Why isnt there anything out there for adults with AS?

Post Reply New Topic

I just completed a letter to send to local authorities about the lack of adult autism services and had someone proofread it. I wrote about how government guidelines aren't being followed because they are not providing services for adult autistics, and added plenty of references. The person proofreading it surprised me and said they think it will make whomever reads it s**t themselves, and how it's most likely they'd never have received a letter that well researched. Recently, one of the top managers in my area responsible for allocating patient services got in trouble for boasting how much they get paid when all their job entails is lying. It's made me determined to continue pestering them in writing.

Last edited by outlier on 31 Dec 2008, 8:13 pm, edited 1 time in total.

If you need any help pestering, let me know. I like to pester.

Things aren't so good in my State:

The slow pace of a few judges and an overwhelmed staff at Portland's Social Security hearing office are key reasons that people seeking disability benefits here endure some of the longest waits in the nation.
Across the country, it takes an average of 480 days to get a judge's ruling on a Social Security disability claim -- but 650 days if your case is in Portland.

The problems in Portland reflect a broader national crisis, according to Social Security Administration records obtained by The Oregonian under the Freedom of Information Act. Only about half the agency's administrative law judges here meet its minimum goal of clearing 500 cases a year. Only three of nine Portland judges hit that mark in recent years, agency records show.

Last year, according to the national records, 132 of the agency's judges -- about 11 percent -- failed to reach even half of the agency's goal, dragging out appeals of disability claims as people faced financial ruin, got sicker and even died waiting

http://www.oregonlive.com/special/index ... ity_c.html

Last edited by sinsboldly on 01 Jan 2009, 12:19 pm, edited 1 time in total.

I had to get help through my state's MR/DD program. You have to check with each state you're in.

Also, you should contact ARC (Association for ret*d Citizen) but they do help any person with Developmental Disabilities. And there are some good Mental Health programs in each states.

Happy New Year!! !!

We've tried several different things: a round table discussion (perhaps a bad idea?), a lecture format, and I'm thinking of trying a coffeehouse/game night. I was thinking we might have a space for video games, a space for beanbags and bookshelves, and a space for board games with fewer social rules, chance and/or strategy (like Uno, Stratego, Risk, Scrabble, etc.). For example, I personally like Apples to Apples, but I feel uncomfortable playing it with people I don't know because there are social rules built in. You have to know the people you're playing with in order to succeed. What do you all think?

Also, I read about some challenges built into having such a group. Very interesting! How do you think a support group could foster common ground between its members, especially since the challenges that some of us face involve communication itself? My group does not allow personal information to be given out, and what is discussed in the room stays there. We *only* know each other on a first name basis. What other privacy measures would you all suggest in order to make everyone feel comfortable sharing, or even coming?

I also read the post that states that a possible problem could be that nobody knows about it. Could it be that we are not advertising properly? We currently advertise in two local papers (a town paper and a classified), but I have suggested turning to webcomics on the Internet. What would you all suggest?

I want my group to be a safe haven to all who would join, a resource for adults on the spectrum, and a bridge between Aspies and NTs. We're not there yet, but we're striving. I look forward to reading everyone else's suggestions.

if any england based aspies/auties want ideas of how to get access to support/services and what is available,send PM as have got a lot of details about this,most adults on wp/other forums seem to think there isn't much available but thats because it isnt made obvious to those outside of adult care/those without a social worker.

the biggest problem for both aspies and auties in the UK,is not the lack of services and support available but getting the funding for it in the first place.

there is online, u just have to dig a little deeper. For example, I bought a book called Look Me In The Eye and it was written by John Robison, a man who did not know he had Asperger's Syndrome until he was 40 years old because the information he needed didnt exist when he was a child. When I was diagnosed there wasnt anything for teens and adults with AS. Times have changed...for the best

I was 58 when I found out. I still have to figure everything out for people that 'want to help.' Times have changed for the children and I appreciate that.

Merle