Tell the CDC "No" on Abuse-Enabling "Wanderin

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Abortion politics and the perception of autism, ego and the label and I think they want to downplay the costs of autism for their special interest buddies. You can't change culture and society overnight but you can open it's minds but you can't also do that by forcing a view less your discriminating or by stretching the truth (fibbing). Controlling the perception of autism for an agenda especially when it's not true in projection is going to kick them in the butt in the long-term.

I have to do a bit more research before I formulate a real opinion on this. I am almost as suspicious of ASAN as Autism Speaks. I like a lot of their agenda, but life experience makes me suspicious of authority and big organizations to begin with. Institutions and bureaucracies of any significant size need careful watching to stay honest. That said, while this seems like it could help some families, I have a problem with the broad-brush categorization. As others have said, the potential for abuse seems dangerously high.

Needs to be a way to protect those that need protecting, quality control for implementation and complainant rights review in public assurance.

Yes, often the restraints and seclusion used in the schools are abusive. At least from the stories I've heard.[/quote] i know and i have seen it.bed restraints,body bags,got any better options.sadly enough some people can hurt themselves and others

No it isn't. The word cure means to permanently end a medical condition. Yes, treatments can lead to cures but that's not always the case. For example, insulin shots manage the symptoms of diabetes but it is not considered to be a cure because the disease is not permanently removed and the person can still die if he/she forgets to take the insulin shot.

It's the same with autism. Treatments can help lessen the symptoms in some areas and provide coping mechanisms in others. However, remove those coping mechanisms and the autistic person reverts to the having the same problems with those symptoms as before. Thus, by definition, the treatment is not a cure because the autism is not permanently gone. Source:

http://en.wikipedia.org/wiki/Cure

Yes, actually I do have better options. Autistic children do not just act out for no reason. Normally there are sensory issues or something similar causing the problem. The better option is to find out what's causing them to act out and then deal with the cause. If it's sensory issues, then limit whatever is causing the sensory overload. We have schools for autistic children here in South Africa that does exactly that and it works pretty well.

I have said there is logically no cure all for autism. That treatment is indeed part of the process for cure. The focus on cure research is to discover the reasons why and to then develop treatments based on those discoveries. For speech delay and related problems the treatment is speech language therapy. If it works and improves symptoms to being non-existent then it is cured. Now sensory overload is more tricky and needs more research into how the brain works and how might the brain be treated so to develop a cure. Not all symptoms can be cured at this time but those opposing cure and asking just for acceptance are evading that right and public relation that derives that support and many times it seems because the research into why and how it might be solved may contribute to other research for abortion. Cure as a concept applied to autism is vastly different then diabetics.

Treatments cannot always cure symptoms nor can all symptoms at this time be cured. Treating autism may never be as simple as a flu shot or a cold medicine for a cold. Due to it being seen in behavior regardless of genetics and neurology once symptoms are in the realm of normal or even satisfactory to the individual or the measurement of function and behavior determines if a cure had been successful. Regression and especially without supports is possible certainly but as more research takes place treatments will become more probable of the cure notion.

There should be no problem with what I've written above. I'm wondering what folks will come up with next over a silly word called cure. No known cure for autism exists but certain symptoms sometimes can be normalized and as cure research progresses chosen normalcy and typical functionalism will increase in probability. The progress for diversity is a poor excuse for philosophies of neglect based on ideological agenda's.

Nathan Young

The concept of cure is still the same thing in principle, whether it's applied to diabetes or autism. Cure is cure, and when applied to autism it means permanently removing the autism so that the person is no longer autistic, not just lessening the symptoms. Autism is not just a collection of symptoms because those symptoms have a cause. In all likelihood, there will never be a cure for autism, unless you could re-wire the brain somehow. It's simply not realistic.

Also, what evidence do you have that ASAN or anyone else who claims to be "anti-cure" is anti-treatment? I have never seen anyone protest against any form of treatment, unless it's abusive. Unless you show me where any of these organizations have protested or made petitions against speech therapy or any other kind of treatment that helps autistic individuals then I will not believe they are "anti-treatment".

In any case, this cure discussion is not the purpose of this thread.

I've checked it out and there's no evidence that the intention of this "wandering" label is to increase the use of restraints and seclusion but only to prevent accidental deaths from drowning and other things as a result of this "wandering". However, I will consider signing the petition if there's a possibility that this label still would lead to increased use of restraints.

I notice that Katie Miller, Alex's ex-girlfriend, has already signed the petition.

im glad things are better today than when i was a kid

Opposition to cure is noted in protest. ASAN itself being anti-cure? No ASAN has a very good thought strategy and usage of words and opposes the usage of the word cure. However many mistakes have been made and a divisive agenda exist. ASAN leadership is not stupid and is very smart. However ASAN leadership is closed and it seems to seek to create adversity for attention to garnish influence thus power. While doing so it is not sharing those freedom of speech rights collectively as what might be suggested by being a self-advocacy network but simply for it's core leadership. There is no democracy, no collective voting and it's advocacy thus far has been evading freedoms such as accommodating specialized education environments, confronting cure PR while calling it pity and simply saying people with autism need some help rather then the truth. The organization while word smart has many weaknesses and it's important that either a change in direction and reform happen or an alternative is created with democratic ethics so folks have another option because ASAN like many other organizations before it that are \ were self-advocacy driven cannot be effective without a proper model.

I am not one to hail the chief simply because he founded the organization. In my own organization for where I live my function is to hand over most PR to individuals with developmental disabilities. My job is a democratic transformation as this honors rights. I cannot say the same for ASAN and believe local based organizations are more empowered in their roots anyways then far and distant organizations that garnish awareness based on the perpetuation of anger and preservation of select agenda's adverse to others that people with autism support. It's important to realize ASAN is simply like any other special interest organization fielding it's options and awareness projections for specific agenda's and does not cater to the entire self-advocacy community.

Individuals with autism have the right to seek to remove adverse symptoms of autism from themselves in potential thus a cure. There is allot of messy peer-pressure and propaganda surrounding this specific issue. Autism is simply a label defining hardships a person experiences and if someone was born this way of course they are going to feel judged and defective thus rebel but human rights to have these hardships sought to be removed by choice are unshakable.

Nathan Young