The Black List - think before you buy

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[youtube]http://www.youtube.com/watch?v=fFl6Gr--ugg&playnext=1&list=PL00DE56BA5E2D5FA2[/youtube]

As far as emotions go there is only the trends that are important. Calling someone a disorder label however is commonly considered an insult. I am not sure what side of the fence I am on if that means political sides. I seem to personally go from one side to the other depending on the issue and context but I center it around human rights but tend to side with interest that seek to preserve individual choice. I say the blunt choice and neither side enjoys it except for the professional people who don't take a side where I live.

Every-time I state something new to this social scene it seems you want to back out of the conversation.

While I sympathize with the motives behind the no cure movement, I think that people with ASD's have a right to be cured if they wish if a cure is ever found.

I support the right to be cured and the right not to be. No repercussions for whatever one chooses.

I'm not familiar with the views of Autism Speaks but it appears that they are controversial

i think a lot of people on autism speaks are deeply misguided,but i dont think there the enemy.there just suckers who bought snake oil because there desperate.dont boycott them try to reach them and change them

i personaly prefere to be called the most derogatory labels as possable.its so much fun and it gets me off.the number one thing i miss the most about institution life is the rude crude and blunt language.people out here are so uptight and label/title concious.who give a rip what someone calls you,and if you dont mind being called whatever your free to use whatever language you want. so praise to westboro state hospital

Add the Renaissance Faire to your list.

I'm debating sending them a letter. I'm not sure what to say in it tho.... >.>

Thats what we need, a letter we can copy and send to a company we see supporting ASpeaks!

People will become even more loyal to these companies for this reason. No one understands the opposition to Autism Speaks especially with people with autism, parents, professionals and otherwise supporting the organization. Your going to have to prove something horrid. Until something horrid is proven I myself cannot oppose them. However I don't really participate with them and donate to them either. I at the same time don't understand why it is wrong to fund them.

It will end up backfiring and even more organizations will come on board to fund them.

Nathan Young

Unfortunately we're a community who, by definition, does not express itself well. How we're going to protect ourselves from organizations like Autism Speaks, I don't know.

A lot of the frustrations with Autism Speaks has been in the absence of actual autistics being appointed by them. Because of this, we on the autism spectrum have felt like they do not want to hear our voices, but rather what their voices have to say about us.

After years of pressure, Autism Speaks did appoint an actual autistic last year---John Elder Robison. According to sources, Robison appears to care about research into autism, but from his blog one will discover that he is interested in making autistics appear more NT like---NT emulation rather than a genuine education. This seems to indicate a way to fix autistics rather than finding the best ways to educate autistics and provide for their needs. (Please note---the information in this paragraph is based on information provided by other sources and not my research on this.)

The problem I see with this is that many of us (especially with Asperger's) are satisfied with our autism---many of us do not want be fixed because many of us do not perceive our autism as something needing fixed. We only need to be understood. According to sources, Autism Speaks appears more concerned with tring to fix autistics rather than providing the genuine needs---and letting us be ourselves. But I also think a lot of the work of Autism Speaks appears to deal with the more challenged autistics rather than those of us on the higher functioning end such as with Asperger's.

I do not claim to be an expert on the working of Autism Speaks, but I am on the autism spectrum. It is not likely that we can all be experts on how Autism Speaks operates. I cannot say for certainty if they have misguided ways or not. But I can say they have not done a good job in making many of us on the autism spectrum feel like we are important to their organization.

Well it's a complicated issue whether or not you like the AS folks. They're trying to find a cure, which looks like a good thing from the outside. It's easy to get public support is you're trying to cure something. It's hard to look at the kids who have the worst and not think it's a disease worth curing or preventing. On the other hand, any pre-natal test/cure they develop is likely to be used on all children on the spectrum. Essentially committing neurological genocide. >.>

Regardless of what we do however, I think eventually someone, somewhere will figure out either a pre-natal test or a post-natal cure at some point. What we should do then...yeah I dunno...

No one will quit with the circular arguments long enough and stop being so nasty with the propaganda to actually solve problems. Anti-cure is in political quick sand and despite thinking you have good arguments all around your sinking your own ship. It's been the same thing for years, repeating the same stuff and a good half of the time it's nonsense the other part of the time you got a point. The bad of the arguments alienate your views and some of the anti-cure folks are so bad at PR it makes the whole perspective look bad. Also anti-cure in premise is a violation of human rights in attempt and the underlining issue is abortion guised as an attempt to to say well there are no treatments needed it's just a difference. With this perspective has come bullying those who would like treatments developed, nasty name calling toward the innocent that just want improved quality of lives and a outrageous attempt to be offended at many things others with autism are not offended by simply to emotionally push perspectives in the autism community and toward the general public that are entirely out of line.

Hardened Anti-cure folk don't want to debate me. They are scared because I just say it how it is. The problem is in the attempts to evade treatment advancements, understanding and related they are hurting more then helping. It's no longer a simple innocent self-esteem issue of acceptance but abortion politics and folks strategically merged the two to play their political pee dance game with words.

Horse pooh, bull pooh and human pooh are much alike in premise. It's time to get rid of the political constipation and let it go. It needs to be resolved or it will be resolved without the anti-cure folks with their tails between their legs cause they know they cannot win public debate. Time to work together or get out of the way of progress.

Nathan Young

Choice is a human right but at the same time attacking pro-cure removes funding for that choice. It's an item of ethics. What is the fair balance. When will a time come when people will stop being so angry, confrontational and malicious toward one another? I believe people with autism and who are also disabled deserve the cooperation between organizations. The less cooperation and the more confrontation the less progress for them.

Once the political nonsense settles down it is just the special interest potentially in the way of optimal progress. I am thinking cooperation is feasible. However special interest is even more complex.

Thank you for the information, I will be checking to see if it is the one that comes to Ohio.