Autism Speaks Seeks to develop prenatal abortion tests?

Page 5 of 5 [ 69 posts ]  Go to page Previous  1, 2, 3, 4, 5

CockneyRebel
Veteran
Veteran

User avatar

Joined: 17 Jul 2004
Age: 50
Gender: Male
Posts: 116,911
Location: In my little Olympic World of peace and love

10 Sep 2011, 9:38 pm

I also hope that my words don't get twisted around.


_________________
The Family Enigma


ci
Veteran
Veteran

User avatar

Joined: 28 Nov 2010
Age: 43
Gender: Male
Posts: 3,546
Location: Humboldt County, California

10 Sep 2011, 10:59 pm

[youtube]http://www.youtube.com/watch?v=g5iN_yguajA[/youtube]

Inter-dependency is not being a slave or a master. For myself my father paid into the system for many years to insure me. Some people call Social Security a lotto. My belief is so as long as as one can function somehow one should try to work unless it is extraordinarily extreme disabilities such as coma. Not always to become self-sufficient but at least to know the quality of life which comes from the reality of being included as a human being like others. I don't consider it a lotto. I do not like it and am consumed with ridding myself of this rights limiting lotto 7 days a week. I play a video game once every evening and typically am working and thinking about work related matters a majority of the time to figure out public relations.

Transitional skills development can help many. That's been the methodology for years within the social services system in California. However it has not been fully realized. Enact in rights and enabled by pre-existing services I believe many more can experience tastes of normalcy and with the dignity of realizing just what it is like to experience normal. I've never had a normal job other then 3 very short experiences that failed because I didn't have the transitional supports then. Few can relate to the atmosphere, the feeling and the premise of normalcy that those who are excluded find it to be when allowed to experience this rare treat others take for granted. I believe many can with understanding be better transitionally adapted and skilled.

Normal is not overrated it becomes rejected because it can feel like normal rejected some of us. I propose that normal has left out in the mix the awareness of the reality of a diversity yet to be fully included so normal can truly be defined properly as it currently lacks. If you realize this very human and near spiritual importance and the element of even the small recognition of what is not yet included you will understand it's extraordinary importance. This is my job and while doing so make people feel good about it and it is so very important that it may seem to some like it is not as important as portrayed but they have failed to realize what the moment after for some life long exclusion is like. This is human rights and this is part of life whereas exclusion is not a part of an acceptable normalcy by any moral standard as what might be agreed by the many within society to say normal is complete without us.

I will raise money for it, I will continue to succeed and advocate appropriately. The macro campaign is not for everyone. It is for those who choose to be part of the experience and benefit from it. It is arranged for individuals to go on broadcasting to be interviewed, be incorporated in awareness and very experienced voice talents help its success. I make no money and have not decided if I deserve any money but rather want to fund the project.


_________________
The peer politics creating intolerance toward compassion is coming to an end. Pity accusations, indifferent advocacy against isolation awareness and for pride in an image of autism is injustice. http://www.autismselfadvocacynetwork.com


aghogday
Veteran
Veteran

User avatar

Joined: 25 Nov 2010
Age: 64
Gender: Male
Posts: 11,851

11 Sep 2011, 3:31 am

Gedrene wrote:
aghogday wrote:
CaptainTrips222 wrote:
ValentineWiggin wrote:
I don't view Asperger's as a disorder distinct from high-functioning Autism


Behavior wise, I absolutely see a difference. I've attended an autism youth group, and it almost convinced me I didn't have any form of autism whatsoever. It wasn't until I learned the other members had HFA that things fell into place.

ValentineWiggin wrote:
and neither does the field of psychology, hence it's deletion as a diagnosis from the DSM.


So they did after all? I wish they didn't. The autistic people who I feel I relate to, and with whom I identify, and remotely resemble my level of functioning have Aspergers, not HFA.


It's a proposed revision in the DSMV, not in effect yet for a couple more years.

People with Aspergers and high functioning autism (with Autism Disorder) are often referred to as individuals with a form of high functioning autism. However, for those that are considered high functioning within the specific autism disorder, at present, the criteria is different for those people than it is for the criteria of people that have Aspergers to get diagnosed.

Developmental delays are not part of Aspergers, where as presently they are in Autism Disorder, so those individuals with Autism Disorder, that were considered HFA, because they had normal intelligence, that were part of your group may have issues with developmental delays that people diagnosed with Aspergers do not have.

I was part of an Aspergers group that both HFA individuals and Aspergers individuals attended, and the individuals with HFA, clearly had a harder time verbally communicating than those with Aspergers

And honestly from what I can see and know of Ci, he may be happier as an individual than many people here, including me. That part may be separate altogether from any diagnosis.

First thing: Could I ask for confirmation on that point?
Paragraph 1) That doesn't mean we should be excluded. They're the closest thing we have to relatives, bretheren, friends sticking it out in the cold like us, even if that means taking it rough with some diagnosis stuff.
Para 2) I can only presume that you presume that they were certainly neurological and not psychological possibly in some cases.
Para 3) I am sorry but they do happen to have 'developmental difficulties'! (although that being said they overcome that which I value and don't what I don't care about). Being a person who knows people with 'asperger's' quite a few of them began to speak at least a year after most children. And even I, in the throes of being 'diagnosed' (though I do wonder why), only began speaking when I was three. Despite that I doubt many people know the meaning of the word vitreous or my personal favourite chemoautotrophs! Though afterwards they seem to race forward. Even ci, for all assertion about need for a cure, and despite his hard often to read sentences, at confidently uses words that most people wouldn't dream of using: And whilst he many times may spell them wrong (generally he uses phonetic spelling in these cases) it is clear that when he uses those words he knows their meaning.
Para 4) Same as para 2

Para 5) Happiness doesn't mean anything about righteousness or correctness. I bet slave owners were a lot happier than slaves from babylonia to America. Although if anyone presumes any such conclusion about ci's personality from that metaphor I'll blast you.


