Another save the world from autism website

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Thank you for the reminder KingdomOfRats. I think that many people here forget that the spectrum covers a lot more than AS. My son is either LFA or HFA depending on the day. It is understandable that AS dominates the conversation but it can be frustrating.

I feel for parents. There is suddenly a seperation socially from other parents and their kids,so their support network can shrink or collapse. There is so much conflicting info out there with everyone claiming that to do the wrong thing will doom your children or even entire family.

The parents need time to sort it all out. Some of us work it out, some get hung up on looking for someone to blame.

I'm not sure where I going with this so I guess I'll drop it...

11kRage, I just wouldn't have bothered after receiving that response from them. They do seem rather... hostile.

Yet, another sh***y topic ... created only as an excuse to compliment oneself in every possible way ("Oh! I am so superiour to everybody else!" )

Quote: "I received a lot of support from my parents and went from being non verbal and in my own world to attending university for a degree. I found out quite recently that a lot of people were shocked at the grades I managed to acheive because of this misconception that autism is linked to mental retardation (recently proved wrong in a scientific recent review due to extreme lack of evidence and contradictory evidence). Of course my performance never shocked me because I always knew my mind worked, overboard sometimes in fact. I just had no motivation to show it as I thought for the longest time that everyone knew I could think. "


Jeasus! Isn't that pathetic! Another topic serving as a vehicle to demonstrate the superiority of the author over everybody else! Listen, if u are so smart and successful, why don't you get yourself a life and find a better occupation than digging low quality, no-name web sites?

I am not suprior to everyone else, I am different to some and equal to all. That would be the whole point of the thread...

I wrote that point to illustrate that really even though people thought I was stupid as I didn't speak (which seems to be the basis for a lot of 'against autism' stuff) my grades did not illustrate this, hence the suprise. And the message that I was getting across, because autism affects communication its difficult if not impossible to know just how much it affects everything else.

Its rather disapointing that I have to spell it out.

Though I did get some humour out of the irony of being told to get a life for digging at low quality websites (much easier to reason with than high quality ones). As I did from you digging at me for digging at low quality websites, and currently me digging at you for digging at me for digging at low quality websites



I prefer making the assumption that people are human, and can be reasoned with. In most cases it actually works. The reply:

Listen I am not a bad guy ! But get in the way of me helping my kids
get this treatment , someone gets hurt .But the Vaccines given to my
kids stopped their minds from working the way to live a normal life in
this world , I don't want them to miss a thing ! But you should know
I could not read till I was almost 22 years old , Hell I have spell check
is the only reason you can read me now! You dont have to help me !
Just don't get in my way again !

= much less hostile. Plus due to things such as the reading issue, she/he is beginning to think about their own experiences and to see things slightly more from their childrens point of view. Sure theres still threats, but there are indications that some of what I said got through. Its not clear whether they will do the research recommended, but the thought is in their head and that is the most important thing. Let it fester.

I won't contact them again as any further contact will likely worsen the situation than make it better. But there was leeway after the hostile reply to address things in a polite way and improve things.

Nobody has mentioned that they intend to treat their children with "stem cell treatment." What the hell is "stem cell treatment?" What are they planning to do to their children? Are they going to pump some stem cells into their brains? Is this treatment (whatever it is) legal? Is it safe? Would this treatment be considered child abuse?

I would take a look at this page http://www.bodyecology.com/07/11/03/aut ... o_know.php

I remember reading about a place in Mexico that "cures" autism in several treatments.

I personally think it is wacko but whatever...

I find it outrageous that you interfere with other people's life and dare to teach then how to live while they did not ask you for it. YOU ARE NOT IN CHARGE FOR THEIR KIDS, OK? and though you think you can give instructions, you still accept no responsibility for the life of those kids. The parents of those autistic boys are responsible for them every single moment. And they have to deal with them every single moment. They earn money for the treatment, they do not sleep at nights when their kids do not feel well, and they spend a lot of time educating them, while you are hanging out here, on wrong planet for example and give instructions.
Well, but you are right, if you write to them again - they will tell you to f... off. And I would find it only fair.

They are asking for donations on their website.

I'm interfering with their life in less of an invasive way than even you are interfering with my life. And yes, they would react hostile to any further pressuring, I said as much. Its human nature unfortunately.

No, I am not charge of their kids. I did not say that. Its called providing information .

I'm afraid your arguement appears to be falling a little flat. I can't really see what point you are trying to get across.

Sadly parents don't always do whats right for the child, its a hard lesson to learn. In this case any possible welfare issues would have come down to misinformation.

I don't really think theres much else to say on this topic. You only seem to be bringing up contridictary and factless arguements. No offence, but its not very interesting to be honest to reply to weak arguements.

You also appear to be bringing up my going on this forum as an argument a fair bit, and getting a life. Seems a bit odd since your on here as well, and if you'd look at my post history you'd see I spend very little time on here due to life (ironically enough your replying is eating up most of my odd minutes on here).

