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07 Oct 2008, 9:34 am

slowmutant wrote:
We'll have to agree to disagree, I guess.


I don't agree with that!

:wink:

From watching McCarthy's videos, I can see her fervor is based on building up her own sense of importance. She is putting herself up as this saviour and crusader. Her ego is most unsettling and distasteful to me. I hate mothers who use their children as a tool for their own gratification.

My Asperger's has become a lot easier to live with as the years go by. My sister, who I believe to be Autistic, has "improved" in a social sense steadily as she's gotten older. That's the way it is a lot of the time. Neither of us took some magic bullet cure, we just adapted as part of a natural process. Most people don't realise I have AS now, because I've learned to control it and manage it. But am I cured? Hell no, and I'll be fine without one thanks.


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slowmutant
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07 Oct 2008, 9:38 am

You don't agree with having to disagree? Then we can agree! :D



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07 Oct 2008, 10:02 am

slowmutant wrote:
You don't agree with having to disagree? Then we can agree! :D


Agreed!


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pheonixiis
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07 Oct 2008, 4:47 pm

Rebecca_L wrote:
Wow, Ishmael, you have some serious issues that you should look into addressing.


Wow is right.

Sure he does.

So do I. But umm... (I know I over use this). Pot... Kettle... Black.

I've been pretty hesitant to address you. I was waiting to see if you would work it out of your system; but I don't think you are here to be productive, (for yourself, or anyone else) you are here to be combative.

I think you may be a reasonable person in everyday life, but you aren't reasonable here. I know you are scared, and frustrated. I can even understand venting that frustration and anger by taking swipes and jabs at strangers over the faceless internet...(*raises hand*); case in point, please see exhibit A, etc...

But at this point you may want to consider some professional help for your own issues, instead of poking sharp verbal sticks at people even angrier, more frustrated, and (possibly) with even fewer social skills and coping mechanisms than you.

Most people here are not going to agree with you. If you want a warm reception while you advocate what many here consider shoddy science, and occasionally just flat opportunistic, predatory, dangerous quackery, go to Autism Speaks. In fact, I would put money down that you already have an account there.

I don't know your situation. I don't know what you go through on a day to day basis with your grandson. I don't know what his behaviors are, what his function level is, how verbal, or what coping mechanisms all of you have. It is always different with any individual, and always nuanced, and complicated.

I am sorry that you are struggling so much, but picking a fight with someone who has already established that he doesn't have that little switch that says 'probably-shouldn't-say-that', isn't helping anyone. Least of all you.

Rebecca L' wrote:
a) No study has proven vaccines safe -- ever. No study has even been conducted that actually tried to replicate Wakeman's findings. They very carefully chose a "test" group that did NOT meet the criteria of the original study.


Well. Okay. I've got to give you that. But no study has proven Polio or T.B. safe either.

Rebecca L wrote:
b) No other country vaccinates their people as often and as early as we do, yet they do not have vast epidemics of "preventable" diseases either.


Well sort of. While I lived in Germany both my daughter and I were exposed to active T.B. by an OBGYN. We don't have it. My husband does, however. He got it there. There is more disease in those countries that don't vaccinate.

An epidemic is something that is usually only a risk when people are exposed to conditions that exacerbate the risk of disease; poor nutrition, poor sanitation, too close quarters, etc... But you do have a greater occurrence of individual, or even pocket group out breaks of these sort of communicable diseases, without a vaccination program.

Rebecca L wrote:
c) I have Asperger's, as do my son and my oldest grandson. I have a cousin with classic autism and another grandson with classic autism. Jenny hasn't caused any of us any harm at all.


I agree that some of the vehemence expressed is certainly not necessary and probably more than a little counter productive.

What she advocates is to my mind (I can only speak for myself on this one), is dangerous. She uses her celebrity status to draw attention to this issue. Fine.

But she takes on a strange, martyred, absolutist stance that paints many of us who can function with a pretty black brush that covers over what I feel is most of the real story.

When you couple that with the fact that she seems to be advocating a stance that will put millions of people at risk for (what actually are) established as diseases... Well, the words fear mongering, irresponsible, and reprehensible come to mind.

I don't think I have a disease. I don't think my daughter has a disease. I don't even think it is a disorder. Only different. I do believe it is genetic. What she advocates makes it way too easy to put people like us in a 'fundamentally flawed' category by society. We are marginalized enough with out society believing we are incapable. That is the simplest way I can put it.

