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Anastasia
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19 Jul 2010, 11:54 pm

and have you ever managed to stay on this awful boring diet?? :evil:

I'm starting to think I've had this since HS but antibiotics and prednisone i took last year plus stress seems to have made it worse, I am going nuts here :wall:


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hale_bopp
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20 Jul 2010, 12:03 am

you can get herbal detoxes or stuff or anti fungals from the doctor.

Try not to eat sugar - it feeds it. Also some sanitary pads can cause it. Always take probiotics with anti biotics.



Anastasia
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20 Jul 2010, 7:25 am

The stuff from the Dr I havent tried yet. Its called umm something that starts with an N?? cant remember the name of it. Its so hard to avoid sugar as its in almost everything! You really need to just start fom scratch with this diet. I managed to stick to it for a whole 2 days and then caved.


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20 Jul 2010, 7:56 am

ugh, im sorry... how long do you have to stay on it? is it just for treatment or indefinitely?


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Anastasia
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20 Jul 2010, 8:03 am

omg, YOU KNOW WHAT, oops I'm not sure how long I'm meant to stay on it. The Dr never said but I dont think its indefinitely.

I always thought candida was linked with having vaginal yeast infections which i dont have at all, I just have every single other symptom of it.


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pezar
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20 Jul 2010, 9:40 am

I have it, have likely had it since my early 20s (I'm 35). A WP member pointed me to a drug called Nystatin, so I asked my doctor for it. It really works, but the doctor wants to see me again next month to renew the script, and the pharmacy gave me a little tiny bottle of it so I have to conserve (it's a liquid). You also have to follow the diet, but I allow myself a little bit of wheat, just not leavened. You might want to eat matzos or some types of crackers. You can't eat anything that's leavened, like bread.



Anastasia
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20 Jul 2010, 9:59 am

yes, the diet is brutal. Have you heard of Threelac? I actually ordered some from NZ and tried it for a week, but OMG I dont know whether it was die off or not but I had the worse most excruiating abdominal pains ever with it and theres no way I'm taking it again. Ive been drinking heaps of water trying to get the stuff out of me. Some peeps say its great while others say it made them really really sick.

I heard Mountain bread was okay to eat but i just love my chocolate and chips.


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20 Jul 2010, 1:36 pm

I've had actual candida. As in, specific localized infections that can be diagnosed by biopsy from a regular hospital, rather than the bogus diagnosis of "systemic candida" (which I've also been misdiagnosed with) which really only occurs in extremely immunosuppressed people, but which quack doctors like to diagnose everybody with (especially autistic people, people with CFS, and people with other incurable conditions) and then put them on a diet that doesn't even work for real systemic candida in, say, AIDS patients. For actual specific candida infections, you use antifungals, not diet.

I've had vaginal, under-breast-skin-fold, oral, and esophageal candida infections. All of them respond to drugs, not to diets. I was misdiagnosed with systemic candida by a quack doctor who put me on a ridiculous diet for it. What he really did, was measure the candida that existed in my body that exists in everyone's body, and then claim that meant I had systemic candida, rather than meaning I had a regular body with a regular amount of candida (which is normal). That's a trick that quack doctors use to convince people that an "objective" test shows they have systemic candida. Unless you've got AIDS, or are on high doses of immunosuppressant drugs, or have another obvious immune deficiency, or cancer, or something, you don't have systemic candida, and even if you did, diet isn't the answer. (But quacks will also diagnose "immune disorders" that don't exist, so watch out for that. If you have a severe immune deficiency, you will know, by other extremely serious medical problems, that are easily diagnosed by regular doctors, and systemic candida from that can be life-threatening rather than causing stuff that's obnoxious but not potentially fatal.)

So no, I didn't stay on the diet longer than it took me to work out that this was quackery and not a real treatment for a real condition. I did have serious health problems, but they were not caused by systemic candida, which I did not have. The doctor I saw was actually ignoring the serious health problems in order to diagnose his own purported conditions that didn't actually exist, in order to push his own treatments and make money from me going back to see him. He put pressure on me by telling me I'd never get better if I didn't do what he wanted, and he convinced my family the same so when I wanted to go off of his treatments, they kept telling me it meant I didn't want to get better. Reality was I had other complex health issues that were better treated by getting them diagnosed by a real doctor and treated in fairly conventional ways. This treatment was delayed and damage was done to my body by staying with this guy's treatments. So I went off the diet and nothing changed other than me getting better nutrition by not having to restrict my diet so much, so I got healthier.


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Apple_in_my_Eye
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20 Jul 2010, 2:02 pm

Add my vote to the "quack BS" of side this "systemic candida" issue. About all the treatment for that did was empty my wallet at an impressive pace. I cut the carbs, did the nystatin, fluconazole (at $300/mo), and a lot of other things, but drew a line at the $1500's worth of rice-based gruel I was supposed to eat for 6 months (which wasn't billable to insurance).

I did find I had some food "sensitivites," so cutting some foods out did help, but the candida specific stuff didn't change anything.



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20 Jul 2010, 3:19 pm

I should also add that people with real systemic candida have died because of using the diet rather than real treatments. The diet didn't do anything. (And real systemic candida is a health emergency, rather than normal or even urgent.)

(And ironically I'm at the doctor right now and just got told I have oral candida again. Back to the Nystatin mouthwash. Yuck.)


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20 Jul 2010, 4:02 pm

I dunno, I think there may be something to intestinal yeast/candida, since I tried to lose weight by all other means and when I tried the "herbal treatments" I actually lost weight. Now that I'm on Nystatin I've lost more weight, and I regularly expel yeast in my bowel movements while on it. I have oral candida too, BTW. I do think that if one has a misbalance of intestinal flora, and one eats lots of yeast containing foods, especially fast food which contains all sorts of nasty junk and which I ate daily for many years, one can get a growth of intestinal yeast. There are plenty of quack docs promoting weird diets for autism, I'm not talking about that, and I don't expect any sort of "autism cure" from this. I do expect improved digestion and weight loss.



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20 Jul 2010, 4:19 pm

ive had a couple bouts of candida, but mine has always been while breastfeeding. its commonly called thrush when found in nursing mothers/babies. i did get a really bad case at one point where every nursing session felt like knives being plunged through my breasts. that was not fun nursing every two hours.

what worked for me was using grapefruit seed extract (NOT grape seed, but grapefruit seed). it can be used topically if you have breast or vaginal yeast infection, and taken orally also to fight internal infections. you can find it at health food stores or places like GNC.



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20 Jul 2010, 4:31 pm

Intestinal candida is different from systemic candida.

Yeast in food is not the same as yeast in yeast infections, it's a common misconception though.


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20 Jul 2010, 4:46 pm

hmm not sure. Choccy and chips are pretty bad. Just try and cut out as much refined sugar as you can I guess.. you can get herbs called "yeast/fungal detox" and also the doctor has heaps of different treatments



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20 Jul 2010, 5:42 pm

My co worker got thrush one time and they gave him something called a mycelex troche it was like a lozenge he had to suck on every couple of hours and it workd pretty good.


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20 Jul 2010, 9:04 pm

I have never tried that diet. I got a terrible vaginal yeast infection when I was twelve (the worst the gynecologist had ever seen) from getting six weeks of very powerful intravenous antibiotics without taking any probiotics, but it cleared right up with medication.


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