a plan to destroy autism speaks

Post Reply New Topic

Why don't you quit screaming abortion, and say what you really want that organization to do? Aside from rectifying their financial inefficiencies.

I was trying to put this forum in a better mood.

We are awesome. hooray...

This is a serious topic

Well, I'd suggest you read between the lines, and get the real message.

Drugs of course won't work for a recurring and constant genetic problem.


I disagree. It's not like areas of the brain need to be substituted with a different architecture. Connectivity within the brain needs to be restored, in many ways.


I disagree with this too. Gene therapy is getting advanced and specific for its target genes. Homologous recombination should be looked into. Why worry of the effect of introducing the functional genetic variant on other genes, when other healthy individuals have that same functional variant in combination with the rest of their genes?


And what do you think the science staff will do, knowing they're members of the privileged class of the very high-functioning autism phenotype?

Please be reminded that while I have a huge distaste for Autism Speaks, I
keep in mind that I may offend other people with what I say. But many of
your premises, ladies and gentlemen, are a bit conflicting, in my opinion. My
mouth is normally talkative on contradictions, but in this case, I'll keep it
shut for now. It is true that some autistics could not have the ability
and acquire the knowledge some of us high-functioners have already, but that
just does not give anyone the right or prerogative to become a
jerk. They may be different, but they are like anyone else,
yourself and myself. Now, what I do not understand
off this thread is that we're talking on a specific issue, yet
you users are talking about something else. Some
agents of discord are trying to distract us from our goal
of taking down the criminal organisation that we all despise:
Autism Speaks. Yes, I meant it -- the Mafia-slash-Yakuza group known as Autism
Speaks. Now where were we?

Please don't speak for me. I have no particular ill will against Autism Speaks.

Some won't easily accept injustice, or statements not evidenced by fact, that are slanderous in nature against well meaning organizations that are attempting to help children and adults with autism through well meaning, research, awareness, and educational efforts.

Autism Speaks is not a criminal organization; they meet approval of all watchdog groups. Nor is is it a Mafia/Yakuza group. Every individual that works for the organization has among the highest of credentials in their fields of science, marketing, and management, that can be validated.

And there is no evidence that there is even a significant number of autistic individuals whom speak badly toward the organization, per the estimated 1.5 million, actually diagnosed with Autism in the US, and per millions more throughout the world where Autism Speaks reaches out to those in countries, who do have much diagnosis potential, or even awareness of what the disorder is. Autism Speaks is highly respected among the public both autistic and non-autistic that are aware that the organization exists, across the globe

There may be a thousand on the internet, spreading information that is not evidenced by fact, and repeating issues that have been corrected from the past, but that is no significant figure compared to millions of others across the globe.

The organization does not speak for autistic individuals whom can speak for themselves nor does the organization speak for autistics that cannot speak for themselves, per the intended meaning of that slogan.

As indicated on their website the slogan "Autism Speaks" was created by the founder to reflect part of the organization's mission, at the time it was founded, to provide a voice to the families of children, like the founders child who had regressive autism, whom felt disenfranchised from the rest of the world.

Some don't warm up to emotional hyperbole very well, whether if it is from an organization that may cross the border of what is perceived as fair or from anyone else that intends to harm someone else, either through words or actions, or for those whom attempt to speak for others when they can speak for themselves.

Autism Speaks makes it clear on their website that they do not intend to speak for autistics, through the founders statement, with that catchy phrase. There are very few individuals with autism whom think alike, and there are many that are not afraid to express an opposing, and differing view.

The organization has 340,000 volunteers, and many among these individuals whom are family and friends of autistic individuals, some of which may not have the abilities that allow them to be part of that volunteer effort. These volunteers are happy to work together, to raise money, in hopes in providing a better life for their family members who may have autism and their friends who may have autism.

The attempt at reasoned efforts, against what is perceived by a comparable few, as continued unreasonable marketing statements, is effected in peaceful groups of 4 or 5 individuals at these huge volunteer efforts.

Hopefully one day they will come to the realization that they are all on the same side, when it comes to the general cause of helping all individuals with autism gain their full potentials in life.

Most of these protesters are self identified as University students or professional individuals; this is a good news story for some diagnosed with autism, and they have every right to be proud of their accomplishments in life, but it is not the story that exists for most individuals actually diagnosed with autism. The organization they represent has no potential of actually providing research iniatives that may eventually change the course of symptoms of autism disorders like regressive autism. That is a different mission led by government agencies and charitable research organizations such as autism speaks.

There is no reason why people and organizations whom meet differing needs of those in need of support can work together or in tandem to meet those various needs, rather than attempting to work against each other.

