Board index › General Discussion › Autism Politics, Activism, and Media Representation

Autism Family Vloggers

Page 1 of 1 [ 12 posts ] 

Previous topic | Next topic

d057
Veteran
Veteran

User avatar

Joined: 26 Nov 2008
Age: 32
Gender: Male
Posts: 515
Location: Pittsburgh, PA

03 Aug 2019, 10:03 pm

I have noticed there are a lot of Autism family vlogs on YouTube. Fathering Autism in Florida and The Chapman Family in England are just a few of them. I will reserve my judgment about them considering I don't know them personally. However, I have wondered what people on this website think about these Autism family vlogs. I figured it would get a wide range of answers.


_________________
Living my life one day at a time.


Mona Pereth
Veteran
Veteran

Joined: 11 Sep 2018
Gender: Female
Posts: 8,469
Location: New York City (Queens)

04 Aug 2019, 12:24 am

I have mixed feelings. On the one hand, I'm sure these videos can be of great comfort to other parents of severely disabled autistic children. On the other hand, if these kids ever develop enough to understand what YouTube is, they might feel that their privacy has been violated big time.

Also, some YouTube "autism parents" are better-informed than others. Some of them promote harmful misinfo such as anti-vax claims.

For some concerns by autistic rights activists about some of the more public "autism parents," see:

- On Digital Exhibitionism By Autism Parents: Why Parents Live Tweeting Their Disabled Children's Worst Moments Is Red Flag That Should Concern Everyone
- 16 MUST SEE Memes That Nail What It’s Like To Have an “Autism Parent”


_________________
- Autistic in NYC - Resources and new ideas for the autistic adult community in the New York City metro area.
- Autistic peer-led groups (via text-based chat, currently) led or facilitated by members of the Autistic Peer Leadership Group.


Magna
Veteran
Veteran

User avatar

Joined: 21 Jun 2018
Gender: Male
Posts: 6,932

04 Aug 2019, 12:45 am

Mona Pereth wrote:
16 MUST SEE Memes That Nail What It’s Like To Have an “Autism Parent”



WOW!! !!

Sad, hilarious and brilliant all at the same time! I could see having a T-shirt made for each of those 16 memes and wearing them.



d057
Veteran
Veteran

User avatar

Joined: 26 Nov 2008
Age: 32
Gender: Male
Posts: 515
Location: Pittsburgh, PA

04 Aug 2019, 2:23 pm

The only two Autism Parenting channels I have watched are The Chapman Family and FatheringAutism. They both seem like good people and more informed than some of the other blogs I've heard mentioned before. They seem to genuinely want what is best for their children and don't promote things like the anti vaccine agenda.


_________________
Living my life one day at a time.


ASPartOfMe
Veteran
Veteran

User avatar

Joined: 25 Aug 2013
Age: 67
Gender: Male
Posts: 36,690
Location: Long Island, New York

04 Aug 2019, 6:12 pm

Autism aside I think parents these days too often violate their kid's privacy and use them to make statements. I know, lost cause on my part.


_________________
Professionally Identified and joined WP August 26, 2013
DSM 5: Autism Spectrum Disorder, DSM IV: Aspergers Moderate Severity

“My autism is not a superpower. It also isn’t some kind of god-forsaken, endless fountain of suffering inflicted on my family. It’s just part of who I am as a person”. - Sara Luterman


d057
Veteran
Veteran

User avatar

Joined: 26 Nov 2008
Age: 32
Gender: Male
Posts: 515
Location: Pittsburgh, PA

04 Aug 2019, 6:30 pm

The potty training pictures?

ASPartOfMe wrote:
Autism aside I think parents these days too often violate their kid's privacy and use them to make statements. I know, lost cause on my part.


_________________
Living my life one day at a time.


Zakatar
Veteran
Veteran

User avatar

Joined: 2 May 2019
Age: 28
Gender: Male
Posts: 682
Location: Mid-Atlantic USA

05 Aug 2019, 5:54 pm

Magna wrote:
Mona Pereth wrote:
16 MUST SEE Memes That Nail What It’s Like To Have an “Autism Parent”



WOW!! ! !

Sad, hilarious and brilliant all at the same time! I could see having a T-shirt made for each of those 16 memes and wearing them.


WOW. I'm happy my parents were never like these memes.


_________________
When anti-vaxxers get in my face, I say ... Have a Nice Day!

#palestinianlivesmatter


d057
Veteran
Veteran

User avatar

Joined: 26 Nov 2008
Age: 32
Gender: Male
Posts: 515
Location: Pittsburgh, PA

05 Aug 2019, 8:21 pm

Yes, there are some aspects of a child's Autism that just shouldn't be publicly discussed in the way that some of these parenting bloggers do. Some Autism advocates say they shouldn't be publicly discussed at all. Toilet training is one of those subjects.

Zakatar wrote:
Magna wrote:
Mona Pereth wrote:
16 MUST SEE Memes That Nail What It’s Like To Have an “Autism Parent”



WOW!! ! !

Sad, hilarious and brilliant all at the same time! I could see having a T-shirt made for each of those 16 memes and wearing them.


WOW. I'm happy my parents were never like these memes.


_________________
Living my life one day at a time.


Last edited by d057 on 05 Aug 2019, 8:39 pm, edited 1 time in total.

inkgirl
Blue Jay
Blue Jay

Joined: 12 Sep 2018
Gender: Female
Posts: 76
Location: United States, VA

05 Aug 2019, 8:27 pm

I'm subscribed to Fathering Autism, and I find them to be informational, while still respecting their autistic daughter (she has "low-functioning" non-verbal autism). One thing they said that really earned my respect was that they don't do stim-suppression. They do ABA therapy to teach their daughter life skills, which, in my opinion, is a good thing. They don't use it to try to make her look "normal", but rather to improve her quality of life.

Overall, Fathering Autism is a down-to-earth, good channel, with quality videos.



kraftiekortie
Veteran
Veteran

Joined: 4 Feb 2014
Gender: Male
Posts: 87,510
Location: Queens, NYC

05 Aug 2019, 8:35 pm

I like "Fathering autism."

Abigail is a trip! She really has quite the personality!



d057
Veteran
Veteran

User avatar

Joined: 26 Nov 2008
Age: 32
Gender: Male
Posts: 515
Location: Pittsburgh, PA

06 Aug 2019, 12:01 pm

kraftiekortie wrote:
I like "Fathering autism."

Abigail is a trip! She really has quite the personality!


Yes, Abigail does have quite the personality. I love that Pricilla and Asa are direct when Abby misbehaves. However, they don't remain angry at her. Staying angry at your child is only going to want the child to do their disruptive sensory seeking behaviors more.


_________________
Living my life one day at a time.


d057
Veteran
Veteran

User avatar

Joined: 26 Nov 2008
Age: 32
Gender: Male
Posts: 515
Location: Pittsburgh, PA

07 Aug 2019, 9:09 pm

I find the whole "quiet hands" thing to be BS!

inkgirl wrote:
I'm subscribed to Fathering Autism, and I find them to be informational, while still respecting their autistic daughter (she has "low-functioning" non-verbal autism). One thing they said that really earned my respect was that they don't do stim-suppression. They do ABA therapy to teach their daughter life skills, which, in my opinion, is a good thing. They don't use it to try to make her look "normal", but rather to improve her quality of life.

Overall, Fathering Autism is a down-to-earth, good channel, with quality videos.


_________________
Living my life one day at a time.