Swelling of the head

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I wa wondering if anyone else on the spectrum has dealt with their head swelling. I have dealt with it a lot. I have physically see my head change shape. Looking in the mirror and seeing that my head is very round and I have none of the creases I know I have. And other time look and see my as if it use vacuum sucked, that my is right on my skull and I can see the creases in my skull. It is very weird to say the least. When it is full my autism symptoms get worse. No one seems to know what is up. I feel like I am losing it. This last time, in fact I am dealing with it as I am writing this, I have dealt with my senses freaking out. Weird visuals like feeling as if my eyes are when they are closed and sounds being off the scales. I was eating a Kind brand bar and it sound like I had fingers in my ear while I was chewing. Really makes it hard to function. Just want it to quit!
Thank for letting me get this out.

I have. Most just look at me weird. I don't think they understand it anymore than I do. Not as much out there as they want people to think there is especially if you are an adult with asd. I just keep pushing forward. Try and analysis my thoughts cognitively trying to use my good traits against my bad. Including venting here. Thanks for the reply.

Forgot to mention I am going to bring it up at my next neuro visit. I have a follow up in June.

Chronic migraines. They really cause some of the swelling. The autism and most importantly my sensory processing disorder. The SPD causes me to be very sensitive to swelling, barometric pressure, and all that.
My original post was me under do stress and asd. I am now coming out of it.

Thank you for the support of this forum.

That sounds really hard to deal with! I hope you're feeling better today.

Thank you. Slowly getting there. These back slides if autism really can be a pain.

Thank you for asking.

Try using the term "facial edema" when you see the doctor. It means swelling of the head in the area of the face, but using this term should motivate your doctor to do some actual thinking about what's going on with you.

Because this type of swelling can indicate serious issues, such as massive allergic reactions (to food, or medicine, especially), and it should not be brushed aside.

If you can tolerate diphenhydramine (brand name is Benadryl) oral, it may help with this while you're waiting to see the doc. And if it *does* help, definitely tell the doc about that too, because it's an antihistamine, and that just adds weight to the *TAKE IT SERIOUSLY, PLEASE!* issue.

Good luck...

No. It is not a massive allergic reaction. That I am sure of. I have had this before. It is linked to my migraines and to my sensitivities to the barometric changes. I have tried allergy stuff before with no effect. That was before I realized I had migraines. So far my current neuro has pretty good. I am still going to make a point to tell the doc of the swollen feeling. Like my head is a balloon. I am sure she will listen. Thank you for the concern.

Have you tried any beta-blockers like Inderal/Propranolol They're sometimes used to help prevent migraines & can help with stress & a few people on here said they helped with their sensory issues.

Meds don't work well on me. Right now I am waiting for my Cefaly device. It treats migraine. I tried it in the doctor's office and really liked it. The tension of my trigeminal nerve causes a lot of swelling in my temples. Migraines cause a lot of weird stuff. My doctor is weeding things out. She told me that all weird symptoms to just think migraines. After my migraines get in better control anything else we will work on them one at a time. She has been right so far so i am going with her advice.

Good luck, then. I've had migraines myself since age 9, but you're dealing with challenges that make my three day status migrainosus attacks look like a walk in the park.

Over and out

Thank you.
It turns out I might have them from a really young age too, but wasn't diagnosed until late. I am sure that this what complicated things.

Have you had alice in wonderland syndrome with your migraines?