Stop with the Autism Supremacy!
I've never had difficulty discussing things with aghogday in the past. Generally speaking, we've gotten along well in discussions (I think!) even when we disagree.
Some psychologists use HFA as a subclinical term to describe people with the specific disorder of Autism that have normal levels of intelligence as opposed to those that don't. This is the context I am referring to in my post you quoted.
I have heard people here suggest that the subclinical term HFA in context to Autism disorder is the same thing as Aspergers.
From the diagnostic context where it is used to describe those of normal intelligence with Autism Disorder, a language delay is often part of "HFA", so the subclinical term HFA and Aspergers is different in this context.
I do not know if this difference is quite that profound, and since the language delay itself is not required for a diagnosis of autism, and that most people diagnosed with AS and PDD-NOS meet the criteria under the same category due to communication difficulties or unusual play, I don't really agree that the dividing line is all that sharp.
Just to be clear, I'm not trying to say there is no difference between having a language delay and not having one - just that the criteria themselves don't require it, and someone who might otherwise be diagnosed as AS probably fits the autism criteria via one of the other three criteria in that category.
I wasn't suggesting in the my post that Aspergers is a mild disorder by default, only as I state in my post you quote, that Aspergers is considered the mildest disorder on the Autism Spectrum; I haven't seen any evidence to counter that assertion.
I don't really think it is a separate disorder from autism (nor, for that matter, do I think PDD-NOS represents a separate disorder or cluster of disorders from autism or AS). But even within that category, you can find a lot of research and discussion about how difficult it is to find a strong distinction between AS and HFA (autism). This lack of a definitive border is one of the reasons all diagnoses are being collapsed into ASD in the DSM-V.
As far as it goes, people who are pretty severe can be diagnosed with AS (and some of them are later rediagnosed with autism). I can immediately think of at least three on this forum who fit this. At least two more who were diagnosed with AS and rediagnosed with PDD-NOS. While it seems the idealized visualization of AS is that people diagnosed with it are milder than people diagnosed with autism, what happens is that both overlap a lot in the "HFA" category and most people diagnosed with AS could be diagnosed with autism as I understand it, or at least diagnosed with PDD-NOS because they fit the autism criteria, but may not have available history to support the autism diagnosis itself.
If you could find the study again and provide a link, I would like to read it; they may be taking the factor that below normal intelligence numbers are not included in average intelligence scores for Aspergers.
Callista posted the name of the study and its findings in one of the "Aspies are geniuses" threads. I will try to dig it up for you, as I think it is an interesting bit of information. For the IQ test.
For the one regarding the assumption that most LFA are intellectually delayed, I should be able to dig that up right about now:
http://foa.sagepub.com/content/21/2/66.abstract
The PDF with the full study is free.
Right, but this doesn't necessarily mean lower intelligence. People assumed Carly Fleischmann was in the intellectually delayed range, but when she was able to communicate, it became clear she was much more intelligent than they suspected. Using IQ tests designed for verbal neurotypicals cannot possibly provide realistic IQ scores for nonverbal autistic individuals, and is even problematic with verbal autistic individuals.
As I quote again in the previous post, I agree a low IQ in an autistic individual is no guarantee they won't achieve with intelligence other than verbal intelligence that is measured by IQ tests.
Sadly, there's really not much research supporting the idea that nonverbal/"low-functioning" = 80% likely to be intellectually delayed. A lot of it, apparently, was taken at face value from IQ test results. So much science about autism is like this, too, going all the way back to Kanner and Asperger.
I'm much in agreement with most of what you are saying here about opinions on how people view autism vs current diagnosistic procedures, and it is a good reason why there is change planned for the future in this respect. My comments were based on current objective diagnostic procedure, and research as it is understood at this point, it doesn't necessarily reflect my personal opinion.
I personally think that many non-verbal autistics are trapped in an intelligent mind, until they can find adaptation. I do think further research will indicate this is the case. In a another thread I presented a post where a young man that was non-verbal had a 3.7 grade point average, and used a communication device to deliver the commencement speech at his graduation.
More than anything, I think it shows how early intervention, and the adaptive mechanisms that are available to allow a child to meet their full potential is so important.
We really won't know though, until we get the research that provides the empirical data for it. To me that seems like compelling research that will likely be funded; it may already be underway, if so I am not aware of it.
Thanks for the link.
