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Is the charity group Autism Speaks doing more harm than good?
Yes, they are doing more harm than good 83%  83%  [ 67 ]
No, they are a charity doing great work on behalf of autistics everywhere 2%  2%  [ 2 ]
Unsure; Autism Speaks doesn't seem to make that much of a difference 15%  15%  [ 12 ]
Total votes : 81

CockneyRebel
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18 Mar 2008, 12:01 am

Nikky91 wrote:
I have no problem with an autistic charity that promotes warnings signs of Autism so parents can dx their children at a younger age. I actually aprove of it. But I find Autism Speaks to do more harm then good since they show autistics as just low functioning people that don't have a chance at a future. Also I believe that they also downgrade autistic people to a statistic.


That's the reason, that I'm dead out, against 'Autism Speaks'. I wish that they would speak with those of us who can speak, and break on through, to the other side. Pardon me...I've been listening to a lot of music, lately. :P


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18 Mar 2008, 12:04 am

Zarathustra wrote:
Pepperfire, if you do a search on NewsportBleachPseude's posts, you'll see that he get a kick out of winding people up, covert and overtly, and isn't an aspie and is just a playground style, internet bully. Just ignore him and eventually he'll pick on someone else. [But he will follow you from thread to thread for a while.]


I've noticed that, as well. I just ignore people like that, now. I wonder if Hitler was like that. I wonder if he was a bully, who never grew up?


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morning_after
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18 Mar 2008, 12:17 am

NewportBeachDude wrote:
Farsight, Cockney and Peppertree, it's clear you all hate Autism Speaks. Brothers! Hallelujah! But, why is so much time spent on hating and not supporting the organizations that you feel speak for you? Since I joined this board there have been countless hate threads on Autism Speaks every week. I have yet to see one, one, one, one, one, one thread touting the glories of the Asperger organizations stateside that support your mandates and what you all stand for which is to be left alone and not seen as disabled people. What perplexes me is that there is never any talk about the organizations you do like and the ones that you stand by. That's the point I'm making. But, you've got all the time in the world to go after others that are primarily for Autism, not Aspergers anyway.

And, what's even crazier, is that you hate anyone and anything affiliated with them. Barnes & Noble. Toys 'R Us. Hey, I heard several fastfood restaurants are considering putting their puzzle piece on their takeout bags. Let's all stop eating fastfood in hatred of them. As a matter of fact, let's all stop eating altogether. There's an idea. How about a hunger strike?


Now I don't hate them, but I can certainly see where all those posters are coming from.

And the reason for the rants is simple. Other organizations exist, but AS hogs all of the spotlight. They're the ones that put out the videos that get into the media. They're the ones that get all the government funding. They have all these different people and companies in bed with them.

In the meantime, the Vice President admits, unashamed, that she almost murdered her autistic daughter. Then the organization goes out and says not just that they want to cure autism, but that they want to eliminate it so that families won't have to deal with it.

There's only one way to really do that, and I think you know what that one way is by now.

As for organizations that I do support, I've been trying to get into ASAN, and I just joined Aspies for Freedom (at least their forums, but hopefully more).



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18 Mar 2008, 12:29 am

lau wrote:
Sorry Pepperfire, but please don't try sneaking the same half-truths past me. :)

You quote things like "more people will die this year of HIV/AIDS than there are autistics in the US". Now, you have to admit that what you are comparing there is deaths from AIDS, world-wide, with diagnosed autistics in the US.

However, you are right to note that I wasn't scathing enough about this "fact":
Autism Speaks wrote:
More children will be diagnosed with autism this year than with AIDS, diabetes & cancer combined.

Your comments make it clearer how devious this statement is. (And it got past MY B/S detectors! I feel quite embarrassed to say.)

    Yes indeed... I suspect:
  • Incidence and diagnosis of AIDS in children in the US is not common.
  • Incidence and diagnosis of cancer in children in the US is not common.
  • Incidence and diagnosis of diabetes in children in the US is the most common of the three, I would guess, by a long chalk.

So, one unspectacular truth. Diabetes, once established as a problem, is simply, and completely, manageable. By that, I don't mean to belittle it, at all.

