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firemonkey
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06 Jan 2020, 2:42 pm

I think people need to get beyond the simplistic 'Severely disabled' vs ' I'm a higher being because I'm on the spectrum" thinking that dominates current thinking on this issue .

Heading in either direction based on that results in a a bad state of affairs - severely disabled people not getting something that would improve life for them vs the possible eradication of strengths that a person has .



ASPartOfMe
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06 Jan 2020, 3:13 pm

firemonkey wrote:
ASPartOfMe wrote:
firemonkey wrote:
I can see why,if a cure is ever available, having the choice to say yes or no is crucial . However two things spring to mind for me.

1)Those who are severely disabled. I can see why a parent might need to make a choice for their son or daughter . However some in time can improve to make the choice themselves.

2)Would a decision not to opt for a cure result in a "If you don't want a cure we won't give you help and support" scenario ?

Why would taxpayers want to support people who made a choice to be Autistic? They would say you think your Autism is a gift, you think you are the next stage in evolution and you want my money and special privleges? Go f**k off.


It's not just a 'severely disabled' vs 'It's a gift/next stage of evolution' situation though . For many there's an acceptance that there are strengths and weaknesses . Those people don't adhere to "I'm the next stage in evolution " thinking . What they want is help for the things they struggle with without losing any of the strengths being on the spectrum can bring .

It SHOULD not be “ret*d” vs “superpowers” and indeed most ND advocates are not supremacists but unfortunately that is how it is widely perceived. A cure would weaken the ND movement because there would be less autistics. What remains of the ND movement would be the extremists.


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07 Jan 2020, 8:40 am

AsPartOfMe wrote:
A cure would weaken the ND movement because there would be less autistics. What remains of the ND movement would be the extremists.


But what is a movement if it doesnt represent the people it claims to represent - just an elitist club?

Whats more important as a priority for people with disabilities curing them of a major disability or an identity movement and label?

If the suppremist extremists are the last ones left that would be a great outcome, since they tend to be of the highest functioning and most able.

If they reject a cure because they think they are the next stage of evolution or have alien dna good for them.

Ill personally wave them on with a smile and wish them luck while i and many others get the treatment to live a normal existance.


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Robert312
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07 Jan 2020, 10:20 am

A cure for the highly disabled who have severe sensory issues would be good. People might find it hard though to distinguish between low functioning and high functioning. Some deaf people get neural implants some don't. Does that mean we should stop having close-captioned TV? I live a normal life and I prefer a library to a big party.


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07 Jan 2020, 5:32 pm

carlos55 wrote:
I suppose the million-dollar question is why would someone young enough choose to remain severely disabled & in psychological pain when there is a treatment for them? I specifically state “disabled” to mean someone with a level of autism who is unable to work or function in society?


It seems this debate (like many on WP) goes in circles over the years. Eventually we come back to disability Vs functional tag which is the crux of the disagreement over why there isn't a ND community like you have for other forms of disability like deafness, blindness, wheelchairs etc....

Think of "functional privilege" where autistic people who "pass" as functional in NT society (married, have a job, kids a home, friends etc) claim to represent the best interests/speak on behalf of all people on the spectrum but actually don't have clue what's like to live with moderate to severe sensory problems that interfere with nueral processing.

People on the Aspie end of the spectrum also indulge in criticising NT parents (usually be battering Autism Speaks) and claim to know more about what autistic kids need yet have no clue what it's like to take care 24-7 of a child/children on the moderate-severe end of the spectrum. Indeed 90% of those claiming to advocate for an ND community would run a mile if they had to look after a severely autistc child/adult.

So lets call it for what it is....an ND community is really a modern euphemism for an online Aspergers community.

The interests and welfare of children and adults on the "lower" half of the autism spectrum will always be in hands of NT parents and their NT carers (plus those Aspie parents who have "lower" functioning kids).

Those advocating need to stop pretending there is an ND community.



firemonkey
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07 Jan 2020, 6:48 pm

I have an Asperger's dx . For me,personally, I don't see myself at the severe end of the spectrum . Equally I don't see myself as a mega high functioning superhuman . I'm lucky that I can live independently , but there's a marked difference between how well I do that with support vs without it .



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07 Jan 2020, 6:59 pm

carlos55 wrote:
AsPartOfMe wrote:
A cure would weaken the ND movement because there would be less autistics. What remains of the ND movement would be the extremists.


But what is a movement if it doesnt represent the people it claims to represent - just an elitist club?

Whats more important as a priority for people with disabilities curing them of a major disability or an identity movement and label?

If the suppremist extremists are the last ones left that would be a great outcome, since they tend to be of the highest functioning and most able.

If they reject a cure because they think they are the next stage of evolution or have alien dna good for them.

Ill personally wave them on with a smile and wish them luck while i and many others get the treatment to live a normal existance.


Carlos, I would like to live a life that would produce the most happiness for myself and less of a burden on others. I can't do that with the concentration problems, executive functioning issues, motor coordination issues, getting tongue tied all the time, etc. These things aren't caused by society or discrimination by society. These are internal to me and I still have major issues with things whether I'm around people or not.

This whole ND comes from the idea of being yourself. But what if "myself" sucks? Wouldn't it make more sense to change the self to something better? Do you get what I'm saying?



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07 Jan 2020, 7:07 pm

I'm fine being an AS person. I wouldn't want to have changed myself.

My parents, on the other hand...if I could have "changed" them...


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08 Jan 2020, 4:30 am

cubedemon6073 wrote:
This whole ND comes from the idea of being yourself. But what if "myself" sucks? Wouldn't it make more sense to change the self to something better? Do you get what I'm saying?


