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27 Jan 2009, 3:47 am

dalurker wrote:
11krage, Amanda Baggs, who was in college at the age of 13, is not an example of LFA. I'm not even going to talk about her circumstances in detail. I'm so sick of her being talked about in response to the lack of consideration of HFA for LFA. What number of LFA have started to verbalize with typing? I doubt it could be many. I wonder how typing of words could be done by the many autistics who lack language skills. Facilitated communication in general is not reputable.

Er, I know some LFA's that are better at typing than me. Just because they are non-verbal doesn't mean they can't make sense with the written word.



Naturella
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27 Jan 2009, 6:47 pm

11krage wrote:
Naturella wrote:
11krage wrote:
= much less hostile. Plus due to things such as the reading issue, she/he is beginning to think about their own experiences and to see things slightly more from their childrens point of view. Sure theres still threats, but there are indications that some of what I said got through. Its not clear whether they will do the research recommended, but the thought is in their head and that is the most important thing. Let it fester.

I won't contact them again as any further contact will likely worsen the situation than make it better. But there was leeway after the hostile reply to address things in a polite way and improve things.

I find it outrageous that you interfere with other people's life and dare to teach then how to live while they did not ask you for it. YOU ARE NOT IN CHARGE FOR THEIR KIDS, OK? and though you think you can give instructions, you still accept no responsibility for the life of those kids. The parents of those autistic boys are responsible for them every single moment. And they have to deal with them every single moment. They earn money for the treatment, they do not sleep at nights when their kids do not feel well, and they spend a lot of time educating them, while you are hanging out here, on wrong planet for example and give instructions.
Well, but you are right, if you write to them again - they will tell you to f... off. And I would find it only fair.


:roll: I'm interfering with their life in less of an invasive way than even you are interfering with my life. And yes, they would react hostile to any further pressuring, I said as much. Its human nature unfortunately.

No, I am not charge of their kids. I did not say that. Its called providing information :lol: .

I'm afraid your arguement appears to be falling a little flat. I can't really see what point you are trying to get across.

Sadly parents don't always do whats right for the child, its a hard lesson to learn. In this case any possible welfare issues would have come down to misinformation.

I don't really think theres much else to say on this topic. You only seem to be bringing up contridictary and factless arguements. No offence, but its not very interesting to be honest to reply to weak arguements.

You also appear to be bringing up my going on this forum as an argument a fair bit, and getting a life. Seems a bit odd since your on here as well, and if you'd look at my post history you'd see I spend very little time on here due to life (ironically enough your replying is eating up most of my odd minutes on here).

I'd be interested if you decide to come up with an arguement with basis. However, that doesn't really look very promising right now :?

Good people! I am telling this guy A STRAIGHT FORWARD STATEMENT that he should not mess around with other people' life and annoy them with his dubious consulting WHEN HE IS NOT ASKED, and he is telling me that "this is called providing information", I am telling him - you have no moral right to mess around their children, and that it is shameful of him to interfere with personal life of others, and he is telling me: I do not get your point!
You are not getting my point? are you at all able to comunicate with other people??



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27 Jan 2009, 6:52 pm

dalurker wrote:
There is no broad base of autistics who are against cure. There is no great reason to not be cured, so there is no justification for depriving someone of so much of their youth by making someone wait until they're 21 to choose it. Nobody has to be that old to realize the misery of being mentally impaired.

I strongly agree with the whole post, but I think these words, that are quoted above, should be posted in huge font and placed in such a way here that one could see them on every page of this web resourse.



lau
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27 Jan 2009, 9:17 pm

Naturella wrote:
dalurker wrote:
There is no broad base of autistics who are against cure. There is no great reason to not be cured, so there is no justification for depriving someone of so much of their youth by making someone wait until they're 21 to choose it. Nobody has to be that old to realize the misery of being mentally impaired.

I strongly agree with the whole post, but I think these words, that are quoted above, should be posted in huge font and placed in such a way here that one could see them on every page of this web resourse.

With, naturally, an attached message mentioning that not one item in the post is in any way true.

There is a broad base of autistics who are against "cure".

There are many reasons to why a "cure" is anathema.

I've yet to hear of anyone being deprived of their youth.

I don't think the majority of autistics take kindly to being told they are mentally impaired. I certainly don't.


