Guy Incognito wrote:
Meh.
I work with a lady who has an Autistic son, and I recently came out to her about having an Asperger's diagnosis(unmasked!). We have had fantastic discussions, and one of the things she said to me was how annoyed she gets with Aspies who attend her ASD support group. She said they consistently tie up roundtable group discussions talking about how difficult their loneliness and isolation are, while most of the parents there have children that are non-verbal. On the surface I could take this as a personal slight, but she is choosing to share an intimate moment with me. I think she is probably right that what they are doing is pretty bad behavior. She hasn't accused me of doing that and we've had plenty of discussions after that, so there isn't really a point in overthinking it. I'm sure the owner of that site had a horrible experience. It has nothing to do with me.
I suppose the lesson to learn here is be cognizant that you are an ambassador of the Aspie brand. If you suck, we all suck. So don't suck and be awesome.
There is the "Autistic community" made up of Autistic people and the "Autism community" made up of autistic people, parents of autistics, autism researchers, and other interested parties.
There should be separate support groups for Autistic people and parents of Autistic people because the needs and perspectives are often so different. A brief check shows that there are apparently no support groups for Autistic people in the Washington D.C. area. That is unconscionable for a major metropolitan area and the nation's capital. There is
Global and Regional Asperger Syndrome Partnership(GRASP) which sets up support groups ran largely by autistics. Wrong Planet member Mona Pereth has experience in activism and setting up Autistic support groups.
Do not take the above to mean that I am an autism separatist. There is a major need for more places where the Autistic community and the larger Autism community intermingle. It is just I feel there is a need for separate groups also. The Autism community groups need to be tightly moderated and new members briefed that they are likely to hear things they find offensive.
Wrong Planet is a hybrid support group, discussion group, autistic community group, and autism community group. Non-autistic people are welcomed here but the needs of autistic people take priority.
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Professionally Identified and joined WP August 26, 2013
DSM 5: Autism Spectrum Disorder, DSM IV: Aspergers Moderate Severity
“My autism is not a superpower. It also isn’t some kind of god-forsaken, endless fountain of suffering inflicted on my family. It’s just part of who I am as a person”. - Sara Luterman