Discrimination and acceptance
ASPartOfMe
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I'm autistic, not a child: Are casual cruelty and condescension neurotypical traits? It's been socially acceptable to belittle me for the way I converse. I'm not being silent anymore
Matthew Rozsa is a breaking news writer for Salon. He holds an MA in History from Rutgers University-Newark and is ABD in his PhD program in History at Lehigh University. His work has appeared in Mic, Quartz and MSNBC.
These were the words of an adult, spoken to me when I was an undergraduate — and while he didn't explicitly state that his prohibition on "excuses" was meant to silence me from bringing up that I'm a high-functioning autistic (then known as Asperger's Syndrome), that was the undeniable subtext. More than a decade after I was screamed at in this way at length — and in a car, with no exit strategy and thus no socially acceptable option but to silently take the abuse — the words still sting. In my own mind, the segue from Tim Burton's movies to German expressionism to World War II was a natural one, interesting to others because it was fascinating to me. To the adult driving us to an airport, it was an intolerable breach of social norms that could only mean one thing: I deserved a swift, sharp rebuke.
When you're on the spectrum, it is easy to get lost in your own little world of sweeping ideas and tumbling verbiage. The intention is never to steamroll other people, and when it is noted that we're doing this, most of us will apologize and stop. But our brains are wired to be unable to intuitively pick up on the unspoken social cues that neurotypicals — that is, non-autistic people — can take for granted. They are also programmed to monologue at length about subjects we enjoy, a habit that is rewarded in certain contexts and brutally punished in others.
This is one of many, many, many stories that I have of being humiliated, rejected, set back in my life goals or otherwise harmed because I am on the autism spectrum. Each one provokes feelings of shame and self-loathing, a sense that I probably deserved it because — after all — isn't saying otherwise tantamount to precisely the kind of "excuse" that authority figured regularly forbid?
Emotionally, I doubt that I'll ever stop feeling this way. Intellectually, though, it is gradually dawning on me that the correct response to being treated like this isn't resigned silence combined with deeply-felt shame. No, the correct way to respond is to be pissed off at neurotypicals who act like jerks — and to proclaim that the burden rests on them to grow up, not on autistic people to magically stop being autistic.
Acknowledge your neurotypical fragility.
I've noticed that most people who discriminate against non-neurotypicals don't consciously think "I hate autistic people" or anything to that effect. It is simply that, because they are used to people presenting themselves in a neurotypical fashion, they react with hostility or disdain for those who do not present themselves in a neurotypical fashion. As a result, when someone points out that they're being ableist or discriminatory, their instinct is to get defensive, particularly because they may not realize what they're doing.
Here's the thing they need to realize: Discriminatory behavior doesn't become okay simply because you don't realize that you're discriminating. It is fair to say that you shouldn't be judged as a bad person if you didn't know you were hurting someone... but only if you admit your mistake and correct it. If your response to being told that you've discriminated against a neurologically atypical person is to deny it and continue being intolerant, then you lose any sympathy that might have been earned through initial ignorance. At that point, ignorance has become your choice, not a mere accident.
If someone's behavior could be plausibly explained by an autism spectrum disorder, that's probably the explanation.
One of the most common arguments I hear from neurotypicals is that someone isn't really on the spectrum, they're just "choosing" to act like that. Setting aside the puzzling question of why someone would deliberately alienate other people and set themselves up for a lifetime of poverty and rejection, all in the name of behaving oddly, the reality is that enough information exists about the symptoms of Asperger's Syndrome that it is easy to pull out your phone and determine whether a person's abnormal traits can be explained by it.
If they can, then being a jerk to that person because of their autistic traits is no different than being a jerk to a person because their voice is raspy, or their hair is blonde, or their skin has blemishes. If you find those traits off-putting, you have the right to do so — but that is your problem, not the other person's, and you don't have the right to make it their problem.
Don't compare mere awkwardness to autism.
This is another thing you'll hear all the time when you're on the autism spectrum: Someone will say, "Oh, I get what it's like. I'm also awkward in social situations!"
Not the same thing. Not even close.
The analogy I use is that this argument is like someone who is clumsy comparing themselves to someone who has a disability in both their legs. Neurotypicals often assume that they can understand what it's like to not be neurotypical because of situations where they have been misunderstood, felt awkward or been bullied. While those situations are unpleasant or worse for those who aren't on the spectrum, they are not even remotely comparable to being systematically mistreated because of an invisible condition which directly impairs your social functioning ability. These are not the same thing, and arguing otherwise is offensive and stupid.
