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ci
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03 Jan 2011, 9:28 am

CockneyRebel wrote:
I admit to being a pride mite. Without us pride mites, all of us who are on the spectrum wouldn't be alive, right now. We would have all been aborted, instead. Is that a good thing, or a bad thing. To me, it's a bad thing.


Actually pride mites cause more harm then good, especially with made up propaganda. there is the good and the bad with everything.



Douglas_MacNeill
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03 Jan 2011, 10:32 am

ci wrote:
I am the first one ever according to Google to apply the term pride-mites to autism politics and see for yourself. It is in response to others calling people curebies. I am doing so to be constructive for the times pride advocates go to far. Pride differs somewhat from self-esteem and can be entirely arrogant and reckless to the concerns of those with special needs. If you would like to know if you are a pride-mite, someone you know is one or a certain philosophy is pride-mite inflicted just let me know.

The intent is to come to some common ground because the anti-curebies have failed and will continue to fail because many times it is really self-centered and not considerate of those with more savere disabilities that do want, need or can benifit from treatments that are part of the cure model as treatments are forms of cures. Opposition to the choice to receive research into cures and their treatments is considered exreme pride-mite infestation and will be delt with politically accordingly.

My bias is a pride-mite called me a bunch of names including ignorant and spread a bunch of lies about me on the internet so I thought I'd go ahead and temper tantrum so to cause a stir because pride-mites are so confrontational at times they just are to arrogant to perceive others think for themselves and their twisted at times bull is quite easily picked apart. For that reason I am going to do around a million impressions of the pride-mite definition to autism search and content related criteria for fun. These pride advocates have been confrontational toward really good people for some time and as a person with autism I'm going to give them some battle in their social war.

Here is the Autism Politics Classifications:

Autism Hippie - Let's all get along. Make Love Not War.

Autism Observer - Just seeing the ego political nonsense without comment.

Curebie - Someone who is not anti-establishment or overly sensitive about allot of things pride-mites get bent out of shape about.

Pride-Mite - An infectious social mind viruses playing upon those with substantial disabilities self-esteems in order to preserve there high functioning self-esteem (ego). Potential external special interests such as a political parties lack of desire to pay for treatment such as inclusion supports of those whom choose and or are in need of support services.

The Pride-Mite concept in context to autism was created by a person with autism and not Asperger's Syndrome in response to the over zealous ego horse pooh in the autism community at times. It is a term of non-endearment created to make attention to people that think about their self-image and over-inflated ego's over the needs and dignities of others whom are effected by pride gone to far.

Nathan Young
Professional Advocate & Media Consultant.
1-888-241-6856


Oh really?

A cure for autism without a cure for the years of my adult life I spent trying to make something of myself with autism? Although I appreciate the offer, no thank you. Hopping into a TARDIS with the Doctor and stopping my Asperger's before it started? Anything short of that--including a medical cure for autism--is too boring for me to worry about.



claudia
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03 Jan 2011, 10:35 am

jojobean wrote:
I know I have benefited from alot of treatment...one could say my mom had the curbies. I remember clearly one time having a spinal tap done at the age of 9 years old...I screamed for hours as they were trying to stick a needle up my spinal cord. I had no choice in the matter...I felt like they were asaulting me against my will. All because the doctor said that I might have some detorating brain disease that is only testable by a spinal tap. Finally my mom heard me screaming like someone was killing me, and ran them out of the room and made them stop the procedure. This was very traumatic for me. I was a child not an illness.

There are other invasive tests that were done, my childhood was spent at the doctors office or in hospitals. Finally the help for me came from art and creativity, not from doctors.
The issue I have with finding a cure is sometimes the cure is more important than the person.

Yes, I believe in treatment, but the quest for a cure is very depersonalizing

I'm sorry you experienced this. Parents go mad when their child is diagnosed and loose their balance. It's not easy to exclude scientifically unproven therapies. It was difficult for me also, but I excluded diets, chelation and other unproven therapies. Fortunately (for my son) I have no faith, and it is true for religion and for life decisions.
If Autism is a diffent brain, it can't be cured, but early intervention is fundamental to help autistic children to manage their brain's resources (like enhanced senses) to avoid to be overwhelmed by them.
Therapy is not have unproven treatment and we have to claim reliability to doctors. I guess the spinal tap was an experiment... right?



ci
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03 Jan 2011, 2:09 pm

My idea of cure is fairly flexible. If that means fixing sensory overload then that is a good thing. If that means enabling my existence to by choice be included as I will to that is a good thing. If cure comes down to my not existing that is a malicious cure. The concept of cure in context to autism is interpreted perhaps wrongly and projected at times indifferently to the mental well being of individuals with autism? Ultimately cure means to develop treatments to improve quality life. Those opposing this kind of cure are adverse to human rights for example the right to treatment, humane care and dignity. One thing pride mites did wrong was to socially pressure individuals by calling them names like curebees and Nazi's. Just totally wrong and seems like special interest attempting to evade fundamental human liberties using self-esteem pride as an excuse and is political.