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27 Jan 2009, 10:42 pm

Naturella wrote:
dalurker wrote:
There is no broad base of autistics who are against cure. There is no great reason to not be cured, so there is no justification for depriving someone of so much of their youth by making someone wait until they're 21 to choose it. Nobody has to be that old to realize the misery of being mentally impaired.

I strongly agree with the whole post, but I think these words, that are quoted above, should be posted in huge font and placed in such a way here that one could see them on every page of this web resourse.


Dalurker and naturell,

Wait a second, exactly how are children on the autism spectrum deprived of their childhood? How do you determine when someone is deprived of their childhood?

Can you explain exactly how an autistic person is mentally impaired?

I'm also curious if you even know what autism is? It's pretty evident to me that you don't know what autism is. I have gathered that you two think autistic people are mentally ret*d

You two are the same person, correct? Meaning you're one person with 2 screen names.


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27 Jan 2009, 10:50 pm

lau wrote:
Naturella wrote:
dalurker wrote:
There is no broad base of autistics who are against cure. There is no great reason to not be cured, so there is no justification for depriving someone of so much of their youth by making someone wait until they're 21 to choose it. Nobody has to be that old to realize the misery of being mentally impaired.

I strongly agree with the whole post, but I think these words, that are quoted above, should be posted in huge font and placed in such a way here that one could see them on every page of this web resourse.

With, naturally, an attached message mentioning that not one item in the post is in any way true.

There is a broad base of autistics who are against "cure".

Evidence, please?
Quote:
There are many reasons to why a "cure" is anathema.

There are many reasons for most things.
Quote:
I've yet to hear of anyone being deprived of their youth.

How many people here do you think have been forced to grow up quicker than they would have liked? I would hazard a guess at most of us tbh.
Quote:
I don't think the majority of autistics take kindly to being told they are mentally impaired. I certainly don't.

Agreed.



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27 Jan 2009, 10:51 pm

Sorry, I really don't understand this 'I love having a ASD' I can understand 'comming to terms with it', 'making the best of it'

I suspect that ASD's are genetic and therefore in the short to medium term a 'cure' is unlikely but for those of you who are so outspoken in your opposition to research into a 'cure' you are arrogantly assuming that we all like our disorder; I certainly do not.

I would love to - have relationships that last more than a few months, enjoy going out and fitting in socially, not get into arguments and stop being so oppositional, not have meltdowns, not have been bullied and had my youth an absolute nightmare (@ lau whilst technically I did have my youth, I certainly believe that I had far less pleasant social experiences than did my peers, so in a way I was deprived of my youth)

I can understand if you are comfortable with who you are not wanting a cure, but to demand that young kids not be given the chance at a normal life I feel is immoral.

Of similar concern to me are the 'Aspie Supremicists' and I suspect that many of you who are opposed to research believe that those of us with ASD's are superior to the rest of the popultion and that is driving your disdain for a cure


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28 Jan 2009, 3:33 am

Dokken wrote:

Dalurker and naturell,

Wait a second, exactly how are children on the autism spectrum deprived of their childhood? How do you determine when someone is deprived of their childhood?

Can you explain exactly how an autistic person is mentally impaired?

I'm also curious if you even know what autism is? It's pretty evident to me that you don't know what autism is. I have gathered that you two think autistic people are mentally ret*d

Dokken, think of how many children on the spectrum won't be able to do many things that most children can do, like having friends, playing various games, and being able to get a basic education. It would be nice to get through childhood without humiliating inabilities. Look at the DSM-IV or some basic information about autism, and learn what mental impairments autism entails. I wonder if you know what autism is or if you are willing to acknowledge it. Look and see some of the approximate percentages of those with autism who have IQs below 70. Stop pretending that all of the spectrum is like Aspergers.

Dokken wrote:
You two are the same person, correct? Meaning you're one person with 2 screen names.

Stop hallucinating.



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28 Jan 2009, 4:03 am

dalurker wrote:
Dokken wrote:

Dalurker and naturell,

Wait a second, exactly how are children on the autism spectrum deprived of their childhood? How do you determine when someone is deprived of their childhood?

Can you explain exactly how an autistic person is mentally impaired?

