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Verdandi
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13 Dec 2013, 1:30 am

aghogday wrote:
Da ya..really think a charitable non-profit organization raising about 60 M dollars a year is going to be negatively influenced by a group effort of people on the internet who are already described as not really autistic..in general by at least some of the people who directed the DSM5 effort to get rid of Asperger's Syndrome..in part because they don't see this internet described autism phenomenon as anything seemingly but 'a self-reported fraud'...


I remember when you acted so outraged in response to my questioning if you were really autistic because you had a rapid recovery over a period of a few years, and now you turn around and try to suggest that many of the people on this forum are basically participating in a "self-reported fraud."

And you really can't stand it when people criticize Autism Speaks, can you? You're telling people not to do this stuff (and falsely framing it as a purely internet thing). You tried to say this isn't what you do, but here you are going at it just as hard as always.



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13 Dec 2013, 1:38 am

aghogday wrote:
Just in my opinion there are no binary choices in life....

Also in my opinion..overall..black and white thinking can be an overall very dangerous attitude..to absorb oneself in...

Simply as it can be so dam restricting overall..for the eventuality of any true will of thought.......

Again in only my opinion....

I don't necessarily think that black and white thinking is an autistic specific thing either...

It's more I think..an issue of conformity..to whatever group may be observed as the herd....as far as i can see about that...

But not me..I'm always gonna make my mind up for myself..based on all the facts I can find...

I don't rey on the herd to make my decision for me..ever..never..ever.....


This from the guy who insists that ASAN and AWN are bad and berates basically everyone for criticizing Autism Speaks because - in your opinion - Autism Speaks is doing the work and we should leave it alone, etc. This is from the guy who says that online discussions have zero bearing on the real world. This is from the guy who constantly characterizes the people on this forum and the people critical of Autism Speaks as being too mild to really be autistic, going so far as to say outright that the people objecting to Autism Speaks are part of a "self-reported fraud" that the DSM-5 changes were made to exclude from the Autism diagnosis.

Dude, you are basically spewing black and white over everything in these threads. Your posts have no nuance. They're just a mix of "You're wrong for opposing Autism Speaks! The organizations you support are bad! You're probably not autistic anyway! And if you are you are so mild you're barely affected!" Until someone calls you on it at which point they become liars and hypocrites because you never said those things, except for all the many times you did.



aghogday
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13 Dec 2013, 7:51 am

Verdandi wrote:
aghogday wrote:
Da ya..really think a charitable non-profit organization raising about 60 M dollars a year is going to be negatively influenced by a group effort of people on the internet who are already described as not really autistic..in general by at least some of the people who directed the DSM5 effort to get rid of Asperger's Syndrome..in part because they don't see this internet described autism phenomenon as anything seemingly but 'a self-reported fraud'...


I remember when you acted so outraged in response to my questioning if you were really autistic because you had a rapid recovery over a period of a few years, and now you turn around and try to suggest that many of the people on this forum are basically participating in a "self-reported fraud."

And you really can't stand it when people criticize Autism Speaks, can you? You're telling people not to do this stuff (and falsely framing it as a purely internet thing). You tried to say this isn't what you do, but here you are going at it just as hard as always.


ya miss me..smiles..

Well anyway dear..friend..first of all please read my words again if you will..as just to clarify and verify communication here.. I did not say that people on the internet are self reported frauds..this was the topic of a dsm5 represenative that was discussed fully on this site..as referenced above..

Second of all..my personal critizisms of Autism Speaks are well documented on this site..and no problem for me to quote them again..here.. if ya like cause they were just written by me in the last several weeks..and yah.. some of them fairly well scathing..

But anyway good to hear from ya again..and yah.. believe it or not i sincerely wish you the best friend.....


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aghogday
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13 Dec 2013, 7:58 am

Verdandi wrote:
aghogday wrote:
Just in my opinion there are no binary choices in life....

Also in my opinion..overall..black and white thinking can be an overall very dangerous attitude..to absorb oneself in...

