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happydorkgirl
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05 Jan 2012, 2:09 pm

Had a doc appt yesterday. We've decided to try switching to 40mg generic Celexa from 40mg Lexapro while waiting for a (late) delivery of the latter from their patient assistance program. I'm kind of nervous; Lexapro is what took away most of the suicidal stuff and I do NOT want to go back there again. I just got stable and am now learning how to do basic life skills.



Awkwardphase
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06 Jan 2012, 5:14 am

Hello, has anyone else felt that sodium valproate made them feel stupid? I cant think properly since i starting taking it, i already tried to stop taking it but in 3 days i was pacing an very agitated so i restarted.
I have read that everyone here seems to have the same opinion on anti-psychotics, i hate them too. I have been on olanzapine, seroquel and risperadal and refuse to take one ever again.
I am currently taking sodium valproate 2100mg, rivotril 1.5mg, temazepam 10mg, catapress 100mg, and ciradian 2mg, for now i prefer struggling to sleep to stay antipsychotic free.
Also my doctor said i have trouble with my levels when testing my blood and it is because of my metabolism and a gene called cyp2c19. He pointed out that previous doctors noted they had the same problem when i was on trycyclics and citalipram many years ago. There is lots of mentioning on metabolism problems with autism has anyone else had this problem with meds showing inconsistent blood levels?



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06 Jan 2012, 9:39 am

Awkwardphase wrote:
There is lots of mentioning on metabolism problems with autism has anyone else had this problem with meds showing inconsistent blood levels?

I do that's why I still haven't found the right meds yet. I have IBS and malnutrition in general which is absolutely just awful. I feel tired and weak without meds let alone with them. I can barely cope as it is. I also noticed it affects my ability to drink alcohol.


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sunshower
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06 Jan 2012, 6:18 pm

Awkwardphase wrote:
Hello, has anyone else felt that sodium valproate made them feel stupid? I cant think properly since i starting taking it, i already tried to stop taking it but in 3 days i was pacing an very agitated so i restarted.
I have read that everyone here seems to have the same opinion on anti-psychotics, i hate them too. I have been on olanzapine, seroquel and risperadal and refuse to take one ever again.
I am currently taking sodium valproate 2100mg, rivotril 1.5mg, temazepam 10mg, catapress 100mg, and ciradian 2mg, for now i prefer struggling to sleep to stay antipsychotic free.
Also my doctor said i have trouble with my levels when testing my blood and it is because of my metabolism and a gene called cyp2c19. He pointed out that previous doctors noted they had the same problem when i was on trycyclics and citalipram many years ago. There is lots of mentioning on metabolism problems with autism has anyone else had this problem with meds showing inconsistent blood levels?


It may be the amount of Sodium Valproate you're taking. I take it too (Epilim) and haven't noticed that, but I only take 900mg.


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sunshower
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06 Jan 2012, 6:24 pm

Hal420 wrote:
News from Hal:

I saw my shrink on the 2nd. Before the appointment I wrote him 5 pages about the current situation. I always do that to avoid misinterpretation. He was reading my report somehow more serious then he usually does which made me nervous and playing with my iPhone.

Well the result was a prescription for Flunitrazepam, some may now it under the name Rohypnol. His opinion is that we need to restore my sleeping pattern before I can start the withdraw from Benzodiazepines. Here in Germany Flunitrazepam is only prescribed on a special narcotic receipt so it is really the last choice and only used in extreme cases of insomnia.

This really told me where I am and what is coming up for me in the next couple of weeks. I still take my 0.5 mg Alprazolam at the evening against the anxiety and on the first two days with Flunitrazepam I needed 2 mg to maintain sleep. I took 1 mg and woke up after 3 hours and was awake like hell. No way I could go back to sleep.

Primarily this is all the result from the antipsychotic withdraw but after trying for two months there was simply no other option to use Zyprexa, cause a depression and then stop from 100 to 0. I tried so often to withdraw with not sleeping for 2-3 days but see what mess I caused.

My receptors are kind of weird and I was to autistic to tell my doctor about Zyprexa or Seroquel side effects. It took me 7 years to do it and now I'm dealing with the crap.

Benzodiazepines don't make me feel "relaxed" or "good" at all. I feel impaired and I can notice the same disquiet as I noticed in the antipsychotics but the cognitive functions are much better.

Flunitrazepam has bad image but for some people it is really life saving. I am glad my doctor is able to understand the situation, respects my autism and prescribes what is necessary.


Hi Hal!

