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Susie123
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16 Aug 2009, 5:21 pm

My husband knows he's been diagnosed with AS but doesn't seem to grasp what it means, and no matter how many times he agrees with me or his therapist to do x instead of y to make life for his family easier/safer, he doesn't do it because he doesn't see it as a better way. How do I help him, especially when he is endangering us?



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16 Aug 2009, 6:07 pm

My wife gave me a copy of John Elder Robison's autobiography, "Look Me in the Eye". I started reading it and could not put it down. I was astounded how much I could relate to his life experiences. Reading that has helped me to better accept that I have AS and to recognize that the rest of the world doesn't exactly see things the way that I do. That may not help your situation, but it helped my wife's situation (and me).


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Susie123
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16 Aug 2009, 6:17 pm

Thank you!
I have now read the first pages of that book and it doesn't describe my husband's experience. He actually has a very accepting family, maybe because most of them seem to have AS, and had very nice friends growing up and in college. They just thought he was shy. But it is odd that he's very boarstful and very defensive. I can't figure out why he's that way, given that he perceives himself to be well liked.



Last edited by Susie123 on 17 Aug 2009, 4:19 pm, edited 1 time in total.

sg33
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16 Aug 2009, 8:26 pm

Susie123 wrote:
no matter how many times he agrees with me or his therapist to do x instead of y to make life for his family easier/safer, he doesn't do it because he doesn't see it as a better way


This is especially troubling to me. He uses words to manipulate you and his therapist into believing that he intends to change, when he apparently has no intention of actually following through. I suppose it's possible that he intends to follow through and finds it too hard, but if that's the case, he needs to own up to the difficulty he's having and ask for help. It doesn't sound like that's the situation, though. It sounds like he's telling you and his therapist what he thinks you want to hear, then doing whatever the hell he wants. If I'm correct, that is a serious problem.

Are you seeing a marriage counselor? It sounds like your relationship is in trouble.

Susie123, whatever happens, please know that you are not responsible for your husband's actions in any way. It is not your job to convince or force your husband to behave properly. If he does not hear, it is not because you didn't "do a good enough job" telling him, it's because he is an adult that made a poor choice. If he refuses to change, you are not obligated to stay in a relationship that is harmful to you.

If you feel comfortable, I would be interested to learn what your husband is doing that is endangering you and your family or otherwise making life difficult for you. Hearing the specifics might help us to give you better advice.



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16 Aug 2009, 9:06 pm

sg33 & ww - if you need to bicker, take it to PM. This is not the place for it. The OP came looking for advice, and gave very limited information. No one should be making assumptions at this point.


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17 Aug 2009, 12:44 am

makuranososhi wrote:
sg33 & ww - if you need to bicker, take it to PM. This is not the place for it. The OP came looking for advice, and gave very limited information. No one should be making assumptions at this point.


makuranososhi; Unless I've missed something (perhaps something already deleted), sg33 & ww haven't done anything "out of line" here. Assumptions were made but the OP did use some strong terms.

....

Anyway; back on Topic.

John Elder Robison's autobiography, "Look Me in the Eye" helped me as well but I guess the main thing is that you have to "accept" the diagnosis and want to change. Your post suggests to me that your husband may still be in the denial phase.

You said that your husband doesn't agree with doing things the way his therapist suggests because he feels his way is "better".
You also said that you feel that your husband may be endangering you because of his Aspergers.

Could you elaborate - it's difficult to answer without a few specifics.

(I'll understand if you don't want to).



rathernotsay
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17 Aug 2009, 12:13 pm

When it was first brought up to me I was in denial because I had never heard of such a thing. I wish my gf would have said "think you should look at it more closely." I did not realize it until I started reading a book about it by chance. I fit 95% of the profile. I think getting him more information on this will help unless there is something else going on with him. Once I new how predictable I react to certain situations I noticed a friend who is like me doing things like I do and it became clear the moments that I must restrain my impulses. So to have him meet someone similar to him might help.



