The Black List - think before you buy

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No one is going to listen to people that want to harm organizations for helping to develop treatments. It seems rather malicious. In the end this has to do with the potential of autism abortion and others not dictating what Autism Speaks does and says. Autism is a label and not a person unless you kind of brain wash yourself into believing your entirely a label and less of yourself. There is no debating what describes the label is part of a person but a label being a person is just nonsense.

If you do not want treatments (cures) then it is your right to decline them. If you want to prevent treatments from being developed removing the choices of others you are unethical but not criminal. If you force someone to not receive treatment for your personal beliefs you might be jailed.

Nathan Young

ASD Self-Advocate

Sounds like a way of not debating but saying the obvious. Do you think I am trying to force you and others to buy something? I think this topic comes down to some people want to control an organization and evade treatment development for reasons of ego having to do with there autism identity which is absurd.

I may have been diagnosed with autism but I am not a pathological label. If the label is so insulting then reject the label. Seems like perpetuating stigma and stereotypes by self-identifying as a pathological label. Making everything about the label something personal and to be insulted by which political organizations really want you to do and so does some special interest.

Enter the zone of rational autism politics be a autism moderate and think about issues without being insulted at everything to get your way.

Nathan Young

Good.

I will go ahead and use some of these companies simply because people oppose them for helping.

I agree with ci. We've had this discussion not too long ago. Autism Speaks is strongly advocating for children with classic autism. Most of the population here has Asperger's. Asperger's is at the highest end of the spectrum. Think about all of the difficulties you go through in everyday life. Look at all of the issues in the Haven. Now imagine autism at the lowest end of the spectrum. I don't think it is fair to slander a company that provides a benefit that doesn't apply to you. Who are you to speak for the child that has extreme sensory issues, who lives the majority of their day over stimulated and can't even put the words together to tell anyone what the need?

If people want to boycott certain businesses/companies, then that is there business. Personally I find it interesting to see the ones that have donated to Autism Speaks. And if there are those of us who choose not to do business with those businesses, then fine. Each person must decide for him/herself what is right for him/her. It is what makes us feel comfortable. If something makes me uncomfortable, then I won't deal with that something. For many, the feeling that Autism Speaks has wronged them is enough to decide to boycott those businesses. I will respect that---no matter what the arguments are in stating whether or not a certain organization has done good or not. Well...that is how I honestly feel...I will just respect what each person decides to do---respect that a person stands behind what he or she feels is right. That is the beauty of freedom.

Other then attempting to remove the hardships of the label as what the vast majority feel is a disability Autism Speaks seems to me to be well intended. Although I have no formal relationship with them the confrontation against them seems to be at times not based on diverse rationality. To respect opinions as golden ideas that are not based on facts no matter side is to me not in the pursuit of truth despite the freedom to lack logic and rationalism. I do understand the frustration with not being able to use the company as a civil rights platform, it's name may seem to imply it is about people with autism speaking and that some or more seek to just accept the disability when others really want to do everything they can to help those very disabled with research and treatment development.

Sometimes you can't find the truth---you have to rely on instinct. Autism Speaks doesn't speak for me---and that is a fact.

Sometimes people don't want the truth to be known because they fear truth and will do anything they can to avoid the discovery of truth. Autism is a label and I speak to the public about the label and developmental disabilities at times. I do not imagine I am speaking particularly about you but for the quality of life and opportunities of individuals that can choose the advocacy as an avenue. Remember treatment (cures) are choice and so as long as Autism Speaks and other organizations having to do with research are not evading your human rights I see no ethical conflict or crime. Should anyone attempt to dis-promote research and the development of treatments (cures) in many contexts I view it as unethical but not criminal.

Being called a "human" is a label too. But what else are we going to call ourselves? We have to have names/labels. I have my reasons for saying that Autism Speaks doesn't speak for me. Please respect that.

Autism Speaks doesnt speak for me specifically and I seem to respect that and I'd believe that is common sense. Autism itself is a made up diagnostic label. To me should I be called a label I'd consider that de-humanizing perhaps but certainly disrespectful. My name is Nathan Young and not autism for instance. A label speaking as in a person to me is not rational entirely but people speaking about a label seems to be more of common sense in assumption.

Being called autistic doesn't bother me at all---even though it is a label. Being called my own proper name is also a label---we could have been named anything at birth---it is usually are parents' choice. We can legally change our name---but it's still just a label when we think about it. There are a lot of people that have the same proper name as you and me that live not far from you and me. I guess using our DNA as our identity might be the best way.

To me it's just about respect. To call me a disorder is kind of insulting. Do people call others names like ret*d, shezo, bipolar guy and so on. No one should assume that calling someone a label without their permission is kind. Human is something everyone is unless you really believe your an alien. However if I was to call myself a label I'd expect others to call me a label but I wouldn't call anyone else a disorder label in assumption. One of the things I work with the media on is respect and dignity issues.

That's why I use "difference." I am not offended with being labelled autistic---I prefer it---it is me. I do not consider being called autistic as an insult.

As I tried to tell you earlier, I believe we are on the same side of the fence and how I may have taken some things you said in a wrong way. But you went on to talk about emotions making bias and instead preferring truth/ fact type debate without the emotions. This is an internet forum that is full of emotions---that will never change. I have emotions and I will not take them out of my posts here.

I am not responding anymore on this debate---we both have our own personal view of this, and we are not likely to change the other's view. That should be respected.