Yes i understand perfectly and agree 100%.

It angers me when a group that claims to speak for me activly works against my best interests in frustrating efforts to find medical solutions to an obvious problem and whitewashes the suffering of others.

Im for personal choice like i say if someone thinks their brain is the future of humanity or gods will or whatever good luck to them just dont dictate to others.


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08 Jan 2020, 5:49 am

carlos55 wrote:
AsPartOfMe wrote:
A cure would weaken the ND movement because there would be less autistics. What remains of the ND movement would be the extremists.


But what is a movement if it doesnt represent the people it claims to represent - just an elitist club?

Most movements do not or partially represent the people they represent because they are usually lead by the elites of said group.

carlos55 wrote:
Whats more important as a priority for people with disabilities curing them of a major disability or an identity movement and label?

Depends on the disabled individual.

carlos55 wrote:
If the suppremist extremists are the last ones left that would be a great outcome, since they tend to be of the highest functioning and most able.

If they reject a cure because they think they are the next stage of evolution or have alien dna good for them.

Ill personally wave them on with a smile and wish them luck while i and many others get the treatment to live a normal existance.

They are not as able as they think they are, just delusional.


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08 Jan 2020, 5:58 am

cyberdad wrote:
carlos55 wrote:
I suppose the million-dollar question is why would someone young enough choose to remain severely disabled & in psychological pain when there is a treatment for them? I specifically state “disabled” to mean someone with a level of autism who is unable to work or function in society?


It seems this debate (like many on WP) goes in circles over the years. Eventually we come back to disability Vs functional tag which is the crux of the disagreement over why there isn't a ND community like you have for other forms of disability like deafness, blindness, wheelchairs etc....

Think of "functional privilege" where autistic people who "pass" as functional in NT society (married, have a job, kids a home, friends etc) claim to represent the best interests/speak on behalf of all people on the spectrum but actually don't have clue what's like to live with moderate to severe sensory problems that interfere with nueral processing.

People on the Aspie end of the spectrum also indulge in criticising NT parents (usually be battering Autism Speaks) and claim to know more about what autistic kids need yet have no clue what it's like to take care 24-7 of a child/children on the moderate-severe end of the spectrum. Indeed 90% of those claiming to advocate for an ND community would run a mile if they had to look after a severely autistc child/adult.

So lets call it for what it is....an ND community is really a modern euphemism for an online Aspergers community.

The interests and welfare of children and adults on the "lower" half of the autism spectrum will always be in hands of NT parents and their NT carers (plus those Aspie parents who have "lower" functioning kids).

Those advocating need to stop pretending there is an ND community.

Stereotypes. A bunch of the leaders are not or were not aspies as children.

The problem is not shiny aspies, the problem is lack of agreement and knowledge of what Autism is. Building a community is very difficult without these basics.


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cyberdad
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08 Jan 2020, 6:15 am

ASPartOfMe wrote:
The problem is not shiny aspies, the problem is lack of agreement and knowledge of what Autism is. Building a community is very difficult without these basics.


Then we wait to find out what it is...until then...



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08 Jan 2020, 8:56 am

Whats a "shiny aspie"?


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ASPartOfMe
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08 Jan 2020, 11:59 am

vermontsavant wrote:
Whats a "shiny aspie"?

What is a shiny Aspie?
Quote:
A shiny Aspie is an autistic person (who frequently identifies themself as a person with autism, a person on the spectrum, a person with high-functioning autism/HFA, a person with Asperger's, or, as the name implies, an Aspie) who strives to achieve normative "success" within a conventional model (i.e. dating, going to college, having a job, marrying, etc.) while appearing as non-disabled as possible as much as possible. They are routinely tokenized by more mainstream autism and disability organizations, and often pride themselves on learning "skills" like small talk, eye contact, and not stimming in public. Conversely, they may claim to be very proud of their neurological wiring, but simultaneously believe that "those poor low-functioning people with autism" should be cured. They may be prone to writing inspiration porn style autobiographies or blogs, and easily fulfilling the model of the self-narrating zoo exhibit.

The term shiny Aspie is also sometimes used as a pejorative to refer to any proponent of neurodiversity. With this use, it implies that anyone who opposes a cure for autism is "just a high-functioning person with Asperger's."


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11 Jan 2020, 2:57 pm

Fruglepug wrote:
Being an Aspie who considers neurodiversity BS, I wish someone would speak out for us. Let's face it: Being autistic is not like being gay, socialist or any other minority. We can't expect the world to change in our favour; we have to adapt ourselves. For every successful autistic, there are a million who suffers. Rejecting the "medical model" equals denying them the treatment that could have made them able to succeed.

Anyone agrees?


I disagree, and agree at the same time.

I get what he is saying.

The NT majority is not gonna meet us halfway anytime soon. So its up to us to conform to them, rather than expect them to accomodate us. It aint fair. But that's life. And like that.

I am cautiously optimistic that things will get better in coming years. Society maybe become more accommodating. Some industries may seek to hire autistics, for example, and may make the workplace more autistic friendly . But in the near term don't hold your breath.



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11 Jan 2020, 8:12 pm

naturalplastic wrote:
So its up to us to conform to them, rather than expect them to accomodate us. It aint fair. But that's life. And like that.


We are all subject to the free market and have to hope educators and employers will see the benefits and accommodate differences when teaching/training and employing.

Advocating only gets people so far....I agree we have to meet the NT world halfway and look for opportunities to integrate.

Here's one model that I think worked that relied on the good will of a Canadian entrepreneur (she is an angel) and the love of a father. These are the people I admire in the world.
https://www.newshub.co.nz/home/shows/20 ... -work.html