. It does sound as though you’ve been through the wars. It’s a story that must have resonance for a lot of people here; not least the OP.
And it does tire me when every website provides some glib disclaimer that if in doubt you should ‘see your doctor’ etc.. As if that would necessarily solve everything.
Unfortunately, medical services tend to be about money or triage. If you don’t have the first then it tends to be a matter of “Good news, Sir, it’s serious!”, because if it’s not something recognisable, urgent, life-threatening or straightforward then, like a lot of people, on the spectrum or otherwise, you may just be left in some sort of protracted limbo, or given some pills to go away with.
Bless them, if they’re not actually dismissive, then doctors often don’t like you to leave entirely empty-handed. I’m shocked at the proportion of the UK population that is on pills for depression and a lot of them are probably understandably depressed only because they can’t get answers. Public services can be pretty bad at hand-holding and psychological support - unless some tragedy has wised them up, and then it can be excruciating.
And, if you can’t quite put your finger on what the problem is - an awful lot of significant things can be surprisingly hard to communicate persuasively in a busy doctor’s surgery – then you may not get past first base. So much of it is a lottery. Is the person you consult the right person? Are they paying attention?, qualified?, interested? Is today just a bad day? We may only get one shot, and not everyone can see Prof. Simon Baron-Cohen. Do we feel lucky?
Public provision for burgeoning special needs and other chronic problems is systemically flawed and inadequate. And it doesn’t help that the job market for most people can be a picky, prejudiced and pitiless place.
These are some of the things that certainly bring out what I think may be the Aspie in me, to want to sort it out, tidy it up and make it work. This ought to be a win-win proposition for society: help people to lead richer, fulfilling and more productive lives.
You have to have some sympathy with the medical services though, because Prosopagnosia (face-blindness) and Alexithymia (emotion-blindness) can be hard to spot, even in ourselves. If you’ve always seen something one way it’s hard to know that other people see it completely differently, and this applies to doctors and their patients, too.
For instance, I was 21 and had driven in the UK and US before I realised I really needed glasses! If a simple safety-critical vision defect can slip through, then how much more tricky are many borderline autistic spectrum disorders? Oh, I could read a number plate at the requisite distance, but it was a revelation when I got my first glasses. Suddenly I understood why my old art teacher had criticised my observation of cloud effects and why it was that photos always looked so much crisper to me than the real thing!
It really isn’t that hard to get an eye-test, but first you have to know that you need one. On the other hand, it is not that easy to accept that you need a psych-test, let alone get one or even know which one you need. And ASD issues are not always as straightforward as noticing that your friends can tell you which number bus is coming before you’re quite sure it’s even a bus! Then there are all the stages of ‘grieving’ to go through when you finally get close to having a diagnosis.
I thought I had read quite a bit about autism over decades but until you mentioned it I don’t remember hearing about ‘shutdowns’, and now I come to look it up it strikes a childhood chord with me, too.
It really shouldn’t be this hard. I am delighted that your almost chance encounter with some people at an open day who knew what you were on about provided not just an epiphany but some tangible, if transient, help. But what a palaver! And what about all those years spent wondering?
Thank you for sharing your experience. It ought to encourage the OP, and anyone else, who has misgivings about pursuing their enquiries and diagnosis to redouble their efforts, for their own peace of mind and to bring practical changes to make their own lives and those of their loved ones clearer and a little easier to cope with.
And it does tire me when every website provides some glib disclaimer that if in doubt you should ‘see your doctor’ etc.. As if that would necessarily solve everything.
Unfortunately, medical services tend to be about money or triage. If you don’t have the first then it tends to be a matter of “Good news, Sir, it’s serious!”, because if it’s not something recognisable, urgent, life-threatening or straightforward then, like a lot of people, on the spectrum or otherwise, you may just be left in some sort of protracted limbo, or given some pills to go away with.
