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Whale_Tuune
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23 Jul 2020, 4:33 pm

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And this isn't due to me trying to be politically correct but I think the emphasis on autism and privilege is something I do not agree with.


Can you elaborate on this?


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carlos55
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23 Jul 2020, 6:19 pm

Whale_Tuune wrote:
I remember Mona. She made some good points. I didn't think she was gone for good, though. I hope she comes back.

She was correct that because Autism isn't one thing, an Autism "cure" is unrealistic and medical treatments should target debilitating symptoms. One of the reasons I don't like the "pathology" model of Autism is that a search for a "cure" is a whole lot of time and resources wasted.

Okay, so I don't think that the crossing of social boundaries and other things I brought up can be "done away with" because they're "just social constructs". Consider the following scenarios:

A young woman is in class/at work with a man who has ASD. The man may or may not be interested in the woman, but regardless, he continually invades her personal boundaries in the way we Aspies can: for example, he asks her overly specific questions about where she lives, her background, and her family life. He gets too close to her when she's in a confined space and she feels cornered, he continuously stares at her without realizing that he's doing it. The young woman, afraid for her own safety, calls him a "creep", reports him to HR, and tells other women to stay away from him. Neurodiversity advocates may say that this woman was being "ableist", but I say that she was probably thinking in terms of her own safety. Asking her to ignore obvious warning signs of a predator and treat the man like anyone else is unfeasible in this scenario.

A person of color works in an office with a white Aspie. The Aspie engages in more Aspie-like behavior: random staring or lack of eye contact, increased micro-aggressions due to a lower sensitivity to others' perspectives ("can I touch your hair?" "where's your family really from?" "are you eating THAT?"), asking invasive questions ("have you ever been stopped in an airport security line?" "are you here legally?"), maybe scowling or smiling inappropriately without realizing it, perhaps in a way that makes the person of color think that they are reacting specifically to them. There is a news story about a racist crime that occurred, and the rest of the office talks about how to combat racism and show support for their colleagues of color, while the Aspie is off in their own world smiling to themselves. The person of color again feels very uncomfortable around the Aspie, reports them to HR, and tells their colleagues about how awful the Aspie is. They have experienced this behavior in the past, and typically it is always because the person in question is a closet racist. The Aspie in this scenario may be genuinely innocent of ill intention, and some of their cues may have been genuinely misinterpreted. Still, is the person who reported the Aspie to HR also being "ableist?"

A group of coworkers have one Aspie colleague. They get along as friends, laughing, joking, supporting one another. They try to include the Aspie in their group, but to be honest, being around the Aspie is never all that fun. The Aspie in question is very rote in their conversational skills. They don't pick up on topic changes and try to steer the conversation back to one thing that no one is quite interested in besides them. Others in the group want a chance to speak as well, but they find that the conversation is either dominated by the Aspie's fixations, or is continually interrupted at odd times by the Aspie with some comment that is out of the left field or not conducive to the conversational flow. In addition to this, the Aspie doesn't really greet the colleagues in question or engage in the pleasantries everyone else enjoys, which makes them wonder if the Aspie really likes them at all. Finally, the Aspie has a tendency to give off confusing, indecipherable nonverbal cues that leave everyone puzzled about what they're really thinking. Eventually, they end up forming their own group and nominally include the Aspie, but hang out by themselves a lot. Are they all being "ableist", and if so, can you ask them to set aside their preferences for the Aspie?

Lack of eye contact is one thing. Aspie problems socializing run much, much deeper.


You give some great examples of typical day to day situations that effect autistic people.

The ugly truth is in many cases we are oppressed by our condition and society doesn’t and will never care, why?

1. Many autistic people where they can mask their autism esp in the workplace, so to have an excuse for behavior you would have to end masking

Autism comes with it symptoms that can effect work performance i.e executive functioning, memory and attention difficulties, so there’s a lot of motivation to mask to your boss where you can.

2. Advocates would say with acceptance masking wouldn’t need to happen anymore. But how would a woman recognize autism in a stranger who she thought was behaving strangely around her? Do we have blue heads? How would she know he’s not a rapist?

3. What about double bluff? What if he is sexually interested in her and that’s how he expresses his interest. Yes I have seen that before. I also worked somewhere where a gay man was fired for touching a female worker’s brest, maybe he thought being gay it didn’t mater but she obviously thought different and he got sacked for it. Not everything is black and white or what it seems.

4. The emphasis is on NTs to change but what if they can’t be bothered to look into things. Time is short and people have busy lives are they going to really look into co worker “mark from IT” condition.

5. There’s a crossover in the PC world many on the left would prioritize women and black people over those with a brain condition. So if an autistic person said something that could be interpreted as racist they would love to cancel him to set an example, also not wanting to miss a virtue signaling opportunity. They don’t do free passes.

