Autism squeaks, but it's better than Autism Squeaks speaking

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It's kind of not up to your permission, to determine what is ok. Alternative ways of communication are insufficient. They're not efficient and are slow. Impairments in language inevitably will impair communication. Eye blinking isn't communication. Nobody believes that, and it is offensive to pretend that. Many of us are being spoken for because of the impairments. You don't have a way to stop that. The language impairments should be cured. Nobody is forcing a cure on you. You can't cure someone who doesn't lack abilities. I just want Autism Speaks to do their job, not speak for anyone.

so it is up to you to determine what is ok, but not us? explain that one. what makes you so entitled? better than the rest of us. what gives you the right. are you more autistic. maybe the rest of us are all millionaires who have never had a problem in their lives. that makes a lot of sense.

I'm not the only one who has this basic viewpoint. Anti-cure sentiment tends to come from the fortunate, unimpaired end of the spectrum.

prove it.

A lot of them say "I can speak for myself" as a rebuttal to those who like cure. They imply that those who are low functioning can grow up to be very high functioning like they are.

Thats your proof? well sir. that slogan was originally made to say that normal people shouldn't speak for autistics. it never had any other meaning intended. and again you say that i am unimpaired, or that anti-cure people are unimpaired. I would ask you to prove that statement as well.

i am not oblivious to what your talking about,your right most of the anti cure comes from the highest functioning and most succesfull.
i myself am not anti cure,i am not much into the cure issue one way or another at least untill they actualy find a cure at which time i myself self might take it

that doesnt mean that your arguement arent saturated with stereotypes and forever piggy backing on the most autistic as a way to further your argurements

I agree that it is hard to refute well thought out responses. And you seem to be a representative just as much as Aghogday because you are participating in this thread.

Oh hi, God! Didn't see you there! I know it's been a few thousand years since you last stopped by but I was wondering how you were? So who is allowed to communicate in what ways? Who is free to refuse the cure and who isn't? I just want to note this down so I can prepare a new Testament in honour of your spontaneous teachings for future generations of self important people.

Why don't you prove some of the things your side claims?

I will not dignify this with even a rebuttal.

I just happen to represent my own opinions on issues concerning the autistic community. And by so doing, I express what I think about how Autism Speaks is perceived to be tasteless among many autistics. I myself consider Autism Speaks as something not worth our attention, but given the negative opinions here, many of which I happen to agree with, I might as well decide to give my multiple cents here.

Thanks for dignifying it with a response at least.

First of all, as already evidenced and evidenced again below, per the autism speaks interview provided here, autism speaks has already stated in the interview here, specifically what their goals are, in the potential of curing or providing better treatments for co-morbid conditions, and disabling symptoms of autism. A link to the restrictions of their research is provided again.

In the United States the only potential of anyone forcing medical treatment on you, will be if you are a minor and that treatment is found necessary and authorized by your legal guardian, or if you are an adult and found to be of threat of harm to yourself or others, through potential mental instability. Otherwise you don't have anything to worry about as far as any medical treatment being forced upon you, in the US. However the laws associated vary, depending on what country one lives in.

As already provided evidence, in my last post, the autism speaks organization was founded on the idea to give a voice to families of individuals with autism, not to speak for those that can speak, nor to speak for those that can't speak.

The families and the individuals whom can speak are provided that avenue through the volunteer efforts, social networking sites the organization provides, as well as the advocacy efforts provided on the national level that have increased insurance coverage nation wide for individuals with autism.

Autism Speaks has also provided support for initiatives through the hacking autism and light it up blue effort that has increased the availability and accessibility of technology that assists individuals with autism with communication difficulties.

Perhaps that wasn't a comprehensive enough list of evidenced links before, if you don't care to browse through the 45 page thread that refutes the internet myths you provided in the topic post. But don't mind providing a more comprehensive list of links here, and can even provide a more comprehensive one if you like.

