Autism Politics - Insulted At Everything You Disagree With
Autism politics is a very different psychosocial sphere then racial and gender based advocacy. Having been involved for over 8 years in the online self-advocacy movement but leaving the past two years for local advocacy I understand a fair amount of things. Unfortunately my blunt speaking and seeking facts makes people upset at times but I've been told to ignore that and just say what's on my heart.
My job is to study the sociology and general social psychology of the autism community when applicable to core interests that divide. Fortunately my analysis and professionalism requires I don't take anything personally for reasons of bias. However there are some things I cannot really help but have an emotional reaction to like the I AM Autism Video. I already felt bad about costing people money and I've heard the hate of some people about how people with DD are lazy and cost allot of money.
In this post I'd like to explore what people are offended by and why they are offended. If you could post some subject that people find offensive in the autism community at times I could really figure out the possibilities why.
Nathan Young
Oh that's really interesting. I am just getting involved with the self-advocacy movement. It's a little difficult to comprehend what all the issues are because there seem to be many points of force. I'm offended by the line: "I will bankrupt you for my own self-gain." Yes, autism can be expensive. I can see how much a struggle autism could be for a parent who totally doesn't understand or knows what to expect. But that's out of proportion. How do you yell at something that is a part of who a person is? It's like battling extroversion, shyness, or an affinity for mechanics. It's a weird piece. But, I'm pretty much offended by that mindset of "wah, autism!" Those people don't even understand what it's like. In fact, most, if not all of those people seemed to be relaxing, having a good time, or were absorbed in their environment and having a good time. They don't look like victims. It seemed like the people making those videos were more like the victims. I know you are more debilitated by some issues of autism by your previous posts (and I'm familiar with your work.) Do you feel like a victim? I don't feel like a victim. You label someone a victim and you take their power away (not you specifically...I hope you all know what I mean.) That and people exploiting a disability to meet their own needs. Grrr....and the person who couldn't spell and also couldn't accept her son for the way he is.... (a comment on youtube.) I could go on. Bigotry.
In order for progress to be achieved we must find as many allies as possible. Mutual alienation derives fewer results. Sometimes in spite of perceptions we must attempt to progress licking our wounds of insult. If a dog could speak comparing men to dogs perhaps the dogs would be insulted. The point is parents are emotional, they want help, they want help for their children and sometimes but this is not the case all of the time they will be so desperate for it there is a kind of social friendly fire. To me there are more important achievements to come that might be derailed by separatism, the words used and the mainstream political intrusions that promise the world in ideology to those with autism and other developmental disabilities but yet fail to follow through mutually because they were in competition with one another in the first place to win elections.
Give me an example of insulting pathology. The problem is autism is a label others seek to understand. It's not logical to me to say people cannot try to understand others who want help. So psychopathology and general medical pathology is an area of science that others have chosen to be understood through. Your or my being insulted may only be respected if others used these verbiages to bully such as calling someone a ret*d whereas retardation was never intended to be an insult as a label. I'd just as easily find being called autistic rather then my name as an individual insulting for similar yet different reasons then the "R" word. It makes me into some label other people applied to me as my identity and some kind of personality which is grossly intolerant per say. When malicious usage is present I think the dignity argument fits better. If this has to do with the ultimate development of a prenatal test for autism or anything that may lead to it thats a politic you need to take on as I am not allowed to in my job.
Note: The first post reply I will reply in depth to tomorrow. It is my time off now.
Mindslave
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Joined: 14 Nov 2010
Age: 36
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I'm offended by every advocacy gathering I've ever gone to. All these "experts" and none of them are on the spectrum! They invite one or two people to speak, but they don't care what I have to say, because they are so interested in their expertise that they forget I have insights they will never have. The worst part about those meetings are phrases like "We need to think about such and such" They are more interested in a circle jerk than they are trying to find real solutions to the problems. I give good suggestions, but what do I know, I'm just a ret*d with Asperger's that doesn't have a fancy Ph.D from Smartypants University. I rock the boat too much, and they don't like it, because then they have to think, and thinking is too much work.
ci I bestow the honorific of threadstigator upon you. Good work on putting these thought provoking threads up.
Anyway what gets me annoyed is people who are opposed to a development of a cure for Autism. Now granted a 'cure' is a nebulous thing to define since we can't even agree on the disorder or if it is one as such, but anyway when some intelligent person with excellent written skills posts something along those lines and I think of my son who would really benefit from being able to talk (so we can help him with what he wants) for example, well then that offends me. Who are they to speak for other people?
Well I think I can see reason why autism advocacy will never reach the support levels of racial/ethnic or sexual orientation advocacy.
See those types of groups are defended on the basis that they're human beings no different from straight white people and that they can communicate and socialize and care for others just like any human.
Hate to say where I'm getting at with this: but these same kinds of people don't look at autism in the same manner. We lose support from NTs due to our awkward manner of communication that often comes off at rude. You look at a person the wrong way and you can bet to pay the price. Autistic people have the greater challenge of not being able to control the very things that the human race will universally judge the most...our social skills. Social skills take precedence in the eyes of many over our race, our sexual orientation, etc. Not saying that's a bad thing. It makes sense but in the end autistic people get the short end of the stick no matter which way you look at it.
Autism Advocacy itself continues to be a pain. The majority of campaigns against autism are no different from Autism Speaks in that the groups consist of parents who are constantly victimizing themselves because their autistic children are sucking away at their social status or their normal daily routines. What a joke! I doubt you'll hear parents crying this much if they had a child with Down Syndrome or Cerebral Palsy because their disabilities dont have half the tantrum power that autism does.
How ironic is it that the parents of autistic children are victimizing themselves more than the children who have it? They think their life is miserable? How about thinking about what your kid is going through (like having to put up with your moaning about the situation) for one damn minute!
Thank you!
That has got to be one of my biggest pet peeves.
Thank you!
That has got to be one of my biggest pet peeves.
Alice, isn't that the same as human rights campaigners speaking for how criminals should be dealt with? I think the victim's family should have some say in the punishment.
_________________
'Ave we had a national f**king stroke!??
Thank you!
That has got to be one of my biggest pet peeves.
Alice, isn't that the same as human rights campaigners speaking for how criminals should be dealt with? I think the victim's family should have some say in the punishment.
Seriously, dude?
You're comparing apples and oranges.
No, actually, you're comparing oranges and artichokes.
What?
Dude, why do you feel the need to decide for other people what they want for themselves?
Just because one person doesn't want to be cured doesn't mean other people don't want to be, or aren't curious about a cure (me).
What?
Dude, why do you feel the need to decide for other people what they want for themselves?
Just because one person doesn't want to be cured doesn't mean other people don't want to be, or aren't curious about a cure (me).
No, what? I wasn't talking about autism. I wouldn't blame anyone for wanting to be cured.
_________________
'Ave we had a national f**king stroke!??
What?
Dude, why do you feel the need to decide for other people what they want for themselves?
Just because one person doesn't want to be cured doesn't mean other people don't want to be, or aren't curious about a cure (me).
No, what? I wasn't talking about autism. I wouldn't blame anyone for wanting to be cured.
Then what were you talking about?
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