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glider18
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17 Feb 2010, 7:33 am

My opinion is this:

Autism Speaks doesn't appear to want our autistic voices to speak through their mission, therefore, we with autism must speak on our behalf. And by the way---excellent video KenG.

Autism Speaks's goals appear to be not necessarily the ones many of us here at the WrongPlanet (and elsewhere) agree with, so we have the right to have our own goals and missions. They have theirs, we have ours. They may not agree with ours, and we may not agree with theirs.

Within our own community here at the WrongPlanet there are two distinct groups---those that are against Autism Speaks, and those that consider them worthwhile (with some seeing good and bad within them). I, and others here, don't have to agree with Autism Speaks---I don't agree with them.

And just because Autism Speaks has things it does to promote research, they aren't the only ones capable of this. We aren't reliant upon them. Not to say that everyone with autism is anti-cure (some want help), I think the voice I (and many others here) are speaking is that we are for the most part satisfied with our autistic selves and want to see a positive acceptance of our diversity within the world. That is my mission. Is it yours?


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Omerik
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17 Feb 2010, 1:20 pm

glider18 wrote:
My opinion is this:

Autism Speaks doesn't appear to want our autistic voices to speak through their mission, therefore, we with autism must speak on our behalf. And by the way---excellent video KenG.

Autism Speaks's goals appear to be not necessarily the ones many of us here at the WrongPlanet (and elsewhere) agree with, so we have the right to have our own goals and missions. They have theirs, we have ours. They may not agree with ours, and we may not agree with theirs.

Within our own community here at the WrongPlanet there are two distinct groups---those that are against Autism Speaks, and those that consider them worthwhile (with some seeing good and bad within them). I, and others here, don't have to agree with Autism Speaks---I don't agree with them.

And just because Autism Speaks has things it does to promote research, they aren't the only ones capable of this. We aren't reliant upon them. Not to say that everyone with autism is anti-cure (some want help), I think the voice I (and many others here) are speaking is that we are for the most part satisfied with our autistic selves and want to see a positive acceptance of our diversity within the world. That is my mission. Is it yours?

Agree. But I rather rely upon people such as Baron-Cohen... He sounds the most fair to me. He says it's not necessarily a disorder, but we do need help sometimes, while he embraces our advantages.



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17 Feb 2010, 2:17 pm

I contacted the person who made the T Shirt when he showed up on the WP home page.

A Trademark relates to one product in one class, It cannot be Copyrighted, Using a Trademark to threaten someone with a product not covered, another class, The Ford Popsickle, would void the Ford Trademark. Misuse of Trademark, USC 37.

Bringing a Trademark action and losing, voids the Trademark.

A Cease and Desist Letter, has the weight of the paper it is on. A Summons and Complaint is meaningless, until it is filed in court.

Where they do have meaning is the Court filing must follow the threats, and they could not prevail.

A Trademark is nothing but some papers filed, fees paid, until it has been tested and upheld in Court.

The T Shirt guy never replied. USC 37 is one of my hobbies.

The Autism of which Autism Speaks is real, a very disabling condition that involves lifetime care, and is very expensive.

Even in a lighter form I have been told by parents that they had to use a harness and a leash on their child, a runner, who would just take off and pay no mind to traffic.

"If my child was an aspie, I would be overjoyed." At least that family still has hope.

In the drug store I heard some strange sounds behind me, a woman with a boy, he was biting his shoulder, she calmly told him they would be back in the car, he could have his juice back, as soon as they got the prescriptions. She ignored the whole world to keep her job running, She lived in hell and did a great job of it. She was as banished from life as he was, but she would not quit. I did manage to give her a smile, so few know.

There are those who will sit and rock, those who might be able to live in a group home, and there are families suffering. Their life, income, other children, all suffer. It does not end. There is never a day off.

Then there are the fortunate, AS, HFA, who may qualify as disabled, but they do not need 24/7 care, most can live independantly, or with minor support.

All of the above come with a high social cost, some higher than others.

Then comes the functional but geeky with quirks. They are autistic, but they also will get educated, work, have social problems, have a hard time starting in life, but most get better at it. They are not disabled, just weird. Comic Book Guy on the Simpsons. Weird, unemployable, but runs his own business, making living from his obsessions.

The next cut are also autistic, but work jobs, almost fit in, except all the things they never notice and everyone else does. There are lots of versions of this one, They can dress well, but never right, have a scripted exchange with coworkers, that almost works, with a bit of luck they can become a spouse.

They are almost normal people. Almost.

Then there are take the obsession and run types, Science, Art, Music, Engineer, where they can be great at one thing, and hope it covers the rest. Living all of life in part of life works, almost, sometimes.

