I AM CONDUCTING AN INTERVIEW WITH AUTISM SPEAKS

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23 Sep 2011, 9:22 am

Time to get out the red pen.

Halfspie Wrote:
I used to be very against the fundamentals that Autism Speaks seems to have established.

What do you mean by "fundamentals"? Their promotion of dangerous quack remedies such as chelation and ABA? Their endorsement of the fraudulent claims made by Andrew Wakefield regarding a purported link between vaccines and autism? Their complete lack of respect for the basic personal and intellectual rights of the autistic individual?

Do you now support their endorsement of quack remedies, fraudulent researchers and abuse of human rights?

Your wording makes your sentences very difficult to parse.

Halfspie Wrote:
I think that autism is one of the most beneficial and enlightening aspects to life.

What is this I don't even

Halfspie Wrote:
Through tambourine-man's research and determination to reveal the truth, I now have come to the conclusion that Autism Speaks isn't looking to make autism an extinct "disorder".

The truth is that Dana Marnane is essentially Autism Speak's head of Marketing and Communication. It would be naive in the extreme to take anything she says at face value.

Here's a very simple bit of research you can do yourself. Click here and scroll down to the entry about Dana Marnane. Look what it says underneath her picture.

"Epidemic". Straight from the horse's mouth. Sickening.

Halfspie Wrote:
Autism Speaks knows the value in each autistic individual.

I wouldn't be surprised if they have a full breakdown of the dollar value of each autistic individual in the promotional material that they send out to their customers in the pharma/biomed industry.

Halfspie Wrote:
This organization is wanting to amplify all of these great peoples' talents and enable your abilities by making life a little easier.

Go and look at one of those lists of exceptional individuals from history who were possibly autistic. Did any of them need the help of Autism Speaks to amplify their talents and enable their abilities? No.

Halfspie Wrote:
ADHD kids take adderall to help with hyper-active symptoms... How is that different than treating potentially impairing symptoms of autism?

I'm willing to hazard a guess that it's totally different since ADHD and autism are different conditions.

Halfspie Wrote:
Don't autistics, like ADHD people, want more of a positive recognition in society.

I want a job that lasts more than six months and to be left the hell alone to persue my interests. What I do with my talents is my own business. I don't exist to serve others.

Halfspie Wrote:
Stand up... Make yourselves know as the brilliant compliment to society you all are.

The fact that so many of us reach adulthood with our sanity intact with no external intervention whatsoever is not a compliment to society.

The fact that so many of us are made to feel deficient, broken, useless and a burden is a damning indictment of society's ignorance.

_________________
You may know me from my column here on WrongPlanet. I'm also writing a book for AAPC. Visit my Facebook page for links to articles I've written for Autism Speaks and other websites.
http://www.facebook.com/pages/JohnScott ... 8723228267

Gedrene
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23 Sep 2011, 9:22 am

Zeraeph wrote:

cynara wrote:

Tambourine-Man wrote:

Honestly, Autism Speaks has treated me far more kindly than 95 percent of the people on AFF and continue to do so.

Because you have been a sockpuppet for them and got them a big free advert on AFFs front page

Your sister wasn't bullied. She made a very ill informed and offensive remark and was rightly rounded on for doing so.

There is another element here too...

There has obviously been a certain amount of elitism instilled into the whole family (not their fault, they are only young) Jeffi is a lot better off being told where to get off for being condescending to people, who know far more about the things she is trying to instruct them about than she does, in a safe, online forum, than she is being left to treat people that way until she walks into the wrong bar, in the wrong part of town and does the same thing but with far worse consequences to herself...

You have no reason whatsoever to start talking about the dynamics of a family that has at most said that people shouldn't bully one of their members. This all just sounds like an attempt to drive home some insane logic about how Tambourine is apparently condescending when in fact the strange reasons Zeraeph gave show that the people calling Tambourine condescending or arrogant are actually best applied to the accuser. In the end all I got was the impression that Zeraeph decided that Tambourine shouldn't be allowed to do what she herself does because 'she's intelligent too'. People who insist that they are equal to others and therefore others can't do things that everyone is entitled to do are quite beyond the pale of reason.

Zeraeph wrote:

[It gets to a point where it is far more cruel to indulge grandiosity than correct it, which, unless there were some deleted posts, is all anyone did.

Which is just a complex layered load of unproven nothingness. He at no point expressed any sort of grandiosity or arrogance. In the end what people did is pounce on him because he said changing autism speaks is a good alternative. So then a bunch of fundamentalists pounced on him. Indulging grandiosity doesn't mean telling someone firmly how they are wrong, or asking them to give a reason for something. Indulging grandiosity is making remarks like 'what you're realy saying is that you love me' for no other reason than to throw everyone off.