Theres many more I can’t think of now.

You are also too negative in regards to medical research.

How do you know there won’t be a cure for autism in 20 years? What if there’s a treatment that can reduce many of our symptoms? Google autism research tons of stuff released over the last 10 years.

People once thought space flight and Brain surgery would be impossible but they were proved wrong.


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Whale_Tuune
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23 Jul 2020, 7:00 pm

It's true that in these instances, the Aspie in question may not be "out" to their colleagues or peers. And for the most part, minorities and women try to avoid anyone who gives them bad vibes, frequently for good reason.

I am also aware that we suffer when others rely on their intuition around us and exclude us. But I really don't know how to balance this appropriately.

Add "self-diagnosis" to the mix and I'm left wondering if people could up and diagnose themselves in an attempt to excuse bad behavior.

In day to day life, ASD seems much less like an alternative identity and more like a genuine disability.


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23 Jul 2020, 7:30 pm

Whale_Tuune wrote:
Whether or not boundaries that women and minorities have to protect themselves from prejudiced individuals or predators are "social constructs", my point is that asking them to ignore "warning signs" or negative behaviors that Aspies unintentionally give off isn't feasible.

In the 80s, sexual assaults in movies such as 16 Candles and Revenge of the Nerds were played for laughs. Women were never okay with getting assaulted or harassed, but later on they were better able to advocate for themselves. Our social boundaries that we set up to protect ourselves are not necessarily "social constructs" that can be done away with...

The disadvantages of being a minority can not be undone. That is a fact we have to live with and yes adjust to. Compromising with out selling out is a difficult part of being an adult.

In our group when the topic of Aspie men "creeping out" women or worse the idea that women have to take it because we are Autistic never came up.
Off Topic
The advice given was originated by Dr. Tony Attwood was to have an NT wingman accompany the Aspie man when he went out on social occasions


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23 Jul 2020, 7:34 pm

Well, step one is to make a good NT friend. That would be greatly helpful, but even that is difficult for many of us.

I've floated the idea of peer mentors for ASD youth before. Much better idea imo than therapists giving rote advice.


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23 Jul 2020, 7:54 pm

Whale_Tuune wrote:
Quote:
And this isn't due to me trying to be politically correct but I think the emphasis on autism and privilege is something I do not agree with.


Can you elaborate on this?

Sure thing. Sometimes I think too often when we explore Autism, allot of media has a pre-conceived notion of autism as being a condition that just comparatively privileged white men face. I understand that was not what you were insinuating by any means. But sometimes I think it would be helpful to examine how autism and race go together to create in many cases a very challenging and unique life experience. And while Scenario 2 was not altogether bad. I got a gut feeling that the scenario was incomplete and neglecting something big.

Whale_Tuune wrote:
Well, step one is to make a good NT friend. That would be greatly helpful, but even that is difficult for many of us.

I've floated the idea of peer mentors for ASD youth before. Much better idea imo than therapists giving rote advice.

I am a peer mentor for young autistic individuals in addition to running a club to support us. The conclusions I have come to is that it is a good idea but one that poses enormous challenges.

In Autism NZ's Auckland Youth group there are about 4 of us and we are youth mentors on the autism spectrum. But all of us male, and do not necessarily understand certain peoples experiences. I remember two particular instances where one of the mentors, a man aged 26 called a 13 year old girl cute and pushed for a hug, pulling her in when she awkwardly said yes. This was something we had to complain about. This is in addition to some other things that go on in that group.

In response I said that for future mentors, we likely need someone who is not male and can better understand a members lived experience. In addition I also brought up that the person may not necessarily have to be autistic themselves. If someone has been around allot of autistic people, may be transgender and may relate to the struggles we are all going through then there is no reason why that person can't do a good job. I don't know how these recommendations have been taken on but I get the sense the organizers for the youth group may not fully understand the risks.



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23 Jul 2020, 8:06 pm

Yeah, I think there's benefit to Autistic peer mentors and NT peer mentors. Preferably people talking to those of their own gender (esp women) to avoid some of the stuff you mentioned and so we can have people who experience similar things as we do.

I didn't mean to imply that being Autistic went hand in hand with being white and male. For a long time that's how it was conceived, but I'm well aware that PoC and women experience being Autistic as well and it compounds their experiences.

(For example, as a woman, women on the spectrum are even more likely than NT women to experience sexual abuse and domestic abuse, and other women have a tendency to exclude us and treat us very harshly for not living up to their standards.)


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23 Jul 2020, 10:17 pm

Whale_Tuune wrote:
...and other women have a tendency to exclude us and treat us very harshly for not living up to their standards.


Yes, I can imagine women not being the most compassionate group to work with. I also think they have the hardest time understanding what autism is, partly because social interaction and interpersonal relationships are so important to them--not the best required skillset for an autistic person.