He would be considered an intelligent scientist with ALS that could no longer talk because of neurological impairments from ALS that affect using his vocal chords. It is a neuro-muscular issue, not a cognitive issue. It is a well known fact that ALS does not cause cognitive impairment.
Verbal delays in Autism are considered cognitive impairments; that is completely different from the ALS that Stephen Hawkings has that prevents him from speaking.
I've never had difficulty discussing things with aghogday in the past. Generally speaking, we've gotten along well in discussions (I think!) even when we disagree.
That isn't what I said Verdandi. I said he takes evidence at face value without criticizing the methodology, not that I have had difficulty discussing anything.
Personally, I see Asperger's Syndrom at least to involve a significant enough set of advantages, if varying between Aspergians, that we are superior in some respects. This does not mean we are not inferior in other respects, like social skills or, especially in my case, going along to get along. It just means that, overall, we are different and should give to others according to our abilities and be assisted according to our needs so long as the relationship between us and others is on some level mutually beneficial for both groups of people.
That said, I get extremely livid when people think call me disabled, mostly people through DSHS, and I rapidly loose respect for them when they do not treat me as if I am not an equal to them. I do not want to live off others' hard work but I also do not wish to do work that is not tuned to my mind or to have to help other groups of people when they have nothing else to offer on any level.
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Thanks. I will say in my opinion that current diagnostic procedures are actually subjective, no matter how many tools one brings to bear to measure behaviors or outline history, it still comes down to someone's judgment as to how to diagnose.
Thanks. I will say in my opinion that current diagnostic procedures are actually subjective, no matter how many tools one brings to bear to measure behaviors or outline history, it still comes down to someone's judgment as to how to diagnose.
I agree. Unless a specific medical physiological test can be developed, my opinion is that a diagnosis will always be limited to a degree by subjective analysis.
I've never had difficulty discussing things with aghogday in the past. Generally speaking, we've gotten along well in discussions (I think!) even when we disagree.
That isn't what I said Verdandi. I said he takes evidence at face value without criticizing the methodology, not that I have had difficulty discussing anything.
The report that had the statistics that I presented explained the limitations that they were old and new interventions could improve outcomes. There wasn't any methodolgy to criticize, other than the fact that the statistics were old. I haven't found any other statistics specific to IQ results for Autism Disorder and PDD NOS, I would like to see them as they become available.
I've made the point several times that intelligence is not limited to verbal intelligence in non-verbal autistic people, and presented evidence on the young man that was not verbal that used a communication device to deliver the commencement speech at his high school, in the other thread on how important is communication in advocacy, and made reference to that report here already.
Maybe you are misunderstanding me, but I have attempted to make these limitations clear. If I am still not being clear, please help me understand how we differ on this point. Seems to me that I am agreeing with you here on the issue that verbal intelligence is overmerited in intelligence tests for Autistics, by the evidence I have presented, even before the discussion started here in the other thread, that I'm fairly sure you were part of. I don't expect you to read my posts though, so it is very possible you missed it.
I understand my own limitations in communication; I thought I was making these points clear but maybe I wasn't.
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I am going to have to disagree with you there...in order for one to be diagnosed with that they have to have more symptoms then language impairments or delays. I know a girl who had some delay with that stuff and she did not get that diagnoses...just had some speech therapy or something and then went on to develop those skills normally.
that sounds like incompetancy not a general belief amoung mental health professionals.
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It is not the r word......you cannot very well diagnose someone with mental R-word-ation, I do agree that the stigma attatched to the word has got to go. So what some people are mentally ret*d, they did not choose to be that way they are and certianly do not deserve to be hated or mis-treated for it. But calling it the r word does not help just gives into the idea that there is something innappropriate about the word ret*d(it really basically means slow in basic terms, which would make sense considering the symptoms of the disorder like slow mental development or maybe even development that largely stops at a certain age...They also use fire 'retardant' to try to get control of forest fires or to slow it down, and I think there are a couple terms in music that have the word ret*d in them in reference to parts of a song where you are supposed to slow down). So yeah I get your frustration but the word in itself is not an insult towards anything.