Get rid of the idea that you shouldn't have to accommodate someone else's autism because "that's just not how the world works."
The aforementioned assumption is more than just a flawed opinion; it is a philosophy that underpins a lot of discriminatory behavior. People decide that, because it is normal to not behave like an autistic person, that means it's "right" to not behave like an autistic person.
Yet being on the spectrum isn't the same thing as being a murderer or a thief or a pyromaniac — that is, it isn't something which, by its very nature, makes it impossible for you to coexist with other people
Accommodating autistic people is as simple as (a) being nice to people who are different and (b) expressing yourself in clear, direct and polite language if they say or do something you find upsetting.
That's it! It's really just that easy! No further elaboration required.
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Professionally Identified and joined WP August 26, 2013
DSM 5: Autism Spectrum Disorder, DSM IV: Aspergers Moderate Severity
“My autism is not a superpower. It also isn’t some kind of god-forsaken, endless fountain of suffering inflicted on my family. It’s just part of who I am as a person”. - Sara Luterman
CockneyRebel
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Dan82
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To preface my comments, I don't like the way the neurotypical guy responded and if it were up to me, he wouldn't that way.
BUT
It's generally bad policy to focus purely on what other people should do differently to benefit yourself. I'm sure I'm not going to win any points with autism rights types when I say I think there are corresponding autistic responsibilities. I'm not sure how I treat the high-functioning/low-functioning divide, like there are clearly people what I'm going to say isn't the case for, but I think a lot of autistic miscommunications like the one the guy had could be avoided if one were to avoid certain cognitive errors, i.e. false beliefs, etc.
I'd say that the idea that you're an equal in the command of social situations, which is where autistics are at a distinct disadvantage, kind of in the definition of autism, is a false belief. It's like saying someone who's colorblind is an equal in painting. (Yes, I think they should be able to paint, but interest in their paintings is kind of a niche thing.) It leads you to believe you can talk at length about your own interests and opinions when you know full well that, fundamentally, you're unable to ascertain whether other people want to talk about those things.
Why would you talk about these things at length, when someone's doing you the favor of giving you a ride no less, if you don't know that's what they want?
Someone doing that is the neurotypical version of an autistic person having sensory issues. I'm not going to hold it against the guy any more than I hold autistic people having meltdowns about sensory issues against them. I wish they wouldn't do it, but if the people involved took care and considered another person's needs, they could help prevent it from happening.
I'm sure this is a bizarre turn in subject matter, but there's a James Brown song where he starts the song telling his band what he wants to sing about and asks them if he can "count it off," beginning the song they're going to play. That's where I was totally serendipitiously introduced to the idea of overtly asking permission for social interaction. Like, if I'd never heard that song, I don't know if I ever would've come up with the idea, but my social language is peppered with me asking people if it's okay if I talk about this, if it's okay if I talk about that. When I sense something is going to be controversial or take some kind of effort on their part, I ask permission, and if they say no, I just play it off like, "Aw!", because I'm in no position to demand their time, energy, attention, validation, etc. just because I'm autistic and at a disadvantage due to my medical disability.
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Dan82
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Is that a good thing or a bad thing?
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Why don't YOU walk it?! Why don't YOU walk to Gun'ersville?!
PS You can visit my "Getting to know each other" page!
Having been ear assaulted after a 75 minute non stop monologue of my Aspie relative, I can really related to STFU FFS of the NT.
I found out later the monologue isn't really communicating for my benefit, but more verbal mental gymnastics for the speaker. He could have talked to a wall, and actually a wall would have been better. Questions were not welcomed. Any attempted of an question aggravated him. His logic cascade in his head was disrupted. Now he had to go back several paragraphs, rehash them and move forward.
So now, I just tune out at the information dumps after 15 minutes. Most people struggle with active listening after 15 minutes. If this relative is going on 25 minutes, the conservation isn't for my benefit. It's for him. I practice my mindfulness breathing, and tune him out as back ground noise (sorry).
I won't ever tell anyone to shut up to their face, but none can force me to actively listen when the speaker is in TED talk mode, and it's a one way conversation. Very few people are that fascinating.
If your disorder means you need that space to talk, fine. My anxiety rises after 30 minutes of nonstop talking, where I'm held hostage by not being welcomed to jump into the conversation. Then, for my sanity I'm turning you out.
Not all conversations morph into monologues with him. The monologues come out when his anxiety is bad.
CockneyRebel
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