KingdomOfRats wrote:
Have always been pittied by strangers/locals/neighbours/some police,they assume am a lost cause,and always speak around am to family or support staff,so am left hearing how devastating it is,and how brave am doing to cope this way.Am have had the same treatment off nurses and social workers,there is no 'bravery' in being human and getting on with life.
Also sometimes recieve the old pity classic 'hair ruffling',a way ignorants use to treat disabled adults as kids,it should be treated as disablism but then most of the time it's done by people who have no idea on treating disabled people.
There is nothing worse than when it's done by a more distant relative whom is very nice,but very pitying at the same time-as they're never close enough to get to know self well [they're all in ireland and only get to see them when they come here],am try to stay at sisters house whenever they come over as they always stay at mums/dads house,and don't want to be constantly around it.
Am hate hearing the pity they get as well because have always been treated as a heavy burden on everyone,it's a word that has got painful with every hearing of it.
There's nothing worse than the "burden" card. Particularly because it's out of your own control to change it - you get left with this horrible painful helpless feeling because there's nothing you can do.
At least in my case I only get it from my immediate family and not distant relatives or strangers (because my disability is not apparent on the surface).
Because of the whole "burden" thing, there's nothing I want to do more in life than to find a way to live completely independent of others, so that nobody is relying on me and I am relying on nobody else (except myself) for basic living. I am even considering giving up on ever having a partner or a family in order to achieve this complete independence and separation from others (so I never again have the "burden" thing forced onto me time and time again - it's not something I can live with).
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Into the dark...