It is not the r word......you cannot very well diagnose someone with mental R-word-ation, I do agree that the stigma attatched to the word has got to go. So what some people are mentally ret*d, they did not choose to be that way they are and certianly do not deserve to be hated or mis-treated for it. But calling it the r word does not help just gives into the idea that there is something innappropriate about the word ret*d(it really basically means slow in basic terms, which would make sense considering the symptoms of the disorder like slow mental development or maybe even development that largely stops at a certain age...They also use fire 'retardant' to try to get control of forest fires or to slow it down, and I think there are a couple terms in music that have the word ret*d in them in reference to parts of a song where you are supposed to slow down). So yeah I get your frustration but the word in itself is not an insult towards anything.
[youtube]http://www.youtube.com/watch?v=5_mFm0c0jDg[/youtube]
It is forgivable and reasonable at times to confuse human context with objects such as fire retardant and musical instruments. However like the N word the R word has been used for hate. Beyond this to refer to a person as simply a R word is inhuman. In the context in which we speak it was considered an insult to be associated with the likes whom experience substantial cognitive differences. It to me cannot be brushed aside as simply the same as non-aware objects rather then human people.
Likewise the N word was once much more innocent then what it has evolved to today. Why would anyone want to be called a disorder anyways rather then simply human. My personal view and choice is not to like to be called the A word for instance. It represents a disorder classification when I am much more then a disorder, I am an individual beyond these stereotypical classifications to receive help.
[youtube]http://www.youtube.com/watch?v=LrhPw19Eh2o&NR=1[/youtube]
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It is not the r word......you cannot very well diagnose someone with mental R-word-ation, I do agree that the stigma attatched to the word has got to go. So what some people are mentally ret*d, they did not choose to be that way they are and certianly do not deserve to be hated or mis-treated for it. But calling it the r word does not help just gives into the idea that there is something innappropriate about the word ret*d(it really basically means slow in basic terms, which would make sense considering the symptoms of the disorder like slow mental development or maybe even development that largely stops at a certain age...They also use fire 'retardant' to try to get control of forest fires or to slow it down, and I think there are a couple terms in music that have the word ret*d in them in reference to parts of a song where you are supposed to slow down). So yeah I get your frustration but the word in itself is not an insult towards anything.
It is forgivable and reasonable at times to confuse human context with objects such as fire retardant and musical instruments. However like the N word the R word has been used for hate. Beyond this to refer to a person as simply a R word is inhuman. In the context in which we speak it was considered an insult to be associated with the likes whom experience substantial cognitive differences. It to me cannot be brushed aside as simply the same as non-aware objects rather then human people.
Likewise the N word was once much more innocent then what it has evolved to today. Why would anyone want to be called a disorder anyways rather then simply human. My personal view and choice is not to like to be called the A word for instance. It represents a disorder classification when I am much more then a disorder, I am an individual beyond these stereotypical classifications to receive help.
Where did I indicate I was comparing humans to objects or musical instruments...I was mentioning other ways the word is used. The disorder mental retardation exists...it is in the DSM, do you have a better name for that disorder? People just need to quit thinking badly of people with mental disorders, conditions and illnesses...getting rid of the words used to describe various disorders will not fix the problem of the hate.....educating people on the disorders and encouraging tolerance rather than hatered towards people with mental retardation or other mental conditions however could do good.
I have had the term ret*d directed at me in an insulting manner more than once, so trust me I know how that is....and it did upset me...I am not mentally ret*d to begin with but if I was why would that be wrong? that is the problem I see why does the mindset exist for this word to be used that way......its the mindset that is the problem not the word itself.
I am depressed so I do not mind if someone calls me depressed.......if they are trying to insult me that is a different matter, but I am depressed it does not hurt my feelings to know that.
"They also use fire 'retardant' to try to get control of forest fires or to slow it down, and I think there are a couple terms in music that have the word ret*d in them in reference to parts of a song where you are supposed to slow down)."
It's not bad but there is a difference between a substance designed to slow fire for instance and a human being who is different. Calling people by a diagnoses to me is inappropriate. Whether it is an R word or the A word. It's called the people first movement and I'm not the only person who prefers to be a person first rather then some clinical term.
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It's not bad but there is a difference between a substance designed to slow fire for instance and a human being who is different. Calling people by a diagnoses to me is inappropriate. Whether it is an R word or the A word. It's called the people first movement and I'm not the only person who prefers to be a person first rather then some clinical term.
You don't seem to have got my point...I was further explaining how the word is used and its meaning. in the dictionary it does not say the term ret*d=human who is different. I am not saying call someone depressed, ret*d, autistic or anything else as if it is their name......but the label does apply. someone can have depression, mental retardation, autism and other things that does not mean they ARE those things.
