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Adults with autism are left to navigate a jarring world

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ASPartOfMe
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20 Feb 2015, 8:29 pm

From Science News

https://www.sciencenews.org/article/adu ... orld#video.

Hopefully the future will be better. I suspect that in the US, research will be done for younger adults because of economic benefits of getting them employed. For us older adults I suspect it will still be up to us to figure things out in despite many telling us we are wrong.


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Adamantium
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21 Feb 2015, 7:51 pm

ASPartOfMe wrote:
Hopefully the future will be better.

Hopefully.

Quote:
I suspect that in the US, research will be done for younger adults because of economic benefits of getting them employed.

That's a rational argument. Is that the way economic and political decisions are made? Rationally?
Quote:
For us older adults I suspect it will still be up to us to figure things out in despite many telling us we are wrong.

For young and old, I think. I am certainly trying to prepare my son to be self-sufficient, because I have no condifence that any social system will support him in any way.



androbot01
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21 Feb 2015, 8:08 pm

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Scientists are beginning to take note, but their understanding of how best to help adults with autism is paper thin. Of the more than $400 million that the United States spends each year on autism research, the vast majority is for two avenues of study: genetics research to find the causes and a cure, and studies on early diagnosis and intervention in children. Few studies have examined treatments for adults.

And why would they? People with autism are diagnosed young these days. And they'll probably fare better with regard to co-morbids because of it. Why spend resources on a generation that is already aging?



Claradoon
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21 Feb 2015, 8:14 pm

androbot01 wrote:
Quote:
Scientists are beginning to take note, but their understanding of how best to help adults with autism is paper thin. Of the more than $400 million that the United States spends each year on autism research, the vast majority is for two avenues of study: genetics research to find the causes and a cure, and studies on early diagnosis and intervention in children. Few studies have examined treatments for adults.

And why would they? People with autism are diagnosed young these days. And they'll probably fare better with regard to co-morbids because of it. Why spend resources on a generation that is already aging?

Because it only takes a few minutes to teach me (age 64) to display my teeth when greeting people. Failure to do that cost me a couple of jobs. Say "Good morning" and "Good night." Very, very small stuff can make all the difference. Perhaps we could draw on the research for children - they have to be taught these things too. Just toss it over this way so we oldsters can use it too.



ominous
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21 Feb 2015, 8:16 pm

androbot01 wrote:
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Scientists are beginning to take note, but their understanding of how best to help adults with autism is paper thin. Of the more than $400 million that the United States spends each year on autism research, the vast majority is for two avenues of study: genetics research to find the causes and a cure, and studies on early diagnosis and intervention in children. Few studies have examined treatments for adults.

And why would they? People with autism are diagnosed young these days. And they'll probably fare better with regard to co-morbids because of it. Why spend resources on a generation that is already aging?


Um, because we matter?



androbot01
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21 Feb 2015, 8:26 pm

Claradoon wrote:
Because it only takes a few minutes to teach me (age 64) to display my teeth when greeting people.
ominous wrote:
Um, because we matter?

Both are true, but may not make difference when it comes to funding and support.



BTDT
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21 Feb 2015, 9:03 pm

Claradoon wrote:
androbot01 wrote:
And why would they? People with autism are diagnosed young these days. And they'll probably fare better with regard to co-morbids because of it. Why spend resources on a generation that is already aging?

Because it only takes a few minutes to teach me (age 64) to display my teeth when greeting people. Failure to do that cost me a couple of jobs. Say "Good morning" and "Good night." Very, very small stuff can make all the difference. Perhaps we could draw on the research for children - they have to be taught these things too. Just toss it over this way so we oldsters can use it too.[/quote}

It is pretty much up for use to figure out these things and share it among ourselves on forums such as this.

According to the folks at Roses for Autism, which teaches actual job skills to adults with autism, the only reason they can get public funding is because of the net cost saving of getting folks off disability payments. Once you get close to retirement--that benefit disappears.



ASPartOfMe
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21 Feb 2015, 10:42 pm

A hell of a lot of money is spent on seniors because they vote in higher percentages then younger voters


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DSM 5: Autism Spectrum Disorder, DSM IV: Aspergers Moderate Severity

“My autism is not a superpower. It also isn’t some kind of god-forsaken, endless fountain of suffering inflicted on my family. It’s just part of who I am as a person”. - Sara Luterman