It is all autism, but I would rather pass for wierd. I have a mixed skill set, 100 there, 0 there,

Out of 100 autists, 90 are Broader Autism Phenotype. They have some traits and problems, life could be better, maybe, some things I lack wiring for, don't even know what I am faking.

10 might be DSM grade, and one or two of those is going to cost more than all the rest.

They are what should be studied, the fullest case, the highest cost in lifetime care, and in the effects on their family. But for one epigenic switch, there goes any of us.

The other eight with some care will go on and get an education, may do something useful, or can be kept at public expense, but caring for themselves.

So of all of the spectrum 1-2% are a lifetime problem that cost billions, 8% will have some minor adjustment costs, Depression is much more common, same deal.

90% just have to live here, out in the world, making the best of it they can. They should all join Wrong Planet, the problems are just as real. They will get no other help, and most don't know it is a form of autism.

Public awareness will do harm to most, we have nothing to gain from it.

I have compassion for the famiies who drew the short straw. Thier need is the greatest, and all funding of science is good for it might help. It might not help, it is a complex field, but progress is coming, slowly.

One thing that will always help is to stand with the families and offer what support we can, be it just a smile, and I don't smile often.

The families have a much worse problem than your Lego addiction, it does not compare.

I would like to say that WP is not autism, but it is, and a lot more who don't know, but for the problem part, everyone knows.

We can only have one focus, and this promoting autism as a spectrum is true, yet can weaken the research we need to happen. We are in a boat, on one side it has a pinhole leak, on the other a fist size hole, which do you plug?

If we work together, even with that other person you did not like, we may survive long enough to discuss the pinhole.

If one person is getting wet, another is drowning, who do you help?

Pointing out how many people are wet is not helping.



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25 Feb 2010, 4:56 pm

What about a billboard in a hugely populated city? My sister-in-law was thinking of getting an add one one to promote her hair salon and she said it was only $100. She didn't really need one though becuase truck litteraly tore down her competion and she was the only salon in town for a while and she got more clients by word of mouth.


It's also a rural area so that may have had something to do with how cheap it is to get a billboard add there. I don't know about major metro areas such as NYC or Boston. Be worth looking into. Perhaps a bench or bus stop add. Newspaper?


When getting new glasses the otherday, the sales lady had a gold puzzle peice shaped lapel pin. I asked her if it was for autism and she said that it appeared so but it was really to symbolise how Texas is a vital peice of the country. I told her what a shady charity autism speaks is because of how they are enforcining sterotypes and she said she never did support them but now she deffinatly will not. Word of mouth is a slow tedius process but it helps a little. Eventhough some people appear to not be listning at all, others around you might be. Handout pamphlets at autism speaks walks or where ever.

I used to think that the only way to get our message out was to start riots because I thought it worked during the vival rights movement but it's not the 60's anymore. But seeing how society has created the myth that we are a violent group, I think that would hinder us. Perhaps "autistic pride" parades like the gay pride movement.


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harry_j_83
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05 Mar 2010, 9:31 pm

Quote:
VERY simple answer on this one. Money. Alex even has a hard time keeping this site itself going. Note the large DONATE button in gold on your left...

<--

There is no way we can field the tens to hundreds of thousands for a commerical spot. What is working against us is difficulty with employment. What is working for them is parental hope that their children can be cured. It's obvious which makes more money.
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yep. it is all about money at the end of the day. its the sad but true answer. on the upside, we can post videos of a more personal nature explaining how each and every one of us view our autism. i think people should pull together in an attempt to create an uprise in the number of these vids.

did anyone see the "i am autism" video on youtube. scary how people can create such negative images of the condition. what especially gets to me is how these campaigns create an illusion to parents that their children will "be saved from this terrible burden" if only they see "the right people". (people will have to see this vid to get what i am talking about)



Deadboy365
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16 Apr 2010, 5:32 pm

Over here in the UK we have The National Autistic Society who are atually doing something of a great thing to help those with Autism and Asperger's.
I have heard of this "Autism Speaks" and did some YouTubing on their videos... didn't like what I saw =(
They've only been around for what... 5 years? O.o
where as the National Autistic Society (UK) has been around since the late 60's and they know soooo much more than this "Autism Speaks" group can ever know!! !

Whoever reads my posting just check out the National Autistic Society and you'll see what I mean =)
They're the better ones who are trying their best to make sure people are becoming more aware of Asperger's and the other Autism Spectrum Disorders =)

Seriously if anyone were to give either of these two Organisations a rating out of 10 it would be like this:

Autism Speaks: 0 (rated it this because they don't know anything about Autism and they're saying it's just a "disease" - if it was then all my friends would have caught it and there'd have been an epidemic in the UK by now - in other words they lack what the National Autistic Society has: PURE EXPERIENCE in dealing with people with Autism and Asperger's!! !)

