Am I autistic?
Hello.
I have spent the last day or so reading about autism, and I think I might have finally found a useful description of how I think for the first time ever.
A little about me: I'm 39 years old. I failed out of college, but worked my way up from working in a stock room to an industrial control system engineer. In my spare time, I've been working on a web application for attending a music festival. Not surprisingly, going to big music festivals is my favorite activity.
But my life has become hollowed out and horrible. I've always lived behind what I call "the facade", behaviors that I've learned by watching other people and copied. I kind of interact with other people by following little scripts that I deploy based on the situation. When I'm walking up to the checkout lane at the grocery store, I make a conscious decision about what sort of facial expression to wear-Happy, Sad, Angry. If acting naturally ever occurred to me as an option, I can't remember it.
Even though I have a good job, I am barely able to take care of the smallest of tasks. I can't handle my taxes. I can't keep my house clean.
I am so ashamed of these failures that I hide further and further away from the world. I'd rather everyone I love hate me rather than see how pathetic I actually am behind the facade. So I cut everyone out of my life that I care about, just to make sure they never realize just what a loser I really am.
And yet...I don't go to a doctor or a counselor. As much as I wish I could interact better with the people around me, I don't want to be like them. I've always felt on some essential level that there was a link there-that the same part of me that let me understand a machine just by watching it run, was also the whole reason I built the facade in the first place.
Does any of this make sense to you guys? I could go on with this for hours. Am I on the right track with looking at autism and the concept of neurodiversity as an explanation for how my life got to this point?
_________________
RAADS-R: 176.0
ADOS-2 Module 4: 9 (Autism Spectrum)
EQ: 7
AQ: 35
Diagnosed with ASD Level 1 15 Jan 2016
ASPartOfMe
Veteran
Joined: 25 Aug 2013
Age: 67
Gender: Male
Posts: 36,350
Location: Long Island, New York
Welcome to wrong planet.
What you have described is some autistic traits that certainly many of us here will relate to. Autistic traits are the same or similar to several other conditions so one days research is far from enough to say I highly suspect I am autistic.
Diagnostic Criteria for Autism Spectrum Disorders
Executive Functioning Issues in Autistic Teens and Adults
The above might explain your difficulties with taxes and taking the inititiative in going to the doctor. These executive functioning difficulties are common in Autism and ADHD. I know all to well about this.
"The Complete Guide to Aspergers Syndrome" by Tony Attwood
You don't have to have all the issues to qualify for a diagnosis.
I wish you good luck in your search. Please let us know how you are doing and feel free to ask questions.
_________________
Professionally Identified and joined WP August 26, 2013
DSM 5: Autism Spectrum Disorder, DSM IV: Aspergers Moderate Severity
“My autism is not a superpower. It also isn’t some kind of god-forsaken, endless fountain of suffering inflicted on my family. It’s just part of who I am as a person”. - Sara Luterman
I have spent the last day or so reading about autism, and I think I might have finally found a useful description of how I think for the first time ever.
A little about me: I'm 39 years old. I failed out of college, but worked my way up from working in a stock room to an industrial control system engineer. In my spare time, I've been working on a web application for attending a music festival. Not surprisingly, going to big music festivals is my favorite activity.
But my life has become hollowed out and horrible. I've always lived behind what I call "the facade", behaviors that I've learned by watching other people and copied. I kind of interact with other people by following little scripts that I deploy based on the situation. When I'm walking up to the checkout lane at the grocery store, I make a conscious decision about what sort of facial expression to wear-Happy, Sad, Angry. If acting naturally ever occurred to me as an option, I can't remember it.
Even though I have a good job, I am barely able to take care of the smallest of tasks. I can't handle my taxes. I can't keep my house clean.
I am so ashamed of these failures that I hide further and further away from the world. I'd rather everyone I love hate me rather than see how pathetic I actually am behind the facade. So I cut everyone out of my life that I care about, just to make sure they never realize just what a loser I really am.
And yet...I don't go to a doctor or a counselor. As much as I wish I could interact better with the people around me, I don't want to be like them. I've always felt on some essential level that there was a link there-that the same part of me that let me understand a machine just by watching it run, was also the whole reason I built the facade in the first place.
Does any of this make sense to you guys? I could go on with this for hours. Am I on the right track with looking at autism and the concept of neurodiversity as an explanation for how my life got to this point?
If you have medical insurance please call them for a referral to a psychogist and inform the psychogists your concerns and your need for testing.
Don't self diagnosis, what if your not autistic and something completely different that requires a different type of therapy or prescription.
