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Awiddershinlife
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07 Jul 2009, 2:44 am

Janissy wrote:
For somebody who says he he is severly mentally impaired, he makes a pretty cogent and compelling argument. I can see his point of view. He worries that too ardent an embrace of neurodiversity will morph into not finding ways to help people who are really, really suffering because of autism. I think it's a legitimate fear. I embrace neurodiversity too. But I can see how it could look from the severly impaired end. It could look like "don't cure me because I'm brilliant and quirky and normal is overrated and also don't cure that guy who feels like spikes are going through his ears every time he hears a loud noise because...normal is overrated". I know that's not what neurodiversity means, but I can see where his fear is coming from.


I was very interested in your point. I do think brilliant and quirky is a godsend, but we all need some help - that's why we sought out our diagnoses. It has been my hope that embracing neurodiversity would inspire more help, do away with the "us" and "them" dichotomy.

PS I really liked both movies - fabulously unique, yet both speaking to the same subject. Please keep this going!!


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bluecup
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07 Jul 2009, 8:57 am

koryna wrote:
was just cleaning out my inbox and found a flame for my Neurodiversity video.

For those curious, this is what it says:

"I saw that video that you put up recently with the ridiculous thoughts in it. I don't trust anyone who tells not to focus on negative aspects. Where do you get off saying "us" and "we" like you represent all autistics when expressing your views? There is no refuting that the vast majority of your "movement" is by HFAs and aspies. Who the hell else would argue against measures that would increase mental ability, other than those who already have lots of it and want to keep their own from being distributed to others? Especially considering a lot of the super HFA have such higher aptitude than the average person. So I don't wonder what you're holding on to. I hate that selfishness.

Just cause some of you grew from LFAs to be HFAs doesn't mean growing up will solve enough of the impairments or that all on the spectrum will be that lucky. Don't pretend it's a childhood condition. Don't you dare ignore the many severely impaired adults who are chained into dependence and huge deficits of ability. Supports, accommodations, positive attitudes, and all that sappy sh**, won't enable many highly impaired autistics to sufficiently communicate or contribute to society. The problem of lack of capability to learn needs to be stopped.

I'm disgusted at you for complaining about low/high functioning labels. I detest that attempt to ignore the unfair vile reality. I loathe the idea that some would pretend things could be just and equitable, while LFAs are tied to incapability, dependence, and deprivation from many activities, while so many HFAs have the world by the balls, getting the choice of many things to do and accomplishing all kinds of things through academic and employment endeavors. I loathe the lies and phony perceptions that come out of lack of comparing one person to another. It's not harmful to self-esteem. The reality of being low-functioning hurts self-esteem. No lie and patronization will cover that up. Nobody is nuts enough to think that comparing themselves to others is needless. There should be no developing and growing separately. It should be done together.

Competition and its motivation will not stop until the conditions that make it necessary stop, which are the unequal and private distribution of mental capacity. It's not about competing to be worth anything. It's not enough that all are worth the same. I don't think you smart poindexter creeps are worth more. Your abilities are worth a lot for use but the individuals themselves who have them aren't extra worthwhile for inheriting them through conditions that were out of their control, that they didn't work to get. Being worth something doesn't stop the pain that comes from being deprived of the dignity of independence and having basic skills, and from seeing all the goodies and privileges of high intellectual ability go to someone else. Having someone remind one of having value isn't going to stop the vile way it feels to have to be dependent on others, and be inevitably precluded from many activities others get to do.

Why should those MANY low-functioning indivduals put up with your BS, trying so hard with lots of exertion to do/learn basic tasks, while not even succeeding in learning/doing all of them enough of the time, with minimal hope of doing a lot besides that, while the super high-functioning end up having to put hardly any effort at all into basic tasks and get to have an easy time working on intellectual pursuits and other abilities? If those LFA were to have more abiilties brought to them, besides what little they may get as they grow up and develop, think of how much total accomplishment would go up for the spectrum as a whole. Think of how much more time they would and could use to work on tasks/learning and how much more they could come up with using that time, if they had a much better chance at getting ahead with such things, if they could appropriate a large deal more in proportion to their exertion.

I want the future to deal with the uneven distribution of ability within the spectrum to make it equal. I want the determinants of cognitive functioning to be identified to distinguish which ones cause low-functionality and which ones cause the huge mental gifts of high-functionality. I want there to be a cure rigorously pursued to make it possible to alter the aspects of individuals' brains that determine functioning level/ability, using methods to augment mental capacity, using the determinants of functioning that cause high mental capacity in some, and ridding aspects of brains that are known to decrease mental capacity. That's what I'd like to see happen to make everyone on the spectrum have sufficient ability. I don't think all involved in the issue agree on what the definition of cure is. But bashing cure outright isn't acceptable and it isn't honest either.

Cure isn't about eliminating a group of individuals, or about "intolerance" of diversity, or making someone a different person. I refuse to sit back while you all try to obfuscate the issue with those concerns. I don't see how it can't be obvious that guaranteeing ability is what is mostly intended about cure by most involved in the issue.. I don't hope to leave any doubt that I indulge in my own extreme envy against many who are smarter/extra capable than me and that I endorse and don't disapprove of such sentiment. I'm someone who is severely mentally impaired myself, so I have an intense hate for the subjugation that the people you defend bring on those who are on the bottom of the hierarchy to keep them down."


hmmmm, this sounds a lot like my troll nutsndoltz from my Cure video. The sender's info says his name is "Billy". I think that I'm going to look up the email account....