Zeraeph wrote:

[PS Here is another thought...maybe John Scotty should reconsider asking his girlfriend and his sister to fight his battles for him in the first place if he doesn't want them to get hurt?

So you are saying that it is okay to bully someone anyway? and then you try and divert to some insane idea that people can't come to each other's defence? What? I guess that would be a good argument for a bully to make, to force people to be isolated.

Last edited by Gedrene on 23 Sep 2011, 9:35 am, edited 1 time in total.

Tambourine-Man
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23 Sep 2011, 9:23 am

Halfspie Wrote:
I used to be very against the fundamentals that Autism Speaks seems to have established. I think that autism is one of the most beneficial and enlightening aspects to life. Through tambourine-man's research and determination to reveal the truth, I now have come to the conclusion that Autism Speaks isn't looking to make autism an extinct "disorder". Autism Speaks knows the value in each autistic individual. This organization is wanting to amplify all of these great peoples' talents and enable your abilities by making life a little easier. ADHD kids take adderall to help with hyper-active symptoms... How is that different than treating potentially impairing symptoms of autism? Don't autistics, like ADHD people, want more of a positive recognition in society. Stand up... Make yourselves know as the brilliant compliment to society you all are.

Your opinion is based on what your brother believes he knows about AutSpks, simple as that. In one post you have shown that your brother is not as unbiased and impartial as he has presented himself.
I dont believe any good will come of this people.

The excitable puppy has left the door open and the boogeyman is coming up the path

sighs and leaves thread til the time comes to return with a big helping of

I told you so.

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23 Sep 2011, 9:24 am

My response to all of this was...

You guys,

Please leave my kid sis alone. She is just trying to stick up for her big brother. You are right, she doesn't know much about this whole situation, but it really upsets her to see so many people bashing me.

We've been through a lot and I love her dearly. Have a heart. Bash me all you want but please her out of it.

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23 Sep 2011, 9:25 am

Then...

Quote:
...leave my kid sis alone. She is just trying to stick up for her big brother. You are right, she doesn't know much about this whole situation, but it really upsets her to see so many people bashing me.

Caveat Forumus.

Your sister posted her ill-informed patronizing comment on a massive forum filled with butthurt an angry auties. She made her bed, she is gonna lie in it. I don't give a damn if she is your sister, she needs to be a grown up and take responsibility for her words.

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23 Sep 2011, 9:26 am

Quote:
...leave my kid sis alone. She is just trying to stick up for her big brother. You are right, she doesn't know much about this whole situation, but it really upsets her to see so many people bashing me.

Caveat Forumus.

Your sister posted her ill-informed patronizing comment on a massive forum filled with butthurt an angry auties. She made her bed, she is gonna lie in it. I don't give a damn if she is your sister, she needs to be a grown up and take responsibility for her words.

I said...
She has done nothing but love and support me for exactly who I am. She would never want to see me any other way.

She is a wonderful person who has embraced my autism more than anyone I know.

BardWolf, I'm surprised at you.

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23 Sep 2011, 9:27 am

Quote:
How is that different than treating potentially impairing symptoms of autism? Don't autistics, like ADHD people, want more of a positive recognition in society. Stand up... Make yourselves know as the brilliant compliment to society you all are

You sound privileged. This reads too much like 'you uppity ret*ds are acting so selfish and ungrateful, can't you see this neurotypical organization is trying to help you?"

So, I said...

Well, instead of taking advantage of an opportunity you are attacking a tongue tied idealistic, 19 year old girl. She didn't intend to be patronizing, I assure you. She knows how much this site means to me.

However, if your interpretation of her comment is correct, you are doing a very good job of proving her dead right.

We've all been bullied...end the cycle. That isn't what she meant.

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23 Sep 2011, 9:29 am

tambourine-man Wrote:
BardWolf Wrote:
Quote:
How is that different than treating potentially impairing symptoms of autism? Don't autistics, like ADHD people, want more of a positive recognition in society. Stand up... Make yourselves know as the brilliant compliment to society you all are

You sound privileged. This reads too much like 'you uppity ret*ds are acting so selfish and ungrateful, can't you see this neurotypical organization is trying to help you?"

Well, instead of taking advantage of an opportunity you are attacking a tongue tied idealistic, 19 year old girl. She didn't intend to be patronizing, I assure you. She knows how much this site means to me.

However, if your interpretation of her comment is correct, you are doing a very good job of proving her dead right.

We've all been bullied...end the cycle. That isn't what she meant.

Bard wolf said...
I don't care about what she intended. This is "what you did" conversation. Not a "what you are". I don't care she is altruistic. I care that she said something hurtful and franking rude and you're white-knighting for her.

and the bolded statement just showed you true colors. I am not going to be a submissive ret*d. I am not going to stand down when NT says something insulting. I don't care if it's intended. It's wrong and I will fight back.