I used to do that too - write pages and pages of tightly condensed script about my current situation, but I eventually gave up as none of the psychiatrists did more than skim it at best (reading it in full wouldn't fit into their allotted hour/30 minute session with me :/).

Sounds like the next few months will be tough, but hang in there. I agree with you that some meds have a bad rep - however, often it's because they are prescribed to people who don't require them, and should only be prescribed in extreme cases - like yours. Sleep is vital in treating bipolar (as I have learned) so I'm glad you're getting your insomnia sorted in whatever way necessary.

-

UPDATE ON MY SITUATION: I'm seeing my psychiatrist in two days (on Monday), and I'm hoping to discuss introducing a second type of medication with him, as although I am on Epilim it's not keeping me stable enough. In the last few days I've been in a pretty bad way, having many downswings where I've experienced complete disconnection (eventually resulting in sleep) where it's like my brain has become fragmented and my mind is retreating behind closed doors. I can forget where I am, or not hear what people are saying to me. It's like I've somehow lost grip on my consciousness while not being asleep.


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catlady2323
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06 Jan 2012, 8:50 pm

sunshower wrote:
Does anybody find when you're on a low you feel this really severe loneliness (moreso than normal) like you're in pieces and emotionally falling apart at the seams and the only way you can manage is if you can find somebody who can hold you together? Like almost in a literal sense, like somebody who will wrap their arms around you and somehow protect you to stop your mind from disintegrating? It seems stupid and weak, because normally I pride myself on holding it together alone.


Yes, yes, yes ! When I fall apart like this (which I only let myself do in private) it feels like just what you are describing, like I am falling to pieces and my mind is disintegrating. I crave someone to hold me tight and tell me it will be okay.

Unfortunately I don't have anyone like that in my life. Usually this happens the day after I have done something really fun with NT people. The sensory overload and stark contrast between their lives and mine just overwhelm me.

When this happens to me I drop what I am doing and concentrate on comforting myself. I have a weighted blanket (11lb. wrap) that I cover up with and then retreat into my favorite comforting music until I feel better. The weighted blanket has been a godsend in this regard. It really does feel like a hug. Music has always been able to comfort me in ways nothing else does, and recently I discovered that certain scents also calm me down. I have no clue why. Like peppermint, and certain scented candles.

I have also found for myself that taking a hot bath comforts me. Have no clue why, but it always makes me feel better, and I can sob in the bathtub while the water is running and no one can hear me.

If I am feeling a little better I can watch Avenue Q "It Sucks To Be Me" on youtube, and that almost always makes me laugh and feel better.

Being Aspie sometimes requires an unusual coping style. I no longer care what other people think, I do what works for me.


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lostmyself
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06 Jan 2012, 11:43 pm

catlady2323 wrote:
sunshower wrote:
Does anybody find when you're on a low you feel this really severe loneliness (moreso than normal) like you're in pieces and emotionally falling apart at the seams and the only way you can manage is if you can find somebody who can hold you together? Like almost in a literal sense, like somebody who will wrap their arms around you and somehow protect you to stop your mind from disintegrating? It seems stupid and weak, because normally I pride myself on holding it together alone.


Yes, yes, yes ! When I fall apart like this (which I only let myself do in private) it feels like just what you are describing, like I am falling to pieces and my mind is disintegrating. I crave someone to hold me tight and tell me it will be okay.

Unfortunately I don't have anyone like that in my life. Usually this happens the day after I have done something really fun with NT people. The sensory overload and stark contrast between their lives and mine just overwhelm me.

When this happens to me I drop what I am doing and concentrate on comforting myself. I have a weighted blanket (11lb. wrap) that I cover up with and then retreat into my favorite comforting music until I feel better. The weighted blanket has been a godsend in this regard. It really does feel like a hug. Music has always been able to comfort me in ways nothing else does, and recently I discovered that certain scents also calm me down. I have no clue why. Like peppermint, and certain scented candles.

I have also found for myself that taking a hot bath comforts me. Have no clue why, but it always makes me feel better, and I can sob in the bathtub while the water is running and no one can hear me.

If I am feeling a little better I can watch Avenue Q "It Sucks To Be Me" on youtube, and that almost always makes me laugh and feel better.

Being Aspie sometimes requires an unusual coping style. I no longer care what other people think, I do what works for me.


I feel like this both when I'm ecstatic and depressed. I cope by hugging people myself. When I can't find someone to hug I usually hug the pet. I like being hugged tight when I am high/low. My mother's sort of huggy so she hugs me if I go to her. I wish I wasn't dependent on anyone for hugs :(.



catlady2323
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06 Jan 2012, 11:55 pm

lostmyself wrote:
My mother's sort of huggy so she hugs me if I go to her. I wish I wasn't dependent on anyone for hugs :(.