Susie123
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17 Aug 2009, 4:15 pm

sg33 wrote:
Susie123 wrote:
no matter how many times he agrees with me or his therapist to do x instead of y to make life for his family easier/safer, he doesn't do it because he doesn't see it as a better way


He does things like put aspirin/antibiotics in my drinks when he thinks I'm not feeling well and continuosly doesn't follow rules to prevent our allergic child from being exposed to his allergens. Just today he didn't follow the rules and when we questioned him, he goes through a list of why it didn't matter this time and the proceeds with why it's my fault (which is usually I didn't remind him). More and more, I'm not buying into it being my fault when I see that no matter what I do to accommodate him, he doesn't change.

I'm not sure if he just tells his therapist and me that he will follow instructions to satisify us at the moment or if he acutally plans at that moment to follow through, but he rarely follows through, and when he does, he seems to think it negates all the other times that he hasn't.

I'm exhausted and feeling hopeless, but I want to beleive that he'll change.



Susie123
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17 Aug 2009, 4:23 pm

John Elder Robison's autobiography, "Look Me in the Eye" helped me as well but I guess the main thing is that you have to "accept" the diagnosis and want to change. Your post suggests to me that your husband may still be in the denial phase.

You said that your husband doesn't agree with doing things the way his therapist suggests because he feels his way is "better".
You also said that you feel that your husband may be endangering you because of his Aspergers.

Could you elaborate - it's difficult to answer without a few specifics.

(I'll understand if you don't want to).[/quote]


Thank you -- I went back and elaborated in one of my responses to the posts above. I don't mind repeating, but for the sake of other readers, can you read it up there? I'd welcome your thoughts. Thanks again.



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17 Aug 2009, 4:26 pm

rathernotsay wrote:
When it was first brought up to me I was in denial because I had never heard of such a thing. I wish my gf would have said "think you should look at it more closely." I did not realize it until I started reading a book about it by chance. I fit 95% of the profile. I think getting him more information on this will help unless there is something else going on with him. Once I new how predictable I react to certain situations I noticed a friend who is like me doing things like I do and it became clear the moments that I must restrain my impulses. So to have him meet someone similar to him might help.


What book did you read?

The odd thing is he SAYS he sees it, but he ACTS like he doesn't. (Sigh)



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17 Aug 2009, 6:48 pm

In terms of safety, I'd be more worried about him puttting medications into your drinks than the allergens problem unless your child has violent reactions. I'll deal with the medications first because that's the easiest part of the problem.

Firstly, it we assume that his "medicating" issues are accidental, then it follows that we can apply a reminder to prevent them from happening. You should consider putting all of your medications in one box or on one shelf and making a very prominent sign to stick on the box/shelf saying NOT to put any into your drinks. If your husband has to go to the box to get the medication and if he puts one in your drink, then you know that it's not a case of not being reminded, it's not an accident. It's deliberate. If you reach that point, I'd seriously suggest that you seek legal advice.

--

If it turns out that your medications modificiation works, then you need to start applying the same sorts of reminders for your child. If the allergen is peanut butter, then label the jar. If it's to do with something else, label it. Sure, it's probably going to be a little embarrassing for a while having a house covered in notes but if it does the trick, your husband will learn the rules by being constantly reminded of them. If he continues to ignore them, then it's obviously not a case of needing a reminder - it's deliberate.

It's not all about negative reinforcement though. If your husband successfully follows through, then you need to be positive with him. Putting signs up everywhere may impact his self confidence and you'll need to be aware of that. Make sure that he knows that it's only until it starts becoming "automatic". It seems to me that your relationship needs a bit of work and that you could probably benefit from some "couple time". If possible, get your child minded and go have a night out to talk and to get things back on an even keel.


Good luck.



Susie123
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17 Aug 2009, 7:38 pm

Thanks -- I think your idea with allergen protocol reminders may be very helpful. I'll try it. The medication idea won't work because he knows what he is doing; he feels his actions are justified, that he knows what he's doing, depite being told otherwise by doctors. He operates this way -- does what he thinks is right, despite what authorities say.



rathernotsay
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17 Aug 2009, 7:40 pm

gbollard wrote:
In terms of safety, I'd be more worried about him puttting medications into your drinks than the allergens problem unless your child has violent reactions. I'll deal with the medications first because that's the easiest part of the problem.