I'm also curious if you even know what autism is? It's pretty evident to me that you don't know what autism is. I have gathered that you two think autistic people are mentally ret*d

Dokken, think of how many children on the spectrum won't be able to do many things that most children can do, like having friends, playing various games, and being able to get a basic education. It would be nice to get through childhood without humiliating inabilities. Look at the DSM-IV or some basic information about autism, and learn what mental impairments autism entails. I wonder if you know what autism is or if you are willing to acknowledge it. Look and see some of the approximate percentages of those with autism who have IQs below 70. Stop pretending that all of the spectrum is like Aspergers.

Ohh no, not another one... You don't think "normals" has their own problems? Or do you just think their problems are inferior to yours?
I can tell you that they're not. Everything is relative, that's why "normals" seems to have such effortless lives from our perspective. From their perspective they don't.
You don't know if severly autistic children are suffering. You just assume it, like "normals" assume that we are sick.

"A child has everything it's parents didn't."
A very good saying.


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Naturella
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28 Jan 2009, 8:41 am

Dokken wrote:
Dalurker and naturell,

Wait a second, exactly how are children on the autism spectrum deprived of their childhood? How do you determine when someone is deprived of their childhood?

Can you explain exactly how an autistic person is mentally impaired?

I'm also curious if you even know what autism is? It's pretty evident to me that you don't know what autism is. I have gathered that you two think autistic people are mentally ret*d

You two are the same person, correct? Meaning you're one person with 2 screen names.

All your knowledge of Autism is based on what you v read on this web site. I suggest you go at least to Wiki to make your knowledge somewhat less flat.
I quote here some things, but make shure you go and see for your self and read the rest.

About a third to a half of individuals with autism do not develop enough natural speech to meet their daily communication needs.[23] Differences in communication may be present from the first year of life, and may include delayed onset of babbling, unusual gestures, diminished responsiveness, and the desynchronization of vocal patterns with the caregiver. In the second and third years, autistic children have less frequent and less diverse babbling, consonants, words, and word combinations; their gestures are less often integrated with words. Autistic children are less likely to make requests or share experiences, and are more likely to simply repeat others' words (echolalia)[24][25] or reverse pronouns.[26] Joint attention seems to be necessary for functional speech, and deficits in joint attention seem to distinguish infants with ASD:[1] for example, they may look at a pointing hand instead of the pointed-at object,[16][25] and they consistently fail to point at objects in order to comment on or share an experience.[1] Autistic children may have difficulty with imaginative play and with developing symbols into language.[24][25]



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28 Jan 2009, 8:48 am

Kangoogle wrote:
lau wrote:
There is a broad base of autistics who are against "cure".

Evidence, please?

Personal experience, from listening to others.

Kangoogle wrote:
lau wrote:
There are many reasons to why a "cure" is anathema.

There are many reasons for most things.

My comment was in response to an assertion that there was "no great reason".

Kangoogle wrote:
lau wrote:
I've yet to hear of anyone being deprived of their youth.

How many people here do you think have been forced to grow up quicker than they would have liked? I would hazard a guess at most of us tbh.

My comment was in response to another implication. Large sums of money being wasted on research that is largely discredited (attempting to "prove" that autism is just mercury poisoning), or directed toward eradication of autism (screening tests that will inevitably be employed for eugenic purposes). Being opposed to such waste is not "depriving someone of so much of their youth", which is mere rhetoric.

Kangoogle wrote:
lau wrote:
I don't think the majority of autistics take kindly to being told they are mentally impaired. I certainly don't.

Agreed.


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lau
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28 Jan 2009, 9:12 am

Naturella wrote:
...
All your knowledge of Autism is based on what you v read on this web site. I suggest you go at least to Wiki to make your knowledge somewhat less flat.
I quote here some things, but make shure you go and see for your self and read the rest.
...[some apparently quoted stuff]


Well... I haven't figured out what Wiki site you quoted from, so I can't read it or verify any of its references.

The first statistic sounds like a waste of space:
Quote:
About a third to a half of individuals with autism do not develop enough natural speech to meet their daily communication needs.

I suspect you should ask LabPet about that - she's NV.

My knowledge of autism is based on rather a lot of reading, both on the web and in books, and direct real-life personal contact, via several different routes, with a growing number of other autistics (I'd estimate seventy, so far), all over the course of the last three years.


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28 Jan 2009, 12:04 pm

Naturella wrote:
All your knowledge of Autism is based on what you v read on this web site.