I'm trying to be succinct. Mostly because I don't think you are actually here to consider my (or anyone elses' for that matter) opinion on what she says if it differs from you own. So I won't waste any more of my time (or yours) on that.

Rebecca L wrote:


Perhaps, Ish, you should just focus on getting your own life in order and stop laying your problems at the feet of a mother who believes what she is saying and believes it will be helpful to others. If she bothers you, ignore her, but demonizing her simply makes you look stupid.


*Sigh*

Demonizing a mother who is just trying to cope does make people look stupid.

So does calling people names when they are manifesting a behavior that is part and parcel to the spectrum. It also makes you look extraordinarily vindictive, and more than a little mean. Just because you (think) you have learned to shut it when you shouldn't open it, (or type it) doesn't mean that everyone else has or should, or that you're the qualifying authority on when that should be.

You aren't listening to anything he says because you don't like the way that he says it. This strikes me as a clear indication that you are mostly here looking for a brawl. Which is all well and good, (like I said), up to a point. Be careful of that point.

Rebecca L wrote:
I've seen you state several times that vaccines have nothing to do with Autism. I would like to know just what qualifications you have that you can claim that with 100% certainty? I know of several studies that indicate vaccines can and do cause increases in neurological disorders, from ADHD to Tourettes to Autism. Are you a microbiologist? A toxicologist? A scientist at all? Or are you just as uneducated as Jenny McCarthy and simply the pot calling the kettle black?


I don't have those qualifications. Not by miles. But neither do you, to make it from the other direction. (Yes. Yes. I know you never said that you did. But your vehemence implies that you think you have some sort of authority on the subject.)

There is alot more reputable evidence out there that there is no link between autism and vaccines. Wouldn't we have seen massive occurrences of spectrum like behavior generations ago if vaccines were the source or autism?

I put up some links in the other Jenny M. thread (with LeKiwi), and I'm just too darn lazy to post 'em here.

But, like I said; I'm willing to go with the CDC on this one. The established science says it's (probably) hog wash.


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07 Oct 2008, 5:40 pm

pheonixiis wrote:
I don't think I have a disease. I don't think my daughter has a disease. I don't even think it is a disorder. Only different. I do believe it is genetic. What she advocates makes it way too easy to put people like us in a 'fundamentally flawed' category by society. We are marginalized enough with out society believing we are incapable. That is the simplest way I can put it.


I couldn't agree with you more on this point, and I think it's the one thing that bothers me about Jenny. But surely you don't agree that the level of hatred shown here is healthy or helpful? It just seems like an outright show of complete venom and loathing, towards a person who is - all said and done - only trying to get the word out about something that is often extremely damaging and prevent other mothers having to see their kids go through what hers did. She's not very good at doing it, granted, and I really strongly disagree with how she doesn't really paint a good picture of Aspergers and higher-functioning forms, but you really can't fault her for trying to do something, no matter how clumsily and stupidly she does it.


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dbzgirl
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07 Oct 2008, 8:07 pm

slowmutant wrote:
dbzgirl wrote:
I haven't seen any recent videos of her son, but I think he can show affection.


If you've seen no videos of the boy, how can you know anything about him?


I saw the episode of "Oprah" when she was first talking about her son and him having a form of autism, and I remember that he seemed to be able to show affection and do other things related to that; he was capable of more than 'just stimming all day" like Jenny said.



Alaras
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08 Oct 2008, 12:10 am

When you're playing the pity card, truth doesn't matter much.



pheonixiis
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08 Oct 2008, 9:23 am

LeKiwi wrote:
pheonixiis wrote:
I don't think I have a disease. I don't think my daughter has a disease. I don't even think it is a disorder. Only different. I do believe it is genetic. What she advocates makes it way too easy to put people like us in a 'fundamentally flawed' category by society. We are marginalized enough with out society believing we are incapable. That is the simplest way I can put it.


I couldn't agree with you more on this point, and I think it's the one thing that bothers me about Jenny. But surely you don't agree that the level of hatred shown here is healthy or helpful? It just seems like an outright show of complete venom and loathing, towards a person who is - all said and done - only trying to get the word out about something that is often extremely damaging and prevent other mothers having to see their kids go through what hers did. She's not very good at doing it, granted, and I really strongly disagree with how she doesn't really paint a good picture of Aspergers and higher-functioning forms, but you really can't fault her for trying to do something, no matter how clumsily and stupidly she does it.