National Autistic Society: 8 (I rate it this because they haven't quite got there but only because they do need more help and more support for their awareness raising. I'll only rate them 10 when they have got enough help =D )

P.S. if this "Autism Speaks" dares to even think of trying to "help" people here in the UK then they'll have the Patron of the aional Autistic Society to deal with AND the head of the National Autistic Society to deal with as well!! !! !!

The National Autistic Society have loads of adverts as well which are helpful and much more pleasant and they don't treat Autism like some form on degraded virus or disease either!! ! They see a way to communicate and help with families of those who have Autism or Asperger's and people who are on the Spectrum as well =)

Hope this helped =D

Deadboy365



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16 Apr 2010, 5:45 pm

harry_j_83 wrote:
Quote:
VERY simple answer on this one. Money. Alex even has a hard time keeping this site itself going. Note the large DONATE button in gold on your left...

<--

There is no way we can field the tens to hundreds of thousands for a commerical spot. What is working against us is difficulty with employment. What is working for them is parental hope that their children can be cured. It's obvious which makes more money.
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yep. it is all about money at the end of the day. its the sad but true answer. on the upside, we can post videos of a more personal nature explaining how each and every one of us view our autism. i think people should pull together in an attempt to create an uprise in the number of these vids.

did anyone see the "i am autism" video on youtube. scary how people can create such negative images of the condition. what especially gets to me is how these campaigns create an illusion to parents that their children will "be saved from this terrible burden" if only they see "the right people". (people will have to see this vid to get what i am talking about)


Oh yeah I saw that appaullingly disgraceful video!! ! That "video" is an abomination and shows us in the WRONG light!! !
As I said in my last message: The National Autistic Society have got BETTER ideas and much BETTER adverts which show AWARENESS of the Spectrum!! ! The NAS don't show negativity to our conditions because they know that we are HUMAN and not some "thing" to be shoved to the side (unlike this "Autism Speaks" crap)! !!
The NAS also don't believe in any fabled "cure" and they let people with Autism speak up about their experiences in many different areas of their life =)

If I get a chance to speak up about one of my recent experiences of living with Asperger's (which I'm hoping for as well) then I'll tell them about my lastrelationship and I know a couple of people won't like it either because of who I am to them XD
I can be kind and yet... I can also be cruel when it comes to certain subject matters XD - yeah I will be cruel on TV if they gave me the chance but just because my ex-girlfriend was cruel-hearted to me X(

But yeah... anyway... yeah I did see that video and I hated it!! ! It is an always will be an abomination!! !
There's also another video on YouTube called "I am Autism Speaks" - a rather cheesy parody of the video you mentioned XD basically that "I am Autism Speaks" is showing awareness against "Autism Speaks" and tells you NOT to side with "Autism Speaks".
Watch that parody video!! ! You'll love it XD XD XD



Deadboy365
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16 Apr 2010, 6:33 pm

Btw I just read that your American group "Autism Speaks" has actually breached copyright with their logo!
The National Autistic Society used one as their logo back in the early 60's ((yeah I kinda forgot it was the early 60's they were formed and not what I said earlier about them being formed in the late 60's so I do apologise to that epic mistake to any fellow British people on this site!! !! !!))
Anyway The NAS logo back in the early 60's was a PUZZLE piece and it was designed by a parent member of the Executive Committee, Gerald Gasson, and so it is in the copyright property of The NAS not "Autism Speaks" who should be shot for using their current logo!! !



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17 Apr 2010, 6:43 am

If I win the lottery, I'll pay for the commercial spot.


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ElaineAbigayle
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19 Apr 2010, 1:35 am

Autism Speaks does NOT speak for the autistic community, They exploit the community by seeking donations in our name which they then use to spread hideously subtle propaganda aimed at subjugating and disenfranchising people with Autism.

As this case illustrates, they will not hesitate to turn their evil powers against one of us if it suits their nefarious agenda.

people of the world, do not be fooled by these charlatans



Deadboy365
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19 Apr 2010, 4:27 pm

ElaineAbigayle wrote:
Autism Speaks does NOT speak for the autistic community, They exploit the community by seeking donations in our name which they then use to spread hideously subtle propaganda aimed at subjugating and disenfranchising people with Autism.

As this case illustrates, they will not hesitate to turn their evil powers against one of us if it suits their nefarious agenda.

people of the world, do not be fooled by these charlatans


I know but if they set foot in the UK they'll have to face the Patron Saint of the National Autistic Society XD who just so happens to be a member of the Royal family XD

They won't be able to get away with anything devious over here I can tell you that now XD