Nathan Young



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03 Jan 2011, 7:28 pm

ci wrote:
My idea of cure is fairly flexible. If that means fixing sensory overload then that is a good thing. If that means enabling my existence to by choice be included as I will to that is a good thing. If cure comes down to my not existing that is a malicious cure. The concept of cure in context to autism is interpreted perhaps wrongly and projected at times indifferently to the mental well being of individuals with autism? Ultimately cure means to develop treatments to improve quality life. Those opposing this kind of cure are adverse to human rights for example the right to treatment, humane care and dignity. One thing pride mites did wrong was to socially pressure individuals by calling them names like curebees and Nazi's. Just totally wrong and seems like special interest attempting to evade fundamental human liberties using self-esteem pride as an excuse and is political.

Nathan Young

Aha, now you say it, now I understand. I mean, I kind of got what you were saying. Now I really get what you're saying. This is what I wrote about at work today. I am all for helping those that need help and making people more independent. But I don't believe in changing the hard-wiring of the brain, which I perceive autism to be. That would change my perception and I think that would be bad. On the other hand, all for decreasing sensory overload. Would ultimately request social skills lessons for adults. Also, on the other hand, I think some people on the spectrum have real talent that should be fostered in a healthy environment, if they choose. Autism should be accepted, just like many differences should be accepted. That goes for high and low functioning.

I also see why we should band together instead of in-fighting. Divided we fall. I suppose fighting is a result of issues increasing in complexity. There has to be more than one side of this metaphorical magnet, though. Positive on one side and negative in the other. Seeking a middle ground. Hippi I am.

A genetic test hasn't happened yet.



ci
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03 Jan 2011, 7:46 pm

Oh great another Hippi!

[youtube]http://www.youtube.com/watch?v=r4p8qxGbpOk[/youtube]



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03 Jan 2011, 8:20 pm

I agree that a cure is a good idea as long as by "cure" you mean empowering individuals to become as "normal" as they want to be. If you mean people being enabled to live up to their potential and fit in to the extent they choose, I approve. If you mean pathologizing the autistic personality and wiping it out, I disagree. Either way, the word "cure" suggesting the removal of a disease, is a poor fit for the situation. However happy or unhappy some of us may be as individuals, autism is not a disease.



ci
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03 Jan 2011, 8:34 pm

From my point of view the human condition can be perceived by means of psychopathology and general psychology. Disease to me means a few things and I commonly view disease in everything as a mode of perception such as mind virus and viral marketing. I'd like to view psychology and pathology as the imperfect human conditions means of understanding and adapting. In ethics it is not proper to call someone a disease in personality, way of being and like so such as calling me autistic. For those to oppose calling others a disease and still call oneself autistic is simply political as a means to define autism culturally within confines of the human condition per say and to ask for the acceptance of the difference. As when the condition is embraced the need to call me a disease, disorder or defect by premise of my entire being so as to imply primary or indirectly my identity as autism is a step backwards in acceptance in finality. Moreover the label is to receive help and to assist in my adaptation but is not in of itself an insult but I believe societies way of improving my unique human condition in experience and not rejecting my human dignities.



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03 Jan 2011, 8:43 pm

I was trying to say that autism is not a disease and that individuals should be allowed to have meaningful, satisfying, productive lives without having their personalities talked about in the terms associated with pathology.



ci
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03 Jan 2011, 8:50 pm

Arminius wrote:
I was trying to say that autism is not a disease and that individuals should be allowed to have meaningful, satisfying, productive lives without having their personalities talked about in the terms associated with pathology.


