Autism Speaks...?

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I went to an autism speaks walk and they were spending lots of money giving free food away, hired an expensive band. i thought to myself this money could be used to help people not wasted like this.

Though they may have had a sensory area for autistic who get overwhelmed, the band was so loud it was like being at a rock concert. I realized they did not think about how that would upset autistic sensory issues.

I got no help, no resources and no one was willing to point me in the right direction.


I also emailed/ called the research department once . I had a theory about the nature of sensory issues being based on to much adrenalin in the system. or being caused by the lack of regulation of it in the body. I therorised if it was being secreted into the blood stream at the wrong time this could cause people to over react to stimulus causing sensory integration disorder.

I asked them to research this and they never wrote back and did not call me back when i called.

They ignored me completely. I was trying to help but i felt like they viewed me as some kind of idiot. i thought it was a good theory at least looking into .

btw if anyone thinks I'm right about my theory feel free the spread the word. i just want to help because it will hep me too.

I think there ads should focus on helping people understand HFA AS and LFA.

Here is an excellent ad i found to help explain to people about my AS. They portrayed very well.

[youtube]http://www.youtube.com/watch?v=q6nNcW2M73E&feature=related[/youtube]

[youtube]http://www.youtube.com/watch?v=akbHef74zMM&feature=related[/youtube]

[youtube]http://www.youtube.com/watch?v=MPb5WPvpsU8&feature=related[/youtube]

I killed the thread.... didn't I.

There is one small little snag that the genetic test people have to put up with - they need doctors to do abortions. To be honest, I think them inventing a pre-natal test may well turn out to be a good thing, as the fallout politically could actually end up benefiting us (we have other aims and needs which are not being addressed at present). Worst case scenario, doctors have to be stopped doing abortions. It wouldn't be difficult to find some edgy people who will helpfully solve that problem.

This is not a for-or-against Autism Speaks posting!

I actually heard a woman from Autism Speaks at an event highlighting awareness of Autism. I thought she was great! Everything she said was, in fact, geared towards LFAs but she did mention HFAs, ASDs, and Asperger's.

She also mentioned how Autism and ASDs don't come alone, but are comorbid with other conditions. She mentioned how people with AS particularly lose their diagnosis, but that it was due to adapting moreso than anything else; from that she made note that AS is a neurological condition and that ONLY a neurologist can properly diagnose it. Perhaps that lends itself to the idea that people can identify behaviors and characteristics of Asperger's and how they affect life functioning, but that it takes a neurologist to take it the rest of the way to confirm that it is AS.

She spoke highly of her son who has Autism and her experience dealing with it. Her daughter, having dealt with it for so long taking care of her brother, wound up liking a guy whom she found out has Asperger's. Now, when the girl's brother does something that the guy can relate to, he can help relate what is going on in terms of his own experience as an Aspie.

I am not trying to minimize what anyone says against Autism Speaks; I don't know enough about the organization to make that judgment. The only thing I can do is relate what I've heard.

I did enjoy the speaker, though!

How is that a snag? Considering the rates at which potential people with Downs Syndrome are being aborted, this does not strike me as a huge difficulty.

That's very obviously not how things are working out with respect to Down's Syndrome; what is so different about us that we will fare any better than them?

That's very obviously not how things are working out with respect to Down's Syndrome; what is so different about us that we will fare any better than them?[/quote]
It is a little poor to be comparing Down's Syndrome to Autism - two very different sets of people, two different conditions. Firstly, I am sure if a test were to come up, we could collectively do a lot about it. More importantly, there are people with the inclination retaliate against a cure. Lets put it this way, it wouldn't be too hard to make it as difficult as the late term abortionists have it and I am sure some people will make sure that it happens. In some respects it presents an opportunity...

But also you have to consider what form this test will take. Clearly there isn't going to be the gene, just like flipping a switch. Rather, its going to be something on the lines of "your child is likely to have autism" and is "likely to land here on the spectrum". Also, unlike Downs, where it is the trisomy of a chromosome which causes it, Autistic traits are inherited from the parents