Page 2 of 2 [ 31 posts ]  Go to page Previous  1, 2

SPARTAN-113
Yellow-bellied Woodpecker
Yellow-bellied Woodpecker

User avatar

Joined: 1 Nov 2008
Age: 31
Gender: Male
Posts: 55
Location: Baton Rouge, La, USA

28 Dec 2010, 4:12 pm

Oh, and sorry for the double post, but I think that Alex did what he thought was best for Wrong Planet by partnering up with Autism Speaks. I hate them, but I also recognize their influence, which we could use. I picture a surfer riding the wake of a larger ship, for example. In other words, we may just be using them to get OUR word out, and hopeing that our message either is better recieved than theirs, our cancels their negative message out.


_________________
I won't give up. I can't give up. Death is not the end for me.


PunkyKat
Veteran
Veteran

User avatar

Joined: 14 May 2008
Age: 37
Gender: Female
Posts: 3,492
Location: Kalahari Desert

30 Dec 2010, 8:49 am

If anyon ever tries to force a cure upon me, I will pop a cap in their ass.


_________________
I'm not weird, you're just too normal.


Malisha
Pileated woodpecker
Pileated woodpecker

User avatar

Joined: 7 Dec 2010
Age: 43
Gender: Female
Posts: 193

03 Jan 2011, 8:49 pm

Molecular_Biologist wrote:
Xenu wrote:
Autism Speaks completely demonizes these poor children who can't control what they are doing.


They are demonizing the disease, not the children.


I'm sorry, but I don't see a separation there. Autism isn't separable from a person. It's like curing gay people of their "disease" of gayness, in my humble opinion. People looking for a cure for autism are succumbing to the obsession with conformity that plagues the human race.

If I was "cured" of asperger's syndrome, i would no longer be me.

As for "low-functioning" individuals, whether they are happy as they are or unhappy is dependent on their CIRCUMSTANCES, just like anyone else. I have suffered because of my atypical neurology, and I have also excelled because of it.

It seems to be that as science progresses, it focuses more and more on stamping out diversity, in our food plants and animals, in our cultures, and now in our very genetic makeup. That is a bad thing. I love science and progress, but the applications leave a LOT wanting.



Molecular_Biologist
Deinonychus
Deinonychus

User avatar

Joined: 18 May 2010
Age: 45
Gender: Male
Posts: 329
Location: My own world

04 Jan 2011, 10:37 pm

Malisha wrote:
Molecular_Biologist wrote:
Xenu wrote:
Autism Speaks completely demonizes these poor children who can't control what they are doing.


They are demonizing the disease, not the children.


I'm sorry, but I don't see a separation there. Autism isn't separable from a person. It's like curing gay people of their "disease" of gayness, in my humble opinion. People looking for a cure for autism are succumbing to the obsession with conformity that plagues the human race.





Blindness, cancer, and HIV are all deviations from "conformity" as well. Since you like diversity so much, I hope you become more health-diverse.

Or will you knowledge that conformity is sometimes better?

Militant, high-functioning autistics who demonize parents trying to help their children are engaged in a vain and selfish ego trip.


Malisha wrote:
As for "low-functioning" individuals, whether they are happy as they are or unhappy is dependent on their CIRCUMSTANCES, just like anyone else. I have suffered because of my atypical neurology, and I have also excelled because of it.


The state of their happiness/unhappiness is irrelevant.

Parents have a right to seek treatment for their children's medical ailments, and militant autistics who try to stand in their way are villains in my opinion.



ci
Veteran
Veteran

User avatar

Joined: 28 Nov 2010
Age: 43
Gender: Male
Posts: 3,546
Location: Humboldt County, California

05 Jan 2011, 12:41 am

Malisha wrote:
Molecular_Biologist wrote:
Xenu wrote:
Autism Speaks completely demonizes these poor children who can't control what they are doing.


They are demonizing the disease, not the children.


I'm sorry, but I don't see a separation there. Autism isn't separable from a person. It's like curing gay people of their "disease" of gayness, in my humble opinion. People looking for a cure for autism are succumbing to the obsession with conformity that plagues the human race.

If I was "cured" of asperger's syndrome, i would no longer be me.

As for "low-functioning" individuals, whether they are happy as they are or unhappy is dependent on their CIRCUMSTANCES, just like anyone else. I have suffered because of my atypical neurology, and I have also excelled because of it.

It seems to be that as science progresses, it focuses more and more on stamping out diversity, in our food plants and animals, in our cultures, and now in our very genetic makeup. That is a bad thing. I love science and progress, but the applications leave a LOT wanting.


