Open Study - Amazon Voucher

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Dear All,

I initially posted a study that required participants to contact me prior to taking part in a online study. My supervisors and I discussed that this wasn't the best approach and have therefore decided to make the study open, that is, you can go directly to the study would out needing to contact me. The study can be completed all online and successful completion of the study will allow participants to be sent a £5.00 Electronic Amazon Voucher (GBP only)., As this is a UK based study, unfortunately, I can only provide pounds and not dollars. However, you are still welcome to take part in the study regardless of your nationality, but remember I can not send anything other than an electronic voucher of £5.00. Vouchers will be e-mailed to all participants no later than May 1st 2014 (although I am hoping by the end of March 2014)

The study has received full ethical approval and all contact details and relevant information can be observed in the Consent and Information Page. Predominantly we are only interested in participants who have formally received a diagnosis of the following:

Major Depression
Bipolar Affective Disorder
Schizophrenia (This can encompass of Schizoaffective disorder, Delusional Disorder and Psychotic Disorder Not Otherwise Specified)

We are also interested in anyone who has received a diagnosis of Schizotypal Personality Disorder.

When we refer to formal diagnosis we are referring to the period when you received an official diagnosis from a qualified mental health practitioner. This may have been your local general practitioner, a Psychiatrist, Psychologist or some other qualified physician.

You will be asked questions about (Diagnosis, Status: historic or current diagnosis, Medication, Hospitalizations etc.)

the following study can be found at: (Please add the appropriate format)

survey . bath . ac .uk / project3

An awful lot of people reading this have ASD is that what you are looking for? Just curious why you'd look for subjects at Wrong Planet. Would be great if the question is about the experience or treatment needs of this with ASD who have also received other diagnoses, though. So little seems known.

Out of interest have you asked Alex if it is OK for you to try to recruit test subjects here on wrong planet.

I hold the view that the wrong planet in some ways is a virtual nation, and that we should create our ethics body to further vet any researcher who wants to recruit members here.

I would be willing (subject to some conditions) to help out with such an ethics board.

_________________
Health is a state of physical, mental and social wellbeing and not merely the absence of disease or infirmity I am not a jigsaw, I am a free man !

Diagnosed under the DSM5 rules with autism spectrum disorder, under DSM4 psychologist said would have been AS (299.80) but I suspect that I am somewhere between 299.80 and 299.00 (Autism) under DSM4.

And how can I participate? There is no link and nothing.

Hi All,

Thank you so far for the people who have participated.

Waterfalls - There is a high co-morbidity with people who have an ASC (I prefer the term 'condition' rather than disorder) and other "disorders" such as Anxiety and Depression etc. In some cases, there is evidence to suggest that individuals with an ASC experience various degrees of psychosis, however, it has been suggested that these conditions are phenomenologically different to people who experience psychosis who do not have an ASC. Therefore, I feel it would be advantageous to study all different types of people. Therefore, the study is actively recruiting people who have some form of Psychotic Spectrum Condition, but such conditions have also been found to co-inside with ASC, consequently this suggests that people with ASC and a PSC would be a very interesting group to study.

I definitely agree with your point about the need to further our understanding of ASC. I am most captivated by how people with ASC make decisions. I understand for some people with ASC can find the process very stressful? I have also observed people with ASC to be able to reason it what appears a more 'logical' manner than people without ASC. In some cases the opposite is observed in people with PSC, they appear to reason more 'intuitively'.

Woodpecker - I did contact Alex several weeks ago, and unfortunately I have heard nothing back. I advertise the study on the condition that I have full ethical approval from my selected University and I am completely open about the contents of the study. Therefore, if anyone has any questions or concerns about the study or wants further or more comprehensive information about the study they are welcome to contact me at any time at: [email protected], I offer full disclosure. I second the motion of an ethics board for the community, that sounds like a good idea. If the majority of the forum feels that the studies are not appropriate for the Forum, then I will happily retract the posts and not post any more in the future.


Raziel - I can't seem to post web addresses so please type in the usual www followed by survey . bath . ac .uk / project3 (Without the spaces of course)

Thank you all for your input. It is much appreciated.

Yes, a lot of us are very logical. I think normal people get lost because of that combination of analyzing everything in detail with having the emotional control sometimes of a two-year-old. And can even think of it as psychotic because it seems so foreign.

IMO thinking and controlling emotions are different, and it's hard when you have trouble even identifying what you feel. I can think even when I'm overwhelmed. But I can't think my way out of feeling bad. I can think my way to understand the situation. I can think my way to understanding others possible motives. And that might appear to be psychotic. But it is not.

You've given me something valuable. I had no idea how people did this before. But I think that alexithymia combined with learned skills of thinking through social interactions probably seems crazy to some people. So thank you.

That is what you were getting at?

Hi Waterfalls,

Thank you ever so much for sharing, it is always so valuable to learn from people rather than dependent on constricted questionnaires or bog standard textbook descriptions (Which is unfortunately the way many pieces of research work).

I do firmly believe that 'Psychosis' in autism is completely different to elements of psychosis in disorders such as Bipolar and Schizophrenia. Like you have suggested, the combination of alexithymia and other social interactions can be objectively seen as different, perhaps, like you say, crazy to some people.

There is this one theory that suggests that Autistic and Psychotic Spectrum Conditions are diametrically opposite to one another... A lot of people have criticised such a theory and suggested that this is 'impossible' because people with Aspergers or high functioning autism exhibit persecutory ideation and paranoid beliefs, suggesting such disorders overlap with psychosis. I personally believe (and set out to support) the diametric model, I believe the experiences of psychosis in autism just presents 'superficially' as psychosis, but the underlying cognitive mechanisms (learned skills of thinking etc) can actually explain the presented 'psychotic-like' behaviour.

Thanks for your insight.

Much appreciated.

Thank you I'm so glad when I make sense and am understood. Appreciate your thoughts and ideas.