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Velociraptor
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20 Feb 2012, 8:25 pm

Longshanks wrote:
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Why destroy the neurodiversity movement?


Please specify.

Longshanks


Why destroy the anti-cure movement neurodiversity movement? Diversity is a good thing. We aren't the only ones who come up with good ideas.



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20 Feb 2012, 8:29 pm

webcam wrote:
Longshanks wrote:
webcam wrote:
Why destroy the neurodiversity movement?


Please specify.

Longshanks


Why destroy the anti-cure movement neurodiversity movement? Diversity is a good thing. We aren't the only ones who come up with good ideas.


Thank you. I understand now. I believe I touch on that in the post above.

Longshanks


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20 Feb 2012, 8:30 pm

Longshanks wrote:
Asperger's is the curse of kings: Charlemagne had it. His descendant William the Conqueror had it. William's descendant King Edward I (the Longshanks) had it. King Edward III, Longshanks' grandson had it, who passed it to John of Gaunt, through to Joan Beaufort, to Sir Thomas Wyatt, to the Rev. Haute Wyatt...

:shameonyou:

Please keep in mind that AS was not defined until the 1940s, and not officially recognized until the 1990s. Therefore, saying that Charlemagne or any other historical figure had it is making a huge assumption - there is no way to prove that anyone who died undiagnosed actually had Asperger's Syndrome.



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20 Feb 2012, 8:42 pm

dalurker wrote:
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hey dalurker. if you believe that you can respect autistic people who want to be autistic and have a cure at the same time then why do you hate neurodiversity.

Because you want to make the decision for OTHERS and prevent them from getting a cure. You never said you would leave it up to choice. Many of you want research into it gutted.
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hating our philosophy shows your intolerance.

I say no tolerance for suffering.

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i wouldn't protest a cure if i thought that i would have a choice, but cure pushers like you refuse to respect neurodiversity. you refuse to respect autistic people's talents. whenever we speak up you say "i'm gonna take you down" and accuse me of spreading propaganda. so if you want me to respect your position then respect mine.n its a mutual idea.

You can't prove that someone is going to force cure on you. You don't deserve to restrict others decisions out of some paranoid fear something will be forced on you. I don't respect anyone's talents. Humans life is to be respected. Talent/ability exists for humans. Individuals don't exist to serve talent, or to serve the pursuit of such success so only a privileged few can have such ability. High-functioning ones shouldn't be the only ones to get the talent. So would you really stop talking against cure if I stopped complaining of your personal dislike of cure?
I want research into things which can actually help the low functioning. research into a cure has wasted millions with no results. millions that could have gone into helping non verbals to communicate. that technology has shown results with vast improvement in people's lives. genetic cures have shown nothing in the past 10 years. My side has positive results for LFAs yours doesn't, so thats a moot point you're arguing. And btw, if they can communicate they can choose, so that will let them decide. would you rather keep them silent so you can speak for them?
Ever heard of Alfred Hoch? you follow right in his line whether you like it or not. He was into utilitarian medicine. His motto was "relieve suffering at all costs". He invented electroshock therapy.

and yeah, you read that right. If you were to give neurodiversity some respect i would respect pro cure.



dalurker
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20 Feb 2012, 9:30 pm

aspie48 wrote:
I want research into things which can actually help the low functioning. research into a cure has wasted millions with no results. millions that could have gone into helping non verbals to communicate.

What else could help besides cure? Behavioral therapies have been somewhat of a help, like ABA, but you thumb your noses at that too. But even they can only help so much. Research into cure needs time. And it's not like it's funded highly enough.

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My side has positive results for LFAs yours doesn't, so thats a moot point you're arguing.

No yours doesn't. What have you done at all? Do you even pay attention to the stuff I've been talking of with others regarding the science involved?

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And btw, if they can communicate they can choose, so that will let them decide. would you rather keep them silent so you can speak for them?

Many can't communicate sufficiently now to tell their choice due to being impaired. Hello! It's your side that approves of others not having the ability to communicate sufficiently. You approve of the monopolization of talent and aptitude by the high-functioning, which is leaving the lower-functioning without basic abilities.
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Ever heard of Alfred Hoch? you follow right in his line whether you like it or not. He was into utilitarian medicine. His motto was "relieve suffering at all costs". He invented electroshock therapy.

