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Tambourine-Man
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09 Oct 2011, 9:39 am

I recently tried to log into my AFF account and received this notice...


Your forum account is currently banned.
Ban Reason: Concealing working for Autism Speaks
Ban will be lifted: Never


Since when did I work for Autism Speaks? Why didn't anyone tell me? I don't remember a job interview.

Ha ha. I guess because I write some blogs for their website I must be on their board of directors.


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09 Oct 2011, 11:32 am

I guess they are using guilt by association. In the past As was a bit clueless but they have improved in the past few years. As for aff they appear to have you have to be right from the start stay right no room for change. For or againist thinking it fits with the dx give aff some slack they might come around someday.



yamato_rena
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09 Oct 2011, 12:18 pm

Is there any way to appeal so that you can at least get some more details? Maybe it's a misunderstanding.



aghogday
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09 Oct 2011, 1:23 pm

It makes absolutely no sense, it would be great if Autism Speaks did employee you to present a view of another individual on the spectrum.

Ironic too. One of the major issues has been censorship and better representation of individuals employeed on the spectrum by the Autism Speaks organization.

Even if you did have a position in the organization, paid or not paid, it should be cause for celebration that the organization is hiring more individuals on the spectrum.

And, the fact that you can be banned if you don't list where you work, is a type of censorship, worse than anything I have seen autism speaks accused of. Isn't that your personal business; is it required that everyone divulges where they work over there? Are there places you can't work, if you are a member over there?

They ban people that spam over there just like they do here, but instead of banning John Elder Robison, who happens to be a well known autistic person associated with the Autism Speaks organization, they leave a scarlet letter, that he is a TMS spammer by his name and no one should pay attention to his posts, but yet state that he is not a spammer, not banned, and welcome to post.

All he did was talk about TMS research for Autism he was part of, and that he believes it helped stimulate his mirror neurons and looks promising; it's not even approved as a therapy for Autism yet, so he can't possibly be spamming something to Autistics when it's not even available for use yet.

Putting a statement by John Elder Robison's name not to listen to what he has to say, but not banning him, is also a form of censorship.

If your sister isn't banned for being the sister of someone concealing they work for the autism speaks organization, she might raise these questions, to get some firm answers of where AFF actually stands on these issues.

Do they not want people on the Autism Spectrum working for Autism Speaks. And if a member there get's a job with Autism Speaks, is it required that they divulge where they work, and if they don't is it a bannable offense?

Apparently it is, if so, it's censorship of the worse kind and also invasion of privacy, technically according to the site rules over there you aren't required to list any of your personally identifying information.

I would be interested to see how they can possibly provide logical answer to these questions.

It bothers me a little bit, because I was accused for working for Autism Speaks, by a couple of members here because I provided some evidence that proved they weren't entirely a bad organization. At the same time they were complaining that Autism Speaks doesn't hire enough Autistic people.

The irony is incredible. They had a right to their opinions, if it had happened over there, I guess I might of gotten banned, if people decided I worked for Autism Speaks.

This issue really needs to be addressed over there, it's making it look like we have more to fear from those that are supposed to support us than those that are suggested to be against us.



Tambourine-Man
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09 Oct 2011, 3:37 pm

I'm not going to push the issue.

Yes, I certainly see the irony, but black and white thinking comes part and parcel with the autism diagnosis. Unfortunately, there is no room in political progression for this kind of perspective.


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Gedrene
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09 Oct 2011, 4:45 pm

aghogday wrote:
The irony is incredible. They had a right to their opinions, if it had happened over there, I guess I might of gotten banned, if people decided I worked for Autism Speaks.


Aghogday has a tendency to try to be unfailingly polite and has a very strong tendency to trust in officialdom. When he's not only showing how a group of people are idiots, and also accuses them of bureaucratic bluster, and that it sounds credible, you know something is going down.



vermontsavant
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09 Oct 2011, 5:19 pm

i dont know much about the AAF,but from what ive heard the me,berships not worth keeping anyway


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League_Girl
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09 Oct 2011, 11:17 pm

The site owners are a bit paranoid.



Inventor
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10 Oct 2011, 1:49 am

The two self advocacy groups both hold narrow views, a script, and it reads, Autistics are Idiots.

Strange that both have the same script. We Hate Autism Speaks, and we are idiots.

Counting Autism Speaks, ASAN, and AFF, less than a hundred are running a Media Program to discredit three million autistics.

Autism Speaks does come from Media, and Press Releases showing those who do not follow our way are idiots, are a political disinformation action.

Moderate and progressive views on autism are not welcome by those who want control of the money.

For example, ci. Someone set the hounds on him for saying autistics could be self employed. Local, self organized, and of direct benefit to autistics. That set off national alarm bells, what if all the autism money went to autistics?

ci was targeted, for a national organization, and their national hand picked opposition, have a lot invested in picking off the autism money at a national government level. All of their investments in Congress would be for nothing if funding went to State and local level programs, and directly to autistics.

One view is that money is needed to support cocktail parties in New York, with high paying jobs, and directing the remaining funds to important people, research grants for their academic friends.

This has produced nothing, consumed a Billion, and most of the Autism Science we have has come from genetic study of the neanderthal, which they had nothing to do with. Autism Speaks has produced nothing, comsumed much, and tries to continue their lifestyle.

The situation is the same as when they started, the 1% autistic mostly work, and Awareness has only limited their world. The Propaganda has been that autistics are a serious problem, but we have always been around, got by, till the National Marketing of Autism Speaks reduced our chances of just living our three million lives.

Autistic Self Advocacy has shown us as idiots, street thugs, terrorists. They all work from the script you are idiots who hate Autism Speaks.

I see it as one group. Seeking the control of money and power by exploiting autism.