At this point in time there appears to be only one autism organization being held back by oppositional efforts against other organizations, that are working dilligently to help individuals with autism to meet their potentials in life. Hopefully that organization will grow in stature, in learning from their misteps of the past, just as autism speaks has done, through their evidenced actions.

thats a new one i have never heard autism speaks compared with the mafia or the yakuza.

maybe jenny mccarthy is a capo in the dibendetto crime family

Fa, get a bout it

Just a few reminders, thewhitrbbit, I have never claimed to speak for everyone on the spectrum. Though I advise, please do not
shut yourself out from knowing the fact that Autism Speaks has been deceiving and misrepresenting us, and that
your future as well as that of others depend on how we and those who support us continue to advocate. I know that
God is siding with those whose hearts are pure and just. But the evil one continues to obstruct this divine goal, and
damn, it could be frustrating to us who try to take it down along with its minions. They are luring us to this
trap, and continue to deceive everybody and collecting huge sums of money while at it. As for everyone, do
you ever wonder, has the IRS even looked on this group's tax-exempt status? And come on, none of us are
stupid. Look at the lifestyle of its shareholders. Rich and beautiful, aren't they? I would be a complete
idiot if I won't conclude that they benefit significantly from the massive donations that they muster,
and I wonder where they spend it on? To "research" (more like, genocidal plots), as they claim it? Why don't they
stop deceiving the general public on their real objectives and reveal their true nature? I find it frustrating and
tiring to play guessing games with anyone else, much less with an organisation. Please, Autism Speaks, spare
us the "we speak for autistics" line, since you really don't. Now I have heard that you crybaby of a group has a beef
with autism self-advocates, going so far as to sue them in court for innocuously but truthfully protesting
your deception and misrepresentation. Can't you be any lower than that, gagging those who speak against you? And spare us your
litanies, those TL;DR statements, which are all in legalese, anyway. Now I don't underestimate your intellect,
aghogday, but come on, put them in a few words and prevent a flood of nose blood.

Most people don't understand the difference between Asperger Syndrome (or other forms of high functioning autism) and Autism. The media spends a great deal of time covering Autism in general rather than discussing how it is a broad spectrum.

Alex is not President, he is King of his Domain. Long Live The King!

There is nothing democratic about autism. We cannot vote it out of office.

Consilence, The Convergence of All Knowledge, Edward O. Wilson, is happening here. When all Knowledge is laid out, we find we look upon the same problems from various sides, and we all learn.

I have agreed and disagreed with Autism Speaks, but they have added Content. Lately most of my disagreement has been directed toward Psychobabble, Drug Pushers, and and people with Doctorates who call themselves Dr. Smith, rather than John Smith MD, with the intent to confuse. a Doctor of Psychology trying to speak as one of the Medical Profession on behalf of a drug company.

Autism Speaks does put more of their budget toward the project than most non profits. I read their research grants, and most is going for means to identify early, and just what therapies work. Most are one to one, speech, behavior, that have shown measurable results.

In the early days everything was explored, and found to be worthless. No magic cure, drug, genetic wonder, vaccine, which used to fill the uneducated press, before Huffington Post, which has brought new lows to reporting.

Autism has staying power, learn to live with it.

Further afield, we are talking about directing the path of human intelligence. It has two sides, Eugenics, and enhancing development. Eugenics gets bad press, but Enhancing Development has it's own set of problems.

High functioning Autism is a good model of what might happen if intelligence advances at the cost of a decline in social interaction.

The other development, the Internet, is also producing social disablities, due to the lack of connection beyond the keyboard. Cracked did an article about Internet Based Disorders. They did identify Internet Asperger's Syndrome developing in the non autistic, just because they were conversing without eye contact, body language, or tone of voice.

With a lack of these inputs, some on the web lose track of who they are, and that they are relating to other real people. They behave exactly as people with Asperger's Syndrome do in real life.

There is a real world ahead, in another thirty years the war babies will be gone, and the next generation will have a world with declining social skills, less face to face, and the Democratic Process may not survive.

Those who oppose my point of view are learned, well educated, Just, Loyal, Honorable, and acting for the best as they see the world. While we must air our differances, we must also agree on the way forward as one people.

What we chose to do now will affect people long after we are gone.

If they were covering autism in general, they would be covering it as a broad spectrum. I believe what you mean is that they are hyper-focused on "LFA."

And as a general statement to DaLurker, don't go on one of your "well you all have talents so you're obviously not disabled" rants. I'm sure those of us who are also epileptic, have OCD, or anxiety issues don't appreciate it. At the very least, I don't. Secondly, stop implying that everyone with LFA is completely lacking in a fulfilling life.

For example, my little brother Sam has LFA, and the biggest thing holding him back is people underestimating him. He's been pegged for having a second-grade reading level and being mentally ret*d. Guess what he does if you give him a 1000 piece jigsaw puzzle featuring trains, or what he does if you shove him in the Museum of Science and Industry's exhibits on trains and planes and such, or, my favorite, giving him a big book on the history of trains. [If you haven't guessed, he really likes trains.] He's not stupid, but no one's trying to help him at a level higher than they think that he is. They're just babysitting.

