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i have been mocked and laughed at by everyone here for thinking autistic infighting can be stopped,ive even been called a hippy.last night i got an email saying there was a new forum topic on autism speaks.i mother of an autistic daughter wanted the opinion of a real autistic,no one here would ever think that would ever happen. i said i have no problem with a cure as long as no cure is promised.i said beware of snake oil and leatrile but stopped short of actualy accusing autism speaks directly of it.i believe cooperation can happen if are patient and if you feel nothing but hate AS they surel wont listen.its a very small step but its a start

I have not seen many people at all mock you on this website. Hippie is a good classification in autism politics. It means you want people to get along. However just say no to drugs of course.

Well that last bit is all about personal preference, and I can't say I totally agree.

The brain has enough natural drugs from emotion.

Yes and I just happen to have more of the natural drugs in my brain that make me feel like crap then the ones that make me feel good...so i have to balance it out somehow.

ok well maybe weve just started a anti infighting movement on this form,ill update you if autism speaks responds or deletes my account ha ha ha

The impression I have gotten is Autism Speaks does not really care about how people with autism or aspergers feel about it. And I certainly have no use for an organization that claims to represent people like me while ignoring anything I or anyone else might have to say about it.

That is nice.

Perhaps it is hard for them to both support individuals that are proud of difficulties and those who feel specific aspects of themselves are disabilities.

Pills are nothing to be ashamed of when prescribed.

As I have been speaking about perhaps they are protectionistic of the human right for treatment advancements. Imagine if you owned a business to help people who chose treatment advancement research and then were pressured to allow the likes pride advocates to go into an event and say how bigoted you were for supporting those rights. I for one wouldn't allow for it but I would confront it and when people mal-interpret things, play victim of words and simply seem so suffer from hypochondria when applicable I'd avoid them too but properly confront them. The reason Autism Speaks is not a civil rights platform for pride is because they are a treatment rights organization and special interest would love to destroy those rights as it would cost less money directly to organizations that provide such funding but collectively not to society for instance.

This is a very complicated issue and I welcome full public discussion about it. It's amazing what pride doesn't want to talk about or rationalize with concern. I am not sure of your personal intentions but if you both notice the extremes and what is at stake.

This video may be akin to the intentions of those who believe in "cure" when applicable.

[youtube]http://www.youtube.com/watch?v=BWf-eARnf6U[/youtube]

@sweatlief,sorry my previous response to you didnt go through.the whole point of my post was to show AS doesnt always exclude autistics from there org.also AS is a sapport group for parents of autistic children,they dont claim to be represnting autistics,what this forum is for

@ci is the asan presure they put on you to be against cure more harmful than autism speaks exposing chldren to diseases by promising that not vaccinating would save children from autism.it is scientific fact that measled is on the rise in both usa and europe,we are now watching they neo polio,measles and small pox generation.also you must work with some clients in you advocacy business that are non verbal.would you consider having them join the asan and via computer represent a wider neurodiverse viewpoint of the autism spectrum.you cant say they wont listen if you dont try

I am not aware of any anti-vaccine agenda by Autism Speaks. It may be some of their followers. You know my opinion about the vaccine issue. Even so vaccine is not an item of concern in my advocacy. The preservation of human rights is however a concern. To have pride in a pathological label about impairment is what insurance companies would love. Special interest would love to use the emotional sensitivities and self-esteem of individuals with autism and call them the label as an identity such as autistic and make them think negativity about the label is like Jewish in WWII and so on.

The privacy of individuals I work with is important to me. At a later time if when individuals sign a release I can allow them to speak through the organization. At this time it's been mainly anti-R-word stuff through an organization I work with. Other-times people don't even know their diagnoses. For me I would rather not focus to much on it.

The Autism Speaks forum on NING is heavily vaccine politics. not very active either. Only a handful of people arguing the same topics over and over with a sprinkling of rational parents honestly looking for help tossed in. There are a few on the spectrum as well and usually their advice is very welcomed. But I've aslo seen the negative side of that - people who think those here on WP aren't 'autistic enough' if they can all type and express themselves. There also seems to be some negative attitudes as well about WP becasue of all the outspoken Aspies (apparently a 'curebie' parent got himself lambasted here).

Seriously - I agree vermontsavant. Can't we all just get along?