NO LIMITS: Kreed has passed away (from Kreed's World)

Post Reply New Topic

(according to Kreed's World:)

Our sweet boy Kreed Joshua fought a valiant fight.
Friday night he was swinging high at the park, and by Sunday he had stopped breathing and was on life support. We worked tirelessly to help him and in the end it just was not enough. He is so complicated medically that the doctors could not figure out why he stopped walking in Feb and was in so much pain, or why he continually kept Hypoventilating causing his co2 to constantly rise sky high and why he couldn't keep his oxygen levels high enough. It is so frustrating that a diagnosis didn't come in time to save him. He will likely be diagnosed with a defect in the Mthfd1 gene which is super rare and which only 5 people in the world have, but even with a diagnosis not much is know about it, so it probably wouldn't of even mattered. Doctors agreed at the end, that this rare metabolic condition was life ending and nothing would have helped him to breathe better. His body was beyond repair.
We are so proud of our boy, he was always such a strong fighter and was usually so resilient with anything life threw at him, but in the end his body just gave out and was suffering too much for too long. And as his parents who put everything we had into him we are just so relieved for him that he doesn't have to be in pain and suffer anymore. All Kreed ever wanted was to have fun and to feel joy and despite his medical issues he really lived life to the fullest! We will never forget his infectious, big as life personality and to die for dimples, he didn't need to be verbal to be heard and seen and felt by everyone who knew him.
If you want to do something in honor of Kreed then please live everyday to the fullest despite how yesterday was and what tomorrow might bring because that is how our Kreeders lived everyday of his life, he never missed a chance to experience the joy in life!
Thank you all for following him and realizing what a special boy he was. He will be greatly missed and always loved! Nothing has ever hurt so bad physically and mentally in our life. To lose a child is like losing a part of your heart, especially a child who was never far from our side and consumed most of our days. We don't even know what we will do with ourselves now, he was our life.
Sept 9, 1997- May 12, 2016

also Cyndi (from streamofawareness) misses Kreed too and prayed for him...


NO LIMITS