Then two emotive and generally terminal afflictions thrown in to get people's attention.


How about we send AS this little known fact:

More children will be diagnosed with Autism this year than will die of old age.



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18 Mar 2008, 12:38 am

Pepperfire wrote:
DW_a_mom wrote:
Pepperfire, I love reading the information you post and learn a lot from it, but you do post as if you are in a huffy mood. I don't know if you mean to, or if you read it that way, but to a (mostly) NT like me, that is how it seems. Just in case you have any interest at all in knowing that.


Did ya ever notice that the people who accuse you of being "huffy" are the ones that ticked you off in the first place?

Quote:
NewportBeachDude is right about how one needs to navigate the world to get what they want. As many at this site understand through life experience, the world doesn't just look at how much you know, and navigating the unwritten rules of negotiation and ingratiation is extra difficult for Aspies. I have this conversation all the time with my son. He sees things so clearly, and where he wants to go so clearly, but that it can't just all fall into place that way makes no sense to him. My job is to help him navigate all that, and he is slowly getting it, and adapting to it. Anyone who wants to affect real change will need to acquire that skill.


And I disagree with this statement how?

NewporBeachDude has picked and chosen what he wants to see of my posts. If he bothered to get to know me and why I'm here, he'd know that I'm here for the same reason you are; to learn about how I can navigate my world, through the experiences of others.

He's decided that he's going to paint whoever he likes with his broad little brush, and woebetide the person who disagrees with him, because, after all, I'm not really autistic anyway. Right after not bothering to have enough respect for me to use my chosen name, what the heck was that comment supposed to do if not tick me off?

I personally don't appreciate being condescended to. I don't appreciate being lumped into a pile with other people (most of whom I don't even know), I don't appreciate being accused of being "huffy" just because I pointed out that he had my "name" wrong.

If I come across as "huffy" to an NT, it strikes me as more his baggage than mine, because honestly, DW, I am entirely ambivalent to what he thinks.

Fwiw, I'm here for the same reason as anyone else. I don't agree with Eugenics and if anyone is supporting eugenics, well all the power to 'em, but it isn't my thing. Someone started a thread entitled "What is truth about Autism Speaks" and I decided to post the truth as I saw it. If NewportBeachDud wants to think that is the be all and end all of me, then that's his error.

I have never said that there is no good in AS, in fact I've said the opposite. BUT, I will continue to state and restate unequivocally that any Autism organization that supports the concept of eugenics isn't about to get my support.


Pepperfire, the guy comes off like he's trying to troll you. I say leave him alone.



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18 Mar 2008, 12:48 am

morning_after wrote:
How about we send AS this little known fact:

More children will be diagnosed with Autism this year than will die of old age.


Argh. I took me about two seconds to get this - but is is coming up to 6am, so I should go to bed. :)


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morning_after
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18 Mar 2008, 1:05 am

lau wrote:
morning_after wrote:
How about we send AS this little known fact:

More children will be diagnosed with Autism this year than will die of old age.


Argh. I took me about two seconds to get this - but is is coming up to 6am, so I should go to bed. :)


Night lau. Sweet dreams.



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18 Mar 2008, 2:12 pm

morning_after wrote:
lau wrote:
morning_after wrote:
How about we send AS this little known fact:

More children will be diagnosed with Autism this year than will die of old age.


Argh. I took me about two seconds to get this - but is is coming up to 6am, so I should go to bed. :)


Night lau. Sweet dreams.


Lau might have got it, but it went right over my head! Splain yourself Lucy!



lau
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18 Mar 2008, 2:46 pm

How many children do you know who have died of old age?


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18 Mar 2008, 2:55 pm

lau wrote:
How many children do you know who have died of old age?


With the sole exception of those kids who have that malady that makes them ancient before their time... none.

I get it... Doh! :D



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18 Mar 2008, 2:57 pm

NewportBeachDude wrote:
Farsight, Cockney and Peppertree, it's clear you all hate Autism Speaks. Brothers! Hallelujah! But, why is so much time spent on hating and not supporting the organizations that you feel speak for you? Since I joined this board there have been countless hate threads on Autism Speaks every week. I have yet to see one, one, one, one, one, one thread touting the glories of the Asperger organizations stateside that support your mandates and what you all stand for which is to be left alone and not seen as disabled people. What perplexes me is that there is never any talk about the organizations you do like and the ones that you stand by. That's the point I'm making. But, you've got all the time in the world to go after others that are primarily for Autism, not Aspergers anyway.