Mom's are good for hugging. :)


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lostmyself
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07 Jan 2012, 12:00 am

catlady2323 wrote:
lostmyself wrote:
My mother's sort of huggy so she hugs me if I go to her. I wish I wasn't dependent on anyone for hugs :(.


Mom's are good for hugging. :)


Lol yes. I hate it though. My dad always scolding me for being very dependent on them when I'm depressed -- This depresses me further. Makes me feel pathetic.



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07 Jan 2012, 12:50 am

sunshower wrote:
I used to do that too - write pages and pages of tightly condensed script about my current situation, but I eventually gave up as none of the psychiatrists did more than skim it at best (reading it in full wouldn't fit into their allotted hour/30 minute session with me :/).

Same that's the most devastating part for me. My disability to be able to verbally to communicate, has compromised a lot of the treatment efforts I've received in the past. I've finally gained a support worker who understands my needs. I'm allowed to take him to psych appointments and have him advocate for me. It's taken forever to get to this point. I'm a lot more hopeful for my next appointment which is currently way to far away.
sunshower wrote:
In the last few days I've been in a pretty bad way, having many downswings where I've experienced complete disconnection (eventually resulting in sleep) where it's like my brain has become fragmented and my mind is retreating behind closed doors. I can forget where I am, or not hear what people are saying to me. It's like I've somehow lost grip on my consciousness while not being asleep.

That's what the last two months been like. I've been oversleeping barely energetic, forgetful, and depressed. Usually I can get absorbed into some kind of hobby and I often get all kinds of amazing and creative ideas, along with some insomnia. The last two months I've barely been able to think. I just slept, and when I was awake I was too unmotivated to get out of bed. I tried to do some creative stuff but it felt like I couldn't even figure out how to use a pencil. I couldn't picture anything in my head to draw at all. I'm starting to come out of it a little more but I feel like it's hard adjusting to doing things I normally did again. That kind of inconsistency in my routine really messes up my coping abilities for sensory overload and verbal communication too. Which has a domino effect affecting my ability to work and get things I need to look after myself properly. The worse my inability to look after myself is the more depressed I become and the closer I get to thinking of suicide.
Image
Good Grief the combination of Aspergers and mood/psychotic disorders would make a good instant kill combo in a Street figther game. It's amazing how we survive it constantly eh?


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qwan
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07 Jan 2012, 7:52 pm

TallyMan wrote:
TeaEarlGreyHot wrote:
TallyMan wrote:
Just chipping in and saying 'Hi'. I don't have bipolar but cyclothymia - its more gentle cousin so I can relate to what a number of people have said about bipolar in this forum. The main difference seems to be that I don't have any hallucinations or delusional thinking. There can be a small element of paranoia sometimes, but it isn't significant and I am usually aware when such thoughts enter my head and can generally dismiss them. The main area of common ground between cyclothymia and bipolar seems to be the swings in mood from high to low, sometimes with very little or no trigger. By mood swings I don't mean I'm a moody person - I dislike people who are friendly one time and hostile another, can't cope with people like that. I'm not a "moody person". What I personally mean by mood swings is more a matter of optimism / pessimism. I can be full of enthusiasm and loving life, dynamic and quite chatty; then suddenly I'm almost suicidally low, full of pessimism and getting no joy out of anything in life. The swings can sometimes occur several times a day, but generally last several days or even weeks in each cycle.

I don't generally take any medication but my doctor prescribed veratran clotiazepam as a mood stabiliser which seems to work quite quickly but also fades fairly quickly too. I'm trying to only take it now if I'm going into a down cycle. Is anyone else familiar with this drug?


This sounds like Bipolar type 2.


I'm no expert but I get the impression they are very similar; the main difference being that the bipolar highs and lows are generally more profound than with cyclothymia. They do appear to be on a continuum though.
People with cyclothymia can sometimes go on to develop bipolar type 2.

Image


I have been diagnosed with depression. And I think they were questioning the diagnosis of cyclothymia. (I found a drs letter implying they already diagnosed me with it, but hell if I remember).
I don't know the difference between the lot. =S I know my lows can get super sever. My highs are usually just bubbly for a while then really, really frustrating (and people think I have ADHD).