I was speaking with a friend the other day and we were talking about the advice we were given for social interaction. One piece was understanding that other think in very different terms and you should account for that difference. I have repeatedly tried that advice and repeatedly failed. It occurred to me that the advice only worked if I could perceive the situation, but the problem with autism is that you have no cognitive ability to perceive the situation. It is as if you are put a blind batter on home plate and tell them to simply swing at the ball when it is pitched. Sure you can make a swing, but you will just strike out.



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23 Jul 2020, 11:17 pm

Whale_Tuune wrote:
Yeah, I think there's benefit to Autistic peer mentors and NT peer mentors. Preferably people talking to those of their own gender (esp women) to avoid some of the stuff you mentioned and so we can have people who experience similar things as we do.


I certainly agree that the gender issue applies in the real world for the reasons you provided, but that's not necessary here on WP.

I am thinking we should have a :"Ask an NT anything" forum thread. As far as I know there's only two of us NTs who post regularly (and only one of us is listened to) but if Alex/mods agree to create a thread (like the one they created for me on the parent forum) then I can recruit some fellow NTs to act as peer support.



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24 Jul 2020, 4:51 am

I think there used to be something like that, I'm sure Alex could restore it.


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24 Jul 2020, 7:25 am

Whale_Tuune wrote:
I think there used to be something like that, I'm sure Alex could restore it.


restore? you mean there used to be a NT ask me anything thread?



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24 Jul 2020, 7:32 am

There should still the NT open line thread unless mods got rid of it.

But there for sure was one in the past.

There also was a thread for those not high functioning to talk to higher functioning autistics,but that one's gone too.


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24 Jul 2020, 8:49 am

First Time In History!! ! ! The NT/AS Open Hotline ! ! ! ! ! !


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24 Jul 2020, 11:53 pm

Cool! I'll be the token NT for the moment but hopefully others will be notified



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25 Jul 2020, 10:11 am

This conversation is a little bit too esoteric for my taste. But let me pick off from this quote.

Whale_Tuune wrote:
Lack of eye contact is one thing. Aspie problems socializing run much, much deeper.


I agree with that statement.

Aspies present a variety of traits. One of these is a lack of eye contact.

An NT solution is to push Aspies towards making more eye contact.

But this approach is entirely wrong. It misses the whole point.

Eye contact is a form of communications. An infant before they can even speak begin to learn the art of this form of communications. They read the eyes and can quickly determine whether an individual is "Friend or Foe". Within milliseconds.

The eyes, eyelids, eyebrows and orbicularis oculi muscle play a major role in projecting emotions and the degree of emotions.

Because of the Aspie trait of never looking someone in the eye, we have not evolved the trait of reading emotions in others and as a result are incapable of projecting emotion properly using our eyes.

Now I am 71 years old and I am far beyond learning this new skill even if I thought it was worth while. So generally the advise of looking into a persons eyes whenever I talked to them is not going to happen.

So what is a workable solution from an Aspie perspective?

It seems like NTs are always misinterpreting Aspies intentions. They look us in the eyes and imagine our thoughts. By wearing mirrored glasses we deprive them of this tool of assessing our intentions and our vulnerabilities. So I believe this may have a therapeutic value for Aspies. As a result a couple years ago I bought a pair of blue mirrored prescription glasses and have been wearing them in public ever since.

Mirrored glasses are like looking through a one way mirror. I can see out but others cannot see in. It prevents NTs from reading the signals that my eyes, eyelids, eyebrows and orbicularis oculi muscle project that are often misinterpreted. Because they are mirrored and not lens tinted, they are not true sunglasses and will let much more light in, so they can be worn inside.

Mirrored sunglasses come in many different colors. I choose blue because blue is peaceful, tranquil and symbolizes loyalty. Blue is reliable and responsible. It exhibits inner security and confidence. That is the image I wished to project.

Can I see a difference? IMHO, yes! People are friendlier. Sometimes people, total strangers, will come up to me and ask advise. I see a lot more smiles on peoples faces after conversations.

If we are like aliens from another planet, the best thing is to try and blend in. Mirrored glasses are just one available tool at our disposal.


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26 Jul 2020, 12:36 am

jimmy m wrote:
It seems like NTs are always misinterpreting Aspies intentions. They look us in the eyes and imagine our thoughts. By wearing mirrored glasses we deprive them of this tool of assessing our intentions and our vulnerabilities. So I believe this may have a therapeutic value for Aspies. As a result a couple years ago I bought a pair of blue mirrored prescription glasses and have been wearing them in public ever since.


My daughter uses very good eye contact when she is trying to make a point. Otherwise she avoids eye contact (especially when chores need to be done :lol: )