I don't fault her for wanting to get the word out. Absolutely not. If the efforts made have truly helped her son (or even if she just feels that way), then yes get the word out. But make sure that people understand that what works with him may not work with another child.

But she's doing it in an overly simplistic manner that is misleading. While I understand that trying to educate the public about a complex subject can be sticky, and it is best to be succinct; the picture she paints is very bleak and lacking dimension.

I understand the drive to do something to help. But her efforts are clumsy, (which is a very nice way to put by the way. I'll have to remember that.) At this point, to my mind,- too clumsy.

Her positive effect now is far outweighed by the negative, because she is not presenting the truth. She is too high profile to not think about what she advocating, and to not advocate it fairly. I disagree here. Sorry. She needs to either get more informed and present a more balanced picture, or get her finger out of this pie publicly.

Frankly, she (Jenny M.) seems (to me) to be more invested in maintaining an image as some sort 'hero' who swooped in and saved her son from some horror than actually promoting awareness of the complexities of The Spectrum. She doesn't include the positive with the negative. It's time she moved past the martyr syndrome, and on to actually helping others instead of just validating her own ego. Harsh judgement there maybe, but sheesh... She needs to start thinking instead of just emoting.

I agree that some of what was said here is absolutely ridiculous. There is resentment, and then there is seething, unthinking bile. It doesn't make us look very good, when you see a bunch of people with AS advocating violence, when too many people perceive us as potential serial sociopaths anyway. I don't think the woman is stupid actually, just not terribly introspective about what is motivating her here for some reason. I'm kinda puzzled actually.


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08 Oct 2008, 9:29 am

pheonixiis wrote:
LeKiwi wrote:
pheonixiis wrote:
I don't think I have a disease. I don't think my daughter has a disease. I don't even think it is a disorder. Only different. I do believe it is genetic. What she advocates makes it way too easy to put people like us in a 'fundamentally flawed' category by society. We are marginalized enough with out society believing we are incapable. That is the simplest way I can put it.


I couldn't agree with you more on this point, and I think it's the one thing that bothers me about Jenny. But surely you don't agree that the level of hatred shown here is healthy or helpful? It just seems like an outright show of complete venom and loathing, towards a person who is - all said and done - only trying to get the word out about something that is often extremely damaging and prevent other mothers having to see their kids go through what hers did. She's not very good at doing it, granted, and I really strongly disagree with how she doesn't really paint a good picture of Aspergers and higher-functioning forms, but you really can't fault her for trying to do something, no matter how clumsily and stupidly she does it.


I don't fault her for wanting to get the word out. Absolutely not. If the efforts made have truly helped her son (or even if she just feels that way), then yes get the word out. But make sure that people understand that what works with him may not work with another child.

But she's doing it in an overly simplistic manner that is misleading. While I understand that trying to educate the public about a complex subject can be sticky, and it is best to be succinct; the picture she paints is very bleak and lacking dimension.

I understand the drive to do something to help. But her efforts are clumsy, (which is a very nice way to put by the way. I'll have to remember that.) At this point, to my mind,- too clumsy.

Her positive effect now is far outweighed by the negative, because she is not presenting the truth. She is too high profile to not think about what she advocating, and to not advocate it fairly. I disagree here. Sorry. She needs to either get more informed and present a more balanced picture, or get her finger out of this pie publicly.

Frankly, she (Jenny M.) seems (to me) to be more invested in maintaining an image as some sort 'hero' who swooped in and saved her son from some horror than actually promoting awareness of the complexities of The Spectrum. She doesn't include the positive with the negative. It's time she moved past the martyr syndrome, and on to actually helping others instead of just validating her own ego. Harsh judgement there maybe, but sheesh... She needs to start thinking instead of just emoting.

I agree that some of what was said here is absolutely ridiculous. There is resentment, and then there is seething, unthinking bile. It doesn't make us look very good, when you see a bunch of people with AS advocating violence, when too many people perceive us as potential serial sociopaths anyway. I don't think the woman is stupid actually, just not terribly introspective about what is motivating her here for some reason. I'm kinda puzzled actually.


I greatly appreciate that someone is willing to render fair and constructive criticism unto Jenny McCarthy. This is much more productive than tossing around the phrase "genocidal b***h."



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08 Oct 2008, 12:02 pm

[Not going to quote what you've said because it's getting long for people to scroll down, but...]

