Page 2 of 2 [ 28 posts ]  Go to page Previous  1, 2

pandd
Veteran
Veteran

User avatar

Joined: 15 Jul 2006
Age: 51
Gender: Female
Posts: 2,430

18 Mar 2010, 8:21 pm

roguetech wrote:
If you're looking for therapy, shop around for a therapists who doesn't care what you're diagnosed as (recognizing Dx's are mostly pointless).

This is completely false and dangerously misleading. Failure to recognize and take into account differences arising as a result of an ASD, and delivering care and services appropriate to the needs and characteristics that arise in the course of ASDs, consitutes a significant risk to both the effectiveness of any treatment and (very significantly) to the health and well-being of the patient concerned.



roguetech
Deinonychus
Deinonychus

User avatar

Joined: 13 Feb 2008
Age: 51
Gender: Male
Posts: 359
Location: Climax

18 Mar 2010, 8:49 pm

pandd wrote:
roguetech wrote:
If you're looking for therapy, shop around for a therapists who doesn't care what you're diagnosed as (recognizing Dx's are mostly pointless).

This is completely false and dangerously misleading. Failure to recognize and take into account differences arising as a result of an ASD, and delivering care and services appropriate to the needs and characteristics that arise in the course of ASDs, consitutes a significant risk to both the effectiveness of any treatment and (very significantly) to the health and well-being of the patient concerned.
What I meant is that you should shop around for a therapist who doesn't blindly accept past Dx's as absolute. If you have many/most ASD traits, then finding a therapist with ASD experience is obviously wise. A good therapist will only use a Dx as a starting point. I believe a good therapist should accept your opinion you have ASD, ASD triats, and/or more importantly issues that are associated with ASD. Also, if you've had therapy in the past, a therapist should familiarize themselves with the notes/roeports from that, making a Dx supperfulous.



TenisuBaka
Tufted Titmouse
Tufted Titmouse

User avatar

Joined: 10 Feb 2010
Age: 47
Gender: Male
Posts: 28

19 Mar 2010, 2:01 am

I want to get properly diagnosed so I don't waste time when learning coping strategies. I also don't want to constantly second-guess myself if I really have something or not. If I have it, then I want to focus on what I can do for that. If I don't have it, then I want to know why I seem to have it (why I scored so highly on the internet tests), and then focus on what I can do for whatever that is. To use your words, the label itself is of course pointless, just a means to an end, which is knowing myself better, or rather how the rest of the world perceives me, and then increasing the quality of my life within the bounds of my personal code.



bee33
Veteran
Veteran

User avatar

Joined: 19 Apr 2008
Age: 60
Gender: Female
Posts: 3,584

19 Mar 2010, 4:56 am

TenisuBaka, I completely agree with you.

What I have found with therapy is that most therapists are unfamiliar with AS and they will not accept the possibility that AS might be an issue in someone's life. This has been very damaging, even making my situation worse. Whenever I said something to the therapist like I have trouble talking to people, she thought I just needed reassurance, and she told me I was doing just fine talking to her. But I don't need reassurance, I need actual information and strategies. Her "reassurances" actually shut me down, like she was saying, "You're not allowed to have this problem." And because she thought I was depressed, she encouraged me to go out and spend time with people, which is one of the things I find most stressful, so her advice increased my anxiety rather than relieving it.

Psychotherapy is based on an assumption that people act and react in predictable ways, and the therapist's job is to subtly get the patient to let go of his/her negative beliefs and insecurities in order to become freer to act without being burdened by distorted and negative thinking. But that doesn't work if the patient's thinking is due to a different brain makeup, and can actually do more harm than good, like not recognizing that someone has a broken leg and encouraging them to take up daily jogging.

So I don't think that getting a diagnosis is at all pointless.



roguetech
Deinonychus
Deinonychus

User avatar

Joined: 13 Feb 2008
Age: 51
Gender: Male
Posts: 359
Location: Climax

19 Mar 2010, 5:03 am

TenisuBaka wrote:
I want to get properly diagnosed so I don't waste time when learning coping strategies. I also don't want to constantly second-guess myself if I really have something or not. If I have it, then I want to focus on what I can do for that. If I don't have it, then I want to know why I seem to have it (why I scored so highly on the internet tests), and then focus on what I can do for whatever that is. To use your words, the label itself is of course pointless, just a means to an end, which is knowing myself better, or rather how the rest of the world perceives me, and then increasing the quality of my life within the bounds of my personal code.
I can understand where you're coming from, but it brings to mind demands my ex-wife made for us to get back together. Two of them were that I get diagnosed with AS and to get therapy for AS. If these had been the more reasonible of the demands, I would probably have agreed, but any rate... I asked what she would do if I were not ASD, and she responded that then I was just an ass faking it. So she wanted me to be AS, but wanted me to get fixed. Naturally, my responce was that I am who I am, irregardless of what a therapist said about whether I match some criteria in the DSM IV (and that anything addressed in therapy would be more efficatively addressed in couples counseling). You could be diagnosed "Aspergian" or "Martian", and it wouldn't make any difference as to the issues that affect your quality of life. My point is, I believe, the first step is to recognize who you are, and accept who you are. For me, learning of AS helped in realizing who I am, in that I could look at a list of traits, and see that they were related... And that was who I am. These oddities about me are not "flaws", but personality traits. Whether or not I have them strongly enough, or enough of them, to be clinically considered AS makes no difference to me what-so-ever. If being diagnosed is a step you feel you must take for your own journey, I can sort of understand that.