Simply as it can be so dam restricting overall..for the eventuality of any true will of thought.......

Again in only my opinion....

I don't necessarily think that black and white thinking is an autistic specific thing either...

It's more I think..an issue of conformity..to whatever group may be observed as the herd....as far as i can see about that...

But not me..I'm always gonna make my mind up for myself..based on all the facts I can find...

I don't rey on the herd to make my decision for me..ever..never..ever.....


This from the guy who insists that ASAN and AWN are bad and berates basically everyone for criticizing Autism Speaks because - in your opinion - Autism Speaks is doing the work and we should leave it alone, etc. This is from the guy who says that online discussions have zero bearing on the real world. This is from the guy who constantly characterizes the people on this forum and the people critical of Autism Speaks as being too mild to really be autistic, going so far as to say outright that the people objecting to Autism Speaks are part of a "self-reported fraud" that the DSM-5 changes were made to exclude from the Autism diagnosis.

Dude, you are basically spewing black and white over everything in these threads. Your posts have no nuance. They're just a mix of "You're wrong for opposing Autism Speaks! The organizations you support are bad! You're probably not autistic anyway! And if you are you are so mild you're barely affected!" Until someone calls you on it at which point they become liars and hypocrites because you never said those things, except for all the many times you did.


Oh..my goodness there ya go again putting words in my mouth..my dear friend..ya see..i did not say anyone should not criticize autism speaks...OMG i keep telling you this but you don
t seem to be listening to me..as i myself don
t
have any problem criticizing Autism Speaks...

They do not speak for me ...nah not at all.. but they are among the only organizations..speaking for children like my son who actually died as a result of an autism spectrum co-morbid condition that they have funded research for to eventually defeat...

But anyway..i
m not sure what all your issues are..but yah are not reading my words as clearly stated friend..for whatever reasons..

or reason...

So have a great day..anyway..i guess as that is your will not mine...

Like everything else for you and all others yes..that too....


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aghogday
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13 Dec 2013, 8:01 am

And oh by the way..my disorder is professionally documented..what about yours dear friend..but i could not care less...as i tell the truth and never lie intentionally.....


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Mike1
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13 Dec 2013, 8:30 am

I think the best way to get the public's attention would probably be to raise money for an anti Autism Speaks television commercial. The commercial would probably get the media's attention, and then they'd be talking about it on the news. It would make our cause seem much more legitimate and create a lot of awareness.



vickygleitz
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13 Dec 2013, 3:24 pm

Mike, I agree. The problem would be how to raise the funding.



BuyerBeware
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16 Dec 2013, 3:03 pm

vickygleitz wrote:
I am an old autistic woman. I have kids and grandchildren, some autistic, some not. My beautiful and incredible NT children and grandkids have members of the opposite sex falling at their feet, have no difficulties obtaining work,[some of them have head hunters seeking them out] and when they start new jobs are quickly promoted. They have tons of friends. One of my NT grandkids is 16 years old and is being watched by not only college, but NFL recruiters because he is that good at sports.

My autistic kids are every bit as good looking, intelligent, hard- working and kind [actually kinder] young people as my NT ones. But they are bullied horribly and consistently. They can rarely find jobs and if they do they can't keep them They mostly have no friends and my youngest son, also autistic, who endures what the neurologists describe as "the most excruciating pain humanly possible" from another problem is also treated badly.

Until a year or so ago, when an Autism speaks commercial came on, my youngest son would say "See Mom, they don't even have the burns[ what he refers to as the ice pick like pains he has lived with for 7, nearly 8 years] and they have no hope. They are tragedies and they don't even have the burns.. Please get out of denial and help me die."