This is getting really annoying. A disorder (disease in pathology at times) is something that hinders a persons quality of life. The higher functioning you are whether that is IQ or not and able to function in the world without help the less of a disability you have. I am really seeing this just about the social game of ego and the identity. People are not diagnosed because of intolerance but rather to help people. The world does not hate people that have autism and whom need help but I am getting upset at those who have autism and want to twist the meaning of the applied autism label to the point of everyone hates them unless they agree with them.



Arminius
Deinonychus
Deinonychus

User avatar

Joined: 29 Jan 2010
Age: 43
Gender: Female
Posts: 322

05 Jan 2011, 12:59 am

I have worked with "LFA" kids before in a pretty good environment for them. Some were happy. Some were not. It seemed like an even split. None ever screamed or showed a lot of outward signs of distress. The ones that seemed unhappy were just the ones that seemed to hunger for a place in the world of their peers that was usually closed to them. One of those, who became a good friend of mine, seemed a lot more content after he made some connections outside of the self-contained class.

Quote:
and i'm sure most of you, if given the choice, would LOVE to cure your asperger's.


I have come to accept, on good days even like, myself. Some parts of life will always be harder for us, but the path to happiness is certainly not wanting to be, and trying to replicate "normal." We are not diseased. We have to rid ourselves of the notion that it is somehow wrong for us to be what we are. How can we tell the world that unless we believe it ourselves?

A "cure" by abortion is the most likely one. That may wipe us out long before anything else is developed. I agree with Punkykat. I would rather die than be cured. I would kill anyone who tried to force a cure upon me.



Molecular_Biologist
Deinonychus
Deinonychus

User avatar

Joined: 18 May 2010
Age: 45
Gender: Male
Posts: 329
Location: My own world

05 Jan 2011, 1:29 am

Arminius wrote:
I have come to accept, on good days even like, myself. Some parts of life will always be harder for us, but the path to happiness is certainly not wanting to be, and trying to replicate "normal." We are not diseased. We have to rid ourselves of the notion that it is somehow wrong for us to be what we are. How can we tell the world that unless we believe it ourselves?


Many of us are not interested in trying to tell the world that this disease is just another state of being. It is wrong that this disease has stolen so much of my life from me.



ci
Veteran
Veteran

User avatar

Joined: 28 Nov 2010
Age: 43
Gender: Male
Posts: 3,546
Location: Humboldt County, California

05 Jan 2011, 1:32 am

Death threats and in general threats of violence over the cure concept seem to be popular.



Molecular_Biologist
Deinonychus
Deinonychus

User avatar

Joined: 18 May 2010
Age: 45
Gender: Male
Posts: 329
Location: My own world

05 Jan 2011, 1:46 am

ci wrote:
Death threats and in general threats of violence over the cure concept seem to be popular.


This angry pro-autism militancy seems to be growing.

I'm thinking that its eventually going to reach the point where they start disrupting scientific research in the same way the animal-rights activists have violently in opposed animal research.


They better watch out.....

If they get between an autistic child and a concerned parent who wants their child to live a normal life, they could find themselves at the end of a gun barrel.

Parents will fight for the sake of their children.



ci
Veteran
Veteran

User avatar

Joined: 28 Nov 2010
Age: 43
Gender: Male
Posts: 3,546
Location: Humboldt County, California

05 Jan 2011, 1:58 am

Anyone conducting violence or speaking threats should be spoken against to protect the integrity of the advocacy and awareness community as a whole for the quality of life, inclusive diversity of individuals and to assure the enhancement of the rights of individuals with autism. I don't care the point of view social platforms should create policies about it to suspend at least and or ban members and advocacy groups on all sides need to create within themselves awareness about this alarming delima of aggressive speak. It is the indifference of those of these tendencies that may reduce the quality of life and accommodated rights of innocent individuals with autism as a result of socio-political causations directly and indirectly.

As a civil rights, inclusion, media and public relations advocate I am embarrassed and there is only so much I can explain away for the individual circumstances before my own integrity is lost.



Major_G
Snowy Owl
Snowy Owl

User avatar

Joined: 19 Aug 2010
Age: 42
Gender: Male
Posts: 153
Location: Chatsworth, CA

18 Jan 2011, 11:29 am

Xenu wrote:
they look at Autism in general as this terrible curse and basically refer to parents and family members as the victims of it... It's really terrible.

I'm an Aspie, and I can only see it as a curse. It has done absolutely nothing to benefit my life - only detriment it. And if I'm a high-functioning person who wishes for some way to change, I'm SURE there are low-functioning people that do.

