Terms for people who wish to cure or abort us
Quote from a Danish psychiatrist who specializes in autism; "Few people with severe autism succeed in what they want, like getting a car, living on their own, it happens to very, very few."
Really? Because Google has literally no results for that quote. Where did you get it from? The Land of No Internet? I call BS on that.
On the other hand, I can give you many quotes that give the opposite message. For example, Hans Apserger himself said "It seems that for success in science and art, a dash of autism is essential." That's right, the scientist who discovered Asperger's Syndrome says it's essential for success in science and art.
Katie_WPG
Velociraptor
Joined: 7 Sep 2008
Age: 38
Gender: Female
Posts: 492
Location: Winnipeg, MB, Canada
The main problem with Autism Speaks is that they are an organization who likes to have their cake, and eat it too.
They claim the latest "scare statistics", which include every kind of ASD that you can think of, and yet only portray severe autism. They like to pretend that 1 in 150 children have severe autism in order to collect more donations. If the public really knew that the majority of those children are just a bit odd, and don't have any major cognitive challenges, then they wouldn't care about Autism Speaks.
Really? Because Google has literally no results for that quote. Where did you get it from? The Land of No Internet? I call BS on that.
On the other hand, I can give you many quotes that give the opposite message. For example, Hans Apserger himself said "It seems that for success in science and art, a dash of autism is essential." That's right, the scientist who discovered Asperger's Syndrome says it's essential for success in science and art.
I got the quote from a book my mother ordered.
And autism isn't necessary for success in science and art, it seems that Hans Asperger was good on his way to become dement.
Really? Because Google has literally no results for that quote. Where did you get it from? The Land of No Internet? I call BS on that.
On the other hand, I can give you many quotes that give the opposite message. For example, Hans Apserger himself said "It seems that for success in science and art, a dash of autism is essential." That's right, the scientist who discovered Asperger's Syndrome says it's essential for success in science and art.
I got the quote from a book my mother ordered.
And autism isn't necessary for success in science and art, it seems that Hans Asperger was good on his way to become dement.
What's this scientist's name, then? Does he have a good reputation? All this is important.
So, you're saying you know better than a qualified scientist who's credited with discovering AS?
And I STILL have not seen any study, statistic, or link proving that most autistic people live in institutions or destroy families, by the way.
So, you're saying you know better than a qualified scientist who's credited with discovering AS?
And I STILL have not seen any study, statistic, or link proving that most autistic people live in institutions or destroy families, by the way.
If you want to see it so badly, I recommend you to look it up yourself.
lelia
Veteran
Joined: 11 Apr 2007
Age: 72
Gender: Female
Posts: 2,897
Location: Vancouver not BC, Washington not DC
My daughter was worse than any of those kids in the autism speaks video. Did I ever think of jumping off a bridge with her? Yeah, I did actually, when I was severely depressed and thought it would be a favor to my husband. Fortunately, my religion forbids it and I eventually got over my depression. My adult daughter lives quite happily in her own home with a companion care provider and lots of respite providers. Is she living the life I wanted her to live? No, but neither is my other daughter who is making much worse moral choices. Of the two, the daughter with autism plus is the happier. She has a sly, physical sense of humor.
Another thought about that autism speaks video: Would I ever say in a video while my daughter was present that I thought about killing us? NOOOOOO. That is a vile thing to do to your child. How dare I have the temerity to do it here? I don't ever expect my autistic daughter to be able to read anything on WrongPlanet, ever, or I would not make such a shameful admission. I don't want to embarrass her or make her feel unloved.
My four other children reached adulthood somehow and the three boys are great people. My husband and I have been married for 37 years. One piece of anecdotal evidence does not a case make, but really, people need to have more hope than Autism Speaks will give them.
Quote from a Danish psychiatrist who specializes in autism; "Few people with severe autism succeed in what they want, like getting a car, living on their own, it happens to very, very few."
