That lack of research is the reason that unlike for most if not all other widespread conditions professional knowledge is appalingly lacking leading to mis and no diagnosis. Many autistics do know more and a lot more about autism then the clinicians they visit. The idea of a patient self diagnosing because they claim they know more then a proffessionally certified pro is considered preposterous and people who do that are subject to sustained criticism and for good reason. Autism seems to be an exception to the golden rule sans critism.
This is a horrible situation. While the bright hyperfocused self diagnoser may know more then most of the pros they are still drawing from a limited knowledge base and unfiltered self reports.
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Professionally Identified and joined WP August 26, 2013
DSM 5: Autism Spectrum Disorder, DSM IV: Aspergers Moderate Severity
“My autism is not a superpower. It also isn’t some kind of god-forsaken, endless fountain of suffering inflicted on my family. It’s just part of who I am as a person”. - Sara Luterman