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pezar
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01 Jun 2008, 6:42 pm

http://www.autismspeaks.org/community/f ... php?t=7093

And while we're at it, let's form a union for autistic persons so that we have an organized way of letting NT parents and the quacks who prey on them know that we do NOT want to be "cured" and that autism is not a disease. We need to organize so that the dire predictions of genocide and aspie-NT war do not occur.



slowmutant
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01 Jun 2008, 9:44 pm

Genocide and war aren't really worthwhile topics. Besides, don't we already have agencies for autistic persons? If you want total control over something, keep dreaming. Cooperation with all kinds of people is necessary in this world.



pakled
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01 Jun 2008, 10:04 pm

how would we go on strike?...;)

Maybe if you formed a lobbying group (besides Autism Barks Orders...;), that would be more effective. Whatever you call it, organized action can help.



KenG
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02 Jun 2008, 7:48 am

pezar wrote:
let's form a union for autistic persons
We already have two of them -
Autism Network International (ANI): http://ani.autistics.org/
The Autistic Self Advocacy Network (ASAN): http://www.autisticadvocacy.org/


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CockneyRebel
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02 Jun 2008, 10:47 pm

We should start our own organization called, We Speak For Ourselves. We can feature videos of WP members at work, or in their community. We can also feature articles, stories, information about our special interests and artwork.


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slowmutant
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02 Jun 2008, 10:56 pm

Wouldn't that be redundant, with the Self-Advoacy Network and all?



CockneyRebel
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02 Jun 2008, 11:14 pm

slowmutant wrote:
Wouldn't that be redundant, with the Self-Advoacy Network and all?


You do have a very good point.


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Semi_Lost_Serenity
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03 Jun 2008, 10:25 am

I don't really think a union would help.

What is needed is more funding and legislation to help adults with a disability, period. I think the federal government are the only ones who actually comply with the ADA law. Other companies mostly just run over it, oblivious to the law (or, even worse, just simply not caring).

It's not so much about "Don't cure me" than it is "Educate the world so that the damn draw bridge comes does already", meaning more supports for those transitioning from high school to the adult world (re: employment, college, relationships, managing one's health, general overall lifeskills) and educating people (which is easier typed than done!).

Autistic adults are in the shadows when it comes to support and resources are far and between. Worrying about a cure for autism will not help those living in the shadow to come out of hiding. Instead, it may force them even deeper into hiding their autism because they want to avoid any controversy at all! I hate the ideas and connotations people attach to the word "disability" more so than I detest the connotations associated with autism. Meaning, I don't like the pity and I don't like the head pats. I'm out in the open and if that means you won't hire me because I have a disability, well pity on you!

You almost have to go the round-about way before people will even get the message. You cannot go in with horns blasting. That will just only create more chaos and confusion. Best to slightly nudge people into the idea or otherwise you have nothing at all.

Just my two cents.


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slowmutant
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03 Jun 2008, 12:02 pm

I think you are more interested in pissing and moaning then helping the autism cause. No one wants to listen to this.



The_Cucumber
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03 Jun 2008, 6:14 pm

There's about a half-dozen neruodiversity non-profit groups out there, most of which are self advocacy.

The organizations are already here, what we need is not for them to exist (since they already do) we need them to get more press coverage.


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04 Jun 2008, 7:48 pm

I agree with a union. Lots of people want to put themselves in charge of us, I do not want to be part of Neurodiversity, or have a self elected world or national leader of the Autistic speak, claiming to be for me, I can speak my own words.

They speak for me as much as Autism has Spoken, or Tony Attwood.

They don't get any press because they have done nothing but form an organization and put themselves in charge of the whole world. :roll:

I will stick with the Wrong Planet Union, messy, but real.