I'll keep going on them until you stop deceiving the ignorant public. Because there are some who clearly aren't disabled at all. They aren't entitled to the underdog consideration intended for the disabled. OCD and anxiety aren't disabilities. Stick to the topic. I won't stop implying that. Lots out there aren't having fulfilling lives due to lack of basic skills. I'm very tired of your elitist righteous indignation, while you want to maintain what's going on now, with many autistics easily becoming dependent on whoever is around them, living on their terms, after losing out on so many opportunities that are shut out to them. Some are living in the dungeons of institutions, while others live through the miserable cycle of dealing with snarling government bureaucrats when trying to get services. There's no realistic way out of this without solving the underlying problem, which is disability. But you successful aspies are seeing opportunities all the time, and gain independence and achievement with ease, once you have a clear mind. Dependence isn't tolerable and you know it. Some are sick of you being sanctimonious in sticking up for all of this hierarchy. There is nothing in it for the unfortunate to just let you undermine chances for progress.

Autism Speaks as all non-profit charitable organizations are regulated by the government, as well as examined through the microscope of third party watchdog groups.

There are no organizations identified with autism that score higher than 3 out of 4 stars on the charity navigator watchdog group analysis, and the organization meets all standards for the BBB. Both organizations review Autism Speaks IRS form 990. The Charity Navigator group lists Autism Speaks salaries within the norm of charities of the size of autism speaks, in the NorthEast.

Autism Speaks research restrictions and goals have already been addressed in this thread and evidenced as worthwhile ones, across the autism spectrum in the US as well as underserved demographics across the globe.

It is you that are suggesting that autism speaks, speak for autistics that can speak, not autism speaks. That is clear, as already addressed in this thread, by how the phrase is defined on their website.

There is no evidence that autism speaks has sued anyone in court, they have protected their trademark as obligated under US code, per a cease and desist letter, and nothing more.

Every fact I have presented can be validated. Nothing you accuse the organization of, per criminal or evil element, has been validated through evidence. I can back what I say with third party evidence. Can you do the same for any of your opinions that Autism Speaks has evil or criminal intent?

There is already close to a 50 page thread, where almost every possible imaginable accusation against the organization, has been addressed and evidenced, when false. It's linked earlier in this thread. There are probably bad things there that people have reported about the organization, that you may never have heard before.

The answers are available through a simple google search, per those reputable organizations, that examine charitable organizations, there is no need to take my word for it, because I am just repeating facts gathered from reputable third party sources. And if one doesn't want to do the google search, the links are all provided in the other thread, linked here in this thread.

If you have problem with any of the facts I have provided, I don't mind providing those links again. I enjoy pursuing evidence, that provides clarification on information, that does not sound reasonable to me.

And finally, I have no authority here, but just a suggestion, the signature line is not a good place to offer an offensive statement about any member here, nor the owner.

Last edited by aghogday on 08 Jun 2012, 10:14 pm, edited 1 time in total.

You can't deceive a public that won't listen because of prejudice.


Like hell they aren't. Have you ever had a panic attack just sitting quietly? Have you ever had to excuse yourself from a place you actually wanted to be - like a science museum or a party or a lecture - just because the people are making you nervous? Have you ever been told to leave a place you actually wanted to be because the people are making you visibly nervous?


Sure. Some people are having lots of issues with it and should certainly have viable services available to them. Now if only there were more viable services.


Did you know that some people are kicked off of sports teams specifically because they're autistic? How do you figure I'm elitist? I'm asking to be treated fairly and not be written off because I'm 'too normal' for you. Because I am not normal enough for most people, I do qualify as autistic under DSM-V, and my diagnosis has been rectified to suit that.


Exactly. Which is why there need to be better services available to the general public in the first place. If you continuously teach a fourteen-year-old first grade math for eight years, guess what math level he'll be at.

As for institutions, I was put in a psych ward for the aforementioned anxiety and OCD. I was hospitalized for the epilepsy. Those disorders are both linked to my autism.


Or you could raise awareness about the truth, which is that most "LFA" people will not function at a normal level if they are treated like children their entire lives. Parents of NT children would go berserk if they learned that their child was in the seventh grade and still learning their multiplication tables, but that doesn't seem so for parents of autistic children.


BS. You try informing your employer that you have an autism diagnosis of any kind and see how that goes. Oh, and if you say, "No, I don't have any disorders," and they find out about it, they can fire you for lying on your application.


How is wanting better actual services undermining progress? I would like for my brother to be engaged and happy rather than shoved into a room and treated like an idiot all day long like he has been for most of his life. Of course he's not going to make any progress like this - he's being treated like he won't make any progress.

Quite honestly, the attitude that LFAs will always be LFAs who lack "basic skills" is much more damaging than that.