Haven't had a high in over 2 years though. =[

The image you put up (in here) implies those with cyclothymia don't get depressed.



catlady2323
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07 Jan 2012, 8:29 pm

lostmyself wrote:
catlady2323 wrote:
lostmyself wrote:
My mother's sort of huggy so she hugs me if I go to her. I wish I wasn't dependent on anyone for hugs :(.


Mom's are good for hugging. :)


Lol yes. I hate it though. My dad always scolding me for being very dependent on them when I'm depressed -- This depresses me further. Makes me feel pathetic.


Awwww I'm sure your Mom understands. It just takes us Aspie's a little longer to grow up ~ that's all.


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lostmyself
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07 Jan 2012, 10:12 pm

catlady2323 wrote:
lostmyself wrote:
catlady2323 wrote:
lostmyself wrote:
My mother's sort of huggy so she hugs me if I go to her. I wish I wasn't dependent on anyone for hugs :(.


Mom's are good for hugging. :)


Lol yes. I hate it though. My dad always scolding me for being very dependent on them when I'm depressed -- This depresses me further. Makes me feel pathetic.


Awwww I'm sure your Mom understands. It just takes us Aspie's a little longer to grow up ~ that's all.


:) thank you.

qwan wrote:
My highs are usually just bubbly for a while then really, really frustrating (and people think I have ADHD).


Now I doubt the credibility of my ADHD diagnosis. atleast if its not true I'll have one less thing to deal with.



lostmyself
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07 Jan 2012, 10:19 pm

So what does a flat phase feel like?

I'm usually chatty but I was feeling flat yesterday and kept quiet at an impt. dinner meeting. The ambiance and the music didn't help. I froze for quite sometime muttering to myself out of anxiety. I shut social life out for four months and only started socializing recently so it could have been a shock to go out for dinner after like months.



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08 Jan 2012, 2:10 am

Angel_ryan wrote:
That's what the last two months been like. I've been oversleeping barely energetic, forgetful, and depressed. Usually I can get absorbed into some kind of hobby and I often get all kinds of amazing and creative ideas, along with some insomnia. The last two months I've barely been able to think. I just slept, and when I was awake I was too unmotivated to get out of bed. I tried to do some creative stuff but it felt like I couldn't even figure out how to use a pencil. I couldn't picture anything in my head to draw at all. I'm starting to come out of it a little more but I feel like it's hard adjusting to doing things I normally did again. That kind of inconsistency in my routine really messes up my coping abilities for sensory overload and verbal communication too. Which has a domino effect affecting my ability to work and get things I need to look after myself properly.


This is exactly what I've been like for most of this year, except I also occasionally had these sudden unpredictable "bouts" of hypomania - lasting from 1-4 hours. The rest of the time I was in this state, and unable to get out of bed. I also experienced catatonia and complete "slowing down" when aside from just feeling completely unmotivated I actually became physically paralyzed and quite literally unable to move and sometimes even speak.

The thing is, I thought I had gotten past that stage and was improving.


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qwan
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08 Jan 2012, 3:09 pm

lostmyself wrote:
qwan wrote:
My highs are usually just bubbly for a while then really, really frustrating (and people think I have ADHD).


Now I doubt the credibility of my ADHD diagnosis. atleast if its not true I'll have one less thing to deal with.

It might depend on how you think. My mom said my thought processes seem more sped up than most people's but the hyperactivity isn't constant. If I'm not hyper, my fast thoughts can end up making me not talk at all because I'm not able to stick to one thing long enough. When I'm hyper I try to get through all of them at once.
Bipolar could mimic ADHD I guess, but you'd probably be looking for the more mental traits when not hyper. But yeah, it'd be nicer to have less labels as it'd be more manageable.

I think sometimes, just like with physical health, you have several problems, but when you find out the root cause of them, all the other things can go away when the main one is treated effectively. Perhaps it's the same with those with multiple diagnoses. It doesn't make the diagnosis any less real, but it does give you hope that some can be fully overcome and not just coped with.

lostmyself wrote:
So what does a flat phase feel like?

I'm usually chatty but I was feeling flat yesterday and kept quiet at an impt. dinner meeting. The ambiance and the music didn't help. I froze for quite sometime muttering to myself out of anxiety. I shut social life out for four months and only started socializing recently so it could have been a shock to go out for dinner after like months.

I think it could depend on the person, but I can give insight of my experiences I guess.
My flats don't have any hint of anxiety in the later stages. I just don't feel happy or sad, or stressed or relaxed. I feel like I'm in a deep sleep, and I don't know if anything is real. It's not nice.

I don't know, I find it hard to explain any mood/state I've been in when I'm no longer in it. >_<