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SusyQ
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06 Apr 2008, 8:41 pm

I had never heard of Jenny McCarthy until I recently found her book at the library and read it. It was one of those books I couldn't put down. It inspired me to try to do more to become gluten free and maybe someday dairy free. I also loved her suggestion for a test to see if a child is at risk for a vaccine reaction.

That said, my Mom was put off by her language. And we both don't like the way she treated her husband. I'd love to hear his side of the story.

I think it should be a parent's choice in whether or not to vaccinate their child. Vaccines should not be mandated for anything-unless it's by a private school etc that does not receive tax dollars. And there is definitely merit in the gluten free/casein free/sugar free diets and de-toxification. From personal experience, I know that the way I eat and the toxins/chemicals I'm exposed too affect my personality and health and am doing my best to eat a diet and avoid the toxins and chemicals that do bad things to me! It's not easy, BTW, but I keep trying...



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06 Apr 2008, 8:48 pm

[irony]When I heard about these intolerant people, it makes me want to kill them for being so intolerant[/irony]

[spoilers]IT'S A JOKE, HOLD YOUR HORSES (although some people actually feel that way without noticing the irony)[/spoilers]


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06 Apr 2008, 10:23 pm

The biggest problem I have with the interview from the transcript is her contention that autism is "worse" than mumps and measles. Here we go again with the false comparisons. She's completely minimizing mumps and measles, as well as failing to acknowledge that the reason risk for these diseases is so low is because of vaccinations. Oy. I sure hope people who watched this don't decide to skip vaccinations because of her misinformation. I'm also disappointed that she continues to propagate a completely negative view of autism, but that's usual these days.



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06 Apr 2008, 10:28 pm

LeKiwi wrote:
Not really. I've mostly used them as a resource centre for getting hold of books etc and the occasional support need. I don't use them often though as my parents work in the autism field so are like mini libraries themselves, which obviously helps. I've never had any problems with them though - all they've done is point me in the right direction and give me guidance when necessary.


Don't get me wrong. That's good.

I've also had some professionals that have tried to eradicate everything that is wierd about me and even had me pinned as a little psychotic, and that's not good.


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06 Apr 2008, 10:45 pm

morning_after wrote:
asplanet wrote:
AHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHH

trying not to go crazy............................... but have made my mind up and just had first meeting, starting up first action rights groups here in NZ - if interested in joining pm me :wink:

Feel better already, highly recommend doing some think, my list of frustrated people here is growing fast and the main National autism society here are like card broad cut outs of Jenny!! !


Do you feel like they don't listen to you?

YES is the answer to that question, and many people on the autism spectrum here are fed up with feeling the outsiders, against the culture of exclusion of AS people practiced and honed to a fine point by Autism NZ unfortunately.

LeKiwi I have heard of course they do some good and help many people, but it seems to be mainly NT parents with children on the Autism spectrum...


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Last edited by asplanet on 07 Apr 2008, 12:10 am, edited 1 time in total.

morning_after
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06 Apr 2008, 11:13 pm

Tetraquartz wrote:
morning_after wrote:
What do you think about McCarthy's idea that she can speak for the autism community.


The whole autism community? But she's not autistic. I seem to get from her that she believes all autism is generated by additives in vaccines, and all we have to do is do what she did, and there's the answer to autism.

Like what others have said, using the word "autism" is such a broad term, that it can be interpreted in many different ways. Autism, and autism, and... autism. Three and more kinds, and maybe only one word for them all.