TenisuBaka
Tufted Titmouse
Tufted Titmouse

User avatar

Joined: 10 Feb 2010
Age: 47
Gender: Male
Posts: 28

19 Mar 2010, 6:43 am

Hey Rogue,

I can understand your feelings. I certainly felt more like that when I was younger, and I sure as hell wouldn't do anything due to an ultimatum given by some woman (why I longer have a relationship with my mother). I am not doing this for anyone, nor to prove anything to anyone, or find an excuse to give to anyone. This has absolutely nothing to do with anyone else. I am married, but my wife kinda has a similar attitude as yours. She didn't really know about AS nor considered that I might have it, but she is already quite familiar with me and my 'quirks' as it were, and accepts me, yet always positively pushes me into the right direction to survive in society. But as much as she has been able to do for me, I still want professional guidance if I can find it. As you said, I would like to learn about myself more. And then I would like to better myself. I have always been one to better myself. If I suddenly had an accident and lost the ability to walk, I would never give up trying to walk again, and at the same time, would always try to push myself to new limits with the new boundaries of my current physical condition in that state.

I also still don't really know too much about all of this. Maybe after I do, I might feel the same as what you said in this line:

Whether or not I have them strongly enough, or enough of them, to be clinically considered AS makes no difference to me what-so-ever.



peterd
Veteran
Veteran

User avatar

Joined: 25 Dec 2006
Age: 72
Gender: Male
Posts: 1,351

20 Mar 2010, 7:41 am

It's a rough one. If you have AS, then there's nothing that can be fixed. You can learn more about it, and practice coping strategies but fundamentally nothing is going to change.



TenisuBaka
Tufted Titmouse
Tufted Titmouse

User avatar

Joined: 10 Feb 2010
Age: 47
Gender: Male
Posts: 28

21 Mar 2010, 1:22 am

Hey Peter,

Yeah, that is what I have been reading. I understand that, and actually, I don't think I would even want to rewire my brain to be like a normal person even if I had the option. But I do want to be able to recognize situations and circumstances for what they actually are, kinda like from a third-person, completely objective point of view, so that I can choose how to live my life as someone with AS instead of having AS dictate me by simply reacting all the time. It's like when I was a kid, for whatever reason, E.T. scared me like nothing else has ever scared me. My mother took me to see it in the theater when it first came out, and it was that particular scene when the boy and ET first met in the field at night. The way that thing reacted and the noises it made just completely destroyed me. I could not be in that theater anymore and made my mother take me home. After that, I always had this recurring nightmare for years about that dam thing, and it was always the exact same dream. And anytime during the day or night, just thinking about that face or seeing an ET doll somewhere would get me panicking. But eventually I got tired of it, and so started forcing myself to face it by purposely thinking about it and recreating the dream in my imagination in my mind when I was alone in bed at night. The first 10 times or so really tore me up too, I thought my heart was going to explode and I sweat profusely, but the more I forced myself to do this, the more it stopped bothering me, and finally the nightmares decreased in frequency. Eventually, after many years, the nightmare even turned into a pleasant dream where instead of killing it in desperation, I saved it and we became friends or something like that. Even now though, it still unpleasant to look at it's picture or a doll of it or something. I still refuse to watch the movie.

Anyway, the point is, I refuse to let things, people, external stress, internal stress, whatever, control me. Not that I have any intention or desire to try and force myself to become something I am not. I just want to be able to do the best with what I have, am, don't have, and am not.



Obgeektor
Snowy Owl
Snowy Owl

User avatar

Joined: 27 Mar 2010
Age: 45
Gender: Male
Posts: 146
Location: London, UK

29 Mar 2010, 9:26 am

keltikboi wrote:
Hi there - well I'm a 43 year old guy living in the UK and was just diagnosed last December 2009 so I can totally relate to what you are saying. I live in London so Googled consultant psychiatrists who also specialise in autism spectrum issues so they know what to look for during the consultation. I was sent a number of questionnaires beforehand including the Baron-Cohen one and scored highly on the Asperger's side of things. My mother was also asked to complete some questionnaires but she wasn't too keen on me doing this so wasn't as honest as I was completing them.

I had to give a full description of my life but the specialist is trained to ask specific questions about my childhood and development, school and work, family and genetics, phobias, OCD, other associated 'disorders'.