Edit: oh hey, looks like this guy has popped up on left brain/right brain. He goes by the username "kyngdingxx".



OK, would someone please explain the difference between HFA and LFA? If this guy is "severely mentally impaired" and a low functioning autistic then I'm a vegetable. :?



Awiddershinlife
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07 Jul 2009, 11:32 am

bluecup wrote:
OK, would someone please explain the difference between HFA and LFA? If this guy is "severely mentally impaired" and a low functioning autistic then I'm a vegetable. :?


A person with autism does not relate to the NTWorld (the Neurotypical experience) intuitively. There are social and communication barriers that need to be overcome to relate to NTW. These barriers are overcome by learning to relate to NTW academically rather than intuitively. They are frequently led on this journey by NT people who have not adequately processed the intuitive vs academic ways of learning how to function in the NTW. The deep, specific focus auties specialize in is a gift, not a problem.

HFA = High Functioning Autism. The barriers to functioning in NTW are moderate to mild, and can be broken down with effective early intervention and much hard work on the part of the autistic. The only difference b/t HFA and AS is that HFA gets services and AS doesn't (b/c the language delay in AS doesn't show up until after age 3 years of age). This is ridiculous.

LFA = Low Functioning Autism. It is a term applied to people who face profound to severe barriers to functioning in NTW. It takes superhuman efforts to break down these barriers (but these heroes do succeed with extreme effort, effective early intervention, and good life-long support). Unfortunately, many, many people - some of them "experts" in the field of ASD, label this extraordinary group of people as mentally ret*d. This term is belittling, imprecise, and should not be used.

Both HFA & LFA should be pruned from usage.

My allegory for autism is a person is trapped in a brick tower (like Repunzel).
Aspies may have a few windows in the tower through which they can access NTW (and let down their golden hair). They spend a lifetime trying to put in more and bigger windows, often with much jeering and little help.

Auties have few to no windows. Shrinks are constantly taking the IQ* of the bricks and labeling the people inside as "MR." Effective early interventionists try to knock windows in the walls so that "experts" can see the unique individual and thus allow this unique individual to exert maximum control over his/her own life.

*IQ is technically a measure to predict school success, and it is pretty accurate when used this way. But too many people (and lots of them “experts”) extrapolate the results to reveal an individual’s actual intelligence. The problem with this use of IQ tests is that MR & MMR frequently become “throw-a-way” diagnoses. These kiddos are frequently segregated into classes where they are not educated. Neglect and abuse are not infrequent.


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koryna
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07 Jul 2009, 7:11 pm

bluecup wrote:
OK, would someone please explain the difference between HFA and LFA? If this guy is "severely mentally impaired" and a low functioning autistic then I'm a vegetable. :?


For the record, this guy has never claimed to be autistic, or to knowingly met any autistic individual. In all my discussions with him, he has admitted that all he knows about autism is what he's come across on the internet. He won't say where on the internet. He also won't provide citations or references for any of the "facts" he argues with. Also, apparently, he is a frequent creator of "straw-men" on blogs such as Left Brain/Right Brain.

And it has been made clear that this is my old troll from YouTube, nutsndoltz. He recently emailed me again because apparently he found my blog where I also posted his last email:

"Yeah, it was me, nutsndoltz. And I think I saw your email on deviantart. I think it's really silly that you call someone a troll for daring to disagree with you, which is what the rest of you creeps do. If only you could actually debate the merits of what your opponents say. But you backward social oppressors can't, and can't think of anything else to label your detractors as besides "trolls". You don't have the balls to directly contrdict some of the things I say so you don't acknowledge them. I like how you think you're so tough for posting what someone said to you in an email on your blog so your pansy-ass friends can take shots at me. You want the "troll" that is me to go away from those like you? Quit trying to proselytize others into following your despotic ambitions. Think about who the real f*****g flamer is."



koryna
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07 Jul 2009, 7:12 pm

discosizzle wrote:
I think you might want to edit your video. I didn't watch it all the way through because the points took too long to develop. For instance, you over-explain neurodiversity and then you over explain diversity. Who is your target audience? I think defining that would help a lot.



my target audience is those who don't know what Neurodiversity is, basically parents and professionals of newly-diagnosed autistics.



koryna
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07 Jul 2009, 7:15 pm

KingdomOfRats wrote:
koryna,
am in the group he's wrongly representing [lfa],and think nothing of that crap he said and also think should go out there and do anything that want in a video if that is what believe,that is what youtube is for-this baiter can go and make his own instead of ranting in someones messages.
am also neither feel offended or oppressed or bad because there's people better functioning out there,thats life-there's always going to someone better or worse off,what am don't like is being spoken for in such a way-he speak for self,not everyone.

maybe this user really is severely mentally impaired,guessing add/adhd if he really is,or a mental health impairment,but that does not mean it's the same life as for someone with a different condition.
am doubt it is true though,its classic baiting,state have got a condition or something similar to make others think theyve got a right to rant,have had it done before on own makaton video.
No longer a site for innocent video makers,but more a trolls playground.


Thank you very much. I appreciate your input very much.