So, to a parent who is struggling with a screaming, combative child, they are looking for some hope, somewhere, sometimes just anywhere they can find it.
Like for example my nephew, who flipped out because he spilled his drink into his dinner, and when she tried to clean it up, and calm him, he threw his mother, my sister in law, down a flight of stairs. (She was only bruised but if could have been much worse, she could have broken her neck)
My brother is one of those parents who supports Autism Speaks, and I don't, but I can't argue with his desire to at least see his son be able to be reasoned with, without losing his extraordinary artistic talents that he suspect autism gave his son. My brother and sister in law don't have a problem with their son being eccentric, they are just not wanting to see him panic or lose his temper and bust someone's chops because something was moved out of place or a sudden noise set him off. He's a big, strong kid. He's now in a group home and is doing very well, last I heard. His picture at Christmas, he was looking at the camera and smiling. I was very happy to see this. I've never met him, so I don't know him personally, but he is such a talented artist, his work has been shown and sold in NYC galleries. As an artist, I say that's an excellent accomplishment)
My brother is likely on the spectrum and I suspect my sister in law, as well. So they don't want to eradicate autism, they just want to "cure" their son of those serious problems so that he can be their son.

As for me, I enjoy my Aspieness. Yes, it has caused me much pain at times. But life is difficult as it is. For NTs, they struggle with a number of thigs. Autie-Aspies struggle with other things. I hae finally come to liking me as I am again, and not being scared of people who want to change me, but telling them to leave me be and not feel guilty.

Sorry, I'm digressing quite a bit... trying to get all these thoughts compressed into a readable few paragraphs.

Back to Ms. McCarthy, who shares a last name with a Mr. McCarthy who in the 50s ran a witch hunt for Communists and their sympathizers and blackballed a lot of people from their careers... I don't like her manner, is all. That's how I see it. She makes me feel the way I did when I lived in a town full of people just like her, some every bit as famous if not more than she is, whose kids went to the same school mine did, some of whom snapped my head off for my saying I was autistic. Makes my stomach hurt, it does.
Besides, I am suspicious of celebrities who are on what they call a "crusade", because the Crusades involved misguided fanatics causing a lot of shedding of innocent blood.


I agree that it is wrong of her to generalize like that, and I didn't like her manner either. It was like she wanted to crucify people on account of not sharing her beliefs.

Maybe she will become like another Britany Spears and people will get tired of hearing from her. Or maybe another Tom Cruise and get viewed as a crackpot.

I think with the way she carried herself, she could be in danger of that.


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morning_after
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06 Apr 2008, 11:17 pm

SusyQ wrote:
I had never heard of Jenny McCarthy until I recently found her book at the library and read it. It was one of those books I couldn't put down. It inspired me to try to do more to become gluten free and maybe someday dairy free. I also loved her suggestion for a test to see if a child is at risk for a vaccine reaction.

That said, my Mom was put off by her language. And we both don't like the way she treated her husband. I'd love to hear his side of the story.

I think it should be a parent's choice in whether or not to vaccinate their child. Vaccines should not be mandated for anything-unless it's by a private school etc that does not receive tax dollars. And there is definitely merit in the gluten free/casein free/sugar free diets and de-toxification. From personal experience, I know that the way I eat and the toxins/chemicals I'm exposed too affect my personality and health and am doing my best to eat a diet and avoid the toxins and chemicals that do bad things to me! It's not easy, BTW, but I keep trying...


A gluten free diet may be a good thing. I don't really know enough to tell what is gluten free and what isn't, nor do I feel I can pick what I eat right now.

And there is no doubt her child had a vaccine reaction.

I don't know, though, if maybe she's upset at herself and holds herself accountable, or frustrated at something or what.


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morning_after
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06 Apr 2008, 11:18 pm

Apuleyo wrote:
[irony]When I heard about these intolerant people, it makes me want to kill them for being so intolerant[/irony]

[spoilers]IT'S A JOKE, HOLD YOUR HORSES (although some people actually feel that way without noticing the irony)[/spoilers]


Um... what are you referencing?


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morning_after
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06 Apr 2008, 11:21 pm

asplanet wrote:
morning_after wrote:
asplanet wrote:
AHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHH

trying not to go crazy............................... but have made my mind up and just had first meeting, starting up first action rights groups here in NZ - if interested in joining pm me :wink:

Feel better already, highly recommend doing some think, my list of frustrated people here is growing fast and the main National autism society here are like card broad cut outs of Jenny!! !