If your looking to self diagnosis many will link to a test that is the equivalent of a teenage xanga fanboy test of which Lord of The Rings character are you most like.....people consider that the determining test of whether or not your autistic
Get tested otherwise I guess there would be nothing wrong with having another marla singer here
ASPartOfMe
Veteran
Joined: 25 Aug 2013
Age: 67
Gender: Male
Posts: 36,350
Location: Long Island, New York
If you have medical insurance please call them for a referral to a psychogist and inform the psychogists your concerns and your need for testing.
Don't self diagnosis, what if your not autistic and something completely different that requires a different type of therapy or prescription.
If your looking to self diagnosis many will link to a test that is the equivalent of a teenage xanga fanboy test of which Lord of The Rings character are you most like.....people consider that the determining test of whether or not your autistic
Get tested otherwise I guess there would be nothing wrong with having another marla singer here
Medical insurance is most often not available for adult assesment in the USA and clininitions competent in how autism presents in adults is sometimes not readily available especially away from cities.
Anyway to early to be making a self diagnosis vs professional diagnoses. Much more research needed in this complicalited subject and you need to to decide what you are looking to gain from your search.
_________________
Professionally Identified and joined WP August 26, 2013
DSM 5: Autism Spectrum Disorder, DSM IV: Aspergers Moderate Severity
“My autism is not a superpower. It also isn’t some kind of god-forsaken, endless fountain of suffering inflicted on my family. It’s just part of who I am as a person”. - Sara Luterman
I certainly do not trust the internet tests I've taken.
Really, what strikes home for me is not the tests. It's the narratives of other adults who are about my age.
I don't have health insurance right now. My employer doesn't provide it. When Obamacare came out, I struggled through the website and signed up for insurance. But then I forgot about it for 3 months and didn't pay, and they cancelled me.
Even still, the cost would probably not be a burden. I live 2 hours away from Atlanta, and I would fly to Japan for a month if I thought it would help.
I am really terrified of walking into a psychiatrists office and describing what's wrong with me. 15 years ago I read "Girl, Interrupted" and ever since then I've been terrified of what they would do to me if they ever found out how different I really am.
What would be the benefit to getting tested? Are there any drawbacks? How much does it cost? Does it hurt?
_________________
RAADS-R: 176.0
ADOS-2 Module 4: 9 (Autism Spectrum)
EQ: 7
AQ: 35
Diagnosed with ASD Level 1 15 Jan 2016
....
You don't have to have all the issues to qualify for a diagnosis.
I wish you good luck in your search. Please let us know how you are doing and feel free to ask questions.
ASPartOfMe, I am so impressed that you continue to participate and welcome people to WP, in spite of all you are going through. You are truly inspirational.
_________________
A finger in every pie.
I don't have health insurance right now. My employer doesn't provide it. When Obamacare came out, I struggled through the website and signed up for insurance. But then I forgot about it for 3 months and didn't pay, and they cancelled me.
Even still, the cost would probably not be a burden. I live 2 hours away from Atlanta, and I would fly to Japan for a month if I thought it would help.
I am really terrified of walking into a psychiatrists office and describing what's wrong with me. 15 years ago I read "Girl, Interrupted" and ever since then I've been terrified of what they would do to me if they ever found out how different I really am.
What would be the benefit to getting tested? Are there any drawbacks? How much does it cost? Does it hurt?
The benefit to getting tested is that, as I'm sure you know, we can never be 100% objective about ourselves.
Don't be terrified of the psychiatrist's office. Your concern about your executive functions is reason enough to ask these questions. You also should never be ashamed of your weaknesses. For example, your difficulty keeping the house tidy is easily handled by hiring a housekeeping service (I do that). You could probably hire someone to pay your bills, or set your bank account up to auto-pay for you. Another serious concern is your increasing social withdrawal, which is not healthy for you.
I'm not sure what the private-pay cost of an autism diagnosis is, I think my psychiatrist quoted $800, but that is totally dependent on what "market" you are in. Don't go for the cheapest provider but someone who has experience with adult autism. If you live near Atlanta, you should have no trouble finding someone, though it may take some persistence and a long wait, since these people are in demand. I also would insist on either a psychiatrist (M.D.) or psychologist (Ph.D. or Psy.D.) since those are the only truly qualified diagnosers for this.
Does it hurt? Yes, but only psychologically. It's always painful to look at our own problems and historical failures. I should warn you, the professional you see may want your parents to provide some information, such as questionnaires about how you were as a youth. Some will refuse to proceed without this family input, or so I hear. It's something to ask before you undertake the evaluation. It wasn't an issue for me since my parents had already died and I simply refused to have my siblings involved.
