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Anax
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07 Aug 2009, 4:51 pm

Hello all.

I've suspected for some time that I have Aspergers... my behavior when I was a child is very much in keeping with the description though as an adult I've learned coping and avoidance mechanisms which carry me through social situations. I'm not perfect obviously... I still can't 'read' people but at a concious level I've learned what to look for to judge peoples reactions and what behaviors are expected.

The question is... is it worth seeking a professional diagnosis? Its not clear to me what benefit I could get from a diagnosis... and I can't see it benefitting my situation either at work or with my family if they knew (and I can see having a diagnosis of mental illness on my medical records shutting more doors than opening them).

What is the experience of those who have been 'checked out'? Did it help them? Open doors? Close them? If you can 'walk the walk' (however inexpertly and exhausting it can be) is that enough?

-Anax-



Mindovermatter
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07 Aug 2009, 6:15 pm

Anax wrote:
Hello all.

I've suspected for some time that I have Aspergers... my behavior when I was a child is very much in keeping with the description though as an adult I've learned coping and avoidance mechanisms which carry me through social situations. I'm not perfect obviously... I still can't 'read' people but at a concious level I've learned what to look for to judge peoples reactions and what behaviors are expected.

The question is... is it worth seeking a professional diagnosis? Its not clear to me what benefit I could get from a diagnosis... and I can't see it benefitting my situation either at work or with my family if they knew (and I can see having a diagnosis of mental illness on my medical records shutting more doors than opening them).

What is the experience of those who have been 'checked out'? Did it help them? Open doors? Close them? If you can 'walk the walk' (however inexpertly and exhausting it can be) is that enough?

-Anax-
I think it's good to get diagnosed because if you can't hack it in the real world you can tell the government and go on SSI.



hartzofspace
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07 Aug 2009, 7:21 pm

A diagnoses is good to have, in case you need to ask for accommodation in a workplace, educational or living situation. Some people just need the validation of a diagnoses.


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Anax
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08 Aug 2009, 2:06 pm

hartzofspace wrote:
A diagnoses is good to have, in case you need to ask for accommodation in a workplace, educational or living situation. Some people just need the validation of a diagnoses.


I can't help suspecting that the costs would out-weigh the benefits... people don't tend to take well to others if they have a label that suggests mental illness and I would suspect that if it became known among those I work it would be career suicide. As for family, does having a convenient label that they could point to help them understand or feed their prejudices?

I'm curious what others have gone through and what they decided.



Aoi
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08 Aug 2009, 5:24 pm

The cost/benefit analysis can only be done for the short term. There are too many variables, many presumably unknown, for the long-term.

I went through the costs, and my family reacted in different ways: rejecting the diagnosis, accepting the diagnosis, ignoring the diagnosis. Friends were more willing to accept the diagnosis, but some still resist it at times.

No issue with employers. I'm self-employed; I've never been able to get a proper job.

There may also be legal issues involved, depending on what your AS comes with, and what your state reporting requirements are. For instance, if you have seizures with your AS, your doc may be required to report that to the state motor vehicle department (DMV, DOL, etc.), which could result in your license being suspended for 3, 6, or 12 months. Reinstatement usually requires a "seizure-free period" (length varies by state) and certification by a doc.

The diagnosis was worthwhile for me, even if it caused some problems as well.



hartzofspace
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08 Aug 2009, 7:13 pm

My seeking of a diagnoses had more to do with validation. But it came in handy when I had to ask for accommodation in an apartment building for elderly and disabled. Reactions vary, when AS is disclosed. I have had people accuse me of using it for an excuse, or direct me to websites with reputed "cures." I have had to mention it to clueless health care givers, when asking to have my therapy in a private room instead of in the middle of a very active, noisy gym.


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Dreams are renewable. No matter what our age or condition, there are still untapped possibilities within us and new beauty waiting to be born.
-- Dr. Dale Turner


Last edited by hartzofspace on 11 Aug 2009, 6:05 pm, edited 1 time in total.

nonneurotypical
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11 Aug 2009, 12:50 am

Aoi wrote:
... I went through the costs, and my family reacted in different ways: rejecting the diagnosis, accepting the diagnosis, ignoring the diagnosis. Friends were more willing to accept the diagnosis, but some still resist it at times.

No issue with employers. I'm self-employed; I've never been able to get a proper job. ...

I certainly can relate to this. Many of my family members have not accepted my diagnosis yet. I am still questioning it myself although the more I learn about the common traits and experiences of people with AS, the more I am amazed at how well AS describes me.

I've never kept the same full time position longer than about a year. In contrast, I've been self-employed for many years now. Having control over my world has made life more peaceful in so many ways, but I know I'd make more money with a real job and have less responsibility.

I've gone through a bit of a depression stage realizing that I've had a distorted view of myself for my entire adult life, but I'm still glad to know. In my case I was able to get a professional to assess me without involving insurance or other formalities. For those who have the funds, that might be the best way to go, at least initially.


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