Molecular_Biologist wrote:
Many of us are not interested in trying to tell the world that this disease is just another state of being. It is wrong that this disease has stolen so much of my life from me.

Seconded.



mesona
Velociraptor
Velociraptor

User avatar

Joined: 29 May 2010
Age: 37
Gender: Male
Posts: 469

18 Jan 2011, 1:16 pm

I have Aspergers. I have been tied down by teachers when I over load. I have had been pulled out of classes by the hour for intervention centers just go go back to class understand nothing about what we are doing in class and get extra homework to make up what I have missed. I have gone to high school with fear because the MOD classes they put me in was full of kids that already been to jail and I had to fight tooth nail and toe to get into real classes. Under my senior picture my name was changed to freek and monster. Any one I have ever thought was a friend was using me or left for no reason. I cant be around my aunts or uncles because they do not see me as a person. I was fired twice and lost when I sued them(they had fake papers of problems with me) becuase of my Aspergers. I can not go to bars or parties to meet new people because of the sound alone. I can no longer watch TV with my family because I can see the plot and who the killer is almost right away.

Do I want a cure? HADES NO! every bad thing that has happened hurt but made me better. Thanks to the school tieing me down its illegal now. the extra homework made me learn more. I knew what I did not want to be by meeting those kids in high school and how to work for a goal by getting away from them. so what if they changed my name in my year book. years from now that person will always know they did something so dumb for no reason. I know how to better pick my friends and the pain is less because I atleast had fun. My aunts and ucles do not see me as human? Thats because I am a time lord(I mess with them every time I see them. last week I went over in my swim suit and flippers for the hades of it) The only thing I want from Autism Speaks is to help send some of the cash my way. Help me pay for my car and rent.

I do not just have Aspergers. I am Aspergers.


_________________
Who says I only have one mind?


Bella1
Snowy Owl
Snowy Owl

User avatar

Joined: 3 Sep 2008
Age: 44
Gender: Female
Posts: 137
Location: Australia

20 Jan 2011, 7:30 pm

I think Autism Speaks are giving parents a false hope that their children can one day be 'normal'. What that means is the parent doesn't learn to accept their child as they are and learn to understand them for their differences. Instead, they are constantly seeking to find ways to change their child. I think that's a really bad thing for the child that their parent won't accept them for who they are.

In reality a cure for people who are already living is highly unlikely. The most likely cure will be a prenatal test. The problem with that is that due to scare campaigns and incorrect advertising a lot of people think that all autistic people are severely low functioning, when that is not the case. This means that children will be denied life purely on the basis of people being afraid.

I am glad I'm alive, even if I have difficulties due to having AS.



ci
Veteran
Veteran

User avatar

Joined: 28 Nov 2010
Age: 43
Gender: Male
Posts: 3,546
Location: Humboldt County, California

20 Jan 2011, 7:36 pm

Cure is vague which is a good and bad thing. The idea of becoming entirely normal is a subjective notion. The abortion issue is a conflict of interest issue with the cure concept just as the cure concept is a conflict of interest with the abortion issue. These are extreme manifestations of the true meaning of cure which is to improve quality of life and general health. Cure is not destruction of life but the removal of autism from a person while hopeful may or may not be entirely reachable and it depends on how you define autism as that has become more so a philosophy in many circles.


_________________
The peer politics creating intolerance toward compassion is coming to an end. Pity accusations, indifferent advocacy against isolation awareness and for pride in an image of autism is injustice. http://www.autismselfadvocacynetwork.com


JazzofLife
Deinonychus
Deinonychus

User avatar

Joined: 8 Apr 2010
Age: 57
Gender: Male
Posts: 343
Location: Southeast TN USA

22 Jan 2011, 5:10 pm

Xenu wrote:
We are on a terrible relationship with them. Not only do they not understand Aspergers to be high functioning, they look at Autism in general as this terrible curse and basically refer to parents and family members as the victims of it... It's really terrible. And what's even worse is that they are called "Autism Speaks" yet there is literally not one member in their entire damn company with Autism or anything similar. It's disgusting, and I'm still shocked that Alex chose to partner WP with them...


I will not have anything to do with Autism Speaks. Thanks for the info.


_________________
Scott
"The Jazz of Life - the only way to live life"

Dx'd with AS and AD/HD Combined in 2007

Interests: Music, great outdoors (beach/mountains), cooking/baking, philosophy, arts/sciences, reading, writing, sports, spirituality, Green, sus