And, what's even crazier, is that you hate anyone and anything affiliated with them. Barnes & Noble. Toys 'R Us. Hey, I heard several fastfood restaurants are considering putting their puzzle piece on their takeout bags. Let's all stop eating fastfood in hatred of them. As a matter of fact, let's all stop eating altogether. There's an idea. How about a hunger strike?



As soon as someone donates 30 million dollars to start an Autism Organization that actually speaks for autistics, I'll gladly talk about them. As it stands, Autism Speaks too financially significant to ignore. The negative impact they're having is significant as well.


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18 Mar 2008, 9:58 pm

Yeah, and their subtle hate speech.

Does anyone catch their hate speech?



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19 Mar 2008, 2:10 am

NewportBeachDude, the simple fact is that Autism speaks choice of a self descriptive term(Autism Speaks) is at odds with their mission. Without debating all else, their very title is deceptive. They speak for parents.



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19 Mar 2008, 3:02 pm

Zarathustra wrote:
Pepperfire, if you do a search on NewsportBleachPseude's posts, you'll see that he get a kick out of winding people up, covert and overtly, and isn't an aspie and is just a playground style, internet bully. Just ignore him and eventually he'll pick on someone else. [But he will follow you from thread to thread for a while.]



So, it's you again! I thought you were going to ignore my posts since you don't agree with anything I say and you slammed me before for stating an opinion.

I think I've made some good posts on this board and have enjoyed chatting with many people here, including people I don't agree with. It's a lame excuse to call someone who supports Autism Speaks or doesn't hold your viewpoints covert and a troll (mentioned above). Name calling won't win your arguments. That's the last resort of someone who doesn't have anything else to offer. I'm not a bully just because I support a group you all hate. As a matter of fact, it seems like hating NTs and Autism Speaks is a sport for many here, so who's really the bully?

Well, I don't go there. I don't hate other people. I don't organizations. And, I don't diss one that's doing a good service to the community. Again, if you don't like this one, why are you not supporting ones that you believe fit your goals? That is the million dollar question you all seem to skirt, yet readily villify an organization that's not even for you! It's for Autistics. And, I happen to be the parent of an Autistic son.

If you're going to spend all this time villifying one group, why don't you give me solid, sound examples of another organization like it that represents the Asperger community 100%, 100% of time. I'm waiting.

Name calling will never win your argument. I've got some solid posts on this board, well thoughout, interesting and even supportive (Parent's Boad and General Discussion). Have a look. No matter how many of these threads you start, I will still hold the same position. And, as long as this board is open to Members, I'll state it.



Last edited by NewportBeachDude on 19 Mar 2008, 3:21 pm, edited 1 time in total.

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19 Mar 2008, 3:19 pm

DW_a_mom and SDFarsight, I totally agree with your posts. It is futile of Aspies to spend all this time hating on this organization when none of them is doing anything constructive to bring their grievances to the attention of Autism Speaks in civil way, whether they're legit or not. This is my opinion and I stand firmly by it, I think some of their grievances are misguided because they are high-functioning people who don't have the issues that many low to mid-functioning Autistics have. And, they're not raising severly Autistic kids.

Personally, there should be room on this planet, ones for research, ones of awareness, ones that seek a cure, ones for treatment, ones for support, etc... If Aspies don't like any of them, you can start your own. So many people here don't like any representation of Autism because they think it makes them, high functioning Aspies, look bad. Again, start your own. Let the world know that you are not like the Autistics ASpeaks talks about and leave that group to those who want what they have to offer.

Last, how about my post about some of the issues facing Aspies right now, particularly children. Who's going to tackle those issues? Autism Speaks, of course.



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19 Mar 2008, 5:00 pm

NudesportLeechFrood, I was talking to Pepperfire, not you. I don't like to see Jerks picking fights and deliberatly winding up Autistics. This is a support forum for Aspies, not a playground for you to get your rocks off in.


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