Good luck - even if it turns out you are not aspie/autie, you still have every right to happiness and success in life.
_________________
A finger in every pie.
One other thing. Your interest in music festivals is a fabulous thing to use to connect to other people. You might want to pick up a couple of tickets and offer one to a friend (male or female) in a non-romantic context, just so you begin to have a social circle.
There are a lot of people out there who also have difficulty connecting to others, and they don't necessarily have autism. You might benefit by looking at the shared humanity.
_________________
A finger in every pie.
Thank you so much for your help. I really appreciate it.
I would love it if someone could help me with another concern, one that is more complex. I am very new to all this, so if I state this in an offensive manner, I promise I am just trying to learn.
It seems to me that right now the community is being roiled. The avatar pic of ASPartOfMe is a perfect example. Whether or not I actually meet the diagnostic criteria, I certainly share a lot of traits with this community.
What I'm trying to say is, I don't know who the players are in this situation? Some of the stuff I've read makes it seem like they are imprinting whole new personalities onto children to make them act more polite?
Does the medical community have an agenda in this conflict? Is there a way that I can ensure that a psychiatrist I see will be working to help me shore up my weaknesses, and not try to rewire me?
_________________
RAADS-R: 176.0
ADOS-2 Module 4: 9 (Autism Spectrum)
EQ: 7
AQ: 35
Diagnosed with ASD Level 1 15 Jan 2016
ASPartOfMe
Veteran
Joined: 25 Aug 2013
Age: 67
Gender: Male
Posts: 36,350
Location: Long Island, New York
The advantages in your situation is confirmation as to what you are thinking,
accomodations at work, and as insurence if your career derails. Better to get the diagnosis now then to first start the process at a later time when money situation may be poor. You can get disability benifits for ASD's
_________________
Professionally Identified and joined WP August 26, 2013
DSM 5: Autism Spectrum Disorder, DSM IV: Aspergers Moderate Severity
“My autism is not a superpower. It also isn’t some kind of god-forsaken, endless fountain of suffering inflicted on my family. It’s just part of who I am as a person”. - Sara Luterman
I'm not going to answer your latest question because I, too, am fairly new and trying to figure out the fault lines in this community. But I will say, if you are concerned about the attitude or prejudice of your expert diagnoser, just ask them. Trust me, they are accustomed to people having misgivings about trusting a stranger.
_________________
A finger in every pie.
ASPartOfMe
Veteran
Joined: 25 Aug 2013
Age: 67
Gender: Male
Posts: 36,350
Location: Long Island, New York
I would love it if someone could help me with another concern, one that is more complex. I am very new to all this, so if I state this in an offensive manner, I promise I am just trying to learn.
It seems to me that right now the community is being roiled. The avatar pic of ASPartOfMe is a perfect example. Whether or not I actually meet the diagnostic criteria, I certainly share a lot of traits with this community.
What I'm trying to say is, I don't know who the players are in this situation? Some of the stuff I've read makes it seem like they are imprinting whole new personalities onto children to make them act more polite?
Does the medical community have an agenda in this conflict? Is there a way that I can ensure that a psychiatrist I see will be working to help me shore up my weaknesses, and not try to rewire me?
Autism politics can get quite bitter so during this early stage I would avoid it.
You need a clinition familiar with how autism presents in middle age adults and if you are a female, adult women. You are a consumer so you certainly have the right to question him/her as to how the clinition views ASD's.
_________________
Professionally Identified and joined WP August 26, 2013
DSM 5: Autism Spectrum Disorder, DSM IV: Aspergers Moderate Severity
“My autism is not a superpower. It also isn’t some kind of god-forsaken, endless fountain of suffering inflicted on my family. It’s just part of who I am as a person”. - Sara Luterman
I certainly enjoy going to concerts when I am in better shape.
The fact is, I intentionally ruined my entire social circle. I volunteered to serve as Treasurer of a college alumni association that was very dear to me. I was really working on leaving depression and being happy about my life. I was so proud of myself that I was able to serve my friends in this capacity.
But after a few months, the exhilaration wore off. The problems I mentioned with executive function took over once my attention was directed elsewhere. I filed paperwork late, I had to pay penalties, I missed meetings I was supposed to be at. I fell into my familiar pattern: hide the problems from the outside world, and hope somehow the situation improves on it's own. After years of hiding how poorly I was doing, it finally became obvious. My best friend, who was running the organization, emailed me to ask for my resignation.