I think everyone suffers from the indignities of the human condition. However there are appropriate ways to assist in human diversity and adaption without suffering unnecessary indignities. I myself have a unique personality and my subjective aspects to my human condition might be perceived as parts of my personality but each individual has his or her individual philosophy with regard. It must be understood that rejecting the idea of figuring something out like autism can be a violation of human rights which in individual circumstances of dignity outweighs those rights of dignity especially ethically. Leave it to those whom are not professionals to be more prone to indignity then those whom lack subjective and individualized analysis by choice or not. This issue is more about the governing macro awareness of autism then that of others attempts to help as a whole. The conflict does not manifest from the attempt to help less it is maliciously interpreted but that of the perception of autism in society which reduces human rights indirectly by means of negativity.



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03 Jan 2011, 9:00 pm

ci wrote:
It must be understood that rejecting the idea of figuring something out like autism can be a violation of human rights which in individual circumstances of dignity outweighs those rights of dignity especially ethically.


Another violation of human rights is the way in which society refuses to accomodate those who are different. Especially in the West where there are resources to spare, disability should be recognized as more of an interaction between individual and environment than anything else. Environments should be forceably changed, not people.



ci
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03 Jan 2011, 9:06 pm

Arminius wrote:
ci wrote:
It must be understood that rejecting the idea of figuring something out like autism can be a violation of human rights which in individual circumstances of dignity outweighs those rights of dignity especially ethically.


Another violation of human rights is the way in which society refuses to accomodate those who are different. Especially in the West where there are resources to spare, disability should be recognized as more of an interaction between individual and environment than anything else. Environments should be forceably changed, not people.


Maybe but this is not a perfect world. Idealism is quite the adaptation in premise and in spite of odds. Where I live there is the Lanterman ACT that creates alternative work settings with others with developmental disabilities. In premise this is better then no opportunity, isolation and yet still is segregation if no or few choices in comparison are made available in so called normalcy. That is why I created an area based sponsored inclusion campaign which assist individuals to be included with an employment support worker as needed. It is a compromise but still the world is not perfect but that is no excuse to not attempt to create a more diverse world.



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03 Jan 2011, 9:25 pm

Exactly. That was what I was saying. Dignity, inclusion, and something useful to do with one's self should be available to everyone, with or without disabilities. What I have been saying for the last several posts is exactly what you just said, that we should change the world to fit the people , not the other way around.



ci
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03 Jan 2011, 9:46 pm

Arminius wrote:
Exactly. That was what I was saying. Dignity, inclusion, and something useful to do with one's self should be available to everyone, with or without disabilities. What I have been saying for the last several posts is exactly what you just said, that we should change the world to fit the people , not the other way around.


Business is about numbers (bean counting) and if to compassionate that is not balanced with "profitability" then the good guy will not survive. More so this is a cultural expectation that is needed. Diversity in progress is an adaption but successful diversity needs to understand and with as little bias as possible consider all of the logical facets which includes emotion especially if culturally. Ultimately it is those who fund normalcy such as a work setting in the mainstream that dictate change in balance with survivability of a diverse business model for instance. To demand diversity absent of effective methodologists is not universally beneficial but to expect diversity by means of many methods employed harnesses the potential of change more effectively.

I believe we are speaking from similar context.



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04 Jan 2011, 7:29 am

why does one who wants to stop the infighting have to be a hippy.cant we fight the neurotypical world and there prejudices.cant we fight a mainstream disabled comunity that doesnt care about people with autism and mental retardation.im a member of a lot disability social networking sites and very few people will talk to you if have the A word or the R word in your proflie.hey i was no passivist when i saw people mocking people with downs on disabilty message board.hippies say arms are for hugging.i say arms are for beating up curebies and pride mites



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04 Jan 2011, 11:57 am

vermontsavant wrote:
why does one who wants to stop the infighting have to be a hippy.cant we fight the neurotypical world and there prejudices.cant we fight a mainstream disabled comunity that doesnt care about people with autism and mental retardation.im a member of a lot disability social networking sites and very few people will talk to you if have the A word or the R word in your proflie.hey i was no passivist when i saw people mocking people with downs on disabilty message board.hippies say arms are for hugging.i say arms are for beating up curebies and pride mites


It's hard to take you seriously when you can't even be bothered to use proper spelling and punctuation.

CockneyRebel wrote:
I admit to being a pride mite. Without us pride mites, all of us who are on the spectrum wouldn't be alive, right now. We would have all been aborted, instead. Is that a good thing, or a bad thing. To me, it's a bad thing.


If your mother had aborted you, you wouldn't be capable of giving a s**t because you wouldn't have been born in the first place.


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