All the points on diagnosis are in the DSMIV. If you were to go in for a diagnosis, with what is considered a significant language delay, you would not be diagnosed with Aspergers, if a proper diagnosis was conducted. It is a clear exclusion in the DSMIV criteria.

http://www.autreat.com/dsm4-aspergers.html

Quote:
(IV) There is no clinically significant general delay in language (E.G. single words used by age 2 years, communicative phrases used by age 3 years)


Quote:
(V) There is no clinically significant delay in cognitive development or in the development of age-appropriate self help skills, adaptive behavior (other than in social interaction) and curiosity about the environment in childhood.


P. 1: Just talking nomenclature and behavioral differences related to language and cognitive delays, I'm not suggesting anyone should be excluded from interacting with each other.

P.2: Developmental delays are considered to be part of the neurological differences seen in some diagnosed on the Autism Spectrum.

P. 3: The DSMIV required criteria IV & V for Aspergers provides specific guidance:

Quote:
(IV) There is no clinically significant general delay in language (E.G. single words used by age 2 years, communicative phrases used by age 3 years)


Quote:
(V) There is no clinically significant delay in cognitive development or in the development of age-appropriate self help skills, adaptive behavior (other than in social interaction) and curiosity about the environment in childhood.


As long as you use single words by age 2 and communicative phrases by age 3, you are not identified as having a clinically significant delay in language. Your good to go talking at age 3, might not be the average age kids talk, but not a clinically signifcant delay in language.

No delays in cognitive development in Aspergers.

P. 4: Yes they are considered neurological impairments.

P. 5: Happiness isn't part of the diagnosis. The psychological/mental health difficulties are the co-morbid parts not directly related to a diagnosis of Autism, present the biggest problem for some people. Considering the amount of criticism Ci has taken since he has been here, and the fact that he is still moving full steam ahead, suggests to me that he is pretty tough in that area. Haven't heard that righteousness or correctness is associated with happiness. The easy going folks, seem to do better than some. Just an anecdotal perspective there.



Gedrene
Veteran
Veteran

User avatar

Joined: 9 Jul 2011
Age: 33
Gender: Male
Posts: 2,725

11 Sep 2011, 8:04 am

aghogday wrote:
P. 4: Yes they are considered neurological impairments.

Where? Why? That doesn't explain my experiences or many others that I know of. it also doesn't explain the thousands of times I hear parents talk about their children being stuck in one place because of a lack of will: That sounds psychological to me. Prove me wrong. I invite you to try


[quote=aghogday"]P. 5: Happiness isn't part of the diagnosis.[/quote]
You're misreading what I said here, although I wont suspect why that might be because that's presumptuous. I actually said that just because ci is happy doesn't mean he is right. I wasn't talking about any sort of diagnosis and I have no reason why you carried your fixation over officialdom to the point I made here.



aghogday
Veteran
Veteran

User avatar

Joined: 25 Nov 2010
Age: 64
Gender: Male
Posts: 11,851

11 Sep 2011, 3:48 pm

Gedrene wrote:
aghogday wrote:
P. 4: Yes they are considered neurological impairments.

Where? Why? That doesn't explain my experiences or many others that I know of. it also doesn't explain the thousands of times I hear parents talk about their children being stuck in one place because of a lack of will: That sounds psychological to me. Prove me wrong. I invite you to try


[quote=aghogday"]P. 5: Happiness isn't part of the diagnosis.

Quote:
You're misreading what I said here, although I wont suspect why that might be because that's presumptuous. I actually said that just because ci is happy doesn't mean he is right. I wasn't talking about any sort of diagnosis and I have no reason why you carried your fixation over officialdom to the point I made here.


The current scientific understanding of Aspergers is that it is a neurological disorder, and the impairments are a result of that neurological disorder. I personally think that as time goes on they may find, that the severity of impairments experienced may be greatly influenced by cultural/environmental factors, I wasn't giving my personal opinion, just the way science currently presents the disorder.

My statement that happiness wasn't part of the diagnosis was just to clarify what I stated earlier, that it may have nothing to do with a diagnosis. Officialdom I think is a good analogy for a pedantic style of communication, yup that's me and it's always been me. Yup is not a pedantic style of communication; you won't likely here me saying stuff like that. But, again it's the way I experience Autism, my communication style.

I literally don't see righteousness and correctness to be directly associated with happiness; I don't get any connection with that at all with whether or not Ci is happy enough. And no, I didn't realize you were associating it with Ci, really didn't know why you brought it up, thanks for clarifying.

Furthermore, know that I think about it, whether or not it has anything to do with happiness, a person that believes they are always right, definitely has the potential to alienate others, I guess unless they are a preacher or a leader of a politcal party that one has total allegiance to.

Social connectivity as reasearched is the #1 statistical factor related to happiness, so if one's happiness was dependent on social connectivity, and they alienated people through their behavior that suggests they are always right, that could definitely affect their self reported level of happiness.

There was a thread here not to long ago, would you rather be right than happy, and many people stated they wouldn't be happy unless they were right. I think for some people they would rather have friends than be right. Depends on what one values I think.

Often when someone does what they believe is right and does not veer from it, regardless of popular opinion, particularly in the workplace, you will often hear them say I'm not here to make friends.

All that considered, in general, a righteous attitude may result in a reduction in happiness for some people, that want social connectivity. They may not even realize how much it alienates others.