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im not sure of the exact url but its autism speaks social network and the group is my life having autism discusion forum.i did get a response and she said she is proud of her child,she seems to have agood attitude about her child

I know autism speaks parents here. The vast majority are positive people toward their children. The ones I know have always been positive and supportive of me. Much of what Autism Speaks does is creative expression to get a point across. I think it would be interesting to better understand why people dislike it so much.

most of whether people sapport asan or autism speaks is mainly who you indentify with personaly i dont think either group is politicaly as bad as people say.i dont feel part of either group.im not educated or sucesful enough for the asan and im wouldnt be conidered autistic enough to be accepted by autism speaks so im a monkey in the middle i guess.i do hope my post will open peoples minds about autism speaks.i dont feel part of them either but when i talk to them i look at who im talking to first and that there from autism speaks second

I am not part of either group nor are the vast majority of individuals with some form of autism. There are risks with ASAN that simply do not exist with Autism Speaks. I have never asked to be part of Autism Speaks nor do I think I really will ever. I do not often join things anyways. For the monkey's in the middle I suppose it depends on what you need. Some people need self-confidence enrichment and ASAN offers that in a way but achieves that with in part conflict. However there are other groups or philosophies that are not so conflict orientated and divisive that assist with self-acceptance. I for one believe less focus on a disorder label is key to quality mental health for some individuals when applicable.

I can understand the frustration with no including others. Which is why groups like ASAN should include a diversity before it attacks others for not doing so. There are perceptional differences between others concerning autism. For most it is a condition and for others it is a difference. For it to be amounted to as simply a difference is threatening to treatment rights. However it is more of a cultural problem. In society disabilities need to be expressed emotionally in negative ways to get help that is needed. Autism Speaks is not the problem with regards to that and I'd be inclined to theorize they are protectionistic with regards to preserving an advocacy to assist individuals after their parents pass. Parents are all different. I was not babied whereas some are and still are. This kind of thing I discuss with professionals in context to PR and modality of social approach. To create independence individuals must learn when they are able that they can do things they may have been taught they cannot and will never. My mentality is challenge it but driving to me is scary and to much going on for instance. You got to be careful because having to much tough love sounds down right mean and can be emotionally counter productive like calling others lazy when they are depressed or prone to being depressed.

They are geared towards children and in the public psyche the minds tends to want to help children more then adults. Yet children issues also become adult issues thus can help with adult issues. My inclusion premise and model I will be forwarding to them along with several hundred other organizations to help transition youth turning 18 and adults that are older. I don't think it's them being rude about favoring children it's just like a person sees a puppy dog and wants to help vs. an old dog that is not as cute.

Protectionism may want to portray autism a certain way to assure supports are provided. However supports also evolve. The autism specialist I work with I had a conversation with the other day. She said she used to be one of the people that said to parents the child with autism won't accomplish that much. However things have changed. The diagnostics have changed and I think societal inclusion civil rights have been more so mandated by the federal government. It used to be people were simply sent off to an institution now whole federal and at times state laws exist to get people into the community. I'd be perhaps borderline as to having to be in an institution as without supports I had to be hospitalized as I couldn't very well keep up with taking care of myself and was extremely isolated with a disinterest in people and just my extreme focuses. The system in counties didn't know about another system for those of my diagnoses. While I cost more now my quality of life, inclusion and potential has drastically increased. I can only imagine how many others are limited by the system as it is or not at all being serviced. Here I am allowed to invent hybrid program models and implement them to help others have opportunity. The N.T people as some might say just needed to know how better to help and who else to help I think.

I suppose I just don't like the idea that if I where to talk to an autism speaks representative they might assume I cannot possibly be intelligent about my condition or how I choose to deal with it, I mean when I speak I am not being cute so people can smile and nod i am likely to have something at least semi-intelligent to say. I just hope that sort of ignorance is not what they promote.

I know a few professionals and in fact one of them introduced me to the president of the autism division of the Easter Seals. Their mentality is just so the opposite of what others portray online. I'd think that perhaps people do not know how to differentiate between the advocacy of children and adults in the mainstream population. Where I live I have purposely made it the intent to express that there is a diversity of people with autism (and developmental disabilities) and by the way the employment program they are supporting is ran by a person with autism. Yes the connotation of developmental disability does at times make people think of severe or even profound intellectual impairment. I think it's important not to hate people who assume this but to educate them and never call them ignorant. I dislike that word ignorant it creates division when their need be none.

Ignorant is kind of a put down and or has been used as a put down. Like saying someone is ignorant and dumb. To achieve a goal in public discourse such as in the media or speaking arrangement where I've seen it used it is best to use more neutral phraseology. Such as a lack of understanding or they (people) have simply not been education of this or that fact.

Yes and some would like to cater to your mentality. I remember once walking out of the special education room and being called an R word. A good choice of words would include ignorant and even intolerant. However with regards to the public as a whole they are not mean children like for instance what happened at school. They tend to be allot more mature and respond better to mutually respectful communication. I keep it safe in public advocacy and in consultation. We cannot build bridges for opportunity for instance for myself and others with hard feelings but there is a better chance with a respectful unity in resolve and intents (spirit). We got to grow past these very bad experiences.