The author is Peter Vermueler and the book title in its English edition is "I have something very special" - which I find mildly offensive, as I am one those who don't think they "have" anything. My genes seem to have resulted in my thought processes differing from the majority of people on the planet (present company excepted, of course.)
Google translated link to book info
http://nl.wikipedia.org/wiki/Peter_Vermeulen - seems to be the right guy, although the book is not listed.
The author has two other books listed at Jessica Kingsley: http://www.jkp.com/catalogue/author.php?id=393
It does not say that he has any qualifications as a psychiatrist.
What prior posters seem to be missing, in this all-too-likely quote, is the implication that the author is capable of reading the minds of the severely autistic, to know what exactly it is that they want.
For instance, a blind person might be horrified if they were reported as desirous of "getting a car", when they were fully aware that it would be almost a death warrant - should they then be forced to drive it, unassisted.
A highly social person might find the idea of "living on their own" quite abhorrent. Although I do live on my own, these days, I know that it is not at all good for me (I can become a complete hermit - easily). I'm pretty sure that living with other people (in the various ways I have done so, in the past) has proved much healthier for me, overall.
I have had a car for almost all my life. I do not want to have a car it is just a convenience.
I do live on my own. I do not want to live on my own. I just find myself in this inconvenient situation, at present.
I do not want to be social. I have learnt how to be social. I can be very social. It is good for me to be social - provided that is limited to some small part of the time.
_________________
"Striking up conversations with strangers is an autistic person's version of extreme sports." Kamran Nazeer
lelia
Veteran
Joined: 11 Apr 2007
Age: 72
Gender: Female
Posts: 2,897
Location: Vancouver not BC, Washington not DC
That's a good point, Lau. Thinking about it as regards to my autistic daughter, she actually does have what she wants. She wants to be left alone most of the time. She wants paper and coffee to be given to her whenever she "asks" for it. Everything in the house is hers and she can do what she wants with it. She wants people to be nice around her. She wants access to scissors and videos and a hot tub. She wants to choose when she does what she wants. She wants to go out of the house on a trip only once a day. She's got it.
I wanted her to work. The three jobs I got her, she figured out what she had to do to be fired, and then she did it. The two places for volunteer work that were real short, she again showed by her behavior that even for fifteen minutes she did not want to do anything that benefited someone else than her. Okay. She wanted a life of leisure, and she's got it. I wanted her to have a bigger life with lots of contact with other people; she wanted to be a hermit. (Come to think of it, that's what my dad is now, and he's also happier than he's ever been too.) I wanted her to communicate with sign boards or talking computers, she wants to ask for paper by sitting on the bed next to me, grunting, and then getting up. Fine, let the wookie win. Both of our lives are much more peaceful now. Letting her get what she wants is letting me get what I want: peace.
Maybe your daughter, lelia, is one of the few people in the world who is truly getting what she wants. It is so frustrating when what a person wants seems incomprehensibly limited, compared to what most of us would wish for.
_________________
"Striking up conversations with strangers is an autistic person's version of extreme sports." Kamran Nazeer
Yeah, and I've encountered a few black people in real life who looked like they might have been gang-affiliated, and thus most if not all black people must be gangsters. Really, is it THAT hard to see how offensive this sort of statement is?
And maybe we could solve the problem of parents who don't love their autistic children enough to want a different child altogether not by getting rid of autistic people but by, oh, I don't know, not villainizing autism or autistic people anymore. By making services available and affordable to all. By erasing social stigma and making people that normal != good, that weird != bad. By introducing anti-discrimination laws similar to those protecting other minority groups. By having more positive portrayals in the media. All of these would achieve a similar result without eradicating an entire population of people who are the victims of society's intolerance, not the perpetrators.
Denmark is the most Asperger-focused country in Scandinavia, I'm pretty sure they have some of the most info there to, so I think it's safe to trust the almost 100-page book.