I never heard of that old throwback who invented that "therapy" I tend to focus on contemporary science and technology which is of enormous capacity compared to the ignorant nonsense of 70-80 years ago. You bring this up because you can't debate against the progressive and promising things that is emerging nowadays.



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20 Feb 2012, 9:43 pm

well if you deny all the stuff we have done then i can't have a discussion with you.



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20 Feb 2012, 9:54 pm

aspie48 wrote:
well if you deny all the stuff we have done then i can't have a discussion with you.

What have you done?



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20 Feb 2012, 10:07 pm

dalurker wrote:
webcam wrote:
dalurker wrote:
JuggaspieZ2k wrote:
I don't know what I should do... I want to help. The media forgets and ignores us. What should I do? I want to help.


Don't waste your time with that, because I and others are going to destroy it.


Huh? Destroy what?


Destroy the anti-cure movement. All of that "neurodiverse" crap.


What is so wrong about being ok with neurodiversity? everyone's brain does not work the same way.......trying to force everyone's brain to work the same way is not only rather stupid considering it would be impossible but quite screwed up. I think it is more realistic to acknowledge there are different ways of functioning and that its OK and it is. But you're certainly still entitled to your opinion.


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20 Feb 2012, 10:24 pm

Sweetleaf wrote:

What is so wrong about being ok with neurodiversity? everyone's brain does not work the same way.......trying to force everyone's brain to work the same way is not only rather stupid considering it would be impossible but quite screwed up. I think it is more realistic to acknowledge there are different ways of functioning and that its OK and it is. But you're certainly still entitled to your opinion.

I just don't get the premise. I don't know if there are different ways for a brain to work. But there sometimes are brains that have problems where they can't work, and brains vary in the amounts of tasks they can do. I don't think the brain should be perceived of as an innate part of someone's identity. I think it would make sense to consider it like an object of necessity, like a machine or tool.



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20 Feb 2012, 10:47 pm

Fnord wrote:
Longshanks wrote:
Asperger's is the curse of kings: Charlemagne had it. His descendant William the Conqueror had it. William's descendant King Edward I (the Longshanks) had it. King Edward III, Longshanks' grandson had it, who passed it to John of Gaunt, through to Joan Beaufort, to Sir Thomas Wyatt, to the Rev. Haute Wyatt...

:shameonyou:

Please keep in mind that AS was not defined until the 1940s, and not officially recognized until the 1990s. Therefore, saying that Charlemagne or any other historical figure had it is making a huge assumption - there is no way to prove that anyone who died undiagnosed actually had Asperger's Syndrome.


Perhaps suspected would be a better word. Nonetheless, with the geneology I have done over the past 35 years, I have managed to trace a number of medical conditions back through the generations to create patterns which are useful to various physicians. And I have read a number of works concerning the tendancies of my ancestors that have led a number of people to make logical hypotheses (spelling?) based on what is known. So while I concur with your post, I see nothing wrong with relying on scholarly third party documentation.


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20 Feb 2012, 10:52 pm

dalurker wrote:
Sweetleaf wrote:

What is so wrong about being ok with neurodiversity? everyone's brain does not work the same way.......trying to force everyone's brain to work the same way is not only rather stupid considering it would be impossible but quite screwed up. I think it is more realistic to acknowledge there are different ways of functioning and that its OK and it is. But you're certainly still entitled to your opinion.


I just don't get the premise. I don't know if there are different ways for a brain to work. But there sometimes are brains that have problems where they can't work, and brains vary in the amounts of tasks they can do. I don't think the brain should be perceived of as an innate part of someone's identity. I think it would make sense to consider it like an object of necessity, like a machine or tool.


Well clearly there are different ways for a brain to work hence the reason a neurotypical brain does not work like an autistic brain...this is also true with other disorders most mental disorders have to do with some difference of brain functioning. Also the brain is pretty much what makes someone who they are, trying to change everyone's brain to fit some mold is BS. The body is more of an object of necessity and a machine/tool but ones body does not define their personality.

The appropriate use for the sort of cure/treatment your talking about is when everything else has been tried, failed and with that individuals consent. So unless any of these organizations who claim to help the autism cause or whatever are willing to look at other things such as the environment and social factors and how the contribute to the mental health of people with autism and what could possibly be done about that if they are having a negative impact, its going to seem they are more concerned with trying to make everyone fit a mold than the well being of the people they claim to help.