Do you feel like they don't listen to you?

YES is the answer to that question, and many people on the autism spectrum here feel up against the culture of exclusion of AS people practiced and honed to a fine point by Autism nz unfortunately.

LeKiwi I have heard of course they do some good and help many people, but it seems to be mainly NT parents with children on the Autism spectrum...


Well, the parents have a right to their opinions, but I think there needs to be communication with the children the whole way.

I'm thinking of something Amanda Baggs said on Anderson Cooper 360:

If we cannot communicate with them, it is because we are broken. If they cannot communicate with us, it is because we are broken. Either way, we are broken.


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asplanet
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07 Apr 2008, 12:24 am

morning_after Quote:" I'm thinking of something Amanda Baggs said on Anderson Cooper 360: If we cannot communicate with them, it is because we are broken. If they cannot communicate with us, it is because we are broken. Either way, we are broken."

I think the larger organizations would like to feel they can tell us what to do and they know better than we do... I would not say we are "broken" but communications, understand has definatlly broken down in some instances!

I prefer Amanda Baggs Quote"Yeah, I'm Autistic, You got a problem with that?" and it seems far to many people still have...


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morning_after
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07 Apr 2008, 12:29 am

Well, what she was referring to is how others see her.

In other words, no matter what she does they treat her as broken.


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07 Apr 2008, 1:42 am

morning_after - exactly how Autism NZ see us for some reason, one bad experience! they need to remember we are all individuals.


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nory
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07 Apr 2008, 4:25 am

Why are so many people calling her a 'bimbo' and insulting her intelligence? It seems she is intelligent enough, she is a positive, bright personality and she is using all her power at the moment towards helping her child. She is recounting her own experiences and they also acknowledge that the vaccine is a 'shock' that overwhelms children that already have the propensity for autism - not that it creates it entirely. She never said she was against vaccines. She speaks based on what she knows and has witnessed first hand. Her son seems to love her a lot and is extraordinarily intelligent and cute. Also Jim Carrey is a great actor, and he seems to think she's the cat's meow. So she can't be all that bad.

The only thing I worry about is the kind of exposure her son is getting through the book. The child of the guy who wrote the Winnie the Poo books, Christopher Robin, suffered for it all his life with disastrous end. This exposure, given she is using his real name and identity, may prove detrimental provided the kind of person he turns out to be. She should also respect his privacy and not expose everything he says and does for her cause.



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07 Apr 2008, 7:15 pm

morning_after wrote:
Pepperfire wrote:
Do you non-Canadians even know WHO Jenny McCarthy is?

She's Jim Carrey (the comic)'s girlfriend/fiancee. She's doing a book tour to promote Louder than Words.

She believe that the therapies have "cured" her son in one breath, but in the next statement will say that if she lets her guard down, that Evan (her son) can revert back into his Autism.

She believes that his gastrointenstinal problems ARE NOT related to his autism.

And she believe that the vaccines caused his autism: why? Because a Mom knows.

She's dangerous because she has no idea that a little boy exists inside his head that she needs to learn how to communicate with. And worse, she is dangerous, because every time she speaks she inadvertently throws in a plug for Autism Speaks' eugenics program.


Interesting.

I'm not going to argue with that, but do you have sources or specific examples?


Check the interview on thehour.ca with George Stroumboulopoulis. I was angry watching it.


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Pepperfire
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07 Apr 2008, 7:22 pm

nory wrote:
She should also respect his privacy and not expose everything he says and does for her cause.


Therein lies the rub... Just what exactly IS her cause?


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Pepperfire
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07 Apr 2008, 7:43 pm

Hmmmm, better yet... ask her: http://www.youtube.com/watch?v=Shgoub7b4cs


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