I don't know where you live so if your doctor won't help - and my doctor was very sceptical - then a private consultation might be the answer. Check also if your medical insurance covers this - I don't have this insurance so I paid privately and it ain't cheap but it was worth the investment from me to get a proper diagnosis after 43 years on this planet trying to figure out what the hell makes me different to my peers.

I've been referred on to a specialist autism clinic so the outcome has been good for me and I've also let my family and work colleagues know too so now people feel they understand me a bit more. Although like you, I appear 'normal' but within myself I felt anything but normal.

Hope this helps and feel free to message me here or privately if you want any more advice or info.

Cheers
keltikboi


I'm in London too, mate. The NHS is pathetic when it comes to this, which is ridiculous, as there are many other NHS-treatable complications that derive from having this condition and diagnosis has to be the first step. Unfortunately, it's all about budgets. Can you please PM me with the details of your psychiatrist if you're 100% happy with them?


_________________
That 'emulator' concept of processing social data is a new one to me, but makes perfect sense.

"No man can hold what the darkness can sow" - Agents Of Oblivion - Hangman's Daughter.


Toadstool
Hummingbird
Hummingbird

User avatar

Joined: 28 Mar 2010
Age: 54
Gender: Female
Posts: 18

30 Mar 2010, 2:38 am

Please could someone (Obgeektor?) let me know how much it costs in the UK to have a private consultation/assessment?
I saw a psychiatrist yesterday who is going to ask at the Multi Disciplinary Team meeting on Thursday if the psychologist will assess me, but I'm scared they will refuse as it's all about money and I'm not costing them anything in services because I pay for psychotherapy privately. Not that I want any services, just the diagnosis for my own peace of mind.



Obgeektor
Snowy Owl
Snowy Owl

User avatar

Joined: 27 Mar 2010
Age: 45
Gender: Male
Posts: 146
Location: London, UK

30 Mar 2010, 1:01 pm

Toadstool wrote:
Please could someone (Obgeektor?) let me know how much it costs in the UK to have a private consultation/assessment?
I saw a psychiatrist yesterday who is going to ask at the Multi Disciplinary Team meeting on Thursday if the psychologist will assess me, but I'm scared they will refuse as it's all about money and I'm not costing them anything in services because I pay for psychotherapy privately. Not that I want any services, just the diagnosis for my own peace of mind.


Lucky for you, because I need services, which they don't actually offer really. I have depression/anxiety, physical health issues and all sorts that would have quite possibly been intercepted if I'd had a proper assessment decades ago. Fight for an NHS-sponsored assessment, they have no right to deny you based on their arbitrary, politically-led policies.

The stupid idiot G.P. said that because I already have depression, they won't give me treatment for the S.A.D. that comes around on top of it every November - March. What a bell-end. I changed G.P. but if the new one tries that on again, I'll suggest that defending a legal case is more expensive than paying for what I need, if he's going to only be thinking about figures and not treatment.

£800 for a 3-hour assessment then 2-3 hour write-up by the assessor. Nice work if you can get it, I charge £15 per hour for skilled IT Tech work, and less for a job of similar duration to the above.

Bloody capitalism fails minorities again, it's a seller's market indeed here. Good luck!


_________________
That 'emulator' concept of processing social data is a new one to me, but makes perfect sense.

"No man can hold what the darkness can sow" - Agents Of Oblivion - Hangman's Daughter.


Toadstool
Hummingbird
Hummingbird

User avatar

Joined: 28 Mar 2010
Age: 54
Gender: Female
Posts: 18

31 Mar 2010, 10:53 am

Quote:

PostPosted: Wed Mar 31, 2010 5:01 am Post subject:
Toadstool wrote:
Please could someone (Obgeektor?) let me know how much it costs in the UK to have a private consultation/assessment?
I saw a psychiatrist yesterday who is going to ask at the Multi Disciplinary Team meeting on Thursday if the psychologist will assess me, but I'm scared they will refuse as it's all about money and I'm not costing them anything in services because I pay for psychotherapy privately. Not that I want any services, just the diagnosis for my own peace of mind.


Lucky for you, because I need services, which they don't actually offer really. I have depression/anxiety, physical health issues and all sorts that would have quite possibly been intercepted if I'd had a proper assessment decades ago. Fight for an NHS-sponsored assessment, they have no right to deny you based on their arbitrary, politically-led policies.

The stupid idiot G.P. said that because I already have depression, they won't give me treatment for the S.A.D. that comes around on top of it every November - March. What a bell-end. I changed G.P. but if the new one tries that on again, I'll suggest that defending a legal case is more expensive than paying for what I need, if he's going to only be thinking about figures and not treatment.

£800 for a 3-hour assessment then 2-3 hour write-up by the assessor. Nice work if you can get it, I charge £15 per hour for skilled IT Tech work, and less for a job of similar duration to the above.

Bloody capitalism fails minorities again, it's a seller's market indeed here. Good luck!


Thank you. OMG that costs so much. I don't have that much money.
I have depression too.Hope you have much better luck with the new GP.