Yeah, I would agree with that. I think she needs to take some time out, sit back, maybe spend a couple of months just at home with her son, and then maybe come back again and start her campaign over. She does get very emotional and passionate - which is fine, I can completely relate to that as I do it myself!! - but I think maybe she needs to do some more research, sit back and have a look at how she's presenting things and how it's coming across, and then perhaps do a round of publicity events and chat shows and whatever she's doing but get some more science in there.

At the same time, I have to also appreciate that we, as Aspergians and autistics, will more than likely have a natural inclination towards facts and figures and real statistics and putting things succinctly that she perhaps doesn't have. And perhaps that's part of what bothers people on the spectrum so much - that she's emoting rather than talking figures.

She just needs to strike a balance I think and maybe learn to control her emotions a bit more, which I know is going to be very difficult given the circumstances and reason why she's doing it in the first place - I don't have kids but do have young siblings [much much younger than me] and I know how protective you get and how easy it is to get emotional and carried away when it comes to their welfare - but perhaps it would give her the credibility she's lacking in the sphere and gain her some respect from the scientific community.

Given her background as a soft-porn star, which I don't hold against her in any way - we all have history - I think she's going to have to work even harder than most would to gain that respect as a spokesperson she needs to keep this going, because there will be plenty (especially in conservative America) who won't listen to her or will ridicule her purely because she used to take her clothes off once upon a time, as opposed to giving her a chance to speak simply as someone's (fully clothed) mother.


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Unknown_Quantity
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10 Oct 2008, 1:08 am

I've suddenly realised a connection between this thread and the PETA saying cow's milk causes Autism thread.

My anger towards PETA is that if they are seen as the foremost animal rights organisation, and they also present ludicrous claims and easily refutable nonsense, then people will make the assumption that all animal rights groups are liars and nutcases and the whole world will ignore the issue.

This is almost exactly what has been annoying me about McCarthy. We have so few represenatives for ASD awareness, and when one that is in the forefront of the public eye starts making claims that are either untrue or sketchy at best, then it's easy for the general public to dismiss all ASD stuff as white noise that they should just tune out.

The old saying there's no such thing as bad publicity doesn't apply when the bad examples dilute or over power the good.


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AngryReptileKeeper
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10 Oct 2008, 4:20 pm

liloleme wrote:
And here is some proof that there is NO link between vaccine and Autism

http://www.webmd.com/brain/autism/vaccines-autism

Since the MMR vaccine has been proven to not cause Autism they have switched tactics and say that it is now not the MMR but the number of vaccines that cause it. Its all horse hockey and kids suffer because of it.


I'd like to see who funded these studies. Seriously. Question everything.

As for Peta, they're a bunch of idiots. If eating meat is murder, then so is eating plants.

Check this out.

http://www.youtube.com/watch?v=mGRluepFwdg

Peta is more than an organization of hypocrites; they're delusional. Things must die in order for other things to live. That is the chain of life.



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11 Oct 2008, 10:18 pm

Alaras wrote:
When you're playing the pity card, truth doesn't matter much.


Did you mean that Jenny was playing the pity card or that I was playing the pity card?



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13 Oct 2008, 6:39 am

Don't listen to that b***h she just a pornstar with no knowledge about autism.



pheonixiis
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13 Oct 2008, 1:41 pm

howzat wrote:
Don't listen to that b***h she just a pornstar with no knowledge about autism.


Hey! :x

Do I know you?

No personal attacks. Just because I got naked in front of a camera doesn't mean my parenting skills are sub-par, nor does it have any impact on my knowledge of autism.

I'm always baffled by the pretty naked woman=idiotic b***h equation. You know, I am so tired of people like you...

Oh.

Err...

Wait. Looking back you were talking about Jenny weren't you. My bad. :wink:

Seriously though. There is no link between porn and stupidity. If there was, the majority of the people on this site would be dirt stupid.

Also, define stupid... Having sex for free, having sex for money, or having sex for alot of money. Besides, I don't think she ever did anything naughtier than Playboy.

Trying to make inferences about a persons character based on one aspect of them is usually a pretty limited argument. Having said that however, I can make some pretty astute observations about you based on that one sentence. Which I'm having loads of fun with right now by the way.

She strikes me as a decent person. Maybe not nice exactly, but decent. I however; without a doubt... make no mistake... I am a b***h.


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barcncpt44
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17 Oct 2008, 2:18 pm

she is now on aol's popeater talking about how she cured her child's autism.
aol story


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