And uhh everyone who is human is a person...but there are catagories of people, and in the case of mental conditions the labels help people receive the help they need. Well actually it is hard not to apply the term person to certain animals....my friends dog means just as much to me as my friend does.
It's not bad but there is a difference between a substance designed to slow fire for instance and a human being who is different. Calling people by a diagnoses to me is inappropriate. Whether it is an R word or the A word. It's called the people first movement and I'm not the only person who prefers to be a person first rather then some clinical term.
You don't seem to have got my point...I was further explaining how the word is used and its meaning. in the dictionary it does not say the term ret*d=human who is different. I am not saying call someone depressed, ret*d, autistic or anything else as if it is their name......but the label does apply. someone can have depression, mental retardation, autism and other things that does not mean they ARE those things.
And uhh everyone who is human is a person...but there are catagories of people, and in the case of mental conditions the labels help people receive the help they need. Well actually it is hard not to apply the term person to certain animals....my friends dog means just as much to me as my friend does.
I think there is a big difference between referring to autistic disorder and calling myself the disorder like hey that's <a disorder> an autistic. Likewise there is a big difference in human respect by understanding someone has cognitive impairment as opposed to referring to them an R word. It's what others don't like as well as myself and the point of my reply to that poster was he was calling others R*T**ds. People are not unaware objects but are aware people and this is common sense. The idea that there are other unaware things called R words is simply not an effective argument given the context of this conversation and I think works in favor of what you agree with which is respecting other people.
Congress eliminates the R-word
http://thechart.blogs.cnn.com/2010/09/2 ... he-r-word/
Bill Text Versions
111th Congress (2009-2010)
S.2781
http://thomas.loc.gov/cgi-bin/query/z?c111:S.2781:
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It's more about whether the R word, as we seem to be calling it, is used as a noun or a verb. It is one thing to say that someone has ret*d, ie, delayed, development in one or another area, but quite another to refer to them or call them a ret*d. It is usually, but not exclusively, the use of the noun to refer to someone which is derogatory and insulting. The verb can also be used as an insult, but in context has a specific non-insulting, more informative meaning.
Given all the negative associations now attached to the word, I think it's preferable to use delayed instead.
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It's not bad but there is a difference between a substance designed to slow fire for instance and a human being who is different. Calling people by a diagnoses to me is inappropriate. Whether it is an R word or the A word. It's called the people first movement and I'm not the only person who prefers to be a person first rather then some clinical term.
You don't seem to have got my point...I was further explaining how the word is used and its meaning. in the dictionary it does not say the term ret*d=human who is different. I am not saying call someone depressed, ret*d, autistic or anything else as if it is their name......but the label does apply. someone can have depression, mental retardation, autism and other things that does not mean they ARE those things.
And uhh everyone who is human is a person...but there are catagories of people, and in the case of mental conditions the labels help people receive the help they need. Well actually it is hard not to apply the term person to certain animals....my friends dog means just as much to me as my friend does.
I think there is a big difference between referring to autistic disorder and calling myself the disorder like hey that's <a disorder> an autistic. Likewise there is a big difference in human respect by understanding someone has cognitive impairment as opposed to referring to them an R word. It's what others don't like as well as myself and the point of my reply to that poster was he was calling others R*T**ds. People are not unaware objects but are aware people and this is common sense. The idea that there are other unaware things called R words is simply not an effective argument given the context of this conversation and I think works in favor of what you agree with which is respecting other people.
Congress eliminates the R-word
http://thechart.blogs.cnn.com/2010/09/2 ... he-r-word/
Bill Text Versions
111th Congress (2009-2010)
S.2781
http://thomas.loc.gov/cgi-bin/query/z?c111:S.2781:
What I am saying is there is a disorder called mental retardation, that is what the disorder is called and what people will refer to the disorder as. I am not saying you should go around calling people ret*d...but if someone has mental retardation then they are mentally ret*d, if someone has depression they are depressed, if someone has autism they are autistic...that is all I am getting at. I do not support there being any stigma attatched to these things as people do not bring them upon themselves and they should not be hated for it.
and there is no need to call it the R word, as that only adds to the percieved negativity of the term that really has no reason to exist.......point is the word can be used appropriatley.
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