This is how their ads make my son feel. This is how it makes other kids with autism feel. These ads make parents of autistic children [whether they themselves are autistic or not] feel like the hope is being sucked out of them.[ except for desperate parents believing for a cure] I am sure that these ads are not conducive to helping NT children, parents of NT children, potential employers or neighbors see that autistics are usually awesome people but that they are instead tragedies. Less Thans.

it is never alright to use fear to manipulate others into giving. It is especially horrific when it is done at our peoples expense. And you know one thing that really sucks? When I talk to people about the importance of a huge campaign to encourage acceptance of Autists. When you speak of accomodations, different forms of support,needs for adult autistics, etc. and the person you are speaking to you, nods, and days " I agree. That's why I contribute regularly to "Autism Speaks," and, I hear they're close to a cure now so it's money well spent." AAARGH!

It angers me[but not nearly as much as it distresses me] what a brilliant [evil?] job they have done of pitting NT parents of autistic children against adult and/or higher functioning autistics. We should not be fighting these parents, but working with them. They DO love their kids every bit as much as their NT kids. As far as understanding their kids, well, being autistic does help me understand my kids/grandbabies better, but not nearly as well as I understand them out of the love I have for them. I firmly believe that the division was caused,most likely deliberately, by Autism Speaks.


That pretty much encapsulates it for me.

The only time, since I was a bullied child, that I have seen and felt myself to be "less than," has been since Autism Speaks started spewing their s**t.

The only time, since I was a bullied child, that I have been treated as if I were "less than," has been since Autism Speaks started spewing their s**t. When I was a child, I was treated that way at the hands of other children. Since Autism Speaks, I have been treated that way mostly by medical, mental health, and education professionals. All educated by, yup, Autism Speaks.

Evidence enough for me.


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CockneyRebel
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17 Dec 2013, 7:02 pm

I've signed the petition. :)


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Verdandi
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22 Dec 2013, 10:38 pm

aghogday wrote:
And oh by the way..my disorder is professionally documented..what about yours dear friend..but i could not care less...as i tell the truth and never lie intentionally.....


Diagnosed like my profile says.

You can claim you tell the truth, but your actions differ. You say you do one thing, but you actually do something different. You object strenuously when your actions are taken at face value, even though you actually did do those things.

Why the hell did I even accidentally read this post?



aghogday
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23 Dec 2013, 9:05 am

Verdandi wrote:
aghogday wrote:
And oh by the way..my disorder is professionally documented..what about yours dear friend..but i could not care less...as i tell the truth and never lie intentionally.....


Diagnosed like my profile says.

You can claim you tell the truth, but your actions differ. You say you do one thing, but you actually do something different. You object strenuously when your actions are taken at face value, even though you actually did do those things.

Why the hell did I even accidentally read this post?


OH..God..ya miss me again?

Hell no dear i tell the truth..you lying about me doesn't change that one bit...

I have asked you over a score of times..to document your accusations against me by quoting any actual words that you attempt to put in my mouth..but no you have not done it..as they simply do not exist anywhere but your imagination...

Like i said i could not care less what your diagnosis is..

That was just a rhetorical question..ya know..it says it correct..on your profile....

But still.. i never judge a book..just by it's cover..

This is only the friggin internet.. and these are only words..

You my dear..will never know who i am in real life...

Do you understand what that means?

Words do not tell the whole story....

And i do not think i even want to know the fuller story that is you..

Sorry..i don't feel that way about most people...but you are among the few

that try this hard to try to attack me...

And taint this online fantasy of personalties... of whoever is whoever...

But far under from the real world..

The fuller reality that is...

A full human being..

period.


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24 Dec 2013, 2:55 am

Aghogday,

I rarely post, usually just read the postings...But, I've followed you for awhile and all you ever seem to do is damage control for Autism Speaks criticisms. You work for AS, right? You're a troll, no? I don't consider your opinions to be either honest or ligitimate. I think you're a fake. Also, I've followed the links to your blogs and find some of the pics posts to be really offensive; particularly the nude picture of the guy with the phone.



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24 Dec 2013, 5:42 am

OrangeTortie wrote:
Aghogday,

I rarely post, usually just read the postings...But, I've followed you for awhile and all you ever seem to do is damage control for Autism Speaks criticisms. You work for AS, right? You're a troll, no? I don't consider your opinions to be either honest or ligitimate. I think you're a fake. Also, I've followed the links to your blogs and find some of the pics posts to be really offensive; particularly the nude picture of the guy with the phone.