I'd be interested if you decide to come up with an arguement with basis. However, that doesn't really look very promising right now

Why do people get so offended by the idea that people might dare try to find a cure though? I think it's great if you're proud of being autistic, everyone should be proud of who they are, but if there is a possibility of a cure, what's so bad about the choice being out there for those who don't like having autism? I've seen many aspies and auties on this website alone who have made it very clear they cannot stand being autistic and feel it has ruined there life. If there was a cure I'd probably take it, or at least like to look into it. Just because you personally don't want to be cured does not mean that the option shouldn't be available. If there is indeed a "cure" it's not as though people are going to force us to take it. Have an open mind people.

11krage, I am outraged that you imply that someone's children who start out as non-verbal will become as high-functioning as you are when they grow up, when you know that most with autism will remain severely disabled after growing up. Most on the spectrum will not have the opportunities and huge abilities you have without a cure, which you want to prevent. It's not fair that so much ability is held only by you very high-functioning ones. I hate that you want to keep most of the ability for yourself, while so many others with autism have so little of it. You can't represent low-functioning ones, as they are deprived of the basic and superior skills that you get to enjoy. What good is your moaning about respecting differences or whatever, when so many with autism can't speak or understand language, have serious attention problems, can't read or write, or understand the dangers of things, and will never be independent?

A cure for being different. You can count me out.

Because the people a cure is being targeted to are those who can't consent to it. I have nothing against people say over the age of 21 deciding to take a cure as long as they make the decision themselves, but since its parents of autistic children lobbying for a cure thats unlikely to be the case. Very good argument, you raise an interesting point.



Not nessessarily high functioning as its defined, but higher functioning than they were when they were say 5. Of course the many cases like Amanda Baggs bring in to question just how low functioning is low functioning. A number of low functioning autistics have started to verbalise using current computer technology and are just as disturbed by the idea of a cure.

I believe that acceptance is nessessary for all autistics, reguardless of ability. The trouble is as soon as a low functioning start to verbalise or type, reguardless of anything else and what they say about how they felt before verbalising they suddenly become another being entirely. A being that can't possibly understand how or whether a non verbal is thinking.

It seems very silly really, and makes me think that more listening should take place instead of deciding on such as radical thing as a cure. Scientists have started to suggest that autism be reguarded as simply a different way of devloping as apposed to a neurological impairment, since autistic children go through the normal stages of development, just at different times.

As it is, it looks like a pregnancy screening test might be available sooner than a cure, which brings up a whole load of other issues.

Another point to add is that most people with AS on here that wish they were cured, when you actually ask them what they wish to acheive with a cure, they mostly list off things that are independant of AS (such as depression, anxiety, ADHD, sensory issues, co-ordination etc). And some of the items they list are just plain unreachable (be loved by everyone, be respected by everyone, be a sports star).

Sure, maybe one or two of the things they list might be relieved a bit with a cure, but the majority of their problems will still be there. So, what if these companies charge through the nose, only for the person to realize that they're still depressed, anxious, have sensory overloads, and are still not loved by everyone? They just have automatic instinctual knowledge of body language and social norms, most of which they already learned by then. And they don't have a compulsion to study as much as possible about...amphibians or whatever. Then they're stuck paying this ginormous bill (as many with officially diagnosed ASD can't get coverage), feeling worse than when they came.

That's ASSUMING the best case scenario that this treatment is well proven, and doesn't erase personality and memories or have any other negative side effects. When you introduce experimental drugs and brain surgeries into the mix, it opens up a whole other can of worms.

11krage, Amanda Baggs, who was in college at the age of 13, is not an example of LFA. I'm not even going to talk about her circumstances in detail. I'm so sick of her being talked about in response to the lack of consideration of HFA for LFA. What number of LFA have started to verbalize with typing? I doubt it could be many. I wonder how typing of words could be done by the many autistics who lack language skills. Facilitated communication in general is not reputable.

What "listening" should take place? Many involved in this issue have had enough of listening to the backward propaganda of the aspie/HFA elite, and of the phony scientists who won't acknowledge the neurological impairment in autism. I wonder what a bunch of smart scientists would know about what it's like to be mentally impaired. What about the autistics who don't develop enough and end up without basic skills? I think it's time for such a radical thing as cure to put an end to mental impairment. Who wants to beg for and settle for your petty acceptance? There is no broad base of autistics who are against cure. There is no great reason to not be cured, so there is no justification for depriving someone of so much of their youth by making someone wait until they're 21 to choose it. Nobody has to be that old to realize the misery of being mentally impaired.

Whoops ! ! I thought that we should be the antisocial ones. Basically the distinction between a difference and a disease is whether or not it interferes with one's ability to have a normal life. If an individual with Autism is working and making $40,000 per year or whatever, they don't have a problem.

If they (like myself) are under-employed or worse unemployed and can't get out of their parent's house, they (like myself) have a disease or a syndrome needing some sort of cure or treatment... which is a genetically engineered super bug that makes all who it infects into telepathics who can use mind control on millionaires ! !