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23 Sep 2011, 9:30 am

Zeraeph wrote:

(...) and point out that July 2010 (cynara's sign date) does predate the article by more than a year.

Below which you'll find that cynara has made two posts, equal to the two posts on this thread right now. Thus making the date she joined irrelevant.

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23 Sep 2011, 9:32 am

I showcase those responses because they were from an administrator. There are plenty more but I'm tired. Check it out for yourselves. I have nothing to hide.

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23 Sep 2011, 9:32 am

Since you conveniently forget Grey Area's excellent post, for all your viewing pleasure:

http://www.aspiesforfreedom.com/showthr ... #pid454127

Quote:

Time to get out the red pen.

Halfspie Wrote:
I used to be very against the fundamentals that Autism Speaks seems to have established.
-----

What do you mean by "fundamentals"? Their promotion of dangerous quack remedies such as chelation and ABA? Their endorsement of the fraudulent claims made by Andrew Wakefield regarding a purported link between vaccines and autism? Their complete lack of respect for the basic personal and intellectual rights of the autistic individual?

Do you now support their endorsement of quack remedies, fraudulent researchers and abuse of human rights?

Your wording makes your sentences very difficult to parse.

Halfspie Wrote:
I think that autism is one of the most beneficial and enlightening aspects to life.
-----

What is this I don't even

Halfspie Wrote:
Through tambourine-man's research and determination to reveal the truth, I now have come to the conclusion that Autism Speaks isn't looking to make autism an extinct "disorder".
-----

The truth is that Dana Marnane is essentially Autism Speak's head of Marketing and Communication. It would be naive in the extreme to take anything she says at face value.

Here's a very simple bit of research you can do yourself. Click here and scroll down to the entry about Dana Marnane. Look what it says underneath her picture.

"Epidemic". Straight from the horse's mouth. Sickening.

Halfspie Wrote:
Autism Speaks knows the value in each autistic individual.
-----

I wouldn't be surprised if they have a full breakdown of the dollar value of each autistic individual in the promotional material that they send out to their customers in the pharma/biomed industry.

Halfspie Wrote:
This organization is wanting to amplify all of these great peoples' talents and enable your abilities by making life a little easier.
-----

Go and look at one of those lists of exceptional individuals from history who were possibly autistic. Did any of them need the help of Autism Speaks to amplify their talents and enable their abilities? No.

Halfspie Wrote:
ADHD kids take adderall to help with hyper-active symptoms... How is that different than treating potentially impairing symptoms of autism?
-----

I'm willing to hazard a guess that it's totally different since ADHD and autism are different conditions.

Halfspie Wrote:
Don't autistics, like ADHD people, want more of a positive recognition in society.
-----

I want a job that lasts more than six months and to be left the hell alone to persue my interests. What I do with my talents is my own business. I don't exist to serve others.

Halfspie Wrote:
Stand up... Make yourselves know as the brilliant compliment to society you all are. Smile
-----

The fact that so many of us reach adulthood with our sanity intact with no external intervention whatsoever is not a compliment to society.

The fact that so many of us are made to feel deficient, broken, useless and a burden is a damning indictment of society's ignorance.

_________________
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Gedrene
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23 Sep 2011, 9:53 am

Quote:

Yes, great one there at the end. But no, It was absolutely easy to parse the sentences made there. Funny how someone who is saying that someone else has made it hard to parse his sentences is using that space between every sentence technique that makes it hard to read the whole post. And hey hey, the rest of the sentence is just one big accusation with no links no less. I can see how people saying that Tambourine-Man is condescending might call this an excellent post, especially as they are completely blind to that fault in themselves.

Nexus wrote:

Halfspie Wrote:
I think that autism is one of the most beneficial and enlightening aspects to life.
-----

What is this I don't even

Trollspeak? A sign of conviction and understanding.

Nexus wrote:

Halfspie Wrote:
Through tambourine-man's research and determination to reveal the truth, I now have come to the conclusion that Autism Speaks isn't looking to make autism an extinct "disorder".
-----

The truth is that Dana Marnane is essentially Autism Speak's head of Marketing and Communication. It would be naive in the extreme to take anything she says at face value.

Here's a very simple bit of research you can do yourself. Click here and scroll down to the entry about Dana Marnane. Look what it says underneath her picture.

That doesn't excuse you from disproving Autism Speak's replies.

Nexus wrote:

"Epidemic". Straight from the horse's mouth. Sickening.

Hmn, I got to check that myself.