As for me, I see no point in becoming social, it's a waste of time, I see no need in owning a car either, I may want to move out someday, but not right now.
The situation,
1 in 10,000 is going to need lifetime care, and will be totally out of the world.
1 in 1,000 will be like Lelia's daughter, can live with a support worker, can go out, must be watched.
1 in 100 will rate an ASD Dx, but most can go to school, work, even drive, and often do well in a tech field. Many will just live on disability and never do what they could.
Sub clinical,
1 in 10 are Broader Autism Phenotype.
The costs,
The first group numbers 30,000, they will live in an institution for life. Life being sixty years, that is 1,800,000 years of total care. At $100 a day, low, they cost $3,000,000 a day.
The second group is 300,000, they need supported living, they cost $30,000,000 a day.
The third group, 3,000,000, maybe $30 a day, which is still about a $90,000,000 a day.
Rounding up, $120,000,000 a day for the lot. Autism is expensive.
Into this problem Autism Speaks has donated $10,000,000 in their best year to research.
8% of one day's cost.
Therapy does work, the lives of all, and mostly group three, can be improved greatly, for another $100 a day. About $300,000,000 to give each one day of service, three days a week only costs a Billion, and for $52,000,000,000 a year, they would go on to lead richer lives.
As some will anyway, and some will not, spending the money seems a waste.
Searching for a cure has looked everywhere, with no results. Even saying it is genetic, is saying we know nothing. Genetic research is good, in the last year we have gone from Autism seems connected to thirteen sites on the DNA, to now being able to say, twenty-two sites, and different in girls.
It is not like Downes, Retts, a single testable site.
Term for those who wish to cure us, Hopeless Dreamers.
I have not seen any post on WP saying, "I wish I was more Autistic."
How do I cope with this, is common. A wish to improve in some ways.
A desire for more of a social life is common. People work hard to overcome their problems.
We all seek a partial cure.
I do not look to the DSM for answers, they have no treatment.
I look outward, the Geeks and Nerds of Broader Autism Phenotype, and I can pass for a Nerd.
While their traits are not Clinical Grade, they are the same, the problems are the same, and I see that as our self help group. I have long known I was a Nerd, only recently discovering the Autism connection.
Asperger's Type Subjects were not disabled, they went to school, and went on to lead normal lives. His, "A touch of autism is needed in the arts and sciences," from an MD, means any more geeky and they would be a problem, but from here outward, Engineers, Scientists, Musicians, all share these traits.
I do not agree with Neurodiversity, I have met those people and avoid them.
Hyper-Nerdism, maybe.
It is the group closest to us, and we do have something of value to bring. We do seem more passable with age, yet it has its problems of social isolation.
I see little hope for genetics or drugs, but keep the study going. Some treatments are showing promise, like talking to people, being around people, we are slow learners, so more helps.
Being a hermit reduces stress, but being a hermit ruins your social life. A loss of skills.
No one can fund what is needed, no one fresh out of school is going to relate, we are on our own.
I cannot blame people for wishing things were different, I do.
This is not for all NTs, only those who think they're better than us and want to "cure" or abort us
Please differentiate, not everyone who wants a "cure" is a Nazi. If people think we need a cure, we need to peacefully explain why we don't.
Not all people pro-cure are Nazis, they're mostly ignorant I guess. We shouldn't put them in the same group as the Devil Speaks (in autism's name).
Well I think they are Nazis because they are behaving like Nazis.They are eugenists racists who want to wipe us out of the face of the Earth.Unfortunately,the peoples like Autism Speak(It should be called Anti-Autism racist speech BTW) hide their eugenistics and genoicdal ideas behind good intentions.These people want to castrate us and/or abort our children or just simply kill us.They think we are mentally ret*d people who just deserve to finish their klives in asylum and die.They don't want us to have civic rights because we aren't true humans...
THAT'S nazism.Whatever you call it,it's still [] eugenistic racism and genocide...
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