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starkid
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07 Sep 2015, 11:18 pm

LillyDale wrote:
Is there something specific I need to ask for or someone beyond a generic audiologist I should seek out?

You have to find an audiologist who is experienced with giving CAPD evaluations. You can just call individual audiologists and ask. Sometimes it's on their websites.

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I have wasted a considerable amount of time and money on my non ASD related health problems over the years

Keep in mind that you might not be diagnosable if you've developed good enough coping strategies over the years, such as figuring out mis-heard words from context. I passed my CAPD evaluation and I still have listening fatigue and miss part of what people say.

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I have seen some programs that supposedly improve auditory processing disorder. Most seemed to be some sort of listening exercises. Has anyone actually used such a thing and had any success?

I wish I could answer you but I haven't gotten mine yet. Maybe try the parent's sub-forum (CAPD is usually diagnosed in kids) or a dedicated CAPD forum.



Spiderpig
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07 Sep 2015, 11:25 pm

When someone doesn't understand you, it's your fault for not expressing yourself well enough. When you don't understand someone, it's your fault for not listening well enough.


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Edenthiel
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08 Sep 2015, 12:02 am

LillyDale wrote:
I likely have auditory processing disorder, still trying to find someone around here that can accurately give me a formal diagnosis. Twice in the last week I have had customer service role type people flip out at me when I asked them to repeat what they said because I could not hear it. I tried to frame it as my problem and pointed out the distracting sounds that drown out what they said and tried to do so in a civil manner. Why does this seem to outrage people?


I've noticed this ever since I was diagnosed with an APD back in the early 1990's. For me, it's very much like how dyslexics describe trying to take in visual language except it's auditory. If there is one person and they are speaking clearly, I am okay. If we're outside, I can sometimes manage. If there is background noise, another person somewhere talking, or they are eating/drinking/turned away...you can pretty much forget it. All I'll hear is sounds that I know are speech but don't actually make words.

Funny thing is - and I would not recommend this - if I act like a self-centered primadonna and say, "What?" as if I wasn't really paying attention or they just weren't that important...they are okay with it and happily repeat what they said. If I act like it's my fault, they pounce and get frustrated or irritated as if (wait for it...) I'm obviously not paying attention or trying hard enough.

My spouse has known intellectually about my APD(s) for as long as we've known each other. Even though they know, they still get irritated and "refuse" to compensate. It's a minor thing, but they get put out b/c I'm asking them to change their natural behavior to fit my handicap. But in the past, when there has been something physical (like an injury), or something they can relate to (like a migraine) ...they go out of her way to compensate. And no, they don't know what the difference is, we've discussed it. The only thing we've come up with is that they have literally no concept of it. How can I not understand the words if I can hear just fine?


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starkid
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08 Sep 2015, 1:02 am

Edenthiel wrote:
And no, they don't know what the difference is, we've discussed it. The only thing we've come up with is that they have literally no concept of it. How can I not understand the words if I can hear just fine?


There was an AS guy on youtube who explained that listening to speech with auditory processing problems was like listening to this song:

https://www.youtube.com/watch?v=xfSJEWNTvo4

The lyrics are nonsense words that are meant to sound like English.



BeaArthur
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08 Sep 2015, 9:02 pm

This may be a case of unconscious bias. A lot of people think they are not racist but sophisticated psychological measures show they are ... people may claim they are accepting of a brain-based difference but secretly (even to them) are annoyed about it and may not believe it's real, rather than just a prima-donna act or imagined disability.

What do you think? Does that fit the behavior you have observed from customer service and your spouse?


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Edenthiel
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11 Sep 2015, 9:38 pm

starkid wrote:
Edenthiel wrote:
And no, they don't know what the difference is, we've discussed it. The only thing we've come up with is that they have literally no concept of it. How can I not understand the words if I can hear just fine?


There was an AS guy on youtube who explained that listening to speech with auditory processing problems was like listening to this song:

https://www.youtube.com/watch?v=xfSJEWNTvo4

The lyrics are nonsense words that are meant to sound like English.


When mine is bad, it's more like you play that one and this one in different tabs/windows at the same time:
https://youtu.be/Vt4Dfa4fOEY

(the second one is quieter so the volume on the song has to be pretty low to be roughly equal)


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trayder
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16 Sep 2015, 11:46 pm

slave wrote:
LillyDale wrote:
I likely have auditory processing disorder, still trying to find someone around here that can accurately give me a formal diagnosis.

Twice in the last week I have had customer service role type people flip out at me when I asked them to repeat what they said because I could not hear it. I tried to frame it as my problem and pointed out the distracting sounds that drown out what they said and tried to do so in a civil manner. Why does this seem to outrage people?


because most people are ignorant, simple-minded f*****g morons.
this fact will never change
it is the biggest reason why having an impairment sucks sh*t.


Yeah. Sentenced to your own personal prison before birth. I make the best of it though...no point ruining my lifes experience by being resigned.



bushratcandy
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25 Sep 2015, 7:48 am

Yep peeps always get sick of repeating themselves for me. I got some hearing aids you can get ones that filter out extraneous noises this helps a little bit. I can now use the excuse that my batteries just went flat 8)


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