Bless them, if they’re not actually dismissive, then doctors often don’t like you to leave entirely empty-handed. I’m shocked at the proportion of the UK population that is on pills for depression and a lot of them are probably understandably depressed only because they can’t get answers. Public services can be pretty bad at hand-holding and psychological support - unless some tragedy has wised them up, and then it can be excruciating.
And, if you can’t quite put your finger on what the problem is - an awful lot of significant things can be surprisingly hard to communicate persuasively in a busy doctor’s surgery – then you may not get past first base. So much of it is a lottery. Is the person you consult the right person? Are they paying attention?, qualified?, interested? Is today just a bad day? We may only get one shot, and not everyone can see Prof. Simon Baron-Cohen. Do we feel lucky?
Public provision for burgeoning special needs and other chronic problems is systemically flawed and inadequate. And it doesn’t help that the job market for most people can be a picky, prejudiced and pitiless place.
These are some of the things that certainly bring out what I think may be the Aspie in me, to want to sort it out, tidy it up and make it work. This ought to be a win-win proposition for society: help people to lead richer, fulfilling and more productive lives.
You have to have some sympathy with the medical services though, because Prosopagnosia (face-blindness) and Alexithymia (emotion-blindness) can be hard to spot, even in ourselves. If you’ve always seen something one way it’s hard to know that other people see it completely differently, and this applies to doctors and their patients, too.
For instance, I was 21 and had driven in the UK and US before I realised I really needed glasses! If a simple safety-critical vision defect can slip through, then how much more tricky are many borderline autistic spectrum disorders? Oh, I could read a number plate at the requisite distance, but it was a revelation when I got my first glasses. Suddenly I understood why my old art teacher had criticised my observation of cloud effects and why it was that photos always looked so much crisper to me than the real thing!
It really isn’t that hard to get an eye-test, but first you have to know that you need one. On the other hand, it is not that easy to accept that you need a psych-test, let alone get one or even know which one you need. And ASD issues are not always as straightforward as noticing that your friends can tell you which number bus is coming before you’re quite sure it’s even a bus! Then there are all the stages of ‘grieving’ to go through when you finally get close to having a diagnosis.
I thought I had read quite a bit about autism over decades but until you mentioned it I don’t remember hearing about ‘shutdowns’, and now I come to look it up it strikes a childhood chord with me, too.
It really shouldn’t be this hard. I am delighted that your almost chance encounter with some people at an open day who knew what you were on about provided not just an epiphany but some tangible, if transient, help. But what a palaver! And what about all those years spent wondering?
Thank you for sharing your experience. It ought to encourage the OP, and anyone else, who has misgivings about pursuing their enquiries and diagnosis to redouble their efforts, for their own peace of mind and to bring practical changes to make their own lives and those of their loved ones clearer and a little easier to cope with.
You mention eye test. I have never had one with an optician in my life. They always are a bit too expensive. When I worked on the railways we had to do a colour blind test before I started the job, and we had to read that chart thing on the wall with letters on it about once every 5 years when we had a medical. But never have had a proper eye test. My eyesight has deteriated a bit the last couple of years.
Now I am claiming a type of benefit I am hoping that I can get an eye test. My Mum is going to find out. I am fine for distant things. It is close up things that are harder to focus on. Never used to get any problems.
Isn't it possible to get a free eye test through the NHS MG? Could you find out about that? In my country opticians give a free eye test, also eye doctors.
_________________
My best will just have to be good enough.
05 Nov 2019, 8:12 am
Teach51 wrote:
Mountain Goat wrote:
Arx wrote:
Hello Mountain Goat. It does sound as though you’ve been through the wars. It’s a story that must have resonance for a lot of people here; not least the OP.
And it does tire me when every website provides some glib disclaimer that if in doubt you should ‘see your doctor’ etc.. As if that would necessarily solve everything.
Unfortunately, medical services tend to be about money or triage. If you don’t have the first then it tends to be a matter of “Good news, Sir, it’s serious!”, because if it’s not something recognisable, urgent, life-threatening or straightforward then, like a lot of people, on the spectrum or otherwise, you may just be left in some sort of protracted limbo, or given some pills to go away with.