Your assumption is incorrect about my knowledge of Autism. My knowledge of Autism is from reading books about it, different websites, and being around Autistic people and people with Asperger's. I actually have met more autistic people than people with Asperger's.
Naturella wrote:
I suggest you go at least to Wiki to make your knowledge somewhat less flat.
I quote here some things, but make shure you go and see for your self and read the rest.

I'm unsure of how I'm supposed to read this wiki page when you didn't provide a link.


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28 Jan 2009, 4:07 pm

Naturella wrote:
You are not getting my point? are you at all able to comunicate with other people??


Again with the irony. I believe by the fact that I am typing words I must have some ability to communicate.

I also answered your point, that not all parents do whats right for their children. I merely added that most of your choice of arguments are really quite weak, such as for example attacking the person behind the opinion from the get go. Even in poor debaters that usually is a last resort as a effort to hide that they really don't have enough of a argument to attack the opinion itself.

Wikipedia isn't really the best place to look for solid information. Its not peer reviewed and anyone can edit it to say whatever. I would say meeting autistic people and communicating with them would be more reliable, depending on the sample size. Of course journals are the best form of information, there are a few interesting ones on sciencedirect database at the moment. Books come second, though you have to be a little careful about who's writing it.

Quote:
I wonder if you know what autism is or if you are willing to acknowledge it. Look and see some of the approximate percentages of those with autism who have IQs below 70.


Stop right there. IQ's are a no no, specially in autism. Communication differences between neurotypicals and those with a diagnosis are as I'm sure you know a big trait. Now take into account that IQ's have a large basis in language and you've got a problem. There are so many stories of autistic children's IQ's jumping 50 or so points upon learning to communicate. Adding to that the many failed studies of attempting to transfer IQ test cross-culture and really IQ's aren't all their cracked up to be.

They're only reliable in a very small sample of the world's population, and cope with any change from that group terribly. (Some have even started to wonder if IQ's are accurate even in that small section of people).


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28 Jan 2009, 4:31 pm

Silvervarg wrote:
Ohh no, not another one... You don't think "normals" has their own problems? Or do you just think their problems are inferior to yours?
I can tell you that they're not. Everything is relative, that's why "normals" seems to have such effortless lives from our perspective. From their perspective they don't.
You don't know if severly autistic children are suffering. You just assume it, like "normals" assume that we are sick.

"A child has everything it's parents didn't."
A very good saying.


Silvervarg, I am so sick of those like you so pretentiously putting the word normal in quotation marks and saying that things are relative, while doing so has no relevance and doesn't support your argument or invalidate mine. Why do you refer to normals at all when you imply that normal doesn't exist? I think smart, highly capable people get to go through things more effortlessly than others. This isn't about normal or abnormal. I see this as capable or not capable. I want all to share and have the capabilities that are available to people.

Why wouldn't severely autistic children be suffering? Especially as they become older and get close to adulthood, when many activities are being done by those their own age, which their disability prevents them from doing. What makes you think that the severely autistic aren't aware of all the things they're deprived of? What makes you think that they want you trying to represent them? I think assertions such as yours are ridiculous, and that people should just acknowledge that people want what other people have, including the abilities of others, and people are displeased when they don't have them.



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28 Jan 2009, 5:31 pm

11krage wrote:

Quote:
I wonder if you know what autism is or if you are willing to acknowledge it. Look and see some of the approximate percentages of those with autism who have IQs below 70.


Stop right there. IQ's are a no no, specially in autism. Communication differences between neurotypicals and those with a diagnosis are as I'm sure you know a big trait. Now take into account that IQ's have a large basis in language and you've got a problem. There are so many stories of autistic children's IQ's jumping 50 or so points upon learning to communicate. Adding to that the many failed studies of attempting to transfer IQ test cross-culture and really IQ's aren't all their cracked up to be.

They're only reliable in a very small sample of the world's population, and cope with any change from that group terribly. (Some have even started to wonder if IQ's are accurate even in that small section of people).


11krage, don't call them communication differences. Language/verbal ability is still important. There have been higher scores on non-verbal tests of intelligence like Raven's progressive matrices, but differences in the percentiles between the Raven's test and the Wechler IQ test for individual autistics, weren't evident for autistics whose IQs were above 85, and for those whose IQs were below 85, the differences usually weren't that large. There isn't evidence that a substantial proportion of autistics will learn to communicate and show large increases in IQs. That won't be what will happen for most autistics as they grow up, never gaining basic abilities. So there is no justification for your views.