As evidenced below the organization Autism Society of America, ASA, that the ASAN self advocacy organization endorses meets the same high 3 out of 4 overall rating from the charity navigator organization as Autism Speaks does. Autism Speaks has 10 board members with a child with an autism spectrum disorder, and the ASA organization has 1 board member with a child with an autism spectrum disorder and another with an adult son on the spectrum. ASA has one active member of their board of Directors with a diagnosis of Aspergers. Autism speaks has a well known individual with autism, John Elder Robison, on their scientific board as evidenced below. Note, the more recent positive portrayal of children with autism in their PSA's, are linked below as well.

The guidestar.org link is provided to browse the comprehensive list of over 2000+ autism associated organizations, that could provide opportunities for worthy volunteer efforts to help those that struggle with autism, other than Autism Speaks, or even perhaps a thread could be started about the good things these organizations do. Never the less, Autism Speaks is evidenced below as supporting and funding a great many beneficial efforts intended to help individuals with autism spectrum disorders.

Also note at the bottom link where the T-shirt incident was evidenced as miscommunication and not censorship. Both the individual that offered the accusation and others that supported it offered public apologies to autism speaks, per an honorable effort.

The Autism Speaks organization had a legal obligation, per their official response, to protect their trademarks per the website that made a screenshot of their website; there was no threat or lawsuit evidenced in that incident just a formal request to cease and desist, which was complied with. The current parody of autism speaks website, makes it clear that it is a parody, and does not infringe upon the rights of the organization, so it is not a problem, as it clearly meets fair use standards.

http://www.charitynavigator.org/index.cfm?bay=search.summary&orgid=12720

http://www.guidestar.org

http://www.bbb.org/charity-reviews/national/health/autism-speaks-in-new-york-ny-1456/conclusions

http://www.autismspeaks.org/about-us/board-directors

http://www.autism-society.org/about-us/board-advisors/board-of-directors.html

http://www.wrongplanet.net/postt175264.html

http://www.autismspeaks.org/sites/default/files/documents/science-grants/2012_research_emphasis_areas_general__1_17.pdf

http://www.autismspeaks.org/science/grants/asd-prevalence-dsm-iv-and-dsm-5-total-population-study?destination=about-us%2Fgrant-search%2Fresults%2Ftaxonomy%3A9771

http://www.autismspeaks.org/science/grants/south-carolina-children%E2%80%99s-educational-surveillance-study-comparison-dsm-iv-dsm-5-prev

http://www.autismspeaks.org/science/grants/autism-and-developmental-disabilities-monitoring-network-augmentation-screening-and-a?destination=about-us%2Fgrant-search%2Fresults%2Ftaxonomy%3A9771+ADDM

http://www.autismspeaks.org/search/apachesolr_search/john%20elder%20robison

http://www.autismspeaks.org/sites/default/files/documents/990s/2010_tax_form_990.pdf

http://www.walknowforautismspeaks.org/site/c.igIRL6PIJrH/b.7734443/k.955C/Upcoming_Walks.htm

Autism Speaks 2011 to 2012 PSA's

https://ballastexistenz.wordpress.com/2008/06/29/apologyretraction-re-autism-speaks-t-shirt-scandal-thing/

http://autism.about.com/b/2008/01/22/when-is-a-humorous-site-not-so-funny-autism-speaks-has-its-say.htm

Last edited by aghogday on 13 Jul 2012, 9:51 pm, edited 1 time in total.

well. all they would have to do is prove autism is a threat to others. pretty easy considering their smear campaign against autistics, which says we have no empathy and that meltdowns are violent episodes.

No, that that would be illegal, unless someone was actually judged as a threat to themselves or others by law enforcement or a health/mental health professional. Anyone with or without autism has the potential as a human being of finding themselves in this situation through the course of a lifetime.

Autism Speaks provides/has provided no information that states that individuals with autism have no empathy or are violent as a general characteristic of the disorder. If you can provide evidence of it, please do, but if it existed it would have likely already been provided here.

Samuel Baron Cohen has provided statements to the effect per empathy in the past, but he is not a member of the autism speaks organization.

And, there is research that suggests that some individuals with autism are more likely to be bullied as well as bullying others, but that is not inclusive of all individuals whom are diagnosed with autism spectrum disorders, and is not considered a clinical feature of the disorder.

The judgement as to whether or not an individual is a threat to themselves or others is not based on diagnostic labels, it is based on actual behavior.