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20 Feb 2012, 11:24 pm

Sweetleaf wrote:
Well clearly there are different ways for a brain to work hence the reason a neurotypical brain does not work like an autistic brain...

But there are still disparities in aptitude within NT and autistic populations, which is the problem.

Quote:
this is also true with other disorders most mental disorders have to do with some difference of brain functioning. Also the brain is pretty much what makes someone who they are, trying to change everyone's brain to fit some mold is BS.

Not all aspects of the brain make someone innately who they are. The aspects that determine ability could change with identity being the same.
Quote:
The appropriate use for the sort of cure/treatment your talking about is when everything else has been tried, failed and with that individuals consent. So unless any of these organizations who claim to help the autism cause or whatever are willing to look at other things such as the environment and social factors and how the contribute to the mental health of people with autism and what could possibly be done about that if they are having a negative impact, its going to seem they are more concerned with trying to make everyone fit a mold than the well being of the people they claim to help.

A lot of those things have been looked into before. I wonder what else could be learned from it, but there doesn't seem to be much evidence that there could be help based on that. Lots of autistics have supportive and benevolent environments and communities, but don't gain functioning as a result.



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Velociraptor
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21 Feb 2012, 12:17 am

Fnord wrote:
Longshanks wrote:
Asperger's is the curse of kings: Charlemagne had it. His descendant William the Conqueror had it. William's descendant King Edward I (the Longshanks) had it. King Edward III, Longshanks' grandson had it, who passed it to John of Gaunt, through to Joan Beaufort, to Sir Thomas Wyatt, to the Rev. Haute Wyatt...

:shameonyou:

Please keep in mind that AS was not defined until the 1940s, and not officially recognized until the 1990s. Therefore, saying that Charlemagne or any other historical figure had it is making a huge assumption - there is no way to prove that anyone who died undiagnosed actually had Asperger's Syndrome.


While there may not be a diagnosis for the historical figures, the children of Charlemagne do seem to have it, so it's entirely possible that others of his issue share it also.

Longshanks wrote:
webcam wrote:
Longshanks wrote:
webcam wrote:
Why destroy the neurodiversity movement?


Please specify.

Longshanks


Why destroy the anti-cure movement neurodiversity movement? Diversity is a good thing. We aren't the only ones who come up with good ideas.


Thank you. I understand now. I believe I touch on that in the post above.

Longshanks


Nice to meet you cousin :)

I think we're using two different sets of info and different assumption. I think when we solve the disease of aging we will have everything we need to make it happen. LFAs IIRC have fewer brain cells and less complex brains. Stimulating the growth of their brains might do the trick or at least bring us closer should this be the LFA's choice, and it will be possible when more is understood about growth factors, hormones, and related systems.

Neurodiversity TMK, is just the acceptance of differences in society and social situations, just the same as we accept people of different nationalities and religions. Something else I've thought is that we have our own culture and social cues that exist relative to our genetic expression which is largely due to understanding ourselves. However, we spend so much of our lives trying to fit in that we never develop or understand our social standards, our relative scarcity doesn't help either, we need to experience each other to understand ourselves. All possibilities of abstract representation aside, we don't compare New Yorkers to Zulus or think that someone who grew up in NY could live in a Zulu culture without making a significant amount of social gaffs... So why be expected to learn how to live from someone who is not part of our neurogenetic culture? Why be judged by their metric.

Some other thoughts on our neurogenetic culture...

Surprising as it may be, I've learned a bit of culture from LFAs. My Aunt does adult adoption, she at one point had an LFA, and an LFA savant and I did observe that there were cues that they shared, and even gained some insight on their neurochemistry. They had a definite culture between them when they thought no one was watching/listening and had been moved around more than once and met lots of others like themselves. I've also learned clues as to our evolution through observation and hope to observe more when next my Aunt adopts.



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21 Feb 2012, 12:57 am

webcam wrote:
Fnord wrote:
Longshanks wrote:
Asperger's is the curse of kings: Charlemagne had it. His descendant William the Conqueror had it. William's descendant King Edward I (the Longshanks) had it. King Edward III, Longshanks' grandson had it, who passed it to John of Gaunt, through to Joan Beaufort, to Sir Thomas Wyatt, to the Rev. Haute Wyatt...