Well apparently you haven't been following all my postings as i have also offered criticisms of the organization where warranted as well..

And as far as my blog posts go..i have never posted a nude photo in any of the blog posts showing any type of private parts...

They are art..if you do not see them that way..i am sorry they offended you..nor do i expect you to find the statue of David by Michelangelo that does show private parts either ACCEPTABLE as that is youR business not mine..

But..i do offer cautions here when i use these images ON THOSE BLOGS as part of the philosophy that i enjoy discussing so much that there are PG rated images in my blogs if anyone might find that offensive..

That said..it is a free country..and i would suggest you not click on the blog posts if you find them offensive..

I am not here to make friends..as the internet is often NOT AN EFFECTIVE place to do that as far as i can see.. but i am here to offer opinions outside of the herd think ..that dominates so many internet communities..such as what we see here..with polarized opinions against Autism Speaks for those people unwilling to see the good things that the organization..is documented as doing...

But as i said before..just a few replies before..Autism speaks does not speak for my type of so called 'higher functioning' autism..but OH YES THEY DO SPEAK FOR CHILDREN LIKE MY SON WHO DIED FROM A CO-MORBID CONDITION ASSOCIATED WITH AUTISM..THAT THIS ORGANIZATION IS AMONG THE FEW THAT ACTUALLY FUNDS RESEARCH FOR THAT CONDITION..IN HOPES OF ONE DAY..MITIGATING DISEASE THAT CAN LEAD TO DEATH..

PERHAPS YOU DO NOT THINK THAT IS A NOBLE CAUSE..

BUT MY DEAD SON 'SAYS IT IS'..FRIEND....AT LEAST THROUGH AUTISM SPEAKS...

And as A final notE friend..i also am this way in many other ways..as i am one of the few here that see Miley Cyrus' song wrecking ball as freedom of expression..instead of offense..

Ya see..i got relative-ancestors that died for freedom in our country..in defending that freedom..

And yes..within the laws that are set forth people do have the right to freedom of expression in this country..and by GOD that includes PG rated images of the human body as art or whatever they choose to express..in this life..doing as they will as there is no harm done except for those that hate what they cannot understand....

But again.. a free country means just turning it off on the TV or noT clicking on the internet clicky thing..if anything offends someone..those switches are a great compromise....so everyone can exercise the right to their freedom of expression in this country..for Liberty and Justice for ALL....

SO WITH THAT SAID..MILEY CYRUS IS A TRUE PATRIOT..

SHE JUST AIN'T AFRAID TO SHOW IT..

IN ONLY MY OPINION OF COURSE....

PER MY FREEDOM OF EXPRESSION..FRIEND..AND WHAT IS ALLOWED ON THIS PRIVATE WEBSITE....


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24 Dec 2013, 9:37 am

@aghogday. i agree with you about who autism speaks does or does not speak but nor AS or ASAN speaks for me.i wish there was something out there for people in the middle.

as far a parents of autistic children who autism speaks.i fear like many disability orgs today they bilk millions of dollars from people with false hopes of a cure.


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aghogday
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24 Dec 2013, 10:55 am

vermontsavant wrote:
@aghogday. i agree with you about who autism speaks does or does not speak but nor AS or ASAN speaks for me.i wish there was something out there for people in the middle.

as far a parents of autistic children who autism speaks.i fear like many disability orgs today they bilk millions of dollars from people with false hopes of a cure.


Yeah..friend i wish there was too..and maybe one day that will happen...


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24 Dec 2013, 10:21 pm

aghogday wrote:
vermontsavant wrote:
@aghogday. i agree with you about who autism speaks does or does not speak but nor AS or ASAN speaks for me.i wish there was something out there for people in the middle.

as far a parents of autistic children who autism speaks.i fear like many disability orgs today they bilk millions of dollars from people with false hopes of a cure.


Yeah..friend i wish there was too..and maybe one day that will happen...
thanks glad you agree


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