Bless them, if they’re not actually dismissive, then doctors often don’t like you to leave entirely empty-handed. I’m shocked at the proportion of the UK population that is on pills for depression and a lot of them are probably understandably depressed only because they can’t get answers. Public services can be pretty bad at hand-holding and psychological support - unless some tragedy has wised them up, and then it can be excruciating.
And, if you can’t quite put your finger on what the problem is - an awful lot of significant things can be surprisingly hard to communicate persuasively in a busy doctor’s surgery – then you may not get past first base. So much of it is a lottery. Is the person you consult the right person? Are they paying attention?, qualified?, interested? Is today just a bad day? We may only get one shot, and not everyone can see Prof. Simon Baron-Cohen. Do we feel lucky?
Public provision for burgeoning special needs and other chronic problems is systemically flawed and inadequate. And it doesn’t help that the job market for most people can be a picky, prejudiced and pitiless place.
These are some of the things that certainly bring out what I think may be the Aspie in me, to want to sort it out, tidy it up and make it work. This ought to be a win-win proposition for society: help people to lead richer, fulfilling and more productive lives.
You have to have some sympathy with the medical services though, because Prosopagnosia (face-blindness) and Alexithymia (emotion-blindness) can be hard to spot, even in ourselves. If you’ve always seen something one way it’s hard to know that other people see it completely differently, and this applies to doctors and their patients, too.
For instance, I was 21 and had driven in the UK and US before I realised I really needed glasses! If a simple safety-critical vision defect can slip through, then how much more tricky are many borderline autistic spectrum disorders? Oh, I could read a number plate at the requisite distance, but it was a revelation when I got my first glasses. Suddenly I understood why my old art teacher had criticised my observation of cloud effects and why it was that photos always looked so much crisper to me than the real thing!
It really isn’t that hard to get an eye-test, but first you have to know that you need one. On the other hand, it is not that easy to accept that you need a psych-test, let alone get one or even know which one you need. And ASD issues are not always as straightforward as noticing that your friends can tell you which number bus is coming before you’re quite sure it’s even a bus! Then there are all the stages of ‘grieving’ to go through when you finally get close to having a diagnosis.
I thought I had read quite a bit about autism over decades but until you mentioned it I don’t remember hearing about ‘shutdowns’, and now I come to look it up it strikes a childhood chord with me, too.
It really shouldn’t be this hard. I am delighted that your almost chance encounter with some people at an open day who knew what you were on about provided not just an epiphany but some tangible, if transient, help. But what a palaver! And what about all those years spent wondering?
Thank you for sharing your experience. It ought to encourage the OP, and anyone else, who has misgivings about pursuing their enquiries and diagnosis to redouble their efforts, for their own peace of mind and to bring practical changes to make their own lives and those of their loved ones clearer and a little easier to cope with.
And it does tire me when every website provides some glib disclaimer that if in doubt you should ‘see your doctor’ etc.. As if that would necessarily solve everything.
Unfortunately, medical services tend to be about money or triage. If you don’t have the first then it tends to be a matter of “Good news, Sir, it’s serious!”, because if it’s not something recognisable, urgent, life-threatening or straightforward then, like a lot of people, on the spectrum or otherwise, you may just be left in some sort of protracted limbo, or given some pills to go away with.
Bless them, if they’re not actually dismissive, then doctors often don’t like you to leave entirely empty-handed. I’m shocked at the proportion of the UK population that is on pills for depression and a lot of them are probably understandably depressed only because they can’t get answers. Public services can be pretty bad at hand-holding and psychological support - unless some tragedy has wised them up, and then it can be excruciating.
And, if you can’t quite put your finger on what the problem is - an awful lot of significant things can be surprisingly hard to communicate persuasively in a busy doctor’s surgery – then you may not get past first base. So much of it is a lottery. Is the person you consult the right person? Are they paying attention?, qualified?, interested? Is today just a bad day? We may only get one shot, and not everyone can see Prof. Simon Baron-Cohen. Do we feel lucky?