I sent him a resignation letter, and haven't responded to him since. (This was about two and a half years ago.) I still cannot think of anything to say. Any apology would have to come with a reason. How could I have done this? It wasn't for lack of caring. If the setting was right, I could even have done the job.
I used to do stuff like, "Ok, no dinner tonight unless I make one phone call about the bill. That's all-just one phone call and then I get to eat." I would skip dinner rather than make the call.
In two and a half years of loneliness and isolation, this weekend was the first time I ever felt like I saw an explanation that made sense to me. Like, I could show this to my friends and say, "This is why it happened."
_________________
RAADS-R: 176.0
ADOS-2 Module 4: 9 (Autism Spectrum)
EQ: 7
AQ: 35
Diagnosed with ASD Level 1 15 Jan 2016
ASPartOfMe
Veteran
Joined: 25 Aug 2013
Age: 67
Gender: Male
Posts: 36,350
Location: Long Island, New York
....
You don't have to have all the issues to qualify for a diagnosis.
I wish you good luck in your search. Please let us know how you are doing and feel free to ask questions.
ASPartOfMe, I am so impressed that you continue to participate and welcome people to WP, in spite of all you are going through. You are truly inspirational.
Therapies and care are a few hours a day, that leaves me with a lot of spare time to persue my interests. Also I am following the example set by non-verbal autistic advocates.
_________________
Professionally Identified and joined WP August 26, 2013
DSM 5: Autism Spectrum Disorder, DSM IV: Aspergers Moderate Severity
“My autism is not a superpower. It also isn’t some kind of god-forsaken, endless fountain of suffering inflicted on my family. It’s just part of who I am as a person”. - Sara Luterman
Thank you so much for your help.
Regardless of the particulars of my diagnosis, I can say that for the first time in my life, the concept of neurodiversity has given me a way to view myself as something other than broken. And until this weekend, that had never happened before.
_________________
RAADS-R: 176.0
ADOS-2 Module 4: 9 (Autism Spectrum)
EQ: 7
AQ: 35
Diagnosed with ASD Level 1 15 Jan 2016
If you have medical insurance please call them for a referral to a psychogist and inform the psychogists your concerns and your need for testing.
Don't self diagnosis, what if your not autistic and something completely different that requires a different type of therapy or prescription.
If your looking to self diagnosis many will link to a test that is the equivalent of a teenage xanga fanboy test of which Lord of The Rings character are you most like.....people consider that the determining test of whether or not your autistic
Get tested otherwise I guess there would be nothing wrong with having another marla singer here
Medical insurance is most often not available for adult assesment in the USA and clininitions competent in how autism presents in adults is sometimes not readily available especially away from cities.
Anyway to early to be making a self diagnosis vs professional diagnoses. Much more research needed in this complicalited subject and you need to to decide what you are looking to gain from your search.
Every person in the United States is required to have health insurance by law or be fined. Mental Healthcare provided by insurance coverage has increased. Calling your insurance provider you do not need to get a referral from your doctor regardless if your an HMO or PPO and your medical insurance should be able to provide you with some numbers of psychologist in your area.
From start to finish it took me two months to finally meet with my clinical psychologist and I also had a regular psychologist I was meeting with after I got the referral and I was able to be properly diagnosised.
Really, what strikes home for me is not the tests. It's the narratives of other adults who are about my age.
I don't have health insurance right now. My employer doesn't provide it. When Obamacare came out, I struggled through the website and signed up for insurance. But then I forgot about it for 3 months and didn't pay, and they cancelled me.
Even still, the cost would probably not be a burden. I live 2 hours away from Atlanta, and I would fly to Japan for a month if I thought it would help.
I am really terrified of walking into a psychiatrists office and describing what's wrong with me. 15 years ago I read "Girl, Interrupted" and ever since then I've been terrified of what they would do to me if they ever found out how different I really am.
What would be the benefit to getting tested? Are there any drawbacks? How much does it cost? Does it hurt?
If you have the funds to pay to go to Japan to get treatment then you can pay out of pocket. Your best bet is to google local psychologists and call and get a quote but your prob better off getting your own insurance through obamacare or buying insurance director from someone like blue cross blue shield.
You do not need to see a psychiatrist you need to see a clinical psychologist for a proper diagnosis. A psychiatrist can however write you medical scripts prescriptions
Last edited by HisShadowX on 27 Sep 2015, 2:03 pm, edited 1 time in total.
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