Nexus wrote:

Halfspie Wrote:
Autism Speaks knows the value in each autistic individual.
-----

I wouldn't be surprised if they have a full breakdown of the dollar value of each autistic individual in the promotional material that they send out to their customers in the pharma/biomed industry.

So yes, all sorts of accusations flying around here being passed off as common knowledge.

Nexus wrote:

Halfspie Wrote:
This organization is wanting to amplify all of these great peoples' talents and enable your abilities by making life a little easier.
-----

Go and look at one of those lists of exceptional individuals from history who were possibly autistic. Did any of them need the help of Autism Speaks to amplify their talents and enable their abilities? No.

Well that's a good point if only people on asperger's for freedom weren't guilty of hilariously applying to nearly anyone and everyone important that they had aspergers. There are more famous people I bet who have been claimed as autistic by autistics then there are self diagnosed autistics. This doesn't mean that all of them weren't though. In the end this is just lacking in any logic. We don't need anyone to be better. Why wouldn't you accept free help? Can't you go on proving why the help is bad first? No, you don't need to because you're like Einstein, or George Orwell and because of association complex you therefore don't need help because your life is perfect.

Nexus wrote:

Halfspie Wrote:
ADHD kids take adderall to help with hyper-active symptoms... How is that different than treating potentially impairing symptoms of autism?
-----

I'm willing to hazard a guess that it's totally different since ADHD and autism are different conditions.

Yes, Halfspie is guilty of overgeneralization here.

Nexus wrote:

Halfspie Wrote:
Don't autistics, like ADHD people, want more of a positive recognition in society.
-----

I want a job that lasts more than six months and to be left the hell alone to persue my interests. What I do with my talents is my own business. I don't exist to serve others.

And to think that you just said that all of those successful people didn't need outside help. Dear heavens where is the logic?

Nexus wrote:

Halfspie Wrote:
Stand up... Make yourselves know as the brilliant compliment to society you all are. Smile
-----

The fact that so many of us reach adulthood with our sanity intact with no external intervention whatsoever is not a compliment to society.

The fact that so many of us are made to feel deficient, broken, useless and a burden is a damning indictment of society's ignorance.

[/quote]

Look, does this have anything to do with how Tambourine man is being treated right now? I think all this post reveals is that people are letting bad blood between themselves and the rest of society give then an excuse to bully one of their own.

Nexus wrote:

The fact that so many of us are made to feel deficient, broken, useless and a burden is a damning indictment of society's ignorance.

Yes, and so that gives people the right to start being a bunch of childish, heartless, insulting, unconscientious, twisted monsters. Guess what: It doesn't.

Nexus wrote:

Since you conveniently forget Grey Area's excellent post, for all your viewing pleasure:

http://www.aspiesforfreedom.com/showthr ... #pid454127

Are you presuming that I forgot something? Or that anyone else did? Maybe you shouldn't forget that other people aren't obsessed with a long list of logically consistent nonsense.

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23 Sep 2011, 9:56 am

Er, all I see at worse is harsh criticism. The kind that you'll see in extremely heated politics. Bullying? Please, if that's bullying someone needs to lurk moar on the internet srsly.

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Gedrene
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23 Sep 2011, 9:57 am

Nexus wrote:

AlanTuring wrote:

Tambourine-Man wrote:

It is ok. It got ugly. When they started bullying my kid sister, who was hurt and stood up for me, it was the last straw.

Your sister wasn't bullied - she posted something unpleasant and was taken to task for it.

Exactly she got called out for sprouting what appeared to be propaganda.

Link me, otherwise using the word propganda is a slur if you can't prove it.

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23 Sep 2011, 10:01 am

Gedrene wrote:

Nexus wrote:

AlanTuring wrote:

Tambourine-Man wrote:

It is ok. It got ugly. When they started bullying my kid sister, who was hurt and stood up for me, it was the last straw.

Your sister wasn't bullied - she posted something unpleasant and was taken to task for it.

Exactly she got called out for sprouting what appeared to be propaganda.

Link me, otherwise using the word propganda is a slur if you can't prove it.

http://www.aspiesforfreedom.com/showthread.php?tid=23241&pid=454115#pid454115

It sounds like a sales pitch.

And please, if that's not propaganda, BP was genuinely honest in their ad campaign regarding the gulf oil spill. :lol:

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23 Sep 2011, 10:05 am

Nexus wrote:

Er, all I see at worse is harsh criticism. The kind that you'll see in extremely heated politics. Bullying? Please, if that's bullying someone needs to lurk moar on the internet srsly.

Not him, other people. Do you need me to link where people made bullying statements towards Tambourine? Also just because something happens on the internet it doesn't change the definition of bullying. Or do you mean bullying as defined by rapacious trolls? I guess that would be the sort of definition made by someone telling me to 'lurk moar'.

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