Public provision for burgeoning special needs and other chronic problems is systemically flawed and inadequate. And it doesn’t help that the job market for most people can be a picky, prejudiced and pitiless place.
These are some of the things that certainly bring out what I think may be the Aspie in me, to want to sort it out, tidy it up and make it work. This ought to be a win-win proposition for society: help people to lead richer, fulfilling and more productive lives.
You have to have some sympathy with the medical services though, because Prosopagnosia (face-blindness) and Alexithymia (emotion-blindness) can be hard to spot, even in ourselves. If you’ve always seen something one way it’s hard to know that other people see it completely differently, and this applies to doctors and their patients, too.
For instance, I was 21 and had driven in the UK and US before I realised I really needed glasses! If a simple safety-critical vision defect can slip through, then how much more tricky are many borderline autistic spectrum disorders? Oh, I could read a number plate at the requisite distance, but it was a revelation when I got my first glasses. Suddenly I understood why my old art teacher had criticised my observation of cloud effects and why it was that photos always looked so much crisper to me than the real thing!
It really isn’t that hard to get an eye-test, but first you have to know that you need one. On the other hand, it is not that easy to accept that you need a psych-test, let alone get one or even know which one you need. And ASD issues are not always as straightforward as noticing that your friends can tell you which number bus is coming before you’re quite sure it’s even a bus! Then there are all the stages of ‘grieving’ to go through when you finally get close to having a diagnosis.
I thought I had read quite a bit about autism over decades but until you mentioned it I don’t remember hearing about ‘shutdowns’, and now I come to look it up it strikes a childhood chord with me, too.
It really shouldn’t be this hard. I am delighted that your almost chance encounter with some people at an open day who knew what you were on about provided not just an epiphany but some tangible, if transient, help. But what a palaver! And what about all those years spent wondering?
Thank you for sharing your experience. It ought to encourage the OP, and anyone else, who has misgivings about pursuing their enquiries and diagnosis to redouble their efforts, for their own peace of mind and to bring practical changes to make their own lives and those of their loved ones clearer and a little easier to cope with.
You mention eye test. I have never had one with an optician in my life. They always are a bit too expensive. When I worked on the railways we had to do a colour blind test before I started the job, and we had to read that chart thing on the wall with letters on it about once every 5 years when we had a medical. But never have had a proper eye test. My eyesight has deteriated a bit the last couple of years.
Now I am claiming a type of benefit I am hoping that I can get an eye test. My Mum is going to find out. I am fine for distant things. It is close up things that are harder to focus on. Never used to get any problems.
Isn't it possible to get a free eye test through the NHS MG? Could you find out about that? In my country opticians give a free eye test, also eye doctors.
Only pensioners and those on certain benefits can get free eye tests. Is the same as dentists. Even when I had no income I had to pay. I had to sell my trains to get a check up etc.
Now I am officially on a benefit, I might be able to have my eyes tested...
05 Nov 2019, 10:32 am
Thanks all; it certainly illustrates my point that getting a sight-test is straightforward, by comparison with a psych-test, when even getting a sight-test may be prohibitively costly/difficult.
I agree, MG, that you very likely qualify for a free examination (https://www.nhs.uk/using-the-nhs/help-w ... -vouchers/).
You can get this at any properly equipped optician, and the NHS will pick up the tab if you're on most benefits; as they also will if you or a close relative (like a deceased parent...) were ever diagnosed with e.g. glaucoma.
If the optician prescribes glasses (and, of course the incentive for them in providing loss-leading eye-tests is to do so) make very sure you don't leave the shop before you have your full prescription in your hand. You want to have a think...
If they prescribe bi/vari-focals you should also ask them for the interocular or Pupillary Distance (PD) measurement.