On the other side, three million, who are interested in education, we are Bookish, job training, affordable housing, higher income, we are traditionaly underpaid. ci showed that people at the Group Home level of Autism could band together for employment. Most of us do not live in Group Homes.

We have been excluded, National Cocktail Parties in New York that fund second rate research and street thugs are out to be the only voice of autism. They have friends in Washington, National Media.

We three million have the same problems as ever, and now another.

They seek to steal our voice, reduce us to dependants on their view of autism, and have never done anything that has improved our lives. When we speak, act, with some understanding that as a group, we are a public expense, and we are less productive than we could be, that there could be a better path forward for all, someone sends in the goons to disrupt.

We are Autism, we will live our three million lives, and we are the only people who can change things. Now we are under a Political attack, from the Right and thier other Right.

It is all about money, control, politics, and none of these groups have done anything for us. All of their actions have been for one cause, placing themselves in position to gain income.

We are the 99.99%, every dollar that goes to some national organization comes out of the little that is for our support, which should be going for education, employment, housing, supports needed so the autistic can at least function at the level their education and IQ suggests.

Childhood is an issue, but only for a short time. That some will spend their lives in Instituions is an issue, one that there are no answers for.

The one big problem is almost all of us will live adult lives. Many of us have, and have learned what works for us. Adults not in Institutions have been excluded. We lived, had jobs, businesses, homes, families, but our view is replaced by some Doctor of Psychobabble at UCLA, funded by guess who.

There can be no study of Autism without looking at adult outcomes, which we have millions of. We learned in the field.

Nothing has been learned of Autism, it is not a Genetic defect, there are no drugs that treat or cure. It is a Differance of Thought and Perception, lifetime, unchangable, and we are the people who live those lives.

I find a common culture on Wrong Planet, an Autistic Voice. Studies show that 30% of all have some autistic traits, and almost all function in adult lives. We are known for producing Geeks, Nerds, Professors, Inventors, First Chair in Music, a narrow focus does produce.

Autistic adults are the vast majority, and the only experts.

Developing our common culture is the best path forward. All groups have an identity, Amish, Hasidic, Hispanic, Autistic, they hang out with their own, it is because they share in a cultural identity. In all groups it is the elders that speak from the wisdom of time. No one would put up with an outsider group wanting to Cure Amish Now, with Drugs, haircuts, and polyester suits, and imposing LA or NYC Anglish Culture.

Occupy Autism, for we are millions of voices.



blue_bean
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10 Oct 2011, 3:06 am

God not this s**t again.



OrangeCloud
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10 Oct 2011, 7:03 am

I suppose it depends on how "working for autism speaks" is defined. I think that writing blogs for their website is working for them voluntarily to a small degree. It's hard to know whether they have banned you for the fact that you "work for autism speaks" or the fact that they think you have concealed the fact that you "work for autism speaks." If you had concealed the fact, then this may be breaking the site rules. So it might just be a technical matter of breaking site rules, as opposed to banning you for working for someone that they don't like.

(Just to add that I have no idea of how involved you are with autism speaks or if you have "concealed" anything, I'm just trying to figure out how they percieve the situation and why they have banned you.)

ahogday wrote:

Quote:
And, the fact that you can be banned if you don't list where you work, is a type of censorship, worse than anything I have seen autism speaks accused of. Isn't that your personal business; is it required that everyone divulges where they work over there? Are there places you can't work, if you are a member over there?


I think it is a different matter when you work for an organization (x) that has an extremely bad relationship with another organization (y), and whose interests are percieved to be opposed to each other. If I were the boss of organization (x) and someone from organization (y) wanted to have some involvement with my organization, it would be wise of me to obtain the information that they are from organization (y). And if they concealed that information, I would suspect that they are an infiltrator who wishes to do harm to my organization, or at least, I wouldn't trust them. And would probably ban them to be on the safe side. Ideally no-one should have to disclose where they work if they don't want to, but we don't live in an ideal world.



Tambourine-Man
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10 Oct 2011, 9:39 am

Nothing has been concealed, quite to the contrary, I have practically broadcast my every move.


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http://www.facebook.com/pages/JohnScott ... 8723228267


OrangeCloud
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10 Oct 2011, 1:09 pm

I don't know why they've banned you then, seems a real shame. I joined them last Wednesday I'll see how it goes, my experience there has been good so far.



skyblue1
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10 Oct 2011, 5:59 pm

Try to get over it TamMan.

Your motives for being on AFF were examined. Upon careful examination, it was determined, that your agenda affiliates you with AutSpks.

You may not be, being paid, but your actions, were and are, a payoff for AutSpks.


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skyblue1
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10 Oct 2011, 6:04 pm

After Checking further:

You have been writing articles for AutSpks for a long time; You were neither neutral nor impartial. Amy banned you when she found this out.

There ya go


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aghogday
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10 Oct 2011, 7:06 pm

It's their site; it's there business, but as an organization that supports neurodiversity, there is no evidence in this case that they support it. Nothing with out us, apparently means nothing without us unless you do exactly what we tell you to do, in this case

Check out his blog, it's about neurodiversity. He's doing something to promote positive awareness for autistic people. It's shared here now, and in Israel by Ken G. In addition it's been well accepted and appreciated by parents that support Autism Speaks.

There is no evidence of any article that Tambourineman has done for Autism Speaks on the internet before September 29th. Google doesn't lie. Even if he did and presented the neurodiverse point of view he did on September 29th, it doesn't make him partial to what is considered Autism Speaks ideology.

The complaint has been there have been no autistic voices heard at Autism Speaks, now we hear one and the complaint is there are autistic voices at Autism Speaks.

There is plenty of hope though, many of us understand how to support each other, regardless of our diversity, or differences of opinions.

It appears this site, where what one does in their private lives is not a requirement of membership will continue to flourish, unabated.