Firstly, it we assume that his "medicating" issues are accidental, then it follows that we can apply a reminder to prevent them from happening. You should consider putting all of your medications in one box or on one shelf and making a very prominent sign to stick on the box/shelf saying NOT to put any into your drinks. If your husband has to go to the box to get the medication and if he puts one in your drink, then you know that it's not a case of not being reminded, it's not an accident. It's deliberate. If you reach that point, I'd seriously suggest that you seek legal advice.

--

If it turns out that your medications modificiation works, then you need to start applying the same sorts of reminders for your child. If the allergen is peanut butter, then label the jar. If it's to do with something else, label it. Sure, it's probably going to be a little embarrassing for a while having a house covered in notes but if it does the trick, your husband will learn the rules by being constantly reminded of them. If he continues to ignore them, then it's obviously not a case of needing a reminder - it's deliberate.

It's not all about negative reinforcement though. If your husband successfully follows through, then you need to be positive with him. Putting signs up everywhere may impact his self confidence and you'll need to be aware of that. Make sure that he knows that it's only until it starts becoming "automatic". It seems to me that your relationship needs a bit of work and that you could probably benefit from some "couple time". If possible, get your child minded and go have a night out to talk and to get things back on an even keel.


Good luck.


She wants her husband to understand he has AS not treat him like a child. Self confidence? He's a grown man, Putting up signs won't hurt his self confidnce. It will piss him off. His Dx is AS. Why would he need reminders everywhere?

Susie, Do you feel like you have an extra kid in your husband? I mean does his mental processes follow that of a child most of the time?



Susie123
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17 Aug 2009, 7:56 pm

Yes, he seems like a naive child sometimes, and other times like a 5-year-old who just got caught with his hand in the cookie jar but still won't admit it, and at times he acts like a rebellious teenager. He acts less and less like the man I met years ago.



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17 Aug 2009, 8:06 pm

rathernotsay wrote:
She wants her husband to understand he has AS not treat him like a child. Self confidence? He's a grown man, Putting up signs won't hurt his self confidnce. It will piss him off. His Dx is AS. Why would he need reminders everywhere?

Susie, Do you feel like you have an extra kid in your husband? I mean does his mental processes follow that of a child most of the time?


Yes, it will annoy him a little - hence my note about working on the relationship.

Why signs... because

Susie123 wrote:
Just today he didn't follow the rules and when we questioned him, he goes through a list of why it didn't matter this time and the proceeds with why it's my fault (which is usually I didn't remind him).


It's obvious that he's citing lack of memory as a factor.

rathernotsay wrote:
His Dx is AS. Why would he need reminders everywhere?


That would be because of the Aspie Memory issues. Aspies often have great long short term memory and very poor short term memory.

http://life-with-aspergers.blogspot.com/2007/10/aspie-memory.html

rathernotsay wrote:
Self confidence? He's a grown man


It's an established fact that aspies have a lot of issues with depression. The fact that you need to put reminder signs everywhere in order for him to function (to get the issues to move from short-term to long-term memory), may make him uncomfortable. It's possibly something he's already well aware of and which may upset him. Self-confidence is important.

rathernotsay wrote:
She wants her husband to understand he has AS


He knows that he's been diagnosed that way. I've read nothing to suggest that he's in denial but equally I haven't read anything that suggests acceptance. Increasing knowledge of aspergers is easy, read books, watch TV, read things on the internet, participate in forums etc... There's no shortage of material but if he doesn't want to know, he won't make any use of them.

Since I'm not sure what the real issue is here, I'm suggesting that you eliminate the "accidental" first and worry about the "deliberate" if and when it becomes apparent.



Susie123
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17 Aug 2009, 8:50 pm

gbollard wrote:
rathernotsay wrote:
That would be because of the Aspie Memory issues. Aspies often have great long short term memory and very poor short term memory.

http://life-with-aspergers.blogspot.com ... emory.html .


He has a poor short- and long-term memory. He knows it. It doesn't bother him. He's very accepting of his limitations. Very nonjudgmental, which is good, except for the consequences.

The notes are a good idea. It's all the other stuff I don't know how to get him to recognize and chane. He only changes when there's a consequence looming, like divorce or the threat of having his car keys taken away made him drive safer, with less anger.