They are not legally obliged to give you this one - indeed their professional bodies (GOC and CoO) advise them not to - but it's worth a try, because it's a measurement you'll need- especially to buy other than simple glasses online - and it really needs to be done by a dispensing optometrist rather than by you with a mirror and a ruler (trust me!).
You can even have a go at an online test to see if there is anything obviously amiss (e.g. https://www.essilor.com/en/vision-tests ... ur-vision/, https://www.rodenstok.com/uk/en/online-eye-test.html).
A proper eye examination is much more valuable and important for general health than those routine tests you and I had at school or work, where you passed almost if you could see the wall with the letters on it.
Some doctors claim that they can diagnose an awful lot just by looking at your eyes.
And, to the OP's point, in the case of my dyspraxic/dyslexic daughter, a lot of the benefit of diagnosis, apart from putting a name to a number of seemingly unrelated problems, was making simple, effective changes to lighting intensity, light colour, paper/media background colour and using special prescription spectacles, to slow down word-scanning in reading etc..
l describe these things only because they are analogous to, and likely to be more straightforward than, the process of HFA diagnosis and remediation.
However, it may even be that, in the nature of all spectrum disorders, there are other comorbidities, including optical pathologies present, or that wholly incidental sight problems are exacerbating an underlying problem.
So, getting your eyesight tested, and re-tested regularly, is as good a place to start for general health as it is as a warm up to subsequent tests for ASD.
No one's going to be much good at remembering faces or reading emotions if they can't see faces and expressions properly!
_________________
Every worthwhile human being will instinctively aspire after a secret citadel where he is set free from the crowd, the many, the majority...
Friedrich Nietzsche
07 Nov 2019, 10:20 am
Pickk wrote:
Hi community. I am new here. I am reaching out for help.
I am french, 30, female, and want to know what you think about your own story.
Thanks for your answers, they will be read with attention and gratefullness ! Thanks community. Sorry if I may not be an aspie.
Thanks
Vero
I am french, 30, female, and want to know what you think about your own story.
Thanks for your answers, they will be read with attention and gratefullness ! Thanks community. Sorry if I may not be an aspie.
Thanks
Vero
Hello Vero (Pickk),
I have come across a site which is probably old news to many people on this one but, like you, I am in a bit of a quandary and have found its blog and board dicussing 'Hidden Asperger's' to be a revelation: http://www.aspiestrategy.com/2012/05/hi ... dults.html.
Just researching Asperger's/Schizoid PD/HFA/ASD and E-S Theory a bit over the past few days has been enormously helpful to me.
I am sleeping better, feel more relaxed, less anxious and preoccupied with the past (everything is relative!), can see that things were often unfair but not really my fault (I always thought that Robin William's "It's not your fault' bit in Good Will Hunting was a little overdone, till now), and am, I hope, better able to look forward now.
And I'm still not diagnosed...
You may be interested in just one of many posts in response to the original blog article, which addresses the benefit of diagnosis.
I append the post below and commend the website to you and to anyone looking for answers, or just a connection which rings true with a wider, unsuspected community.
Megan140 said...
"Navigating minefields" I like it. It describes how each day feels pretty accurately. I learned to hide it so well without even realizing it that it took someone whose child is autistic to notice something was off when I started living with my dad and her. Thankfully, my dad started paying attention and helped me get an official diagnosis (my G.P. said an official diagnosis wouldn't help and should just join a club or something...I think it's time for a new doctor).
Since receiving the diagnosis, I've paid attention to my reactions to people and their reactions to me and just why I need so much recharging time. I learned to read between the lines (most of the time), what topics are safe to talk about, keep my opinions to myself around acquaintances, act outgoing, and smile a lot. I'm glad that I'm not the only one who does this and it's nice to know that my recharge time isn't 100% because of my introverted personality.
August 25, 2015 at 10:40 PM
Kind regards,
M
_________________
Every worthwhile human being will instinctively aspire after a secret citadel where he is set free from the crowd, the many, the majority...
Friedrich Nietzsche
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