:shameonyou:

Please keep in mind that AS was not defined until the 1940s, and not officially recognized until the 1990s. Therefore, saying that Charlemagne or any other historical figure had it is making a huge assumption - there is no way to prove that anyone who died undiagnosed actually had Asperger's Syndrome.


While there may not be a diagnosis for the historical figures, the children of Charlemagne do seem to have it, so it's entirely possible that others of his issue share it also.

Longshanks wrote:
webcam wrote:
Longshanks wrote:
webcam wrote:
Why destroy the neurodiversity movement?


Please specify.

Longshanks


Why destroy the anti-cure movement neurodiversity movement? Diversity is a good thing. We aren't the only ones who come up with good ideas.


Thank you. I understand now. I believe I touch on that in the post above.

Longshanks


Nice to meet you cousin :)

I think we're using two different sets of info and different assumption. I think when we solve the disease of aging we will have everything we need to make it happen. LFAs IIRC have fewer brain cells and less complex brains. Stimulating the growth of their brains might do the trick or at least bring us closer should this be the LFA's choice, and it will be possible when more is understood about growth factors, hormones, and related systems.

Neurodiversity TMK, is just the acceptance of differences in society and social situations, just the same as we accept people of different nationalities and religions. Something else I've thought is that we have our own culture and social cues that exist relative to our genetic expression which is largely due to understanding ourselves. However, we spend so much of our lives trying to fit in that we never develop or understand our social standards, our relative scarcity doesn't help either, we need to experience each other to understand ourselves. All possibilities of abstract representation aside, we don't compare New Yorkers to Zulus or think that someone who grew up in NY could live in a Zulu culture without making a significant amount of social gaffs... So why be expected to learn how to live from someone who is not part of our neurogenetic culture? Why be judged by their metric.

Some other thoughts on our neurogenetic culture...

Surprising as it may be, I've learned a bit of culture from LFAs. My Aunt does adult adoption, she at one point had an LFA, and an LFA savant and I did observe that there were cues that they shared, and even gained some insight on their neurochemistry. They had a definite culture between them when they thought no one was watching/listening and had been moved around more than once and met lots of others like themselves. I've also learned clues as to our evolution through observation and hope to observe more when next my Aunt adopts.


Nice to meet you too, cousin! Are you descended from Charlemagne or a different figure that mentioned? Please let me know. I've traced the family back to 200 BC. I may have some info that you might want.

Longshanks


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Velociraptor
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21 Feb 2012, 2:37 am

Charlemagne, maybe some of the others, don't know much about my genealogy, just a few key points, sent you a pm.



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21 Feb 2012, 2:37 am

dalurker wrote:
Sweetleaf wrote:
Well clearly there are different ways for a brain to work hence the reason a neurotypical brain does not work like an autistic brain...

But there are still disparities in aptitude within NT and autistic populations, which is the problem.

I am aware, why is it a problem though?

Quote:
this is also true with other disorders most mental disorders have to do with some difference of brain functioning. Also the brain is pretty much what makes someone who they are, trying to change everyone's brain to fit some mold is BS.

Not all aspects of the brain make someone innately who they are. The aspects that determine ability could change with identity being the same.
Quote:

What is to say changing the things that cause someone to have autism would not have negative effects? I mean sure there are a lot of difficulties with it but in my opinion for me it would be harder to learn how to function with a normal brain when I'm not used to it. That is how I feel about the whole being cured thing. But if people want cured they should certainly have that right.

The appropriate use for the sort of cure/treatment your talking about is when everything else has been tried, failed and with that individuals consent. So unless any of these organizations who claim to help the autism cause or whatever are willing to look at other things such as the environment and social factors and how the contribute to the mental health of people with autism and what could possibly be done about that if they are having a negative impact, its going to seem they are more concerned with trying to make everyone fit a mold than the well being of the people they claim to help.

A lot of those things have been looked into before. I wonder what else could be learned from it, but there doesn't seem to be much evidence that there could be help based on that. Lots of autistics have supportive and benevolent environments and communities, but don't gain functioning as a result.


Maybe not perfect neurotypical functioning...but yes a positive healthy environment can definitely help someone function better.


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